Skin / Capillaries look dead to surgeon
Hi,
Went for my one week check up after masectomy and expander. The PS was concerned about the lack of blood flow to the capillaries. Can anyone tell me how to fill capillaries with blood? I can't imagine there is any sure fire way.
Have an Rx for Silvadene (wound cream) that requires washing the incision site daily before application. Ouch.
Are there any other options out there anybody found helpful?
Thanks
Comments
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Basically, what you're describing is this 1, the skin looks pale/dark/bluish different than normal.. He likely pressed with a thumb or finger and then released quickly by picking up thefinger/thumb. Under his breath he was counting seconds. To determine how fast the capillaries refill. He probably repeated the process in several areas.
Capillary refill should be 1 second or less. Capilary refill > 3 seconds says that flow is compromised for some reason. Flow could be delayed for many reasons. Circulation of larger vessels may have been impaired--i.e surgical disruption of cutting blood vessels, smoking i.e causes a chemical constriction of vessels, local inflammation (swelling)peventing/impairing flow i.e.like a log jam. The blood vessels that are being compressed, normal flow can't occur. Radiation burns may have destoryed blood vessels. Cold that has caused constriction(narrowing) of blood vessels. Skin pulled to tight can be compromised because vessels are distorted. Wound infection will change how fast caps will refill. So, identifying the source is important because that will lead to management.
What the PS didn't share with you was what he was thinking. So, you are in the dark. The fact that he gave you silvadene with instructuions could be one of two things 1.prevention of wound infection. 2 he thinks you have a wound infection. But with the absence of an antibiotic, it's still not clear cut, what his thinking his.
First lets deal with the cleaning, wash with a antibacterial soap preferably one he recommended.
Your action: Wash hands at the beginning of any procedure and end of procedure with antibacterial soap
1.Call office and ask which soap to use. I won't suggest because thats his job--consider it a medicine
2.Use a soap in a squirt container because bar soap can be contaminated
3.Use either disposible wash cloth --used only once and pitched. If that is not affordable, bleach some washclothes . Place on a freshly bleached handtowel on a table used only for this purpose, place bleached wash clothes on top of this. Cover with a freshly bleached hand towel. This is effectively a dressing station. Any dropping of cleaning materials need to go back through the entire cleaning process. The 5 second rule does NOT apply.
4. Use one wash cloth with squirt soap and wash site. Stay on the site. Don't move to other areas then back to site. The idea is you don't want to bring other contaminants toward your incision.
5. It doesn't say if he told you to do this in the shower. If he told you to do it in the shower Try to avoid flow of water from other body parts over incision area . If he said to rinse with another wet wash cloth then either use a tap water moistened w/c. or water from a jug. Doesn't matter if it is distilled or drinking . The point is cleanliness. Taps can harbor bacteria. If you are using tap water even shower tap take the time to clean with bleach at least once a day. Run for a few minutes to wash off bleach on tap . Dry incision with a separate bleached dry washcloth. Lay over incision and pat dry. Do not drag it back and forth over incision.
6. Apply slivadene with a gloved hand or sterile q-tip. Once you have taken the silvadene out of the container ,don't re-enter container unless you change glove or q-tip. This will prevent contaminating your cointainer. Silvadene comes in a multiuse container and a tube.
7.Ask PS what his thinking is, he may be trying to avoid the word infection to keep you from worrying, but it makes it easier to try and maintain the highest standards of cleaning that you have available to you, if he shares what his thoughts are. In the absence of also using an antibiotic, He is in prevention mode by maintaining the highest local care of the incision
8. avoid smoking and alcohol.
Hope this helps.
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HI Sas,
Your response is greatly appreciated and helpful.
To clairfy my situation (I really am very concerned) my smoking caused a chemical constriction of vessels. Needless to say, I am no longer a smoker.
My surgery was 6/23/10. Release 6/26/10. While in the hospital, I was given IV antibiotics and then 7 days of oral Cephalexin / 2000mg / day upon release.
I asked both the PS and the RN to clarify the Sivadene regimine while in the office. The doctor said often Silvadene stimulates skin. The RN suggested a washcloth in the shower, explaining all traces must be removed before reapplying. Any soap available was deemed appropriate.
My guess is he expects to lose this skin and is being proactive. So, Silvadene does not stimulate skin?
What is next?
Thank you,
Sheila
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sas - great post - so helpful!
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Well, silvadene is an antimicrobial. Not sure what he means by stimulant, but it's very good against bacteria and 2ndary fungal growth. I suggest use the google bar up in the right hand corner. Then you can use the back button to come back here. PLug in silvadene and read several of the sites. It's a great drug. I could surmise it stimulates when it kills bacteria, the breakdown stimulates the wound healing cells white blood cells etc to come and do their magic. Like the garbage crew? When i said chemical constriction--the nicotine is a vasoconstrictor --causes the vessels to narrow reducing the blood supply which also reduces the 'cleaning crew from getting to the area. Frist time I used that analogy and I think it's pretty useful.
