Starting Chemo October 2009

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  • suz45
    suz45 Member Posts: 796
    edited October 2010
    And what was your breast doing in the garden?? Sealed
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  • feistybluegecko
    feistybluegecko Member Posts: 133
    edited October 2010

    It was hilarious!  Poor thing was out all night too ha ha ha!!  The climate would be great for growing new ones I am sure - tropical and humid.  I could try planting a boob tree! 

    This was my blog - an imaginary advert for missing boobie!  http://feistybluegeckofightsback.wordpress.com/2010/10/21/lost-and-found/ 

    Big hugs and no runaway boobs to you all

    xxx

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  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited October 2010

    You r 2 funny gecko!!!

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  • jeanl151
    jeanl151 Member Posts: 146
    edited October 2010

    Hi girls,

      Just checking in, reading all the posts, glad to see we all seem to be on a good path. I have had such strange feelings as the  cancer anniversaries are coming up. I keep reliving each event of last year. it is like an out of body feeling- I can't believe all that took place last year! weird!!

      I had my first mammo since diagnosis.  I had to take an Ativan just to get thru it.  I was a very nervous when they said I needed an ultrasound after the mammo.....buth phew all is fine.  I have had a fluid sack in my breast since radiation. It was softball size 6 months ago, now it is golfball size. The person that did my new mammo thought this was some type of tumor and wanted it further looked at!!!  At least she was being thorough, I can't be mad about that.

    Take care everyone, Jean 

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited October 2010

    Jean, great to see you back.  Just love hearing about all those clear mammos.

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  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited October 2010

    Dear Jean,

    I echo Michele's sentiment - good to hear about clear mammos.

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  • suz45
    suz45 Member Posts: 796
    edited October 2010

    Nice to hear all in clear! Lets keep it that way Laughing

    Too funny Gecko, Im going on vacation next week, I think Im gonna take my bikini top to stitches this weekend and have them sew liners in for my swim forms. Im not exactly in bikini shape but whatever Tongue out Ive seen way worse.

    I found a bikini top this summer that I really like & it covers all my scars, I can just tuck the forms in but find Im always adjusting them. I dont need them floating away as I attempt to snorkle again. I think we only have 2 stops so it should be ok.

    Hugs Gals & keep the good news posted! Suz

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  • txstardust
    txstardust Member Posts: 599
    edited October 2010

    Jean, great news about the mammo!  And Suz, I'm glad you found a suit that you like.  Where are you going on vacation?

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  • suz45
    suz45 Member Posts: 796
    edited October 2010

    Were doing a short cruise on Royal Caribeans "Navigator of the Seas". The Cruise itself is only 5 nights, then we tack a few days on each end to bum around Florida. Im a little nervous about the amount of hurricanes this year, but what can you do. The ship is well equipped (great spa) so thats all I need & a little bit of sunshine.

    Hugs Suz

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  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited October 2010

    Dear Suz,

    Hope you enjoy the cruise. I am still leery of showing off my port scar.....

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  • suz45
    suz45 Member Posts: 796
    edited October 2010

    Yea, I know what you mean about  the port scars as Ive got one on each side Undecided 

    My first one was done fairly low and has healed to the point where you can barely see it. The last port was much higher. I guess because there was no fatty tissue where they put it, its left a very noticable & painful indent. I found that a bathing suit with a wide halter style neck covers both the scar & the indent. My plastic surgeon said she will have no problem filling it in when I get the reconstruction done.

    But really they are only scars... Im just happy to be enjoying life as much as I can before the next round of surgeries. Hugs Suz

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  • feistybluegecko
    feistybluegecko Member Posts: 133
    edited August 2013

    Phew - just back from Bangkok and the Big Annual Check - and pretty much all good and been sent home with NED!!

    As always there are a few wee things, but nothing the doctors are worried about. I have a small cyst on the right breast which they are absolutely not worried about but will check again by ultrasound in 6 months. A couple of wee lesions on the liver which again are to be checked in 6 months, by another CT scan. And a sign of some very slight lung damage which could be radiation induced. The tumour marker was lower than last time which is a great relief - still a tad raised but the fact it hasnt gone up is great. My surgeon even even said he saw progress with Twang Arm!! The Onc said that he was not in the slightest concerned and he even questioned the need for follow up suggesting the hospital was trying to make money out of me!!  He insisted I have put on weigh, which I challenged because I am doing excercise most evenings - but he found that I have gained a kilo!! GRRRRR!!

    So now I am just back, exhausted and feeling a bit numb, but a site more relieved than last time.  I feel as if a curtain has been lifted and I can se clearly for the first time since I was diagnosed.

    Hope you are all good and had a better Halloween than last year.

    Hugs

    Philippa

    http://feistybluegeckofightsback.wordpress.com/
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  • txstardust
    txstardust Member Posts: 599
    edited November 2010

    Philippa, here's to clear sailing!

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  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited November 2010

    Dear Philippa,

    Good to hear of your NED.

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited November 2010

    Philippa, woohoo...Love dancing with NED.   

    Well today is my buzz-my-hair-aversery.  I wonder if I can get a cake for that.

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  • txstardust
    txstardust Member Posts: 599
    edited November 2010

    You can get a cake for ANYTHING you want, my dear!

