June 2010 Mastectomy

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  • Ducki
    Ducki Member Posts: 95
    edited September 2010
    RobinLM Your surgery is like none other I have heard of.  Sounds wonderful. I sure could have used a lift in that area. My PS mentioned before surgery of the posibility of using pig something as a base, but it wasn't necessary for me.  Has anyone else here ever heard of using midriff skin before?  So glad you are on the done side and recovering well. Hugs
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  • Laurie08
    Laurie08 Member Posts: 2,891
    edited September 2010

    Jeanne= GREAT new picture!

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  • jsmiley60
    jsmiley60 Member Posts: 204
    edited September 2010

    Thanks Laurie!! I have BANGS!!! lol!

    Went to havefinal x-rays done today before starting radiation. That begins Thursday;

    Is anyone else having a lot of pain/soreness in chest area that has tissue expanders? I saw ps today and he said it is just because I have foreign objects in me and because we put a lot of saline in my expanders in the last 3 weeks. But I am experiencing more soreness and even some sharp pains now than I did early on or even a month ago. Just wondering if anyone else has experienced this.

    Tomorrow is my cancerversary. I was told one year ago tomorrow that they had found some breast cancer cells in the biopsy. My life was forever changed in that phone call. Hard to believe it has been a year.

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  • Laurie08
    Laurie08 Member Posts: 2,891
    edited September 2010

    Jeanne- I am right with you on the pain thing.  Since my last fill a week and a half ago I have quite a bit of pain that is on and off.  Between all the lifting I do with the kids etc I am actually sleeping upright again like I did after surgery.  I try to start out flat and I wake up after a few hours in alot of pain.  We went to a fair this weekend and I pushed a stroller for 3 1/2 hours, no big deal right?  Yha well- I feel like I am set back weeks.  I hope it eases your mind a bit.  It does help me that now I know I'm not the only one.  I wasn't even going to mention mine- so thank you!

    Also, very hard to believe it is a year for you- a big hug for you, and tonight I will have a glass of wine and toast your cancer good bye- because you're kicking it's butt!

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  • Ducki
    Ducki Member Posts: 95
    edited September 2010

    jsmiley60 Same here.  Really odd for the past two days.  No more fills for me as I await exchange, but I suddenly feel like there is something under there that is sticking an icepick upwards.  Sorry if that sounds really gross, but its the best way I can explain the pain. It's not unbearable and doesnt last long, but happens often and is ouchy.  No clue why. The upper burning on the top of my TE from the stretching is not fun either!!  Then of course, the side under my arm.. the hard bookbag feeling.  lol  However.. none is worse than those drains !!

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  • speech529
    speech529 Member Posts: 337
    edited September 2010

    Robin!!! You are part of our June group and here you are--finally done with the surgery. So glad you are done and healing!!  It's amazing to me how high the breasts are at first.  But they do drop down. Take good care, get lots of rest!   Hugs and more hugs!

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  • orchidgal
    orchidgal Member Posts: 153
    edited September 2010

    Hi All,

    Just checking in. Had last fill today. Overfilled my 250cc TEs to 270, and one side feels like a poke in the breast with a stick! Pain pills are back in style here! Exchange date December 7. Whoa, what a journey. So happy Robin is finally DONE. Hope everyone is doing as well as can be expected. It seems I'm going through some post-mastectomy "feeling a bit down" time, & I guess that's normal. Have had lots of good results from deep tissue massage, physical therapy, stretching, and self massage w/ oil. One PT suggested using a vibrator on the sore parts and I did it last night and got good results. Have had some cording (piano wire!) underneath breasts and on one side underarm where they took three nodes, but very slight. They had me buy and wear a lymphedma sleeve on that side when I took a weekend trip via airplane. Have had no swelling so it's okay, just to be safe. Got my sleeve in leopard skin print and got a few compliments from people who didn't know any better! ;~) Take care everyone, holding good thoughts for us. xoxo 

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  • jsmiley60
    jsmiley60 Member Posts: 204
    edited September 2010

    Hi all! Good to see some people posting that we have not heard from in a while!

    Today is my one year anniversary of my cancer diagnosis. I feel good about it - I guess I've reached a milestone. I never really thought about dying because I just made up my mind I was going to beat this when I found out. Plus it was caught pretty early although it had gone into the lymph nodes. Anyway, feel good about my cancerversary!