Call his office and ask if hibeclens is ok for soap. Dial at one time was rated as the highest antibacterial available without a prescription, but I haven't followed that lately. Hibeclens --not sure if you can get it without a script.
You will see the dead skin slough(Wash) off. This is good, but looks bad. It's just doing it's job. I say that so you won't worry when you see it. Avoid getting on good skin as much as reasonable, keep it as close to the margins as possible with small overlap.
The use of the pump type soap delivery is key. Lots of studies over the years support this.
He likely will have you checked in office frequently until healed or he decides to go to the next step. Do not hesitate to call him if you believe it's getting worse than better, or develop a fever. Better to have his eyes on it because they're trained --okay.
If you are on any of the aromatase inhibitors be advised, they can predispose you to infection, but your likely not on them yet. But may be on them before last surgery is completed.
Wear a tee at night or when napping so, you don't scratch the incision site(s). He may or may not have told you to put a dressing on it. If not---Use same bleaching method on any clothing that comes in contact with incisions until all surgeries complete and sites healed and then for a long time after. My last surgery was in july last year -09-and i still sleep in a sleeveless tee. Double rinse clothing to make sure all bleach is out and don't use the dryer things. With hotflashes, if there are any chemicals left in the clothing you may notice skin irritation. I switched to DREFT until several months after surgeries, expensive but worth it.
All broad spectrum antibiotics are notorious for causing vag yeast infections. Read up on prevention. If you think you have one, be sure to have your gyn doc do a culture to make sure it's yeast and not bacterial because treatment is different. In this situation do not substitute evaluation by non gyn professionals i.e.PCP or ARNP or dermatologist. I did and wasted healing time because they didn't order the right drug treatment. Also, found out by neccissity for lack of a better word, bathing lower body in dreft was amazingly helpful. If you do this -do it for 20 minutes 2-3x's /day. Avoid submerssion of any incision until doc okays
Keep fingernails very short and don't wear fake nails or polish, oodles of studies on this. Hospitals are required to have policies on this now---serious business-bad bugs.
Can't think of anything else right now. I'll check back to see how you are doing. Thanks sas
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sas; WOW!! You really know your stuff. I am an RN and I learned a lot from you regarding wound care. You should combine your posts and publish a book! Patient education is a huge part of nursing.
I used to use a spray bottle (water and liquid soap) to wash my breast during radiation . I sanitized it between uses. (very hot water) I don't know if that is good advice for Sam's Mom. The pressure of the shower was too forceful. Also, would you suggest warm (not hot) water to increase the circulation in the area? A mistake I made in a different wound care situation was that I used too much silvadene. surgeon told me to use it sparingly. I wish someone would develop a spray form. I used to smear some silvadene on a sterile gauze pad (using Q-tip) then lay the gauze pad on the breast.
Sam'smom: I wish you all the best in your recovery. You are in good hands with the advice from sas. You are brave to have gone with expander. I am not going to have PS after mastectomy b/c of fear that radiated breast will not have adequate blood supply to nourish anything new. But I am a "select" case with the issue of radiated breast being very damaged.
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Sas, thanks for such an extensive description of wound care. The only place I've seen anything comparable is on the WHO website. I frequently work in a third world country, I had a friend here whose sister was going for a lumpectomy. The sent her home from the first appointment because they only had "one bucket" of water for the OR! I immediately went to the WHO website and downloaded 9 chapters of info. including pre-op procedures. Thankfully she was both B9 and had no subsequent infection.
Would you consider copying/pasting your posts to a new thread called "Wound Care" and asking the moderators to pin it? This is the type of info critical to many on this site and it would be a shame for it to be lost.
All the best, She
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Eileen, on the 10th I will be 10 months post bilateral mast with DIEP reconstruction. It was my third different BC and I had severe rads damage to both sides. (July 4th was my 14 year anniversary of the first time around). I was pretty nervous about recon considering the rads damage, and I too am a 'select' case... if anything is going to go sideways it will happen to me. I got through the 12+ hour sx, was in ICU for 5 days then home. I did have a small bleed but it resolved, and some minor problems with seroma's and ab incision which also resolved. I'll have Stage 2 revision sometime this coming winter. I believe the length of time between rads and recon was the reson the DIEP didn't fail. I encourage you to wait a couple more years and then make enquiries if you want recon. Amazingly the vertical scars of my recon have almost disappeared - it seems that radiated skin doesn't scar too badly. My flaps only have a thin line scar and after Stage 2 and tatt's they will be completely invisible. Recon may be a possibility for you too in time, so please don't lose hope just quite yet.
