THEY HAVE NO IDEA!!
Comments
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Mary...Thanks for the visual valium. I needed that.
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Where is that Mar? So glad your mom is home and you both are doing okay. bon, you are a great daughter. xo
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love, no idea...i confess i googled it ... not one of my own pics!!! we are down the shore this weekend and i did remember my camera so hope to post some of my own tomorrow but that one was picked from internet. it does look exactly like our delaware bay though!!
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Bon, so glad to hear your Mum is on the mend. My Mum is 92 now and although she is pretty healthy and still living alone and driving! (I don't think that is a good idea but she won't hear any of it) even a cold knocks her around quite badly now - your Mum must be one tough lady to cope with all that she has been through in the last week. Fingers crossed she gets back to full health quickly.
That beach looks like Waihi Beach, NZ, where I walked with my friend and our dogs today! So good for the soul to walk along a beach on a lovely day with dogs running around you.
What holiday are you celebrating this weekend? It is Father's Day here in NZ.
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raeinnz...been thinking about you with the recent earthquake there, but I know you said you were on North Island and I've been hearing that most of the damage was near Christchurch...Did you feel any thing at all?......We are celebrating "Labor Day" to celebrate the economic/social achievements of workers....Our "Father's Day" is in June........Wish we could take our dogs on the beach, I would take my dog, he would love it!...
Bon, I had a great time at "Archies" yesterday, there were about 50 of us (high school classmates) not a reunion or anything, just a get-together.....Some of us continued afterwards and went to Dockside Tiki on the inlet and then to a Tiki Bar in downtown Ft. Pierce on the river....
Speaking of Moms, my mom (76) and her friend (78) have been gone about 2 weeks and drove 12 hours straight through yesterday back home...I don't even think I could do that....I'm sure myMom's friend did all of the driving, since my Mom shouldn't even own a drivers license, no kidding, she is a terrible driver!!!
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somanywomen...Sounds like you had a wonderful time. I bet it's nice to live within an easy drive of where you grew up so that you can get together with old friends when and if you'd like. And to have the inlet and the ocean as your backdrop...not too shabby!
Mom is doing fairly well at home, thanks to the 'cooking' skills of my step-Dad. He is trying ti take charge in the kitchen...with Mom barking orders from the sidelines. It's a hoot. I am so incredibly grateful to that man. He is a peach of a guy. To anyone out there thinking that maybe it's too late to ever find a partner for the rest of your life, especially after breast cancer, my folks are proof that it can happen and that both parties thrive. When they were married nearly 24 years ago my friends voted Mom as the poster child for "Its never too late".
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Bon, it is nice to live close enough, growing up in Fort Pierce was great, small town, we knew everyone at school..It was a very safe place at that time..Things have changed and now it is big and spread out and not as close-knit..The down town area is still quite nice, esp, on the water there...I love the beaches, the water is a bit bluer than here in Cocoa Beach..My friend Susan and I were just too much fun in school, so we knew everyone, my husband loves going to my highschool get togethers because they are so fun, he is about 8 years younger than me so he is usually by far the cutest guy there and gets lots of attention....Did you grow up in Vero?....Your Mom is very lucky to have such a great guy, esp at this time in need...so glad things are going great for you and your Mom...keep up the good work....
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somanywomen - that seems so funny to me - Labour Day in September and Father's Day in June! Our Labour Day is at the end of October. We don't have Thanksgiving or 4th July (sounds like you all have a great time over there) - our national day on 6 Feb is called, not New Zealand Day as you would expect, but Waitangi day (it commemorates the signing of the Treaty of Waitangi which is the agreement between Maori chiefs and the English to co-exist amicably). Unfortunately what should be a national bonding day is usually anything but with activists usually disrupting the official celebrations and the rest of us being saddened by what happens - many of us have little respect for the celebration anymore. There are many who would like to return to a more inclusive of all races and cultures 'New Zealand' day celebration but it will be a long time coming I think.