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  • jillyG
    jillyG Member Posts: 401
    edited September 2010

    Jeanne, congrats on being a 1 yr survivor!!!  That's awesome!  I wish you many many more years to come. 

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  • jillyG
    jillyG Member Posts: 401
    edited September 2010

    Today is my 35 birthday and I feel pretty great about it!  I will never complain about getting older again!  I love it!  I am so happy to be here, and healthy, and coming up on 2 years of being a survivor.  It feels good. 

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  • Laurie08
    Laurie08 Member Posts: 2,891
    edited September 2010

    Happy Birthday Jilly!  Congrats on being two years out and Jeanne being one year out.  You should both be so proud of yourselves for all you have over come and accomplished. 

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  • stlcardsfan
    stlcardsfan Member Posts: 466
    edited November 2010

    Hello all,

    currently on my first vacation since I got the dreaded news last December. I have done two plane rides with my sleeves and gauntlet gloves, made it thru airport security twice without setting off the metal detector, and had one full body scan. Wonder what the person thought when they saw the te's?

    Was called sir today - that is the third time now. Ok, so I have a dark pink shirt on, makeup, earrings and a really cute pattern hat, plus there is some chest there now after 4 fills, and my hair is about 1 " long now. Was checking out at CVS in Las Vegas when the man asked "is that all for you sir" I looked right at him and said I AM A GIRL!!!  I mean come on, I have makeup, earrings and boobs. I asked my husband if I looked that bad, and of course he replied no, you look fine!

    PT not going so well, my left shoulder doesn't seem to be getting any better. Of course the exercises hurt, so I don't like to go them. And, the dermatology office wants to put me on BP medicine because when they took my BP on my leg, it was high. I told them they were taking it wrong, as I was supposed to be lying down, and I wasn't. So, now they won't operate on me until I speak with my cardiologist. Ugh!

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  • jsmiley60
    jsmiley60 Member Posts: 204
    edited September 2010

    stlcard: Ugh!! sounds frustrating!! I understand about the PT for sure. The other day the therapist worked on my shoulder and it hurt but it felt so much looser, then I went to my final run through for radiation and had that arm above my head for like AN HOUR!! It has been sore ever since. Sorry about the BP thing - I'm sure it is nothing, but its a big nuisance!

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  • bigdogmom2
    bigdogmom2 Member Posts: 40
    edited September 2010

     Hi, I hope you all don't mind me posting here.  I had my bilat mast on May 25th (not many people post on the May thread).  Well I have been keeping up on your thread because I was later in the month.  I just saw a post on here about pain getting worse after fills.  My last two fills have been horrible!  I have had I think 7 fills now and am at about 550 cc.  I am a tad bigger than what I started with and we are planning on 2 more fills.  My fill amount has varied depending on my pain levels and how I did on the previous fill so some are around 50cc and some are about 75cc. 

    My last fill yesterday really has me freaking out.  I am in so much pain I pretty much feel like I did 3 days out from surgery!  I feel like someone is putting a knife in my back and breathing hurts, like my ribs are sore.  I am back to not standing straight, sleeping upright... uggg  I know my PS told me the fills toward the end would be more painful but WOW I have to say I am a bit shocked at how much pain I am in.  I too am back to my pain meds, sleep would have been impossible last night and work today, forget it!  There haven't been many posts that I have seen on having pain with the TE's fills, so when I saw a few of you post about it, you all made me feel better today.  I'm not as crazy as I thought LOL

    Erggghh, this turned into more of a poor me post... not meant to be, sorry!  Just wanted to say I hope you all start to feel better soon too!  I'm sorry for your pain but so glad I'm not alone, I was starting to feel like these TE's should be a cake walk and I was being a big baby ;0)

    Hugs :0)

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  • Ducki
    Ducki Member Posts: 95
    edited September 2010

    bigdogmom2 No No ... you are just expressing your feelings.  I haven't had a fill in 3 weeks and was up off and on all night because of pain under my TE.  Seems the smallest bit of pressure in that area is painful,  There is no numbness in that area, so I spent most of the night trying to move to a comfortable posistion.  The little man with the ice pick is gone finally.. lol.  The top part of my TE now feels like a squeeky toy. Everyone responds to fills in different ways. Mine were all painful and it took me at least 4 days to feel mostly back to normal.  By then it was time to fill again.  TE's are not all that easy for some but it does get better :)

    jsmiley60 and jillyG  What great news from you Jeanne and a BIG  HBD Jilly!! 

    stlcardsfan Bless your heart.  People can be so ignorant.  I am sure you look beautiful :)

    orchidgal Sounds like you have my little "ice pick man" lol.  Your exchange date is a month after mine.  I keep trying not to think about it, but spend hours at night with that on my mind.

