November 2009-Starting Chemo

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  • mabelle
    mabelle Member Posts: 80
    edited July 2010

    Melinda - yup, I'm done on Thursday! I'm also done my work contract on thursday - so I'm free as a bird come Friday!! Summer, here I come!

    I've been going topless the past couple of days - the heat has been unbearable in a wig! I'm used to highs of about 25c (77f) and its been hovering around 30c (86f). I know that seems like nothing to some of you southern gals... but for me its torture. I don't know how anyone can wear a wig in the heat! My hair really isn't long enough for me to go out - but with this weather I didn't feel like I had a choice. I feel super conspicuous and so self conscious. If I knew how to post a picture I'd show you all. 

    My weight went up about 6 kg (15 lbs) over the course of chemo. I've got it down by a few but its taking a long time to shake. The half bag of potato chips at the beach today didn't help I'm sure!!

    I'm exhausted and I'm going to bed! Have a happy Monday everyone!! 

  • livelife
    livelife Member Posts: 38
    edited July 2010

    Hi girls,

    Just been catching up on everyone's progress. I had a bit of a hair experiment the other week, I thought I would have it dyed light brown, to cover the grey bits- it turned out bright red !!!!

    Not sure what happened there- I had it done at my usual hairdressers- wonder if chemo and or tamoxifen changes pigments.

    I have just been to Greece for a weeks holiday and even thought I was covered in factor 20 suncream I have come back with a golden tan-much more so than normal.

    With my suntan I look really healthy. I have just gone back to work ( on 50% of my normal hours)- its nice to feel that I dont look sick.

    Love to you all. xxxxxxxxxxxxxxxxxx

  • Melinda41
    Melinda41 Member Posts: 672
    edited July 2010

    Livelife: I hope you had a wonderful vacation. Thanks for sharing your haircolor experience. I am scared to color mine, I keep hearing that it will stick fine, but then I also hear stories like yours with unpredictable reactions.

    I have finished 18 rads, I see Big Onc tomorrow (I hope) getting my naked Herp (that just sounds bad).

    Me an Clyde (that is what I have named my new bump) are just plugging along. But he rubs on the seat belt, I am very aware of his presence.

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited July 2010

    Livelife ~ they say our skin is more sensitive to the sun since chemo.  I would imagine that is why you got more color then usual.  Greece sounds wonderful !  Hope you had a nice time.

    Melinda ~ sorry you feel Clyde......  does it hurt?  I am keeping my fingers crossed for good news from the oncologist tomorrow on that darn lump. grrrrr....

    Mabelle ~ how exciting tomorrow is your last day !!!  Do something nice for yourself ~  I could not imagine wearing a wig in the heat as well.  Embrace topless I am sure you wear it well.

    :)
    Alicia 

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited July 2010

    Melinda: I hope Clyde turns out to be fluid or something non sinister. Hugs are coming from far way ((((((((((((HUGS))))))))))

    Only 7 naked herceptin to go after yesterday. Last one will be 8th December - port out for Xmas !!!!

    It was great to see my onc yesterday - hadn't seen him for 6 weeks. I'm still going to have Zometa infusions even though my bone density was good. It does help prevent recurrence of bc so he still wants me to have it. He's going to lie to the government so I can get it for free - I just love him!!!

    I'm finding work very tiring even though I'm just reading training slides. I am so glad I've gone back part time to start with.

    Sue

  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited July 2010

    I had my dr. appt today. He said everything looks great and that I should grow into an old woman. I start my Tamoxfen any day now. Skin is still tender from the radiation. They took the bandages off after receiveing my naked Herceptin and Zometa, and I think half my skin came off with it!

    Sue: Zometa is a breeze. The first time, I came down with flu-like symptoms, but that was only with the first treatment. No side effects after that.

    Melinda: Kick Clyde's a$$ to the curb!

    He talked about taking me off of Herceptin after my year's worth of treatment. The spot on my liver is gone. Kinda makes me a little nervous. What will stop it from landing somewhere else???? I went from seeing him every week, to once every 3 weeks, once every 6 weeks, and now I see him every 9 weeks. Can I get back to normal?? What is normal?  Phew! The last year has been crazy!!

    Love to all of my sisters!!

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited July 2010

    Sue ~ glad you are winding down with your herpecin!  Sorry you are tired now that you are back to work.  I think it will take us awhile to feel "nearly normal".  It's been a tough year !  Rest when you can.

