Nurses with Breast Cancer

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  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited October 2010

    Sheila,

    I laughed very loudly at your suggestion that the disputed amount could be put in his testicles. You are hilarious!!

    Karla,

    I'm wondering how your incisional drainage is doing?

    Rita,

    Where are you in your chemo schedule?

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2010

    Oh Karla sorry been off the boards for a few days. How has this turned out? Please --no infection.  namaste sheila

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2010

    Squid - in a do over I'm dead serious the disputed amount would go in his testicles and I'd make the consent say so. there would then be no court dispute-----------L&H sas

  • HantaYo
    HantaYo Member Posts: 280
    edited October 2010

    Namaste!

    I am plugging away here.  The drainage on my left incision had totally cleared up by Friday morning and no more drainage and no other S & S.  However, yesterday AM my right drain was becoming more irritated (itchy/sore) around the skin exit site and deep red spreading directly around it and pink red skin spreading up between the skin site and towards the TE along the track of the drain.  No fever initially but I called the PS that was covering for my PS and she ordered clindamycin and to call back if it worsened.  Won't take the drain out because I was still draining 40 ml/24 hours.  Late afternoon their was pinkness spreading laterally towards my back but only a 99.5 temp.  We had overnight weekend visitors so I decided to wait it out a few more hours and it was not worse at bedtime so I just stayed the course.  Today the areas away from the entry site are improved.  I want the drains OUT.  It will be day 20 tomorrow and they are still draining 30-44  uuuhg!  I can't return to work with these drains and it is coming down to the wire.

    The CT scan showed no residual cord compression and enough fusion in my C-spine to get a clearance to return to work without restrictions but I have to have a nerve conduction study ? EMG tomorrow AM at 8 because they don't know why have had no change in the scapular, shoulder, arm, hand pain and numbness. 

    On Tuesday I have my CT Urogram and Cystoscopy to R/O bladder tumor.  Now that my drains are still in and I am antibiotic I wonder if I should cancel that.  I see the PA at the PS office tomorrow so I guess I will ask there first and the urologist second.  I don't want to compromise anything.

    I am ready to say goodbye to these health issues before the snow flies.  Last year by this time I had scooped the driveway twice.  This year, we have not even had a frost and tomatoes are still ripening on the vines.

    Karla

  • HantaYo
    HantaYo Member Posts: 280
    edited October 2010

    Namate!

    Rita:  You said Chemo was wearing you down.  Have you taken off work?  I have been thinking about you.  Congrats on your 25 year anniversary.

    Karla

  • RitaD
    RitaD Member Posts: 30
    edited October 2010

    Will be doing#6 of 8 of taxol now. I am off work,but fewer days of where I'm feeling good. Incision of port healed well after antibiotics,but had to delay chemo a week.With triple negative,still worried about reoccurance with lumpectomy.

  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited October 2010

    Rita,

    I am triple negative as well, which is not easy. I had a good chat with another Trip neg Sister here in DC today, and we spent a lot of time just talking about diet changes, exercise, etc...b/c our mutual Oncologist didn't give us much to go on as far as ways to stave off recurrence. I know that we all have cancer, but if you need any support on our particular kind, or want to chew the low fat (hardest change for me to make,) feel free to PM me. How far apart are your taxol's?

  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited October 2010

    Karla,

    My drains were with me for 5 weeks (two of them,) the first two were out at two weeks. They are a drag I know. I am very glad that the redness has seemed to get better....please be vigilant. I'm trying to remember the antibiotic I had before my cystoscopy, but the antibiotics should be preventative for you? Was there something seen on a CT scan? or symptoms? I sincerely hope you get the all clear, it is just stressful to have to keep looking under the hood, I swear!

  • PitPat
    PitPat Member Posts: 156
    edited October 2010

    Still dealing with my infection here. Day 9 on antibiotics and day 3 of them being IV ABx.

    Bacterium identified so far is Acinetobacter lwoffii. I'm on Cliny but the sensitivity is Tobramycin. I might get switched tomorrow after seeing my internist. I want this bug DEAD.

  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited October 2010

    Pat,

    Ugh, so sorry you are going through this. Do you have a PICC line? Has ID consulted? I hope this gets better soon!!