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  • RobinLM
    RobinLM Member Posts: 143
    edited September 2010

    Hi Bigdogmom2: I am 9 days post BMx + one step 300cc implants, and I can't stand up straight and breath for a log time. If I could say to the surgeon do them as small as possible I'd do it!!

    Had to go to the hospital today ,waited on a hard chair for more than 1 1/2 hours to be seen. By my turn I was keeled over and quite uncomfortable, and it wore me out....... old Steristrips off clean ones on, all healing ok..... quite glad I didn't have to see the scars... not looking forward to that.

    Ignore the idiots STcardsfan, if it happens again have a retort ready - and call them madam..... teach them a lesson....Wink

     LOL to all

    Robinx

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  • jsmiley60
    jsmiley60 Member Posts: 204
    edited September 2010

    Robin: yeah I had that problem bending over and breathing at first. That should go away!

    Bigdog: I'm glad you posted. It helps me to hear from others and see that I'm not alone with the TE pain. It has been better today and yesterday. My PS showed me how to massage them in the shower (oh boy!) so I don't know if that is helping or what it is. They still hurt but not as bad as they did. I have 550 cc's too and am going to 700.

    I feel envious when I read about you guys getting your exchange surgeries set up! I ended up having to have radiation, which no one told me until 7/20 and then it was 8/12 before I met with the radiologist and found out we would have to stop the TE fills during radiaiton. So I had my first rad treatment today. When I'm done end of October, we will have to wait 6 weeks before doing any fills and then will have to have 2 or 3 to finish and then wait a month for surgery. So I'm probably looking at February or March for surgery - Grrrrrrrrr!!! Anyway I'm sure it will go fast and I'll have my new boobs (if all goes okay) soon!  

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  • jillyG
    jillyG Member Posts: 401
    edited September 2010

    Had a big fill today, another 120cc.  He did small fills earlier on but said I am expanding really well so today and last time were each 120cc.  I am now full at 500cc.  My exchange surgery is tentatively Dec 22nd which will actually work out pretty good for me.  I asked about the size of the implant (I am getting gummies) and he said he places implants that are 20% smaller than the expander.  I told him I would like to be as big as the expanders and he said it might be possible, we will do a top up one month before surgery and see how it goes.  My chest is a little tight but not too bad. 

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  • Laurie08
    Laurie08 Member Posts: 2,891
    edited September 2010

    Stcardsfan- I can't believe people are so unobservant and rude!  We will have to come up with a good retort for you in the future.   The blood pressure situation is frustrating as well- good luck with it all and try to stay calm!  Sometimes all these hoops they make you jump through can stress you out, and rightfully so.

    Bigdogmom2- I am glad you found us here!  We all so a great job at being honest and supportive of each other.  The TE pain is confusing and scary sometimes.  I know the ladies here have made me feel so much better on more than one occasion because we make each other feel normal, we are all going through it together.

    Robin- They made you sit for an hour and a half in the waiting room?  How did you not freak out?  I have no patience for stuff like that, especially in your post surgery condition.  I am so sorry you had to go through that.  I hope you are feeling better and enjoying a sweet treat or two :)

    Jeanne- I hope your arm is feeling better and good luck with your radiation.  I hope all goes well and you feel well through it all.  It will be worth it in the end!

    Jilly- I am glad to hear your fills are done!  I hope you slept well last night, my last fill did kick my butt.  I felt it much more than the rest, I hope that's not the case for you.  I was surprised to read that you are doing your exchange surgery right before the holiday.  But, from what I have read, and from what Getty has said, it should be very doable and the recoup time isn't bad.  Not a bad time to sit at home in your jammies and relax with your family enjoying the holidays.  

    I hope everyone is doing well today!  I am still so sore from pushing the stroller at the fair this past weekend but I finally sleeping laying flat again.  However, during the day for the past three days I am back on Aleve to make it through.  All in all- things are good.

