Has anyone started a forum for Chemo in Dec 2008?

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  • EleanorJ
    EleanorJ Member Posts: 752
    edited August 2010

    I don't think it would have been a pain free vacation given the fact that I probably will land in a cast ;) At this point, I'm holding on to the fact that on Sept. 8, I will know what's going on, and if I don't, I might just start crying in the doctor office! LOL!

  • Firni
    Firni Member Posts: 1,519
    edited August 2010

    Sometimes that's what it takes.  I've done it.

  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited August 2010

    Hi Ladies!

    Got back from my trip to Italy---it was wonderful---mostly wonderful because the whole family was together.  Since my daughters are in their early 20s, family trips like this are not that common---our last one was in 2007!

    I just read back and I am hoping that you are all feeling better and doing well. Cebula, I will think of you in September. How annoying to have that pain for so long.

    Take care and have a good day!

    Mandy

  • havehope
    havehope Member Posts: 503
    edited August 2010

    Hello Divas!

    I hope everyone is having a good summer.  

    Cebula, I wish you only good news!

    Mandy, welcome back.

    Busqueen, how are you doing?

    I am reading the posts, but since I've been using my iPad more than my PC I cannot post due to software issues.

    I have decided to change my annual check from October to August. I want a peaceful holiday season not stress waiting for results. So, my blood is at the lab and I am waiting. I had traces of blood in the urine so tomorrow I go for kidney and pelvic ultrasound. My onc said is probably nothing since most of the office tests can give false positive results, but it is good to keep an eye just in case. I feel good, put on some lbs when I was visiting my MIL in Germany. She feels good and looks good, too. ( she was also dx with BC one month after me). She is a little upset that there is no medication for her now that she is done with the treatment. She went for Iscador but she was not a good candidate - too old (72) and her body will not support the medication. Other than that her spirits are up even though her hair has not yet fully returned. She did chemo and radiation. 

    My next app is September 13, but I know if something is wrong she will call me sooner.

    I wish you all good health and keep in touch.

  • Bold
    Bold Member Posts: 692
    edited August 2010

    Just popping in to Hello!!!  Hope everyone is having a good summer. Back still hurts most of the time but I guess this is my new normal. Your all In my thought and prayes.

    Peace and beauty.

  • Texas357
    Texas357 Member Posts: 1,552
    edited August 2010

    Bold, you are always one to focus on the positive! That's the way life should be, right?

  • horsercn
    horsercn Member Posts: 32
    edited August 2010

    Hey all....just checking in.....is anyone still going through the plastic surgery......I did a redue on mine ....second time looks wonderful but I still have the expanders....end of Sept. will get the real foobs.  still don't have nipples or aereola.  Does the tatoo stuff hurt and how do they make the nipples.  I'm so tired of being in pain as I'm sure you all are too. I pray every day for all of you. don't know what i would have done without all my sisters going through the same thing at the same time as me.  Thank all of you for being there for me!!!!!!

  • Texas357
    Texas357 Member Posts: 1,552
    edited August 2010

    I'm still going through reconstructive surgery because the first attempt on the rads side failed. The prophy side looks great! I'm at surgery number 11. I am back in an expander and still need the exchange and nipple surgeries.

    Nips: I had origami. Piece of cake. Virtually no pain.

    Tattoos: My nerves in both breasts had pretty much regenerated so I had slight pain as she was doing the tattoos. When I get the rads side done this next time,I'll ask for numbing meds. Afterward there was no pain or tenderness at all.

    Right now, my biggest source of pain is the Femara,which is suddenly making every part of my body hurt.

    Like you,I'll be celebrating when all of these surgeries are history!

  • Firni
    Firni Member Posts: 1,519
    edited August 2010

    I'm supposedly done with the surgeries.  But I've developed big step offs on both sides.  I'm just looking for a PS that will do fat grafting.  Mine won't do it.  I also have one nipple that has collapsed to nothing.  Might do something with that.  Actually, I'm looking at having some work done on my face.  It has severly fallen since chemo.  Don't like the "natural" sun shades my brow ridges are making and my cheeks have fallen off my face to create jowls and another chin.  As soon as I can get my brow ridges put back in place medically, I'm going to add a little more reshaping to my face. At least insurance will pick up some of it then.  I think I've aged about 15 years in the past two.  AND my hair still won't grow back.  I figure if I can't have hair, I want a more youthful face.  To match my new boobies.  I have pain all over every day.  Bones, joints and muscles.  I'm learning to live with it.  At least the surgery pain goes away.