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  • suz45
    suz45 Member Posts: 796
    edited August 2013

    Yaaaa.. Sitting in Florida waiting to get on the boat tomorrow. Cool

    Go figure the day before I left town my onc calls me at home as they want to do some ex-rays on an area (right side mid back ribs) Not sure what they saw on the bone scan but she was asking if I was having a lot of pain in that area??? Well of course now I feel a constant muscle type spasm. Sigh..... and I have to wait till early Dec to have that done before my next visit with her.

    Talk about timing, lol. Well geeze doc wouldn't want to let me kick back and relax worry free for a week now would ya.

    Tongue out Hugs all... mwaaa, Suz

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited November 2010

    suz,   Oh crap, those docs have the worst timing...try to relax and enjoy your vacation.

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited November 2010

    ....you know if it realy was something bad it would have bothered you bofore this...this new spasm is most likely your mind playing evil tricks on you.

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  • Hopbird
    Hopbird Member Posts: 387
    edited November 2010

    Hey everyone...thought I should check in.  I've put it off.  I'm the girl who "took one for the team.:  In August I found out I had brain mets.  :(  Remember that my disease was a recurrence.  They think that at the time it recurred it probably went to the brain...I had a couple of lesions, one that was pretty big.  How did I know?  BIG headaches.  Of course, this was right after my one year clear on the mammogram and just a few weeks before I was to be done with Herceptin.  The good news?  The chemo and Herceptin have done the job elsewhere...the brain was the only issue so far.  We knew it didn't cross the blood/brain barrier...neither did the chemo.  Always bothered me that they never checked my head.  :(  Anyhow, I'm fine.  They did surgery and then spot radiation after they found the lesions.  I feel totally normal...get a little dizzy if I move too fast, but that seems to be getting better. 

    Anyhow....guess I'll be a long term person on these boards. 

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  • txstardust
    txstardust Member Posts: 599
    edited November 2010

    Oh, no, I'm so sorry you have to go through this, I'm sure it's scary.  Let's hope the docs are able to keep things at bay for as long as possible.

    BIG HUGS to you... 

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited November 2010

    Hopbird, glad to see you back, but such sucky news...Although it sounds like they have things under controle....keep us posted. 

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  • feistybluegecko
    feistybluegecko Member Posts: 133
    edited November 2010

    Hopbird - just seen your update and want to say naughty sweary words, but instead i'm sending a big, warm hug and will be with you all the way. I'll be looking for your updates and wishing you strength.

    Big hugs

    P

    xxx

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  • jeanl151
    jeanl151 Member Posts: 146
    edited November 2010

    hopbird-  sending you lots of good wishes for quick recover

      Jean

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  • MaryNY
    MaryNY Member Posts: 1,584
    edited November 2010

    Hopbird: I'm so sorry to hear about the brain mets. Glad to hear that they acted quickly with surgery and radiation.

    Feistybluegecko: Congratulation on the Breast Cancer Care Blog Award 2010! And I see that should be two awards as two of your blog postings won! I really liked the posts in question. Now I'm off to read the other winning entries. 

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  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited November 2010

    HopBird, I hope things remain in good control. Praying for you.

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  • suz45
    suz45 Member Posts: 796
    edited November 2010

    Hopbird,

    Big Hugz!! Remember just breathe...

    I know the feeling, although not near as serious as yours. I was pretty much horrified when I was exactly one year clear & all of a sudden had an aggressive group of 8 tumors as well as nodes in three different area's (under arm, neck & mammary). Thankfully the second round of chemo, rads & bilat-mastectomy seems to have me in the clear while I wait my one year for recon. I was also really concerned that they didn't do ANY type of scans after tx & surgeries. They were just going to wait till I was at the one year before they checked??? They only did the bone scan because I was having issues. Now they want ex-rays.... in December.

    Personally I just go back to one day at a time & live each day to its fullest (& just breath) What else can we do.

    Oh & Vacation was incredible! The best Ive had in years... it was a great feeling to just kick back & be pampered. I WANT one of those room stewards at home so that every-time I leave a room its spotless & organized. Not to forget the lil animals made out of towels :) heh heh..... instead I spent the day yesterday ripping carpet out of my home office so I can redo the walls & install hardwood floors. Hoping I can wrap this project up ASAP.

    Love & Hugz Suz

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  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited November 2010

    Hopbird ~ so sorry to hear your new diagnosis.  Hang tough and I hope you kick cancer's ass yet again.......

    Suz ~ glad you enjoyed vacation and you sound strong !  You girls are an inspiration.

    :)

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited November 2010

    Suz, welcome back to the real world...

    Hopbird, come on girl kick some cancer ass...

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  • Hopbird
    Hopbird Member Posts: 387
    edited November 2010

    Hey everyone!  Thanks for the encouragement!  I found out about the mets RIGHT before surgery which is probably just as well, I'm sure I would have thought about everything that COULD go wrong.

    Now other than some follow up radiation and keeping me on the Herceptin which is doing the trick so far from the neck down they aren't going to do anything except monitor.  I feel really normal, which is weird, but I'll take it.

    The biggest heartbreak?  LOL  The surgeon (a woman) did a pretty good job saving my hair.  The radiation took a big hunk out again, so I'm back to the caps.  At least I have bangs, and people think I'm eccentric and not sick!  LOL  So far, so good.  Hugs to you all! 

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