Why aren't you allowed to take your dogs on the beach? Some of our popular beaches have dog exclusion over the summer but you can pretty much take your dog to any beach in the winter. Dogs are not allowed in our national parks without a permit and some farm parks exclude dogs because they have sheep free to control the grass.
Bon - a good man is worth more than his weight in gold. I am forever grateful to my DHs first wife for telling him she didn't want him anymore - I have definitely been the winner for the past 24 years! So glad to hear your Mum is 'barking orders' - she must be feeling a lot better!
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yay for Bon's mom doing well, and for all of us, our sisters, our mothers, our daughters, who found men worthy of us to share this ride. this pic is actually from my bay beach - we have a trailer at a campground down the shore (south nj) and today was an absolutely picture perfect day ... peace and love my friends
(and yes, that's my dh in his chair!)
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Aww, Mary, that is really nice!!
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absolute bliss - thanks for sharing Mary
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Mary, Love the photo. makes me long for a walk on the beach. Maybe one morning next week I'll give it a go. I hate to jinx myself by writing it, but I'm actually feeling pretty good this morning for the first time in ages and ages.
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Wow Marl- what a great picture. thanks for sharing. Is HB coming in oct?
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Bon, hope you got that walk on the beach sweetie. Flash - nope ... Mr. D not making the journey. We have diff ideas of vacation! he doesn't like travel, I love it!!!
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brendaskids & somanywomen: I can so relate to what is written here in this post of July 26. Going through all the PTSD-ridden stages of learning of your BC, tests, sometimes horrible treatment or insensitive health workers - like the pathologist who called me on the phone to tell me I had BC instead of contacting my primary care Dr. so she could make an appt. To tell me in her office in person! All the series of biopsies, waiting for and getting the test results, up in the middle of the night freaking out over what decisions to make, who to believe, what research to follow... While I feel relieved to have gone through treatment thus far, (BMX, SNB, REcon w/ TEs, now awaiting implants, et al) I am devastated on other levels, and find myself, who normally eats well and takes good care of myself, not caring as much, and drinking coffee and having too many sweets, and not enough real food, feeling distracted, and plain feeling down. When I see new Mastectomy Forums pop up as the months pass and look to see the line ups of women it makes me sad and sick to see this " mandatory draft" of women into the "BC military corps!" And then well meaning friends and acquaintences telling me how good I look! I appreciate the positive feedback, but like someone said, want to see the scars where my nipples once were? I went to an excercise class and told the instructor ahead that I was just returning after a BMX. At one point she teased us by asking that we lift the weights up to chest level, as "those two pink things on your chest are there for a purpose" giggle giggle. I knew not to get mad at her, but it still hit me as insensitive, and that is subjective, as I have no more nipples or pink things to bring the weights up to. And friends who say they wish they were having implants so they could have perky breasts again, or "why don't I go bigger,?" or guys who hint, "can I see 'em?" I guess it's best not to talk about it as that just stimulates these types of comments. That's why we have this incredible place to laugh, cry, let it out and vent. And cancer support groups, that I find myself returning to. Anyway, thanks for letting me vent! Hang in there everyone . . .
xoxo orchidgal
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hugs orchidgal
this website is a lifesaver for so many of us, giving us the opportunity to talk freely with people who get it. we don't want pity, we don't want to be coddled, we just want to be understood, and to be heard. thank you bc.org !!
