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Lovegolf
Lovegolf Member Posts: 513
edited June 2014 in Working on Your Fitness

I am over 1 year after bital Mx with no reconstruction.  Last night I went to my first yoga class.  The local medical center has free classes for all in treatment and all survivors.  It was great. I think I maybe hooked. Am going to caught one class a week two when work allows.  I can this helpig so much.  I recommend this to all who can. Check out your local fitness centers that are tied to medical centers...many have these free or reduced cost program. They are have reduced membership in fitness center too.

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  • NatsFan
    NatsFan Member Posts: 3,745
    edited June 2010

    Our local rec department offers several yoga classes at very reasonable cost.  I've been taking a Gentle Yoga class which eases into poses, uses aids such as blocks and straps to help you with poses. Most of the people who take the class have either been inactive for a long time and want to ease into activity, are older, have special needs like arthritis or who have other medical issues - like recovering from cancer treatments. Laughing  The teacher is very good about reminding us to invite the body to do as much as it can, but not to the point of pain or injury, and if we need to stop or can't do a pose, that's fine.  

    I've been taking it since active treatments ended and find that it really helps with the AI aches and pains, and also helps with stress management.   I agree with your recommendation whole-heartedly. 

  • jizogarden
    jizogarden Member Posts: 375
    edited June 2010

    I am 7 weeks out from my exchange surgery (dmx, no chemo, no rad).  I did yoga daily before life changed and look forward to getting back into it.  My implants are still feeling very snug and I'm hoping gentle stretching will help the soften up a bit.

    Looking forward to hearing about peoples experiences with yogo :)

    Strength and healing,

    Larua 

  • koshka1
    koshka1 Member Posts: 678
    edited June 2010

    hi ladies...

    i am a survivor and a yoga instructor...any questions you have - i would be happy to help.

    after surgery, and especially mastecomy - slow flow and gentle yoga...as well as "restorative" classes are very good.

    you will really enjoy the time that you have to yourself and the refocus.....the classes just help you put stuff into perspective...

    hugs..kosh

  • TokyoSing
    TokyoSing Member Posts: 140
    edited June 2010

    I got ready for my mastectomy by practicing yoga the day before.  I celebrated my 6 week recovery by returning to the yoga studio and practicing gentle restorative yoga.  It is such an integral part of my life now.

    If you go to yogabear.org, you will find yoga studios in your area that give free lessons to BC survivors.

    Namaste.

  • stacey2275
    stacey2275 Member Posts: 15
    edited July 2010

    to koshka, i have a question for you.  i am 4 weeks out of a left mastectomy w/ tissue expanders. had only 2 sentinel nodes removed.  i've heard that you should not do downward dog as it is not only very weight bearing but the gravity aspect of it can increase lymphedema risk.  how the heck can you practice without downward dog??  is this true? and if inverted poses help lymph flow, isn't down dog inverted?  thanks!

  • Debwa100
    Debwa100 Member Posts: 59
    edited July 2010

    I love Yoga, it has done a lot to help me with back pain (unrelated to my BC).  It helps me to hold a stretch longer than I normally would (and I'm a physical therapist who preaches stretching all the time). 

  • Lovegolf
    Lovegolf Member Posts: 513
    edited July 2010

    I have even found a center to take more classes near my office so I can get more than 1 class a week.  This is great.

  • don23
    don23 Member Posts: 512
    edited July 2010

    Koshka - Are there certain poses you should never do if you had a BMX with implant reconstruction? I have been looking into taking yoga - it's been a little over a year since my BMX and almost three months since my last exchange. I have never taken yoga and really don't know what to expect.

  • koshka1
    koshka1 Member Posts: 678
    edited July 2010

    Hi Ladies,

    after an operation of this type, it is imperative to go slowly. Both body and emotions have been through a lot of trauma. I would recommend at least three months of slow, restorative yoga. You can also add a gentle, reclining pranayama (breathing). Breathwork and restorative poses combined are healing and nurturing.

    Please make sure your are under guidance of your breast surgeon as well.  Many doctors think yoga is only done very passively and we know that it is not the case.

    For at least three months and maybe longer, you should avoid anything strenuous, such as Sun Salutations and arm balances, including Chaturanga Dandasana (Four-Limbed Staff Pose) and Adho Mukha Svanasana (Downward-Facing Dog). You need to avoid all weight-bearing poses in the chest, shoulders, and arms. Gentle, supported inversions and supported backbends are important poses to include in your practice.

    After some time-and just how long depends on the individual-you can resume a standing pose practice. At first, try not use your arms, but simply put them on the hips. You could also begin trying some shoulder openers, such as Gomukhasana (Cow Face Pose), reverse Namaste, and Urdhva Hastasana (Upward Hand Pose). You will need to experiment and see what works.

    Standing poses that demand that the arms be held out in space like Trikonasana (Triangle Pose) and Virabhadrasana I and II (Warrior I and II ) , make sure the arms are supported with a prop like wall ropes. 