    Linda ~  SO glad to hear that wonderful news from your DR !  I knew your would kick cancer in the ASS!  Normal?  hmmmm not sure ~ I think we will all fall into a new kind of normal.  For me I have to say I really don't sweat the small stuff anymore!  (or at least I really try) 

    HUGS girls !!! 

  • Melinda41
    Melinda41 Member Posts: 672
    edited July 2010

    Mabelle: Happy Zapping tomorrow!! 

    Alicia; yeah, I can feel it, it is uncomfortable. People can feel it through my shirt now.

    Sue: Deported for Christmas, Yeah!!

    Linda: It must feel amazing to hear "you should grow to be an old woman", that is wonderful!!

    I saw Rad Onc today, he felt the bump, Clyde hasn't changed much according to Doc. He did finally say that we are doing 30 zaps, so I have 11 more to go. He prescribed a new ointment for the itching that is supposed to start any day now.

    I hope to see Big Onc tomorrow, Rad Onc sent over Clyde's info, so hopefully I will hear his opinion. But it sucks that it will just be an opinion, no one is going to say anything conclusive, I fear, until it is biopsied.

    I am so glad that we are done with chemo, but I miss you guys, the daily updates and good humor we could always find here.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited July 2010

    Linda: That's just the best news. I'm so happy for you.

    Alicia: Your hair is looking really good!!! Mine looks like that when it's wet :)

    Melinda: You're past half way with the zaps!!!! There's no way I'm going away - you girls have got me through this. I'd miss you too much.

    Brenda where are you???? We miss you!!!!

    Sue

  • BrendaSharon
    BrendaSharon Member Posts: 506
    edited July 2010

    Sue,

    Sorry, I have been missing in ACTION. Just not a whole lot going on with me, and I just am at a loss for words. I get depressed reading that some of my girls are STILL having problems. I want everyone to be better and better NOW.  Everyone of you is in my heart! It hurts me when one of you hurt. I want Clyde to just go away and never return. You are so

    sweet Melinda. I hope you feel much better SOON!!!

    Linda I hope we can all grow old together (although I'm already pretty old) but I'm going for 104 like my great grand mother. Granma's only 90 so she has a few left still. My mom is 76. I tell ya, they sure had kids young back in the day.

    Alicia, please keep doing what you are doing and encouraging everyone, you are the best!!!! Natalie, I wanted red tips on my hair for the 4th of July but chicken out thinking I'd never get it out of my hair.

    Mabelle & Sue,  I want to do my weight in kg, then I'd only be 84kg, sounds wonderful.

    Nette, Only 10 more days till I get deported!!!!~~~~~~~

    Love you girls, Brenda                 (((((((((Warrior Hugs))))))))))

  • Melinda41
    Melinda41 Member Posts: 672
    edited July 2010

    I am home from the zapping and dripping. I had my 20th zap today, then my naked Herp.

    No big update on the Clyde, Onc says we can't scan for a while after radiation since I am all radiated, everything would glow. If it is cancer, we radiate, which we are doing.

    Ho hummm, I hate the waiting game. I say I am just not going to think about it anymore, but I physically feel it, it feels tender and I am uncomfortable laying on my stomach.

    So I will keep on crocheting! (Oh and I did make an appointment with an attorney to get a Will done, for my massive estate HA HA HA. Actually, I just want to protect what I do have for the kids so ex hubby doesn't mismanage it. Not that I am planning on kicking the bucket, it just seems like a good time to get it in writing) 

  • BrendaSharon
    BrendaSharon Member Posts: 506
    edited July 2010

    MELINDA,

    See girl these are the kind of things that get me depressed when I read posts. Your not going anywhere anytime soon. Clyde is nothing!!! He can't be!! I swear I have more lumps now than beofre I ever had a lumpectomy. I woulndn't be able to even tell what's there anymore. I think the lumps I feel are all mostly all scar tissue or clacium deposits.

    Love you girl B.

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited July 2010

    I don't touch myself....don't want to feel any lumps if they are there ~ 

    Melinda ~ Hang tough sister your not going anywhere !!!!!!!!

    Brenda ~ Glad to hear from you!  Sounds like you have some good genes going by the age of your female family members.  woo HOO

    :)

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited July 2010

    Brenda: Good to hear from you!!! Your hair is looking good.

    Melinda: My whole left boob is a big lump and it hurts to squish it- that's from the radiation. Hang in there!!!