  • PitPat
    PitPat Member Posts: 156
    edited October 2010

    I'll be getting a port instead as a PICC actually will be detrimental with the life I lead (5 kids with 2 of them kids being 7 year old twin girls). No to ID...but I'll ask. My Internist is first phone call tomorrow. I hope it gets better too! I know it will and is. Well off to to ABx infusion!

  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited October 2010

    I really dug my port, all things considered. I still have it, and will take it out once I get past another hurdle (I am superstitious.) Best to you, and I hope you do get an ID consult. They turned my cellulitis around after it wanted to come back. We blasted it :) Good Luck!

  • PitPat
    PitPat Member Posts: 156
    edited October 2010

    Arg..new IV tongiht but same vien has been used 4 times. I'm getting vaso spasms! ugh.

    I could use that port now! MD not chancing this bug moving over to another wound that actually leads somewhere kinda important.

    Hopefully not too much longer, but I can see at least 4 more days (culture will identify the organism tomorrow and sensitivity will be in. The wound is still superating serosang-purulent. Yuck.

    Acinetobacter lwoffii is what has been cultured on Sept 22nd., and it is sensitive to Cipro and Tobramycin. I'm on Ceftiaxzone 2 Gm Qday and clindimycin 900 mg bid. We'll see if I get switched tomorrow.

  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited October 2010

    Pat,

    I'm not sure if I mentioned I went through a wicked cellulitis on my prophy side. My PS drew off similar stuff too. Blech. I hope this turns around quickly! Keep us posted.

  • RitaD
    RitaD Member Posts: 30
    edited October 2010

    Trying to change diet,less fat and red meat. Hard to exercise in between chemo tx every 2 wks.I do walk the dogs,they know the exact time we should be going! Doesn't always work that way.From reading prevoius blogs, mast., is not as easy as I thought. Hope all that are going through are healing quickly. I'm visualizing healing skin for you! Celebrated with hubby for anniversary-had salmon  for dinner. I am learning to live in the moment more, and enjoy what you have. Trying to stay positive.

  • HantaYo
    HantaYo Member Posts: 280
    edited October 2010

    Namaste!

    Still have my drains. Infection is somewhat better.  No fills today.  PS said no cysto for now.  I go back for a recheck in 2 days.  No release from the PS for work yet. (I do have one from the neurosurgeon).  If I am not at work on Friday with no drains I have no job.  It is so coming down to the wire.  Keep your fingers crossed for me sisters.

    I did have an EMG and nerve conduction study today.  Have any of you had that.  It was rather unpleasant with the shocks.  Needles were not too bad.

    Karla

  • RitaD
    RitaD Member Posts: 30
    edited October 2010

    I had an emg for carpal tunnel  to check for nerve damage and conduction.You are right having  a shock put in you is not the most pleasant thing. hope you are healing quickly.

  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited October 2010

    Karla,

    I am just beside myself that you are on any kind of wire. Even though there is a bit or more of dysfunction in the public health sector, I have been treated better regarding having an illness than any of my hospital jobs. Please make sure anything they are saying is fully legal. I've seen a lot of ugly against Nurses who dared to be ill, so this is a hot topic for me (as in smoke coming out of my ears right now.) My fingers are crossed for you, and Namaste! You will get through this. Please keep us posted.

    and yes on the EMG...I was hanging in until they got to a certain muscle in my back. Than the F words flew around the room and hit the MD straight in the forehead. Well deserved too.

  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited August 2013

    Nurses, will you lend me an ear?

     I am beyond shaking my head at the false sense of security that I see with the belief that if it is all natural, than it must be safe. (vs. the obvious nasty pharmeceuticals, all dangerous.)

    Great example would be our dear old friend Digoxin. From foxglove. I swear, I bet if it was on the shelf in a health food store wrapped in a blue bow, I would see some saying how it cured their cancer. So many "drugs" are available over the counter, non regulated, and just because they come from a plant, they are considered safe.

    Great story about Vincent Van Gogh. It is speculated that his "yellow period" was really about his overdosing on digoxin through the plant foxglove. Remember in school talking about dig tox, and the yellow halo's? His paintings during this period had that dig tox appearance.