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orchidgal, I can only imagine what those of you that went/going through with BMX, Recon, TEs, etc and all else that entales..When my docs first threw all the no-win choices at me the first few weeks, I was a total zombie trying to weigh my options...I remember being in a department store and just looking at the bras and wondering around in a daze, trying to think, should I just do lump, should I do mast, should I do bmx....How could they (the docs) tell me that I had to chose, why couldn't they just tell me what would be best..None of them wanted to take that responsibility..Before surgery that first month I changed my mind everyday...Then made my lump decision, then decided the no-chemo route because of a lower gray area oncoscore outcome...I have no idea if I made the right decision..It seems no matter what we all try to do with our personal mathematical bc equation, that in the long run, you must always be on guard and try to continue with as much hope as possible..I am a big believer in taking what control we can to give ourselves a better/healthier body if we ever need to fight this monster again, so you can not give in to it, you must take that control back and get to a healthier lifestyle, esp, what foods you eat..I don't know too many people that are not effected by some sort of cancer in thier family so it is hard to believe the insensitivity of so many so-called caring people...I try not to let this bc keep me down, but as all of us know too well, it is always there...Let's just try to get as much joy in our lives as possible because bc hates joy and happiness and we hate bc.....
raeinnz..wish I could take my dog "Jack" for a walk with me on the beach, but dogs are only allowed on certain beaches and not anywhere near where I live...We did however take him on a vacation to the Florida Keys where there are several beaches just for dogs...and guess what?, we had to drag him in, he does not like the ocean!..Well, one good thing, since we live on the water, we never have to worry about him jumping in when we are not around!!..
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orchidgal that was pretty insensitive of your exercise instructor right after you told her of your surgery. People don't even think. And that is why we come here. It is sad that the membership keeps growing. But the old seasoned vets seem to stay around and give the new recruits the support they need. We all make the decision that we think is best for us but who really knows? I figure it's all a crap shoot anyway.
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A woman, who I thought was a friend, sent me an email (other women were also recipients) of a photo of 3 old women wearing scarves that look like boobs!!! Are you freaking kidding me!!! Has anyone seen this photo or email? I couldn't believe it. I emailed her back and told her that she has offended me and that she must have already forgotten what I've been through. It is like some people can't be bothered in even remembering what we've been through. We are supposed to just be positive now and go on with our lives like nothing happened! It is so easy for them to say. It makes me sick!!
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Brie - no I haven't seen the email or photo and I hope I don't. I am sorry your 'friend' has so little empathy for you - you are not alone - go look at the 'dumbest things people have said to/about you' thread.
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It's so true. My husband especially does not understand. As far as he is concerned I "HAD'' BC and now I don't. My dx was IDC stage I, grade I with no lymph node involvement. I had a lumpectomy and mammosite. Within 6 weeks of dx my treatment was complete so in his mind it's over. The fact I need to take Arimidex for 5 years and have f/u with the BC, oncologist and radiation oncologist doesn't even enter his mind. I wish I could smack him into reality but.....
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NO ONE - and I mean NO ONE - can understand the fears and stress that comes with cancer unless they have had it.
They can be supportive and kind and help with things, but they don't truly get it.
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Today it is the 2 year anniversary of my surgery, noone seems to remember but me. It has been a very mixed up emotional day. THEY HAVE NO IDEA!!
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Ladies............I could not have said it better, and that is exactly how I feel....From that first phone call to "come back for a redo".........to right now when I have to make a decision about radiation, and hormone meds................How about when you get your pathology back, and you find out your tumor was smaller.........no node involvement...............good margins.............no chemo...............and some as-hole says to you............Your lucky.......................No I'm not you freak..............I may be better off then someone with a larger tumor.......node involvement, poor margins, and has to get Chemo................but I still have cancer nut job, and we have no guarantees that it isn't coming back somewhere else......I'm just plain tired of people............I don't want to be the center of attention, but pleeeeeeeeeeeeease don't act like I had root canal.............It is true people think once you have the surery, path report, treatments, that your fine, and completely safe..........Gone, gone, never to return............Unless you walk the walk, pleasssssse do not try to "talk the talk".............YOU HAVE NO IDEA.....................but my BC friends on this website do, and thank God for you all.