    Sue

  • doronet
    doronet Member Posts: 342
    edited July 2010

    Brenda:  Looking good!!!   So glad to hear from you.  I check this site several times a day, I just don't always chime in.  I believe in Alicia's practice:  I just don't go touching things so if there is anything there, I don't know it!  :)

    Melinda:  between scar tissue, calcium deposits, and the currant zapping, I don't see how Clyde can possibly be anything awful.  Keep thinking positively, though!  Only 10 more zaps!!!!  Woo hoo!!  My DD taught me to crochet last weekend, but it doesn't really do much for me.  Think I'll stick to reading and crossword puzzles.  I had to reread your note to Sue about being "deported" by Christmas.  Too funny!! 

    Alicia:  your hair looks awesome!  Guess I need to post an updated pic, too.   Tried to get one so I could put it on my new facebook page, but my DD didn't think any of them were "good."  I'll have to try again.

    Linda:  My fav book calls it "the new normal."  I think that phrase is used in most places when it comes to cancer survival.  Here's hoping we all grow to be very old women.  (I want to have BrendaShar's genes!!!)  Actually, though, my mom is 85 and her mom lived to be 89.  Not bad, either.

    I do believe the Arimidex causes me to have fewer hot flashes than I did prior to the diagnosis.  No complaints there.  :) 

    Natalie:  how did you look as a red-head? 

    Mabelle:  YOU SHOULD BE DONE!!!!!!!!!  CONGRATS!!!!!!

    Happy Thursday!!   Nette

  • Melinda41
    Melinda41 Member Posts: 672
    edited July 2010

    Nette: C'mon and crochet with me!!! I made dreads and rasta hats for my onc staff, Big Onc looks great in his and we all had a nice laugh.

    I have two different afghans going now, I made little cases for DSI games for four girls and I keep cotton yarn in my purse to work on towels in waiting rooms.

    The problem is that my OCD doesn't usually let me obsess about the same thing for too long. I have been crocheting for about 4 months, I may burn out soon. What the hell will I do then??

    Sue: You made me laugh about your big sore lump! I guess I will be glad mine is just a little lump!

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited July 2010

    Melinda: Try cross stitch - takes forever and you need a lot of patience. I do it while watching TV.

    Hey girls, I'm sending this post from work - just got here and nothing exciting to do except read powerpoints. Only 3 1/2 hours to go :)

    If I had my own desk and my own pc I would feel a lot better but meanwhile have to learn all about our new insurance policy software which I will have to configure.

    I want to share something with you all. I actually felt really happy yesterday afternoon. I'd been to see a dermatologist who was really nice and is going to freeze all of my ugly senile warts off. The builder fixed my clothesline so I don't hit my head on it. I just felt really good and happy - probably for the first time since dx. There is hope we can get back to normal.

    Sue

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited July 2010

    Nettie ~ looking good !!  Looks like a style NOW !  woo hoo for YOU ~  What book are you reading?  Do tell...........

    Sue ~  so nice to hear you felt good and HAPPY, that is wonderful!!

    Melinda ~ I am with you on the ocd ~ I switch gears often..... 

    Nite girls HUGS !  MICHELE where are YOU????

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited July 2010

    I think I'm feeling happy because I've returned to work but I felt sad on the way home today, so I went and visited a friend for the afternoon - that cheered me up.

    Have a lovely weekend girls!!!

    Sue

  • doronet
    doronet Member Posts: 342
    edited July 2010

    Calling all Warriors who are done with treatment!!!  Has anyone grown their lashes back only to loose them again????!!!!  Mine are falling out again.  It could be due to new brand of mascara, but I thought I'd run it by you, guys.

     Sue:  I know I felt great when I went back to work, but that was because I looooooved subbing before my diagnosis and getting back to it was great.

    Alicia:  Thanks for the compliment on my hair.  It is growing surprisingly fast except on the crown.   I am reading a book called The Male Brain that is absolutely fantastic.  I've read the chapter on the teenage boy brain 3 times.   There are also chapters on the mating brain, the daddy brain, and the mature man brain.  Is fascinating.  My DD originally brought the book home from the library and deadpanned, "I'm surprised the book is so long."  I thought I would hurt something, I laughed so hard.  I'm a big fan of James Patterson, so I've also been reading some of his books.  

    Happy Friday, everyone!!!  Nette 

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited July 2010

    Nette: Apparently you can lose the lashes several times. I haven't looked at mine lately. I used to read James Patterson but he's annoying me now as his chapters are only a page and half long.