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  • bigdogmom2
    bigdogmom2 Member Posts: 40
    edited September 2010

    Thanks so much everybody!  You all have made me feel much better.  Ice pick HA that sounds very appropriate.  I did talk to my PS today and he said what I am feeling is very normal, some people the pain is worse than others.  He said I have alot of scar tissue and it seems to be breaking up and he said that will cause more pain than normal also.  So my official diagnosis is "not crazy" LOL  and told me to call for any reason the pain doesn't make me a wuss and there is no stupid question ;0)  Good to know!  I was just so bummed it seemed all was going so well just alittle sore after a fill no biggie, shoot the fill before this one I went jet skiing the same day!   And then WOW that last one just really set me back mentally because of all the pain.  I am feeling better today sore but bearable.

     Jeanne, I too am envious to all the exchange girls.  I am really looking forward to that surgery (never thought I would say that).  Hope your rads go well.  Time will fly by and your exchange surgery will be here before you know it :0)

     Wow Robin, 1 1/2 hours!  If they are going to make you wait that long I would suggest they get recliners for their patients!! 

     Orchidgal, I had the cording also, funny I called it a guitar string!  That was awful.  I think seeing it pop out from my skin when I stretched my arm freaked me out more than anything.  It went from my underarm to the top of my hand.  My PS suggested lots of stretching sooooo I went to the batting cages and hit softballs LOL  It worked, it ended up breaking up the next day!

     Thank you all so much the support here really is amazing :0)  Glad to get to know you all.

    Cheryl :0)

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  • orchidgal
    orchidgal Member Posts: 153
    edited September 2010
    Jeanne, congrats on your One Year BC Suvivorship anniversary - you've made tremendous strides, and continue to be an inspiration to us all! Sorry your TE path is getting so stretched out to next Spring. Hang in there... Jilly, Happy Birthday - & Happy Two Year BC Survivorship - many blessings for the coming year, and may all healing goe easily and quickly. stlcrdsfn: regret you having that experience in the store - some people are plain ignorant - I'm glad your husband was there. Sorry about the BP - it may have been they took it the wrong way. Robin, I hate that they made you wait. We all know how weak you feel so soon out of surgery. Are you saying the surgeon filled your TEs up all the way to 300cc during surgery? If so, I can't imagine the discomfort you would be in. I hope that's not the case. Laurie, you are worrying me doing all that heavy lifting and pushing. I know with children it's hard not to, it's instinctual. It hurts too  much when you lift something that is too heavy - you only know it was too heavy after you've done the damage! Take care... Cheryl, welcome to our June group - no matter when you had your surgery - I thought I'd have mine in June, but it got pushed to July - and Robin was in August - we are a great bunch of strong, caring women and it is a life saver to have this forum to share and care. Glad your cording went away after batting practice - how unique! I say, whatever works! PT helps a lot, as does deep tissue massage. I also do it on myself and although it hurts, it helps. Haven't had this type of pain before now - it sure is a distraction, yet my hope it that with movement, stretching, etc, it will get better. Can't imagine three more months of this. Ducki, yes, Ice Pick Man shows up when you least expect him - thank goodness for pain meds! Don't think we've got to be stoic about it, I just draw the line at driving and opiates, otherwise, I'm using them when I need them instead of suffering for hours on end. Oxycodone, Valium & Ibuprofen 600 mg., my Three Muskateers! Hope you lovely ladies have a great weekend! ;~) orchidgal 
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  • ReneeW54
    ReneeW54 Member Posts: 29
    edited September 2010

    I had bmx  with TE June 2nd and wouldn't have wished it on my worst enemy, I was out of the hospital within 24 hours after surgery.  Here I am though, making it just fine. The fills were really bad to start with, but the pain got better as I went along. (the pain pills helped too)  My PS says no more fills, so probably will have the exchange in Nov. sometime.  Can't wait to get this bra off.  At least that's what the TE feel like for me.

    My onco test result was low with 8% chance of recurrence, so I decided not to do chemo.  I have also decided not to do the hormone protocol.  Yes, I might be sorry, but right now it's not for me.  When I had a pet/ct scan they found a large spot in my throat and think it's lymphoma, will have another MRI or ct scan to find out for sure.  Geesh, wasn't having bc enough?  Chemo or radiation may be in my future yet.