My best to you, She
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She; Actually it has been 6 yrs since my radiation! I appreciate your advice, but I must be a member of a "very selective" group of radiated breast survivors. My radiation oncologist's nurse did tell me that the doc said I had the worst case of radiodermatitis she had seen in her career. I was told that the breast would improve as time went by. There is marked scar tissue. But I am okay with the situation and appreciate your concern.
I used to work in pediatric burn care yrs ago so my interest in sterile wound care has never vanished! I "loved" seeing the day-to-day improvement.
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Just got home from the PS surgeon visit. With the awesome advice from Sas and my husband's help, looks like the surgical site is back on normal healing schedule. No expander removal, no skin grafts. The surgeon could hardly believe the improvement. My husband and I appreciate the thoroughness and thoughtfullness of your answers, Sas.
I am so grateful for the advice and support I received here. It was a very difficult week.
Eileen, the only reason I said yes to PS was to maybe have at least one night in the hospital after surgery. My 14 year old son has the diagnosis of Autism Spectrum Disorder. I could not bear the thought of him seeing me out of it from anesthetic and pain pills right after surgery. As it turned out, my stay was 4 days. I'd be happy to lose the expander, just not my skin nor any extra surgeries.
Blessings and hugs to all.
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WOOHOO!!! Good news!!! Congrats!
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Wonderful news! I am so happy for you!
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Glad to find this post & see I'm not alone. Also, thanks SAS for the wonderful info. I was given some of this by PS, figured out some on my own, but this is the best info I've found thus far. Post surgery my rt breast (radiated 9 years ago) was very black & blue. Yesterday was my 1st post op visit with both BS and PS and I have this same problem - no blood flow to skin has caused skin to die. Doctors tell me the tissue underneath is alive & good, so I am on the same regimen of silvadene 2xday, washing, etc. It's quite an ordeal but already today I see signs it is helping (bleeding, pink/red instead of black...). This is the one time I guess that bleeding is a good sign. On my breast the involved area is pretty extensive, but the doctors feel that there is a good chance it will heal if I follow the instructions. Right now I am on weekly follow up with the PS.
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WELL MY MY!. Obviously I'm tickled. That everything or part and parcel helped. I'll add another two that very much helped
1 Hotflashes---can occur from the sx loss of hormones; body affected by chemicals and increased fluids given in the O.R. and post op; Aromatase inhibotors and Tamoxifen; antidepressants/pain meds ---or combination of all the above. This can lead to skin issues. I described how to protect the chest with a tee from scratching. Now we go to the bottom. In the night, when we sleep we may scratch our bottoms and not even know it, then scratch other areas. The technical phrase is self innoculation, easier way of saying it is self contamination.
A. Get MENS 100% cotton boxers, and sew up the fly. Avoids the wandering night scratching on direct skin. We tried two brands. Fruit of the Loom has the most room in the seat. If anyone finds a better product please post. The only negative is the waistband because of the elastic. Leg holes are also, roomy. The boxer short is only one thickness of cotton. Anyone thats flashing can understand what it means to have as little on as possible. They are enough like shorts that I don't hesitate going in the yard.
If you end up with any yeast infections or other types. Put them through the same bleaching process with hot water. It will eventually ruin their color, but you won't care because your protecting yourself.
B. I did get a scalp infection during the height of my flashIng period. Worse bug than MRSA. Searched the web. Found a study published in April 09. It is from a Pediatrics Journal.The study group was on children with psoriasis and multiple secondary infections over their whole bodies because of scratching. What they did was use standard laundry bleach < 1 cup in a tub of tepid water and soaked for 10 minutes a day. The control group TUBBED in standard tap water. The study was stopped half way through because the the test groups infections below the waist healed so much they felt it was detrimental to the control group not to get them on the same protocol. The test group had the problem that they were now clear of the secondary scratch infections from the waist down. The testers problem solving----AND this may catch your breath ,it did mine-----They had the childern hold their nose close their eyes and go under water. It worked. Obviously, they wern't under water for ten minutes. Before using this method please take time to find the article. Try search terms --Infection psoriasis and bleach,remember it was a pediatrics journal. There were multiple articles to follow by nonmedical people that didn't take time to read the original research. These kids were seriously afflicted with multiple bad bacteria. Check also with your doc, but have original article with you.--safety recommendations well ventilated areas, follow directions in Journal article. Don't exceed once daily per article. Do not use on incisional ares
How I used it for me. After 5 weeks of oral and topical medicine on my head and no progress. I thought about the requirement that cleaning towels in restraurants are required to be rinsed before use in a10% bleach solution. The Occupational and Safety and Health Administration-OSHA does not require gloves to protect the worker in this situation.. So, I made a 2 parts bleach to 1.8 cups of tap water for a total of two cups(10% solution) and poured over my head --mon morning and evening, tues morn, wed morning. I was recultured wed. afternoon. REport came back clean. The bug was enterococcus faecalis one of the hardest to clear up. I tell you this because my research showed I(we) are more suseptible to this bug if multiple doses of keflex are taken over a short period of time. All my preop/postop preventive antibx's were keflex for 4 surgeries, AND then add arimidex which can make you more suseptible to infections. To a nurse reading this their going to go OH MY! BAD BUG. Seriously, almost would have preferred MRSA. My dermatologist MD and ARNP were reserved about this even with the research articles given to them. It didn't bleach my hair that was there maybe 1 inch . Rinse well. I did this over the sink in the garage. Talk with your doc before trying. This last paragraph is not supported by controlled studies.