    Wait until you heal before doing Down Dog.  Have your instructor place wall ropes around your hip creases and have you hang forward in Adho Mukha Svanasana (Downward-Facing Dog) to reestablish the action of the arms without it being weight bearing.  As you gain strength, and down the road, you can do the Down Dog. 

    As for lymphadema. It occurs because the body's normal fluids don't drain as well after a mastectomy and node removal. This can become an issue when you raise the arm or bear weight on it-as in Downward-Facing Dog. If you have it, then D-dog is not recommended.  If you don't have LE I have not heard that it will cause it......I as well have also had node removal and only 1...have not had a problem.

    I will look into this further and get back to you all.

    Hugs and Namaste

    Kosh

    As for the node removal...I had 1 removed and have been teaching yoga since then with no problems.  I will look into this further and get back to you and see what answers I can find about lymph removal especially where more are removed. 

  • koshka1
    koshka1 Member Posts: 678
    edited July 2010

    This is what I found out.....

    There are two treatment factors that influence your risk of developing lymphedema: 1) Number of lymph nodes removed and 2) Radiation. 

    The risk is highest when 10+ nodes are taken and radiation is prescribed (especially to the underarm and clavicle). 

    The risk is moderate if ONLY nodes were removed (no radiation).

    There is low risk with a sentinel node biopsy and no radiation.  

    Yoga poses with uplifted arms (e.g., Warrior I) promote lymph flow and are excellent choices.  However, the popular Sun Salutation vinyasa (with no modifications) requires the shoulders, chest, and arms to bear much of the body's weight, and is extremely unsafe for those at risk for lymphedema.   

    During any exercise, wearing a compression sleeve on the affected arm will add protection.

  • Debwa100
    Debwa100 Member Posts: 59
    edited July 2010

    Hi Kosha, I have been seeing a physical therapist for breast rehab (I am a physical therapist but my specialty is pediatrics).  The physical therapist that I am seeing is LANA certified, and skilled in breast rehab.  She feels my risk for lymphadema is very low (I had bilateral mast with sentinal node biopsy on the right 8 weeks ago). She has given me the OK to try weight bearing activities. I have gone back to yoga and strength training, and have done downward dog and push-ups.   Although I am weaker, I have not experienced any symptoms.  I was in very good shape prior to surgery and want to continue with my fitness regime.  I am certainly not questioning your expertise.   However, are these recommendations guidelines, or are they based on research?  Again, please don't take any offense, just trying to make the best decisions.    

  • koshka1
    koshka1 Member Posts: 678
    edited July 2010

    Hi there Deb,

    I am not sure that I really understand your question.

    If you are asking if there has been a specific study done on LE and yoga poses then there is probably no research.

    The information is based on an understanding of the fundamentals of the postures and how they impact the body.

    The "recommendations" are just that - recommendations.

    Some poses...like D-dog are not recommended if you are at risk for LE which it sounds as though you are not.

    It is very hard to give "specific" yoga advise when you have not practiced with the person so the above is just basics on taking it easy, modifying the postures...and staying away from some postures if you are at risk. As we both know, there are some risks in all of this that are higher than others...and there is no guarantee in any of this. 

    Not to give advice...medical advice..or too much advice but I can share my story with you and the choices that I made.

    I was in awesome shape prior to breastcancer...and after my surgery (lumpectomy) started teaching yoga about 2-3 months after.  I took it very easy as the muscles in my chest were really sensitive.  A couple months down the road I went back and taught full classes.  I have had 1 lymph node removed and have had no problems with LE.  My radiation oncologist and my oncologist and my surgeon were not concerned about my continuing with my yoga practice.

     I also teach 2 spin classes a week and now work out with a personal trainer and lift heavy weights. I have had no problems as of yet.

    I hope this helps :)

  • jizogarden
    jizogarden Member Posts: 375
    edited July 2010

    So nice to meet everyone who has joined this group :)

    I have begun returning to my practice slowly.  I had my sentinel lobe (one each side) with no radiation or chemo. I am now 7 weeks out from my exchange and feeling pretty good (physically). Some modifications I have done is to incorporate a chair to take the weight of my arms while doing down dog, plank or anything that I need to put weight on my arms.  This allows me to feel the lovely stretch without full weight on my arms.  How does this sound?  So far I am comfortable after my practice without feeling any negative symptoms.  I do not have LE and hope to keep it that way :)

    Here's link to a nice video using a chair:  http://www.youtube.com/watch?v=Lasm-FmdQ3c&feature=related 

    I look forward to learning from you all and following your experience :)

    Strength and healing,

    Laura 

  • NatsFan
    NatsFan Member Posts: 3,745
    edited July 2010

    Deb - check out the Lymphedema topic thread here - you are at risk for LE - several women on that board developed LE after just a SNB, despite being assured by various surgeons, oncs, etc. that they were at low or no risk for LE.  Be sure to take it very easy and build up slowly.  Stop immediately if you feel any heaviness or soreness in your SNB side, or if you notice swelling or redness.  I'm hoping your therapist has measured both arms and taught you self-measurement so that you can monitor yourself as you resume activities.  If not, you may want to check in with a LE therapist who can measure you and teach you LE prevention techniques, and possibly even fit you with compression garments to wear when you work out. 