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  • almagetty
    almagetty Member Posts: 316
    edited September 2010

    Hi all!

    Happy cancerversary to Jeanne and Jilly! Welcome Cheryl!

    I'm sorry to read about all the aches and pains associated with the TE's and fills. It is so wonderful to have that phase of things behind me now! The implant is so, so, so much more comfortable ... you all will be so relieved! The exchange is something to look forward to, for sure. I'm two and a half weeks out from my exchange surgery now and can sleep comfortably on my side (and even on my stomach if I wanted to, but I'm not really a stomach sleeper). I'm still waiting and hoping for the mythical "drop & fluff" so that the implant begins to look more natural. All bandages and steri-strips are now gone and I just have some bruising on my side from the small area the PS lipo'd.

    This week, I started a brand new job. It's a huge step for me, since I haven't worked outside of home in years. My brother-in-law has a small chiropractic office and my sister is the office manager. She's pregnant and due to deliver next month, so I've taken over for her. It's part-time (about 30 hours a week) and very flexible with time off when I need it. So far, so good. It feels great to be busy all day and not to give BC a thought for hours at a time.

    Happy weekend!

    Getty 

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  • reneemac
    reneemac Member Posts: 73
    edited September 2010

    It has been a while since I have updated so it is time. I made the mistake of telling my Oncologist's nurse that I was fatigued and they brought me in for blood work. I guess it wasn't that much of a mistake because he determined that I am anemic and is treating me with vitamin shots. He also suggested taking the tamoxifen half in the morning and half in the evening, or the whole thing at night. He says this could help with the side effects. I haven't tried either one yet. He also restricted my work hours to 6 a day and that's been a huge help. I go in at 8am and leave at 2 or 2:30pm, depending on whether I eat lunch there. The commute is really getting to me. The Oncologist said that I should get a job closer to home (right) or move closer to work (sure). Neither of those things are going to happen! I fell asleep last night at 9pm and woke up at 9am today and am STILL tired.

    Otherwise, things are plugging along. Still fighting with my insurance carrier about some charges that they didn't cover; looking forward to October (my last visit for a while with the GS) and November (my visit with the PS to get up the exchange surgery AND our family vacation cruise to Mexico). Some days, life seems pretty normal!

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  • RobinLM
    RobinLM Member Posts: 143
    edited September 2010

    Melissa, my implants are 300cc, and yes they were pretty painful, better now they have dropped away from my collar bones, I can breath a lot easier now! The pec tendons are like electric cable and really sore, been massaging them with arnica gel.... ouch... Altogether less painful now.

    I'm going into work tomorrow, planning a few hours there and then working from home......  the company I am with right now have been brilliant, but I'm a consultant and don't get sick pay... Hopwfully I wont get too tired.

    Tell me Getty, did you get the painful pec muscle tendons, its almost a burning pain...... I'm with you ReneMac - implants feel like a bra thats 3 sizes too small that's ridden up.......horrible burning tightness accross my scars.....

    Cheryl, back to hospital on thursday, Going to demand to lay down after 15 minute s waiting..... Laughing

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  • jsmiley60
    jsmiley60 Member Posts: 204
    edited September 2010

    Yeah the TE's feel like a too tight bra WITH WIRES ALL THE WAY AROUND. Ugh!

    Robin: I can't believe you are going back to work already! Sending you thoughts of energy.

    The depression was back for me today and I finally figured out it was just that I am still missing my boobs! Cried some so feel better. Okay like how long do I have to grieve these girls, anyway??! :(

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  • ckptry
    ckptry Member Posts: 350
    edited September 2010

    Hi,

          I had my surgery (BMX) June 9. I'm not sure if I posted here back then (chemobrain). I just wanted to mention that I had one 70cc fill where I was having muscle spasms for days. Now I have them do half fills (35cc) and it is much more comfortable. I have two little ones, so it was really incapacitating to not be able to use my arms without pain. I'd rather just make a few extra trips in. (I was really cranky after they put too much in also, told my husband if there were testicle expanders they'd probably find a better way;-) I'm hoping to catch up on some older posts, maybe when the kids are in bed tonight:-) I have to start thinking about whether I want to do nipples surgically or just do tattoos. Anyone decided?

    thanks

    Carolyn

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  • almagetty
    almagetty Member Posts: 316
    edited September 2010

    Robin: What a trooper you are to go back to work so soon! As to your question, I really can't complain of having had sore pec's. My TE experience was, blessedly, pretty pain free. If it weren't for how darned rock hard those things were, I wouldn't have much to complain about them at all.