Edit:july 5th2011: Several posts down is a post with hyperlinks to the pediatric research article on bleach baths, and other peer reviewed articles on the topic
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SAMS_ mom YEAH!!!! It's enough to deal with bc, w/o working through the complications are not what we need. Kudos to your supportive husband.
Eileen--Thanks for the compliments. Recommendations from my derma and pcp were tepid water.
She--WOW --WHO(World Health Organization) my my , I'm humbled. Glad your friend did well. One bucket of water. What we don't even think about and it's not that we take it for granted. or maybe we do. Think about how much we use, just in one handwashing act. Thank you
JBL---Necessity is the mother of invention ---good luck. Body tissue is fragile and if you would see in surgery how tissue is handled, you would clearly understand that it has been stressed. But surgical staff walk the fine line of protecting every thing they can, against having to literally get a hold of tissue to do what they have to do. YES IN REGARD TO TISSUE BLEEDING, IN THIS CASE AS YOU DESCIBE IT YEAH!!!!!! The common medical description that is used is beefy red--hope that doesn't put you off your dinner.
Sounds like everyone is progressing --great way to start the weekend HUGS back
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Jbl--Suggest serial photos--a picture a day. Sometimes this can pick up progress or deterioration that we not be aware of because it's subtle--date photos compare day to day.
Outlining red area may also help in evaluating progress. Obtain a new pen or fine felt tip non indelible ink, reserve for this purpose only--choose item that is packaged v.s in a bin. This is not implying that it is sterile ,but you know someone else hasn't used it. Outline red area and date--once a day is enough or even once is enough. It will give you a reference point. If redness goes beyond outline that can indicate worsening. If the redness retracts i.e is less near outline inside circle, it can indicate improvement. When skin redness improves or worsens , it can occur rapidly or slowly. When it moves slow, it can be hard day to day to see the subtle changes. The ideal is a sterile marker that you may be able to pick up from doc's office or hospital. Regretfully, in too many healthcare facilities of any kind, docs and nurses pull the pen out of their pockets and mark as described. So, if someone tries this with anyone, I would suggest that you ask a sterile marker be used. It's your body and you are already dealing with a problem, you don't need introduction of any other hitchiker bacteria
If you have a partner, have them evaluate each day with you in good light. Allows you to have someone to discuss progress with and helps in decision of seeking medical attention. Rapidly progressing redness needs a "TODAY" evaluation by your doc. If you are sent to ER for evaluation, be cautioned that ER 's are colonized with many types of bacteria. If you have not been wearing a dressing because you have a closed nondraining red incision and the doc has instructed you to do this(very standard practice) , if you go to be evaluated , put a dressing on.
Under all circumstances watch for handwashing and how personnel including docs, handle the gloves they put on before they touch your incision/wound area. They can completely contaminate gloves --so, being proactive is being self protective. Don't be afraid to ask for sterile gloves to be used.
If during other testing that would require anything to come near your wound/incision area --ask for sterile disposable item if site is not dressed. For example, one study from several years ago, identified that electrocardiogram wires are a hotbed of bacteria and recommended they be disposable. There is movement throughout the USA for this to happen. The point goes back to what I said above be proactive, look at everything with new eyes -----"-what will protect me from any new bacterial contamination". If someone implies you are over reacting, simply you are not.
As with any nursing recommendation, my licensure requires that I advise you to ask your doc first before you do it. ASK your doctor.
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Wow--lots of great info here! I would add only one other recommendation--find out if your insurance covers home health services. Haveing a visiting nurse come look at wounds and such once or twice a week can be very reassureing and helpful. I am a nurse, will be 3 weeks post bilateral DIEP surgery, have opening in the belly wound that I'm dressing, and insisted on home care services being set up before I was discharged. At least once a week an RN comes out and looks at all the incisions, checks my vital signs, and has given me some really good ideas to make doing my own dressings easier (like using a mirror to see better). I also had an Occupational Therapist do a bathroom safety evaluation and I now have very handy grab rails by the toilet and shower. The Physical therapist came twice and got me back on my feet quicker than I think I would have otherwise, and it was soooo reassuring to have someone go up and down the flight of stairs it takes to get out of the house with me and tell me I was safe doing that. Any of your docs can make a home care referral, but the PS is the probably the best doc to have do that.