  • Texas357
    Texas357 Member Posts: 1,552
    edited August 2010

    I'm doing the "raspberry" to all of those people who came up to me when I was first diagnosed and said, "I know someone who had breast cancer. And she's FINE now. She never even thinks about it."

    If I heard it once, I heard it dozens of times.  

  • Firni
    Firni Member Posts: 1,519
    edited August 2010

    Oh sure.  I'll bet "she"never thinks about it.  Poor woman is probably like the rest of us who stopped talking about cancer to friends because they don't want to hear it any more.  It makes them uncomfortable.  If I had known early on what I know now, I would have to respond to that comment with "Are you sure?"

  • busqueen
    busqueen Member Posts: 176
    edited August 2010

    Firni ~ I'm so sorry to hear about the departure of your cheeks.:-)  {I know I shouldn't laugh, but the mental picture was too much....}  I'm glad to see you over on the "You know you're a cancer patient when....." forum, it definitely provides some much needed comic relief!

    Mandy ~ I'm so glad {and fairly jealous} that you had a wonderful trip. What a blessing to have that time with your family.

    HaveHope ~ It was good to see you check in.:-)  It's great to hear you're feeling good and that your MIL is doing well.

    I'm doing ok.  I've been feeling a little more pain lately, but I'm thinking it's just from running around too much the last 2 weeks.  Its also been way too hot and humid here, and that just sucks the life out of me.  I have a PET scan on Sept. 2, and will get the results on the 7th.  I'm having a port put back in on the 8th, because it took 6 tries to get the IV started at my last Zometa infusion.  I've officially been approved for Social Security Disability and am getting ready to hand in my resignation at the bus company.:-(  I'm actually looking forward to being able to stay home and homeschool my kids and nurture my still-young marriage {our 2nd anniversary is next month} with all the energy I have, it just kind of sucks to have the decision made for you the way its been made for me.  I told my manager that I just didn't understand why they wouldn't let me drive a bus under the influence of narcotics.....I think there would be a lot less road rage if everybody took a little oxycontin before rush hour!:-)

    Cebula and Bold and Texas and Horsern, I hope all is well in your lives and you're enjoying these last weeks of summer.

  • Texas357
    Texas357 Member Posts: 1,552
    edited August 2010

    Busqueen: This heat makes all of us a little fatigued. Sending you hugs!

  • EleanorJ
    EleanorJ Member Posts: 752
    edited August 2010

    Busqueen, you always find something to say that makes me laugh. Take it as a blessing, you'll get to spend more time with your family :)

    Mandy, I'm glad to hear you had a wonderful family vacation.

    I'm going in for my bone scan on Monday, then meeting the new doc on the 8th. I'll try to get my report somehow in between ;) I just got back from visiting my family in Canada, I was worried about the 9-hour drive (one way that is!) by myself with the lack of cruise control on the car. I made it, that's about what I can say, it was quite painful by the time I got there, but I survived and came back :) While there, we had a family party and my aunt who was diagnosed right before Christmas had just finished her treatment. It's funny how you just bond with people, I had never really talked to her before and all of a sudden we found ourselves talking for a while with this new bond. She's a nice lady.

    With the great amount of testing I have had since June, I reapplied for the financial assistance from our local hospital and we qualified again Laughing I was scared we wouldn't since hubby got a small raise and a bunch of overtime, even with that, money is tight for unplanned testing, especially if my foot requires surgery, so that was good news when I got home yesterday. I like my hospital :)

    I guess summer is technically over since the kids are back in school next Monday. It was a fun summer, I was very productive at keeping my kids happy & entertained, otherwise very UNproductive at keeping my house clean & laundry done... hehehe

  • Firni
    Firni Member Posts: 1,519
    edited August 2010

    Caroline, who cares about a clean house?  Spending that quality time with your kids after they went thru that year of Dx and Tx with you is way more important.  Very nice about the financial assistance.  My hospital, state or anything here doesn't seem to believe in that.  I did get a $2000 grant from my chemo center last year but that's about it.  Unless you are about to lose your house, they don't really care about financial need.  Yell  

    It sounds like your trip, while somewhat painful driving, was well worth it.  I have an aunt too that I have reconnected with because of the cancer connection.  She has colon cancer tho.  