    Anyway, some days it's really hard to stomach dangerous ignorance. well all days. Thanks for listening, as I don't want to pull my hair out, but really it's just too much. Dangerous even. No less dangerous than assuming all regulated meds are without fault. Just hard to see someone who is going to most likely be physically hurt from their choices, but they don't want to hear Science.

    Peace. (I'm trying!)

  • HantaYo
    HantaYo Member Posts: 280
    edited October 2010

    Namaste!

    The drains are OUT!!!.  The right site looks like a deep moist cave.  I don't think it is going to be sealed over too quickly.  I went to Employee Health after the drains got pulled and gave them the PS and Neurosurgeons releases without restrictions.   I was worried that they might not like the look of the right drain site however when they asked to see my incisions I just showed them the very well healed scars on the chest and neck and they never asked about drains this time and I was not about to remind them.  Friday is my first day back and I will be sure I use a non permeable dressing.  OMG, I can shower in 24 hours!!!  Such pleasure it will be.  I am in fantasy land thinking about the looong showers that are in my near future. 

    Squidwitch:  You are right, it just doesn't seem fair about the limit for FML.  Before the FMLA we could just take our PTOs for sick time and it never was limited.  People could have what they needed.  Now, they limit us to 12 weeks and if we need anymore we lose our jobs.  And the doctors have to release us to lift up to 100 #  (As if I could ever have lifted 100# even in my younger peak physical days). Heck, I work with nurses who hardly weigh 100#.

    Anyway, things are looking up for me.  I just now have to stay totally healthy and need no time off between now and May.

    Karla

  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited October 2010

    Karla,

    Wonderful news! Please be very aware of yourself and body positioning when you start back. I know, I love the 100# lifting requirements...I mean if I had a 100# sack of flour sitting on my foot, well, I think I could extract myself. Just take it one day at a time, and I will hope all is smooth sailing for you.

    I ran into some of my old family today at my ultrasound. It is always with mixed feelings as I loved my co-workers, and found the good old girls club (Nurse Management) to be a small group of mean girls who looked mostly after each other. They still probably have no idea what talent they have, and they really aren't Nurses in my eyes. That would involve compassion. So I hope they are respectful and supportive of you. It will be nice to take care of others, I bet. Blessings for a safe and healthy return to practice! :)

    Congrats!!

  • in_cognito
    in_cognito Member Posts: 429
    edited October 2010

    HI ladies!

    I tried to go back a few pages to see if this was mentioned - but I am wondering if any of you ladies had a BMX with TE's - if so, when did you return to work after surgery?  My surgery is scheduled 11/11 and so far, my return to work is anticipated around the end of December (6 weeks off).   I made this timeframe up in my head.   I asked my PS when he thought I could go back to work and he just kind of shrugged and said "Let's just play it by ear".  He said he wants me moving for sure, but not heavy lifting and said we will see how it goes. 

    On average, when did you return to bedside care after a BMX with TE's?  Thanks for your help!

  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited October 2010

    Hi!

    Well, sadly I don't do beside care anymore, but never say never. I still have my TE's....I am having to wait a full year after Rads, which will bring me to 18 months with me dear friends...which feel like two turtle shells. I went into chemo 2 1/2 months after BMX...oh, I forgot, I did have a TE replaced in December....this really isn't helping is it? My drains were in for 5 weeks, then 3 weeks on the replaced side, and I know I was shoveling some serious snow within 6 weeks of my second TE.

    Karla may be a better source for this info, but 8 weeks may be more realistic? Can you work with more ambulatory patients for a bit when you first go back? I don't know how much is IV's, but I remember having my arms in the air quite a bit working with IV's, monitors (and constantly moving them for transport, and putting them back up,) and picking up the oxygen tanks when I was in the E.R. Do you work with a lot of cardiac patients?

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2013

    Hey karla glad to hear you met the*^$#((%$%#&^ DEADLINE. BE CAREFULE ON Lifting. I hurt myself On Lifting Greg and it's almost 2 months later and i'm Not right. my last surg was july09. Do whatever you have to do to protect yourself like asking for assistance.