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Thanks for all of the information. I have cellulitis right now and sas-schatzi has been a great help to me. I have been taking Septra/Bactrim DS for about a week and a half now. While my infection has not improved much, it has not gotten any worse, so I hope that's good. I will be going in Tuesday to see my PS and if it hasn't gotten significantly better, I will be on IV antibiotics. I had been having pain and swelling for weeks prior to the cellulitis dx. I would like to stress that if you notice any abnormailities, redness, warmth, pain, chills (with or without fever) you need to see your doc and make him/her take you seriously. I have a feeling if this had been addressed when I first brought it up to the doctor, it might not have become an infection, or at least not so advanced. The sooner you take precautions, the better. As far as the Silverdine goes, I will say it worked great. I had necrosis and at my first post-op appt my PS gave it to me and the dead skin disappeared and now the wound has finally closed up well. Now if I can just get rid of the cellulitis, I will be in great shape. Good luck to you and I hope everything continues to go well for you. Take Care. Allison
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I relate ladies. surgery on 5/24 to a radiated mastectomy site. It was just over a year from completion of radiation. Did the lat dorsi. I just wan't prepared for what a big deal this surgery was. I was so upset when the doctor kept saying I don't like the color; a weird area of the new mound purplish. Then I got cellulitis. I wan't prepared to be be disabled. Having a hard time with posture and aches from muscle knots. Now it has been almost 7 weeks and I hope I'm on the upswing. Back doesn't hurt as much, breast mound loosening up though still discolored but maybe faded a bit? No silvadene in my orders. Had to get cephalaxin again cause of the cellulitis. It helped immediately. Go in on 7/16 for my 4th follow up and maybe a fill to the expander. I am at a complete loss in terms of wardrobe. At least with the bra-with-boob, I could wear clothes. Now I am shameleesly lopsided and have nothing to wear workwise. Declared casual attire a necessity - trying to wear loose tops. It's been pretty tough. Pity pot city. Hard to see the up side. Who was I to think I could expect a reconstruction/restoration of self? We'll show her - we'll make her suffer
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I am so sorry mricha02. I totally feel your pain. I am having a hard time with clothes too. I had a bilateral mastectomy though, so my problem is that with this cellulitis I cannot wear any sort of breast form. I can imagine it would be pretty hard to be lopsided. I had my surgery may 21st and still haven't gotten one fill. I am hoping this infection goes away. It is so stressful worrying about whether I will have to get the TE removed. Good luck at your PS appointment. It sounds like they got everything cleared up, so that's good. Take Care. Allison
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It's so wonderful to see a candid discussion on the things that can and do go wrong for some of us. There is so much good info on this thread and I thank everyone for their contributions, I'm learning a lot too!
NativeMainer, I too tried to arrange home care RN prior to sx, while in the hosp and after. For the first week I had to go in to see my GP as there were no home care RN's available. Finally when one did come I had to tell her what to bring and she brought the wrong things, (thankfully my DD went and got supplies for me herself) and how to dress the wounds. I'm so glad your experience was better.
Mricha, and Hopeful I'm so sorry you're having to endure the infections. I have a friend who had hyperbaric oxygen treatments to finally get a horrible infection under control. I actually tried to get a few HBO tx myself before my BMX & DIEP but of course wasn't allowed to.
For those with 'dead tissue' on top, if your doc sees healthy tissue underneath, be patient. As I said earlier, it took 5 months to the day for my nasty dead deep scabs to fall off. Now my vertical incision scars have faded considerably.
Reconstruction takes a lot of patience, hard work and learning how to do things to help yourself heal. Sas has an excellent point with the 'daily photos'. I was over an hour away from my PS so more than once I emailed her photos my DD took and she was able to either assure me, or give me tx instructions and save me the long drive to her office. Same thing with drawing around the edge of the infection. My PS told me to draw the line and if after an hour the 'red' was outside the line to get in the car and go to the hosp. It did, and I did, and a second Rx for antib's did the trick.
My DIEPs have dropped, so when I go for fipples, I'll have a little lift and hopefully get rid of the 'camel toe' armpit lol. It seems never ending and if you let yourself you can fall into despair. Being wardrobe challenged is depressing, especially when one knows looking good simply feels better. While this whole process feels like 'forever' for most of us it really is just temporary. That statement I know, is of no real value while you're dealing with wardrobe issues. I still have them - no waistline so pants have to be hiked up every second step... aargh, even elastic doesn't work. Coming here and sharing with friends who have the same issues is so cathartic. But I will still be very happy when my regular pants fit again, and truthfully mine is only a minor issue. I understand how difficult it is when you feel lopsided or flat when you're used to being 'normal'.
Hugs to everyone! Please keep the good dialogue going. She
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EVERYONE THANKS FOR YOUR POSTINGS- I too am learning.
SHE- the emailing photos is masterful. I bet that doc takes it to a meeting of other docs.See below re Equipment
NATIVE MARINER--greatttt advice on homehealth.
