Anyone In Phoenix, AZ Area?

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  • speech529
    speech529 Member Posts: 337
    edited September 2010

    Hi Ladies

    I enjoyed meeting all of you last week.  You all are amazing women--such an inspiration!  Thanks for getting everyone together.  

    I think it was Karen who had a friend there who is about to start treatment.  I wish her well!

    Karen K.

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  • ebann
    ebann Member Posts: 3,026
    edited September 2010

    Hi Karen it was nice meeting you as well. We did not get a chance to chat. So next time lets make it a point too. Wish you were going to Vegas with us. I am glad you brought your husband. See you at the next get together

    Blessings your way....Elizabeth

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  • jenn1975
    jenn1975 Member Posts: 103
    edited September 2010

    when and where is the next meeting???

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  • Cydz
    Cydz Member Posts: 157
    edited September 2010

    Hi Jenn

    There is nothing planned as of yet. I having been talking to Elizabeth(ebann) about hosting something at my house, tentatively the weekend of 9/25, poss. that Sat. Alot of the AZ women are involved in the registration for the race on 10/10, but we may just go ahead and do it. We will know by weeks end it this thing at my house will happen!

    Cindy 

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  • ebann
    ebann Member Posts: 3,026
    edited September 2010

    Just wanted to let everyone know that there will not be anything planned for this month. There are quite a few of us who are working the Susan G. Komen Registration from Wednesday through Sunday for the next 3 weeks. I am looking at planning something in October. We are talking about doing something at Cindy's home. She is really looking forward to hosting.

    Be Blessed, Elizabeth

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  • jenn1975
    jenn1975 Member Posts: 103
    edited September 2010

    I just got this email.. If you want to go respond quickly to the information included

    We are pleased to invite BREAST CANCER SURVIVORS to the
    Arizona Cardinals Game on Sunday, October 10th
    as we celebrate Breast Cancer Awareness.

    Each Breast Cancer Survivor will get one ticket to the Cardinals game and the chance to share in the festivities with 49 other breast cancer survivors from around the Valley. All 50 breast cancer survivors will participate in various on field activities throughout the day, including a half-time performance with the Arizona Cardinals Cheerleaders!

    Run through with Arizona Cardinals Cheerleaders - Saturday October 9th - in Tempe
    Arizona Cardinals Game - Sunday, October 10th - in Glendale

    Space is limited and this opportunity is on a first come first serve basis.
    If you are interested in attending and participating, please email Meg Kondrich at meg.kondrich@cancer.org
    Please put Arizona Cardinals in the subject line of your email and note your first and last name,
    telephone number and where you live in the Valley.
    We will need to arrange carpooling as we are limited to only a few parking passes.

    More details about the event will be emailed soon!

    Please Note: For this event, we ask that you are able to get around on your own as these activities require walking on the field as well as up and down the stairway.



    Meg Kondrich | Communications Manager
    Great West Division | American Cancer Society, Inc.
    4550 East Bell Road, Suite 126, Phoenix, AZ 85032 | cancer.org
    602.586.7416 | mobile: 480.254.0197
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  • Sunflower13
    Sunflower13 Member Posts: 8
    edited October 2010

    Hello AZ ladies!

     So glad I found this thread. I am new to the forum and luckily right now I have joined for research purposes. My childhood was greatly affected by breast cancer and cancers in general. I have a post on the high risk women page asking for any information about genetic counseling and prophylactic treatment in AZ and haven't gotten any info. Are any of you previvors that have any doctors that you would recommend or your story to share? Or possibly ladies in treatment or survivors that had doctor that also work with women who would like to minimize their risk before a diagnoses? Any info would be so appreciated! Unfortunately, wisdom comes from experience so I know this is the best place to start!

    Thanks in advance,

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  • ebann
    ebann Member Posts: 3,026
    edited October 2010

    Jenn thanks for the post. I am going to be at the race for the cure that day. To bad it falls on that day. I hope there are some that will be able to attend.

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  • ebann
    ebann Member Posts: 3,026
    edited October 2010

    Welcome Sunflower,

    I am not sure I am the best person to ask for help. Since I do not know of any preventive before hand. I can tell you I have an awesome oncologist. Her name is Sharon Ondreyco. She really  works on getting as much information that she can when working with you. She is voted Best Dr. In America. She helped save my life. My prognosis was low. But as you see I have pulled through. Plus I believe in God and my faith really got me though. He put Ondreyco in my life. I am not sure what all you are looking for. I am a triple neg and there is not much I seem I can do. Though Cindy (Cydz) does do chinese medicine and she is really working on lessening the reocurrence. Good Luck!

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  • Sunflower13
    Sunflower13 Member Posts: 8
    edited October 2010

    Thank you ebann I will look to see if your onc works with prevention. Also, I read about your diagnones and you are an inspiration! 1 out of the 3 family members I have had with BC had stage IV IBC and wasn't as lucky as you but a lot has come along since the 90's! Lucky for all of us. I hope your onc deals with prevention, she seems like a great place to start!

    Do you mind asking what church you belong to? I am not far away, in Peoria.