    It always amazed me that the powers to be in the health care industry have the weakest rules and support and guidlines to protect their workers. In Ohio the industry, I respected the most for their rules on care of their workers was TYCO . Tiny tykes toyes. There production rules were the safest and if a worker was injured , they got great care. Go figuire. Sheila

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2010

    Sqid you put it right. The management girls saw no problem in us lifting someone several times our weight. On tv women win awards for this,and in the Olympics same thing. I remember saying to one of these types --no problem just show me the technique. I got written up..Sheila

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2010

    Squid --the first study on dig was done in the late 90's . Maybe thats why it isn't used so much anymore. LOL

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2010

    Pit PAT Haven't heard of that bug whats 's it origin? sheila

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited October 2010

    Re: do-over amounts being put in doctor's testicles, how about for each SNB dye injection in the breast we get to give one to the doc in the testicles?  I bet they'd start using sedation or pain meds pretty d*mned quick. 

    Squidwich--not only do people erroneously, and often dangerously, assume that natural = safe, many "educated" nurses automatically assume that "alternative' = quack and ineffective, even when presented with studies that are of the same caliber as those used to verify the safety and efficacy of pharmacueticals.  There is a lot of very good research showing that accupuncture and ginger are as effective for treating chemo induced nausea as pharmaceuticals, that affirmations spoken to patients during anesthesia induction, during surgery, during evergence and in the recovery room decrease pain levels, pain med use, rates of nausea, length of hospitalization, and complicaiton rates. Yet try to actually use one of these, and at least one RN will label you "uncooperative" or, my favorite, "uneducated and unsophisticated."

    Re:  "they really aren't Nurses in my eyes. That would involve compassion."  I so agree!  When I read that statement all I could think of was the student nurse who said to me "Why is any of that touchy-feely stuff of the exams?  I just want to get to the good stuff."  I said it was becuase compassion, non-judgememtalism, emotional supportiveness, and patience are an important part of nursing."  Student:  "Yeah, well, maybe but I'm not interested in that kind of stuff.  I want to do the good stuff."  Me: "What is the 'good stuff'?"  Student:  "Running the equipment, doing procedures, you know, like changing complicated dressings, starting IVs, reading EKGs, deciding what treatments to use."  Me:  "What about the patient?"  Student:  "What about what about the patient?"  Me:  "What about connecting with the patient, creating a healing situation, answering questions and addressing concerns?"  Student: "That's the social worker's job."  I was floored.  THIS from a student who is due to graduate in May.  Of course, if she doesn't start paying attention to the "touchy-feely stuff" as she calls it, she will continue to fail exams and weed herself out. . .

  • squidwitch42
    squidwitch42 Member Posts: 2,228
    edited October 2010

    Native,

    Now that's what I am talking about! Comprehensive care. I have had acupuncture, I was munching on ginger during chemo. But I researched and I don't take anything blindly. There are several medications that are in the health food stores that have very bad interactions with meds. I have to do a very intensive review of my patients meds to make sure there are no interactions. A big contender for review is St. John's Wart. Never said it didn't have it's place, but we must be aware that these meds can do harm when mixed with others. It is the same in reverse.

    I remember one day getting ready to D/C a patient off tele, then all of a sudden he started having arrhythmias. He had been perfectly fine over night, NSR. When we went in to check on him and try and sort out what was going on, he showed us all of his "own"meds that he had just taken (all OTC.) He bought himself another day in the hospital, and my eyes were opened. So, I walk a line, but I honestly spend a lot of time having to play detective and to me, this is serious. I also have the same critical eye for meds that are FDA approved. I know people have been hurt, and this is through anecdotal evidence.

    Acupuncture is a wonderful treatment modality, along with massage, meditation, yoga and many herbs as well. We know many meds come from plants and "nature." Our taxotere is/was derived from the yew bark, wasn't it? (off the cuff here, as I will lose post to go look it up, you'll re-direct if needed won't you?)

    oh, and so agree about incorporating prayer, affirmations prior to anesthesia induction has a very positive effect on patients. I remember there was a study, and the end result was less nausea meds, and better pain management (again, if my recal is correct.)

    Very good points, and I believe it is up to us to be open, yet mindful that we must Listen Listen Listen and hear our patients, to meet them where they are. (but help to keep them safe.)

    Namaste!

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited October 2010

    EXACTLY!  You hit the nail square on the head, Squid.  They ALL have interactions, plusses and minusses and we as nurses need to be informed and play detective! 

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