To add asome thoughts about homehealth. They are required to provide dressing materials and all items needed for whatever their orders are to do. SHE described in her post that she told the nurse exactly what items to bring and the nurse brought the wrong stuff, my guess is this nurse didn't bring them into the house. The nurse likely came in read the orders and said --sorry I brought the wrong items ==hrumphhh
This is the scoop. The easiest way to maintain cost of expendable material is not to provide them. There is no excuse for not providing the right material , unless that nurse received a same day assignment of a patient and they don't have it in their car. Even then it could be reasonable to expect them to return to their office to get the right materials. There are some homehealth nurses that drive in excess of 100-250miles a day-- that may be a reasonable excuse. BUT being well supplied with a cross section of needed items is part of what they should have in the car. Being prepared for that same day assignment is expected. Even of high end items like silver alginate--you keep a few in the car. I just measured my old boxes --3 boxes 33 by16 by 12 deep inches and 2 boxes 16by13 by 12 deep. A Cooper car doesn't work in HH. Homehealth abbreviate HH nurse has to get her stock from the company office that may have policies about dispensing /giving items to the nurse. The office can make it very hard to be well stocked. Then mgt critizises/ disciplines the nurse when they get the complaint phonecall because the nurse didn't have the equipment. The nurse is damned in either direction.
Here's how you as a patient should handle HH
1 ASK for a HH referral to be arranged prior to surgery(as NM described). It requires insurance approval. So, if sx planned at a future date ask that it be started for approval at the visit scheduling surgery. ASK for "Physical therapy to evaluate and treat" that allows all of what NM described. ASK for" Occupational therapy to evaluate and treat" There function is to show you how to use your arms and function in the house to keep it simple.
2.Day of sx put on your list to make sure "referral to HHA for incision care with dressing changes with product/ frequency" and other referrals are actually written on the discharge order.
3. Nurse cannot usually see same day unless special need of antibiotic, dressing change,injections etc. They will call to schedule time and ask if they need to bring anything that is not on the orders already faxed to the agency. Ask for a box of gloves(should be automatic-oh well) The nurse cannot provide POUR SALINE IF THAT IS PART OF YOUR ORDERS YOU NEED A SCRIPT FROM YOUR DOC AND GET IT FROM PHARMACY.
4. If equipment that they are required to provide isn't provided, call the HH main office and complain.You will be provided with the state number to call for complaints and also for medicare patients a federal 800# at your initial visit by the nurse --it's the law. This is a huge deal to the agency to get a State /Federal complaint--use as necessary.
will edit later thanks everyone sas
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I am so happy to have found this thread. Had been on the surgery forum but thankfully one of the ladies there suggested this thread.
Sas I feel like I just had a one to one education session with a wound specialist!!!! thank you, thank you, thank you. I would love to hear from you or any other's that might have some advice for me.
I had a right mastectomy with latissimus dorsi flap reconstruction on May 26th. 3 weeks later I was admitted to hospital with a staph wound infection. My reconstructed breast was doing fine at this point but my back had completely broken down. After 5 days in hospital with I.V antibiotics I was sent home with 2 weeks of oral antibiotics. During this time I was having the dressing changed every other day by my breastcare nurse specialist.
After about 2 weeks of this .....my wound was NOT getting any better so I suggested to my nurse that I see my breast surgeon. Well unfortunately for me he was on his holiday's so I saw another breastcare surgeon in the group. He immediately recommended a surgical debridement. He also had a plastic surgeon look at it who agreed. They told me If I left the wound to heal itself... it would take months. And I was due to start chemo the first week of July
So last Thursday I has a surgical debridement under anesthesia. They we're able to close the wound with both internal and external stitches. I was not given any oral antibiotics.
My concern today is.....my reconstructed breast has a slight red/pink look to it. I have not had any problems with this since surgery. I do not have a temp but I certainly do not feel great..
I have been so concerned that my donor site on my back wasn't healing that I never considered a problem with my breast too. I will call the breast care nurse first thing in the morning.
I am 40 years young, I do not smoke. I have 5 young children....so to say my day is busy would be an understatement!!!
Stage 2 invasive ductal carcinoma 2cm, grade 2, 0 nodes, ER+/PR+
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Momo, I am so sorry that you are going through this. It's 10 pm my time , i checked your homepage and I see you are from Ireland. Sorry I am cluless what time is it there . I know it's about a seven hour difference, but that would make it about 4am???. I've seen your post and am going to pop out to figuire a timeline related to your events related to front and back to keep facts straight. But for the time being your first thought of being seen in am by breast care nurse is right at the very minimum. Please, do the following in the mean time. Outline the red area on the breast as described above several posts ago. Have your husband do it. Then in the best light available the two of you look at it. Light is/can be a problem as it reflects over curved surfaces. Yellow and blue light will change what you see. The best is clear daylight. I'm closing this now in hopes you see this because if you start right now it will take at least 1/2 to get it done. I'm continuing to work on your post and will be back asap.
thanks, sas--I'm a nurse not a doc, but if any words help I would be happy
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Momo. First and foremost anything I say after this is informational only, because the biggest need right now is that you need to be seen by a doctor. Since I believe it is almost 7 am there in Ireland . Be dressed and ready to go to their office when they open. You sit in there office until a doc sees you. Don't take no for an answer. There is a guiding hand here. I could not get the bold button to click off it kept flipping back on. SO, lets choose to take it as a sign.