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  • ebann
    ebann Member Posts: 3,026
    edited October 2010

    Sure your welcome. I go to Pure Heart  Christian Fellowship...Crossroads are Union Hills/43rd Ave. Awesome church. Would love to meet you sometime. We are going to get together and do something this month. Hopefully you will be able to join us.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2010

    Sunflower- If you are considering a prophylactic MX just wanted to let you know that you would more than likely be an excellent candidate for nipple sparing surgery.  I was DX with DCIS on one side but did a prophylactic MX on the other and was able to have this done for both.   Not all surgeons are trained and experienced in this procedure so if you're interested make sure to consult with one who specializes in it.  My breast surgeon was Dr. Michele Ley at the Arizona Cancer Center in Tucson and my plastic surgeon was Dr. Cheri Ong.  I also know they perform the NSM at the Mayo Clinic in Scottsdale.  If you have any questions feel free to PM me anytime. 

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  • Sunflower13
    Sunflower13 Member Posts: 8
    edited October 2010

    Oh I had prom pictures taken there in HS! ha. Beautiful church. I will check for updates on the meeting, thank you!

    I found your onc's website and they have a page about prevention, maybe I can get a consult with someone in their office! I am only 20 but would like to have a plan of action for when I am done having children. 2 of my aunts were diagonosed in their early 30s, one was pregnant and one had just given birth! So a plan and options will help put me at ease.

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  • speech529
    speech529 Member Posts: 337
    edited October 2010

    Sunflower13  Check out Mayo Clinic in Scottsdale, also.  My BS Barbara Pockaj, PS Deborah Bash and oncologist Donald Northfeldt were wonderful.  I had a nipple sparing MX (unilateral) and I am happy with my choice and results. I had DCIS but have a strong family hx of cancer of all kinds (immediate and extended).

    You are quite young, but wise to start thinking about this now, since you are high risk.  Mayo did BRCA1-2 testing and I consulted with their geneticist, also.  It was complete and total care there.

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  • Sunflower13
    Sunflower13 Member Posts: 8
    edited October 2010

    Hey ladies,

    Anyone use or know of Kimberli S. Cox at the Comprehensive Breast Center of AZ? That is who my gyno referred me too to discuss prophylactic options.

    Thanks!

     Genevieve

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  • ebann
    ebann Member Posts: 3,026
    edited October 2010

    Genevieve, I have not heard of Dr. Kimberli S. Cox before. I checked on her and noticed she seems to have an outstanding repore w/ her patients. From what I see they have given iher 5 stars expect for her staff 3.5. That is really all that I can tell you. I wish I knew more. I hope that this works out for you.

    Blessings your way!

    Elizabeth

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  • ebann
    ebann Member Posts: 3,026
    edited October 2010

    It is time for our next get together. Cindy Fesanco is hosting in her home. We are looking at doing appetizers & cocktails. I think it would be nice if we all could bring something for this get together. You are more than welcome to bring a guest whether it be your significant other or a friend.    

    Location: Cindy Fesanco's Home

    Day: Saturday November 6th  

    Time: 6:30PM  

    Appetizers, Cocktails, and Good Conversation  

    Please RSVP by November 3rd. PM Cydz or ebann  

    Let us know what appetizer you will be bringing. Remember you can always car pool.  

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  • ebann
    ebann Member Posts: 3,026
    edited October 2010

    2 attending

    appretizer mini quiches

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  • Sunflower13
    Sunflower13 Member Posts: 8
    edited October 2010

    Thanks Ebann!

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  • jenn1975
    jenn1975 Member Posts: 103
    edited October 2010

    what is the address????

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  • ebann
    ebann Member Posts: 3,026
    edited October 2010

    Jenn sent you a pm for the location of our get together. Hope to see you there!

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  • firstmate
    firstmate Member Posts: 410
    edited October 2010

    I will not be able to attend this get-together.  I am going sailing again!

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  • Cydz
    Cydz Member Posts: 157
    edited October 2010

    Oh Robin, we sure will miss you! We will have to steal you away for happy hour another time!! Happy Sailing, where to??

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  • swiftbird
    swiftbird Member Posts: 177
    edited October 2010

    Hey chicas! I think the 6th works for me.  As the date gets closer, I'll think about what I can bring.  I'm thinking mini tacos... mmmmmmm.....

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  • swiftbird
    swiftbird Member Posts: 177
    edited October 2010

    Hey chicas! I think the 6th works for me.  As the date gets closer, I'll think about what I can bring.  I'm thinking mini tacos... mmmmmmm.....

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  • speech529
    speech529 Member Posts: 337
    edited October 2010

    I will try to make it, but will confirm as we get closer to the date....Karen

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  • jenn1975
    jenn1975 Member Posts: 103
    edited October 2010

    Cant make it this time either... My husbands birthday is that week so we are going to be at his mothers for his birthday dinner.

     Jenn

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  • aimee4
    aimee4 Member Posts: 9
    edited November 2010

    Cydz or ebann - can you give us a rough estimate on how many people are coming, so we can know how much to bring

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  • suemed8749
    suemed8749 Member Posts: 1,151
    edited November 2010

    My husband bought Elton John tickets for Saturday the 6th. I'm sorry I can't make it - Cydz's home is on my side of town, and I was looking forward to it. But the concert will be fun - our son, daughter, and son-in-law are going with us. The kids grew up on Elton John. (One daughter said no way! She never wants to hear another Elton John song as long as she lives.)



    Have a great time and hope to see many of you at next month's Christmas ornament exchange.

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  • ebann
    ebann Member Posts: 3,026
    edited November 2010

    Hi Aimee, we are looking at about a dozen. Hope that helps. If there happens to be more I will let you know cause tomorrow is the last day for RSVP's.

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