    Good luck with the bone scan on Monday.  I hope it shows your bone issues are not related to the little black cloud of cancer.  

    Carie,  I too am sorry about my cheeks.  Thanks for you sympathy.  I do think part of chemo should be the option of a mini face lift after.  I know what the heat and humidity is like up there in the land of 10,000 lakes.  I make it a point not visiting there from July thru Sept.  Miserable!  I hope you are taking some time to rest.  It is a bummer not being able to work, but I have to say, I really liked not working for 1 1/2 years while in treatment.  I set pretty good boundaries when I first went back to work, but now it's pretty much consumed me again.  

    Mandy, I've never been able to take a big trip like that with my family.  It has to be fantastic.  Someday.

    Havehope, I don't blame you for changing your follow up appts. to avoid the holidays.  That's enough stress in itself without adding the medical aspect of it. 

    Hope everyone else if feeling fine and doing well.  Can't believe it's Sept. next week.  Sept 9 is my 2 yr cancerversary. 

  • EleanorJ
    EleanorJ Member Posts: 752
    edited September 2010

    Firni, you're cancerversary is exactly one month prior to mine. Yeah, I love my hospital, they really are non-profit, the make $0.01/year, so they say. Which isn't hard to believe knowing that they're really out there to help out people. I'm sure the drs all make good money, but they're all willing to help you out. It's a pretty large hospital and I love the fact that any doctors can log in their system and see what has been going on with other drs or see tests results, makes it so much easier. I wish more hospitals would be like that.

    I guess you can say the bone scan went well, although I layed on the table without moving for 1h20min!! Yikes, I was in so much pain when it was over. I'm getting the results tomorrow (meaning I'm picking up my CD & report). Next visit with the dr is next Wednesday morning and he better have a surgery date because the pain keeps getting worse. Hubby has to drive my car because it hurts to push on the gas pedal (the car has NO power, you have to push hard!) and I'm avoiding make unnecessary car trips. It stinks! I wore my compression garment on that leg today and it helped some, but geezzz, I just want the thing out. And on the bright side, well I'M STILL ALIVE :)

    Otherwise, I've been busy busy. Kids went back to school yesterday and I'm in the process of taking care of all the veggies I picked out of the garden on Saturday. Froze some peppers, pureed all the roma tomatoes and simmering into a sauce...Here is a picture of our harvest day! And ALL organic :) 

  • Firni
    Firni Member Posts: 1,519
    edited September 2010

    Laying still that long just sounds miserable.  Altho I probably would have gone to sleep.  If I stop moving for 10 min, I'm asleep.  Surgery would be good regardless of what the scan shows.  Good luck Wed.  Let us know!

    Oh, your link isn't displaying. 

  • EleanorJ
    EleanorJ Member Posts: 752
    edited September 2010

    Oh well, it was a picture of my cute son in front of our big pile of veggies.

    Got the report, even thought hubby & I can't figure out what it means, our understanding is that whatever it is, it is confined to my foot, no other findings. So, I guess this is good? And surgery WILL happen! LOL! The pain keeps getting worse from day to day, lessens if I wrap it, but still. Really hoping for a plan of actions next week, until then, I'll be sipping wine over a campfire this weekend :)

  • havehope
    havehope Member Posts: 503
    edited September 2010

    I am officially NED. The tests came back very good. Tumor markers still low. It looks that I just eliminated a small kidney stone ( that's what it showed on the US - no stone left but the right kidney a little large, but nothing in there). Hence the blood in the urine. I took another test and this time no more blood. My pelvic US came back "healthy" as well. So I am done with tests until next year in August. Oh! I am low on vitamin D. My level is 25 so I need to take supplements. Not too happy since I have to take Calcium and Magnesium and Calcium is prone for kidney stones. Go figure! But, I am not complaining. After chemo and all the rest I think I can take a kidney stone.