I believe, if I read this correctly, you will be on your 4th post op day from the debridement of the back. Onset of new problem was Sun.--redness of right breast that was previously without symptoms for weeks. It took me a little bit to get my head straight about this because you have so much going on. No antibiotics with a debridement-- That needs a discussion. All this needs to be addressed by a doc with his eyes onyour back and your chest. Not a nurse.
The suggestion re: color evaluation I'm leaving here because it was good new idea, but wrong time.
1 outline rt breast--evaluate in light----have hubby grab a few pieces of clean pink and red fabric from around the house that he can. Hold fabric close to area but not on it and pick the color closest in shade to your breast redness. This is your reference point for shade. Use this each time you reevaluate color difference. In subsequent evaluations, if in your combined judgement it is lighter, then I would say it's improving, if darker then it is worsening. If you see multiple shades, the area that is the reddest is the center of the infection (if it is infected). If fabric or color chart not available then you will have to depend on your eye and memory. Who knows with 5 kids you may have a color wheel or painters chip chart.
2 Lay clean hands on either side of the healed incision then lay hands on an area farther away from the site. In this time of increasing infection rates, I wouldn't recommend a bare hand near anything that is not completely healed. In a previous time it was commonly done. Warmer or hot says something is brewing underneath and it's not tea.
Lets us know what the doc says blessings sas
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Sas.... I have had quite the busy day. Even though I did not post a reply I did get a chance to read your fabulous suggestions prior to calling my doc's clinic.
You are right...I do live in Ireland and my surgeon's office is about a 2 hour drive away. So it has been quite a long day. I am so glad I read your post before I went there because I was so much more prepared.
They started me on an antibiotic for a cellulitis. I have had 2 doses already and honestly... the pink looks like it's fading already. I go back on Wednesday for another eval of the front and back!!!
I am exhausted. the travel alone is daunting. Not to mention that I feel run down as a baseline these days.
I am so delighted to have met you and all the other wonderful ladies in cyber space. The power of the information found on this bulletin board is fabulous.
thank you very, very much
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Momo--I am so happy for you YEAH!!!!. Reread your first post, then reread your last post. WoW the change in emotion--lost then strong and positive. That is such a better place to be.
Now to business re:you. As I, also, reread your posts, I have several suggestions. This may be lengthy.
1 sweat/hotflashing is your enemy until healed. As a pool of sugar water would draw ants, prolonged wet skin with sweat is a medium for bacterial/fungal growth. Keeping dry is really important. You have two areas, the back and the vaginal /vulva area that are of special importance at this time
Back first--You have a wound that is attempting to heal.
1.Use suggestion re:sleeveless tee and boxer shorts--two reasons a.see above, b.preventing sweat
2. Prop yourself so that you are not laying on your back wound site. Use a pillow behind your back. Use a pillow between your legs at knee level that will keep your hips level/supported, use a pillow to support the up arm. In our sleep, the brain is aware that muscles/bones aren't comfortable, and we turn. So, to minimize trying to flip on wound site prepare for your comfort before sleep. If you have a really soft bed that you just sink into, may actually lead to more sweating. You may have to choose another bed in the house until this is over.
3.cool room enough that you keep dry, but not enough that you get cold because then you will pull a blanket over yourself--that could warm you up enough to overheat which can lead to a sweat.
Vag/vulva/groin folds area: You are on a broad spectrum antibiotic which can lead to yeast infection. Sweating will increase this risk at this time. So, prevention is important!
I. #1-2-3 right above apply. Even the pillow between the legs at the knee level helps because it alows for airflow which will reduce heat to area and keep you more dry.
2.Do a computer search on yeast prevention with antibiotics. I'm coping out here because I don't want to cross my licensure line. What I can say is-- whatever you put in your mouth to help with prevention --don't do it for two hours before or two hours after taking your antibiotic because the antibiotic will just kill any active culture , for example, in yogurt.
3. Any symptoms of itchiness, redness, drainage report to your doc immediately. At this time your immune system has been challenged by all the stress, add to that a drug that is going to change the normal protective flora(good bacteria) and this can lead to a yeast infection.
FATIGUE: you said it yourself. You are exhausted. This is the time to take care of yourself. Pull in all the resources you can to help with the kids. You need to get good night time sleep and 1-2 naps a day. Even for the drives to the office, try to fix it so, you can sleep in the car.