    Renee: I'm glad you're getting treated for anemia. No wonder you've been feeling extra run down! November's right around the corner ... you'll be on that cruise before you know it!

    Jeanne: Sorry you're feeling down. You're allowed to grieve as long as you need to. Don't try to get ahead of yourself too much.

     Carolyn: Welcome to our June group. (Or welcome back, as the case may be ... ) I'm going to go ahead and have the nipples and areola put in surgically. I think that, mentally, I need to do it that way so that I feel whole again. Good luck with your decision!

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  • orchidgal
    orchidgal Member Posts: 153
    edited September 2010

    Getty, so happy you are TE-free and now working again, and not thinking about this breast stuff all lthe time! Congrats on making it this far and for leading the way, encouraging us that we will be soon on to the next thing like you are. The postiion in the chiropractor office sounds perfect.

    Reneemac: Those vitamin shots should be helping a lot now, as the adjustment of your med schedule, and so happy you have the vacation to look forward to. 

    Robin: 300cc sounds like a lot but I didn't know what size you were going into this. Hope you are finding ways to cope and that your energy for work is holding up. Glad the company is treating you so well. Yes, am familiar with those electric cables, ice pick man, and the like. Do find that PT helps tremendously, especially for dispersing the cording that feels like wires pulling your skin. Stretching is saving me - a lot - so hope you go to PT soon and get some of this relief.

    Jeanne: I can so relate to missing your breasts, especially when the replacements feel like wires wrapped too tight, around and through. Was feeling that way today, kind of sad, and my TEs are pumped up to beyond capacity now, so feel like I have these Barbie boobs sticking out and up, a bit self-conscious, & skin really right, too. This too shall pass, and we will have those soft squishy ones someday, as Getty keeps reminding us.

    Carolyn: so true if men had to have testicle expanders they would have designed things differently... ;~) Will definitely go for the nipples, yet I haven't seen any tattoos I like - they all look the color of raw liver to me. Wondering if there are any realistic tattoos being done. Mine were more pale and more pink. Check out the photo gallery if you haven't already - great examples of all of this recon.

    For TE insanity: Hot showers, gentle massage, even using the vibrator, as suggested by the PT, helps. I've been taking long brisk walks and stretching upper body while I walk, doing standing push ups on fences, etc. Moving seems to help keep it moving! Deep tissue massage works great, too. Am having that once a week - made a deal with the therapist. Fabric and any type of bra feels very uncomfortable, except for the Costco camisoles, but I have tags of skin on each side of my scars that look like alien double nipples if I don't cover them up, so am trying to wear the camisole, then something loose over it. What if we could take these out, and have a break, just for five minutes?

    ReneeW: Regret that your BMX experience wasn't easy for you - they shouldn't have let you go home so soon. Do keep us posted on your throat spot. I understand and support you not wanting to go for the chemo or hormone protocols. Holding good thoughts for you.

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  • RobinLM
    RobinLM Member Posts: 143
    edited September 2010

    Hi everyone, 2nd day back and doing OK. Got a skive day tomorrow - team building! We get to go for lunch tomorrow lunchtime, be entertained in the afternoon, dinner stay in a lovely country house hotel, back to work thursday - and being paid all the while - Yippee!!

    Carolyn/Melissa: Like the testicle expanders comment - all BS/PS should have to have tried them Tongue out

    I'm thinking I might prefer tattoos, don't much like the idea of a 'groin' skin graft. Over here, they match the areola colour to existing or skin tone. Apparently it takes 2 goes to get good colour coverage. I'm kind of hoping that as I sometimes feel phantom 'nipple pain' I might get to feel imaginary nice nipple feelings Wink

    Sorry you are feeling sad Jeanne, it's awful isn't it...... when I look down (prefer not to) I see a pretty horrible sight, still, better boobs be gone than you being unhealthy. Not looking forward to getting my steristrips off this thursday, will see the scars for the first time Cry

    Lots of loce to everyone

    xx

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