     I wish you all a good, relaxing, good weather Labor Day Week-end!

  • busqueen
    busqueen Member Posts: 176
    edited September 2010

    Woohoo! Woohoo! Woohoo!!  Doing the Happy-NED dance for HAVEHOPE!!!!  Yay!:-)

  • Firni
    Firni Member Posts: 1,519
    edited September 2010

    Congratulations Havehope!!!!!  Not much is better than NED.

  • Bold
    Bold Member Posts: 692
    edited September 2010

    Congrats Have Hope. Music to my ears!!!!!

  • EleanorJ
    EleanorJ Member Posts: 752
    edited September 2010

    WOO HOO!!!!!

    Have a safe weekend everyone. We're heading out to NY tomorrow for a short camping trip :)

  • busqueen
    busqueen Member Posts: 176
    edited September 2010

    Sooo....I'm getting ready to leave in about 20 minutes for my PET scan.  Sigh.  Thought I was doing ok, but, my hands are shaking while trying to type this......y'all keep your fingers crossed for me.:-)  Won't get results till Tuesday.

  • EleanorJ
    EleanorJ Member Posts: 752
    edited September 2010

    Of course, had to be over a long weekend! Have yourself a nice cookout to forget all about it :) Wishing you a GREAT weekend! Hope it went well (as well as a scan can go ;)

  • Bold
    Bold Member Posts: 692
    edited September 2010

    Sweet Queen!!!

    We are with you. breathe breathe breathe!!!!

    My prayers and healing is yours.

  • Firni
    Firni Member Posts: 1,519
    edited September 2010

    Carie, hope your scan went ok.  Just seems cruel to have to wait now till Tues.  My prayers are with you every day.  Try to enjoy your weekend.

     Have fun camping Caroline.  I haven't been camping in soooo long.  I think I've turned into a hotel woman now.  With a pool. Wink 

  • busqueen
    busqueen Member Posts: 176
    edited September 2010

    AAARRRGGGHHHHH!!!  So.  They told me to avoid sugar, tobacco, and alcohol yesterday.  To eat high protein, low carb, and drink lots of water.  Nobody said a thing about artificial sweeteners.  So my advice to all of you is that if you ever have to have a PET scan do NOT drink Crystal Light!!  No scan for me today.:-(  It's been rescheduled for next Wed, with results on Mon the 13th.  Oh well.  Tomorrow we are going to the State Fair and I plan on drowning my sorrows in mini-donuts!:-)

    I hope you all enjoy your long weekend, have fun, relax.  

  • Firni
    Firni Member Posts: 1,519
    edited September 2010

    What a bummer!!!!!!!  Bad Crystal Light.  You might as well really enjoy the weekend now.  Mini donuts sound like a great start. Finish up with a couple drinks.

    Everyone else enjoy too!!!! 

  • EleanorJ
    EleanorJ Member Posts: 752
    edited September 2010

    Oh no. With the amount of people doing artificial sweeteners these days, you would think that they would know better and warn against those as well! I hope the mini-donuts did the tricks ;)

    We had a fun time camping, it was actually cold and it felt really nice to warm up by the fire. And by the way Firni, we camp in a Vanagon Westfalia, with water, electricity, a stove & a fridge. I am no a tent lady ;) So while, we had a great time camping, our freezer door wasn't shut all the way when we left, so you can imagine what it looked like 4 days later. We have a chest freezer in the basement, but for some reasons, the bulk of my meat was upstairs. So roughly $200 worth of food in the trash :( So much for vacationing on a budget when you camp! LOL!

    Tomorrow is THE day. I shall find out what is wrong with my foot :):):) Now for some odd reason, as much pain as I was in last week, barely able to drive my car or be on my feet, as soon as I started my period on Friday, the pain slowly started to go away. Don't get me wrong, it still hurts, but at least I can go on with my day.

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