DIET: I'm sure you are well aware of this, but don't ignore it. Your whole body needs the support of good food and you will have poor wound healing and resistance without it. There is oodles on the net in this regard.
I'll finish tomorrow their are several questions for your doc on WED, but I need to go play for awhile - Thanks SAS
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Momo, Hi this should reach you.
Some ???'s for your doc
1. Did they culture your wound. 2.What were the results. 3. Was the antibiotic used based on the culture results.---should be automatic, but get an answer.
In your PM, you discussed dry drainage on dressing. Well dry was once wet. Wet and dry can shed. So, dirty dressings should minimum have top layers changed or reinforced(means to cover with another sterile dressing over old) to protect you and family. Sometimes and internal dressing is not disturbed for a reason. REmeber a dressing is a barrier. To keep things in as well as out. You also mentioned that the wound is very wet, but actually I'm confused now. You said several post ago, that they closed the wound with internal and external stitches. If this is true, than it must be oozing somewhere. The problem with a oozing wound is the hole that it is oozing through, can plug up .Then you are a set up for an abcess--collection of infected or noninfected fluid(term -sterile abcess) below the skin, that may eventually need draining or a seroma/ hematoma(collection of fluid and blood). Which leads to a big question did they put a drain in when they debrided you. The picture I have from what you have said from above post and your PM is----closed incision -that is draining/oozing, and the internal dressing is wet enough that you have drainage through to the external dressing. This won't do. He needs to address this because a wet closed incision is at risk of getting emacerated. Emacerated tissue does not hold sutures well, and they can eventually pull away and the incision open up. And it is a set up for bacteria to thrive because basically they have a food supply or as I said in an above post a MEDIUM to grow in . There are wounds /incisions that have special reasons for not changing the dressing until a given time. BUT it doesn't sound like yours is that type.Have doc explain?
Some seromas/hematomas are left to absorb over time, can take months.
So, 1 why is it draining so much.
2. Is there a super asorbent dressing material that can wick away the drainage. There are multiple types of thes products, but they are used on open wounds i.e calcium alginate, silver alginate, sorbsan and new products are produced everyday. Products that you have in Ireland , we may not have here
3 Whats the plan now.? While it's draining so much , it likely should be changed more frequently to keep it dry. Discussion of freqency and whose to do it.?
4 If it opens, is the site an appropriate wound site for a wound vacuum. Do you have wound vac treatment system in your area?
Hate to bring up idea that it might open, but this is within the realm of possibility.
Remember the outlinging and taking daily pictures if possible. SHE's suggestion of sending them by email could save a lot of two hour trips each way.
Your PM question re: when and what other tests should be done now. The response of "We'll worry about that later , get through this". You have a right to have an verbal outline at least, of what is to come. The days of doing just what the doc tells you, without question(s)has long since past.
Momo, Thanks again. I'll try to check later tonite to see if you posted. What time is it there if it's 5:45 pm here
ANYONE viewing that wants to pop in with ideas/cautions/ pearls of wisdom . Please, do so.
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Hi Momo, how are you doing today? I hope the drainage is resolving. We're close to being in the same time zone! I'm checking in to see how things went with your doctor today.
I know all of the events and information can be overwhelming. Is it possible for you to take either another person (or tape recorder) to your doctor's appointments? We all 'glaze over' when we receive too much information, and it's important you have either notes or voice recording to review later, when you're at home and able to absorb all the details at your own rate.
As Sas said, now is the time to call in all the reinforcements you can gather. Do you have a close relative or friend who can start to get your family needs organized? Start a list of everything that needs doing during the day and give daily control over to someone you trust.
You have done amazingly well this far, looking after the kiddies while trying to deal with surgeries, infections and healing. I'm sure you have people calling to offer help, but if there aren't enough, do you have a church group that will assist by bringing meals around? Don't say no to offers and if asked what can I do, be up front and say I need help with laundry, housework, cooking and child minding. That's where the friend/family member comes in handy. That person can list all the chores and coordinate who is doing what. The main objective is to allow you to heal. You will be surprised how quickly you feel better once the burden of everything you are trying to do daily yourself is lifted.
I know nothing of Ireland's medical services, but do suggest you find out exactly what you're entitled to receive in the way of assistance and then start asking for it. I found it was easier to keep track of medical things by setting up a binder, with tabs for items like copies of lab reports, pathology reports, medications, treatment schedules, and anything else you can think of that's treatment related. I dragged my binder along to every single appointment and found that I frequently had more up to date results than the doctor I was sitting in front of. Never be afraid to demand copies of all tests and reports. Knowledge is power and we're here to help you take your power back!
Sending you {{{Hugs}}}, She
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SHE wow thanks your amazing. I'm worried MOMO hasn't posted , but we will just have to be patient, sas
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Aw Sas {blush} thanks.
Momo, wondering how you are doing. Please check in when you can. {{{Hugs}}} She
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