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ducky- I know how you feel. Being Stage I I get that "you're lucky" alot. And, I think the same thing. I was diagnosed with BC at 34 years old. And I have chemo and no breasts now. Or, the other thing I get is "why would you had a BMX if you don't have to?" As if I did it just for the fun of it. I did it because I am scared to death stupid is what I would like to say. Sorry if that sounds harsh, but just as ducky said, I am grateful for this website. It is nice to talk to people who understand. Good Night everyone. Take Care. Allison
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Allison...........Thank God they found your cancer............I don't care how they have to find breast cancer in younger women, or what it cost to find it.........dense breasts is an excuse, it won't show well at such a young age, it is unusual for something that young to get breast cancer, well I say bullsh-t to that theory...................What they are saying is don't waste the money on the young cause for everyone we find, there will be 20 that will be negative..............Sorry bucko, but my theory is..........find the one, very early, no matter what type of test, or scan it takes, and don't worry about the 20 who you think you "wasted money on doing the testing.........
I just hope you do well Allison. I am 76, so I am one of the so called "lucky ones, haha), who will probably die before the cancer has a chance to recur........................Oh yea, I got that line too from several people...................."Well, I'm sure something else will take you before the cancer has a chance to come back"..........................I am pleased with my results after surgery, and pathology, yes I am, but at my age don't dare tell me how lucky I am that I am going to go through 33 radiation treatments, and on a hormone that can literally destroy you, while it is trying to help you..................Love your picture......take care, and hugs to you
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ducky- you are absolutely right about testing younger women. If I would have went solely on a mammgram, I would have no idea about the cancer. Thank God my OB/GYN ordered an ultrasound. My doc said she is amazed at the amount of young women she sees with BC now. They really need a wake up call. I think until it happens to you or someone you know, you don't know the impact it has. The word "lucky" makes me laugh. You're right. As if having surgeries, chemo, rads, etc. is somehow lucky...no matter what your age. People mean well, but where's the common sense? Thanks about the picture. Take Care.
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Hugs DuckyB1
"Something will probably take you before the cancer" Oh God, please, no, no, no, someone actually said this???? People do not get it, that's just it and they never will. This site is a God send and your words were kind and comforting, you are one of the amazing women here who got me through this horrible disease that noone who (doesn't have it) could understand.To Allison, love the screenname. I'm in my 30s too, it just sucks, and it's unfair, been through chemo. I got the works. I read something on this board that made sense. The woman said "I got it, I took care of it and now I will do my best to NOT take life for granted and see things with ALOT more clarity. It's just something bad that happened to me, a lot of bad things happen to us in life, I'm going to move forward and try to keep showing up." I just loved her outlook.
GOD BLESS ALL THE WOMEN ON THIS BOARD!!!!!!! I know I would have been lost, and so much more afraid, you all gave me hope. We all need Hope! Have a goodnight everyone!
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I had my bilateral on 12/29/09. Within three weeks two more surgeries due to a bilateral infection and it caused me to loose the nipples on both sides. Then an incision broke open. I had a PICC line and two antibiotics that ran almost 24/7 for 6.5 weeks. Then a rare side effect of one of the antibiotics that caused me to lose my balance and I couldn't walk straght for five weeks. Had to delay fills in the TE's due to everything until 6 months after the original surgery and finally had my exchange 10 months after the surgery. I have lost friends that I thought of as family. They basically disappeared. Sent a few emails. One betrayed my trust. I am very private about my diagnosis. She hasn't called in over a year. One friend basically put me down when I told her I got tears in my eyes the first time I walked by a lingerie dept. This is during the PICC line stuff or shortly thereafter. It goes on and on. I wouldn't ever wish this on them but I have to admit I wish they could walk in my shoes for just a few days to see what it is like so they realize how stupid and insenstive they are.
Fortunalely I have some friends who are true friends that understand this isn't over when the incisions heal. But those folks are few and far between.
Sorry feeling very angry today about all of it. I am still not done with reconstruction and it makes me angry because I was suppose to be done June 2010 with my own nipples.
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Fearless One - Could not have said it any better!!!
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