Has anyone started a forum for Chemo in Dec 2008?

Caroline, that is the kind of camping I could do.    It is weird about the pain subsiding with your cycle.  Maybe discomfort somewhere else is distracting from your foot?   Any way, good luck tomorrow.  I hope you get some results tomorrow and not have to wait for days for someone to read the scan.  

Well, the good news is that I am getting surgery to remove whatever it is in my foot. Waiting to hear surgery date now. The bad news is that they still don't know what it is and I am REALLY FREAKED OUT & SCARED I like my new dr, seems to be a bit more knowledgeable than the last guy. He gave me 3 possible options:

1. Osteoid Osteoma - But, my "spot" barely lite on the bone scan, and an osteoid osteoma usally gets REALLY bright. Also, it is typically more painful at night which I don't have any problems sleeping, the pain is usually best if my foot is not on the floor.

2. Giant Bone Island - Again, we're dealing with something that should light bright on the bone scan and it's not. At this point, he feels like it's neither.

3. Metastatic Cancer - While cancer rarely occurs below the knee, it IS possible and this is definately an open option at this point. And, I'm quite freaked out because he is the first dr to admit that at this point, it could be cancer. I don't think he strongly believes it, but I just shut down to be able to read his thinking and ask more questions.

So the plan is to go into surgery, remove the "thing" and do a biopsy. By then, hopefully they'll be able to pin point what it was, hopefully not cancer and I should be relieved of the pain (a few weeks later of course

Just waiting for a surgery date now...

Good news, scary news and frustrating news all at the same time.  I'm glad the surgery date is soon.  The 21st will be here before you know it.  I can just imagine how you felt when he told you mets is possible.  I don't think I would have been able to breathe much less think.  Sooooo frustrating that you still have to wait over a month to get the results of the biopsy.  Does it really take 3 weeks to get results back?  I mean, how many specimens are laying around waiting to be tested?  You are in my prayers, Caroline.

Carie, you know you are in my prayers every day.  Monday can't come soon enough!!!!!!!!  

Caroline: what a bummer to need the surgery.  But I am only going to think positive thoughts and to send you some positive thoughts.  You are in my prayers. xoxoxo

Carrie: I think about you all the time and send up prayers for you too.xoxox

Cyber hugs,

Mandy

Thanks ladies. I'm just happy that surgery is soon and that the pain should go away after. I'll worry about the rest later.. haha, ok, so I'm lying. Seriously, I got to the point today that I realized that wether I worry about it or not, if God decided I am to have mets, well, there's not much I can do. So I have to have faith that God is in control and that he knows what is best for me, which is very comforting right now.

Amen

Besides your tumor markers would be elevated right? Most likely anyway. Its not cancer. I am just sure of it. I have not been wrong yet. hehe. Its soooo stressful. I'll send as many prayers as I can for you.

I am suffering from extreme fatigue it has come over me in the last 3 weeks and getting progressively worse.  I have mad an appointment with my onc. I feel like I have a fever but I don't. The scary part is this is how I felt before I was diagnosed. gulp. What a ride this is huh? I'll keep ya posted. I joined a recovery group to take Tia chi and strength training and core building. I am trying to eat better. Maybe I'm just deconditioned. I hope thats all it is. but............

Hey queen thinking of you too and hoping that things are stabilizing.

Caroline, have you seen a copy of your last blood work with Onc?  My onc doesn't believe in tumor markers either.  told me he never does them.  but when I got a copy of my blood work, there was a tumor marker test done.  It's a fairly new BC mets marker.  He just never told me.  By the way, my # was nice and low.

Bold, I hope your fatigue is just a result of being de-conditioned and doing all that training. A check up never hurts anything tho.  Prayers with you as well.

So, my calendar is filled with Dr. appts. for the month of Sept.  PS for the giant divot on my foob, PS for the face that is sliding off my head, PCP for a flu shot, med review and to refreeze a pre-cancer on my wrist, GI for colonoscopy, well, I guess that's all.  I'm switching to a high deductible ins. in Oct.  I figure one surgery and I'll meet my deductible. (That will be filling the divot on my foob)  Then the rest of the year should be free.  But, I can't go see any Dr. from Oct. thru Dec since I don't want to pay the high deductible twice.  Guess I should figure out what my meds will cost too.  Just can't afford the monthly premiums of the policy I have any more.  It's going to double Oct. 1.       

Cebula,

All the best and stay positive. My onc told me that in 35 years of work she never had any pacient with bone mets lower than the knees. Don't stress yourself too much. I will have a glass of wine for you tonight and sending you good thoughts ( an excellent 2006 Merlot from Pomerol).

I am very upset tonight. The beast has stricken again. One of my daughter's classmates had brain surgery 2 weeks ago to remove a tumor.  He is 13!  He will have rads and chemo and maybe he gets 2 more years, if he is lucky. I really hate this disease!

Havehope, you are so nice to have a glass of wine for Caroline! LOL

Terrible when any child gets cancer.  How do they get thru it?  It's so hard for us, how does a child deal with their fears? 

Before I had BC, I went to the Dr. once a year.  Now while I'm not going a couple times a week for something or another, I'm still going at least twice a month.  Part of the new normal???

Havehope, so sweet of you, so I joined you with a glass of wine Saturday night (or 2...). I hate seeing cancer in children, I don't know why, it just seems more wrong than with us. When we did the Relay for life last year, there was a little bald peanut walking around as a survivor, just watching that little boy made me want to cry, so young How is your daughter dealing with it?

Thanks Mandy, so sweet of you.

The new normal? Please not... LOL!

Busqueen, alright, alright, I won't steal your thunder Did you start drinking yet? Time to open the champagne? Patiently waiting here.. bring us some good news

So. The good news is my lungs and liver are still clean ~ yay!!  All of the spots that showed up in May are either stable or diminished, which is also good news.:-)  However, there was a new spot that showed up, at the top of my right femur, which didn't surprise me because in the last week I'd been experiencing a new pain in that general area.  My onc wants to spend some more time looking at the scans and showing them to the radiologist as well.  I may end up with an additional hormonal to take, or some chemo, and/or some radiation.  So, more of the waiting game for me, to find out what my new treatment plan will be. 

Bold, hoping you can find something out soon.  Praying for you.:-)

prayers for all my bc sisters! xoxox