  • doronet
    doronet Member Posts: 342
    edited July 2010

    Thanks, Sue.  After I read your answer, I Googled it and, apparently, it isn't uncommon to lose eyelashes and grow them back repeatedly.  The chemo can perman. affect hair follicles, causing this.  As disappointing as this is to not have eyelashes again, my DD reminded me that it could be worse:  it could be my eyebrows or my hair.  And that's a fact.  I guess there's no way to know everything that can happen due to the cancer and the treatment:  We can only continue to get as much info as possible to try to keep from being caught off-guard yet again.

    Will be another hot one today in northern VA.  Stay cool where ever you are.   

    Happy Saturday, everyone!!!  Nette 

  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited July 2010

    Nettie, you do look gorgeous! When my hair started growing back, it grew back full force. Bushy eyebrows, upper lip hair, and eyelashes galore. I had to have a weedwacker to wax my eyes! My hair is growing fast except for my bangs. I need bangs :)

    I started Tamoxifen yesterday. So far so good, but does it make you ache? My arms from the elbow down just hurt like I've carried too much. Never had that before. This is probably too much information, but I also was allowed to take vaginal estrogen. Without divulging too much, I need it. I'm allowed to take it as long as I take my Tamoxifen. After 5 years, we'll see.

    The doctor said I had such a great response to chemo, he's talking about taking me off of naked Herceptin at the end of the year. One year will be Jan 13, 2011. I thought I'd have to take it for life, but there's no sight of cancer anywhere. My liver is clear. My next MRI is in Sept. He told me I was going to grow into an old woman. I wept! 

    It's storming in NC today. Good day to finish my "spring" cleaning!

  • micheleboots
    micheleboots Member Posts: 1,993
    edited July 2010

    I'M BACK........Alicia, I have been on a much needed do-over vacation.  Last years sucked the big rhino.  This year was a bit better.  We rented a  cottage on a lake and swam every day.  Then we had a cottage donated to us for the second week...missed you all.  So much catching up to do.  Melinda...for god sakes kick Clyed ass into space.  I hate Clyde.

     I have read all the posts, but my lingering chemo brain has kicked in and now I have forgotten half of what I read...I will have to read all the posts again and add my two cents.  Big warrior hugs

  • doronet
    doronet Member Posts: 342
    edited July 2010

    Welcome back, Michele!!!!!  So glad to hear that the vacation was a success.

    Linda:  thanks for the compliment.  My eye lashes continue to fall out.  Will just be faster to get ready in the mornings now with not having to put mascara on.  :P    I do believe that Tamoxifin can cause joint aches, but I wouldn't think it would happen that fast. I am curious about the v. estrogen.  I have been reading up on that and just figured it was off-limits to us, cancer-chicks.  Guess I'll ask my primary care dr. if yours said it was ok.  hmmmmm.  Wonder if pre-menopause vs. post menopause would make a difference.  You must let us know if it works.

    Have a great day tomorrow, everyone!!  Nette 

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited July 2010

    Welcome back Michelle!!!

    Nette: I checked my lashes - they've grown back. Had to shave my legs today it was like a forest:)

  • Melinda41
    Melinda41 Member Posts: 672
    edited July 2010

    Michelle, glad you had a good vacation.

    (I am not listening to you all talk about eyelashes falling out, my fingers are in my ears, La La La, I can't hear you..... I don't want to think about losing them again).

  • micheleboots
    micheleboots Member Posts: 1,993
    edited July 2010

    I think I will do like you Melinda and stick my fingers in my ears.....I only just started to wear mascara....must keep lashes, must keep lashes, must keep lashes.

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited July 2010

    Welcome back Michele ~  glad you enjoyed your do-over vacation !!!

    Nettie... yup 1/2 of my lashes fell out again, didn't want to bring it up.  They are growing back AGAIN!

  • BrendaSharon
    BrendaSharon Member Posts: 506
    edited July 2010

    Nette, Your hair got really thick like mine....Whooot-Whooot...Love it

    Linda, I don't believe the Tamoxifen has given any body aches at all. I've been taking them for almost 3 months. Started Tamoxifen on April 19th.I am tired all the time and I get dehydrated quite easily since I've been on them. I seem to get charlie horses a lot now because I am dehydrated, I get them in my legs, feet, back, and neck.

    We all have talked about what is normal and I must say I'm not sure I ever was, so whatever shall be shall be. Since chemo I'm different, but then again I probably always was a little different. I am ready to see whatever life brings my way, so long as it is LIFE, I am good with it!!!!!

    I believe everyone is also getting just a SMIDGE happier..... Go Warriors!!~~~~~

    to a great week ahead................

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