    Prevention is the key.  Once you develop LE, it's not curable. 

  • LtotheK
    LtotheK Member Posts: 2,095
    edited July 2010

    If I understand correctly, you had one sentinel node per side.  My PT lymphedema expert says the risk is approximately 3% per node.  There is very little to back this up, the LE world is only recently getting play.  It's all very complicated.  For instance, my PT told me that ill fitting compression garments can cause lymphedema.  That's why they won't fit for a long flight until 4 weeks before you go.

    I am a yoga enthusiast, but have backed off, as the poses like downward dog are held for long periods and just logically, would encourage "pooling" more than other exercises.  My PT said weight training--go for it.  Light weights, high rep.  Work out, get a little sore, don't overdo it.  Swimming she said was absolutely the best.

     

  • koshka1
    koshka1 Member Posts: 678
    edited July 2010

    Hi Laura,

    Those modifications to your yoga poses are probably the best that there is to help avoid putting any weight on to the shoulder, chest, arms etc.

    :)

  • lisa-e
    lisa-e Member Posts: 819
    edited July 2010

    I have mild, controlled LE.  I understand that downward facing dog is not recommended if you have le; however,  I have been able to do that posture without any problems.  I think the key is that I went slowly and paid attention to how it felt.  

     The postures I find difficult after my mastectomy are chest opening postures.  They are painful and stir up powerful emotions.    Also it is harder for me to do postures with uplifted arms, even at this point - about two years post surgery - as my arms tire more rapidly than they did pre surgery.  I can't figure this out as I am able to climb (rocks) and lift weights at the same level as I did pre surgery.   I think it may be due to scar tissue.

  • jizogarden
    jizogarden Member Posts: 375
    edited July 2010

    Thank you Kosh :)  I hope some day yoga will feel the same as it use too.....but it already feels better than doing nothing at all ;)

    Strength and healing,

    Laura 

  • Debwa100
    Debwa100 Member Posts: 59
    edited July 2010

    Thanks, sometimes I get a little crazy (since this diagnosis), people are always warning me not to over do it, but I'm not much of a sitter.  I guess part of it, is just knowing your body, (or getting to know your "new" body for that matter).  I appreciate your clarification, and knowledge, and I'm glad you are doing so well with your recovery!!

  • koshka1
    koshka1 Member Posts: 678
    edited July 2010

    Hi Jiz and Debwa,

    I was at a point when Yoga did not feel the way it used to...and I was really angry at my body......thinking,,I have done yoga and fitness for years...ate healthy!  how could you fail me!!!

    I think I am back to that good place...however, Deb..you are right..take it slow and listen to your body.  I dont think sitting long term is gonna help overcoming this - but getting back to the old you (or a revised old you) gradually will!

    It's funny...there are so many things that we have to now think of.....beware of LE, don't drink alcohol...dont eat soy and flax (for us ER +), side effects of treatment.......how the heck do we ever find our normal in all of this..... I have become a stronger believer in doing what makes you happy,,,,and what makes you feel good..as this too is positive therapy (as they also say - beware dont be stressed it causes cancer - dont be sad - it causes cancer..)

    Enjoy getting some of yourself back!!

    I am so glad too to have all of you ladies to help me through!

    Namaste

  • jizogarden
    jizogarden Member Posts: 375
    edited July 2010

    Have been doing a light practice about every other day for the last week...so far so good....but frustrating.  I had a DMX and one "breast" is tighter than the other (not because of radiation it just is) ...I can feel that the one side is much harder to open......I know to go slowly but I miss my old body and how easy it was to open my chest......  This will be a very big lesson in patience.  

    Hope this finds all doing well and slowly and happily moving forward....

    Laura 

  • don23
    don23 Member Posts: 512
    edited July 2010

    Has anyone taken a gentle yoga class? There is one offered at a local hospital and is offered by the Cancer Institute there. Any level is welcome whether in treatment or done with treatment. I have never done yoga and think that this would be the best place to start. Has anyone taken a class like this and if they did, was it too "soft" (for lack of a better word). I had a BMX with implant reconstruction and did not have to do chemo.

  • don23
    don23 Member Posts: 512
    edited July 2010

    joycek - I would be interested to know how your yoga class went. It sounds similar to the one I am looking into.

  • Lovegolf
    Lovegolf Member Posts: 513
    edited July 2010

    don 23

    That is what I starting taking was soft yoga or I call yoga with training wheals.  They hav blocks and large pillows if you need them.  There are folk who are in treatment for all types of cancers.  It is a wonderful experience to share.  I hope you try the class .

  • NatsFan
    NatsFan Member Posts: 3,745
    edited July 2010

    I've been taking gentle yoga classes off and on since I finished chemo 2 years ago and they're perfect for me. I'm very active aerobically, but still have stiffness and joint pain from femara, so I'm not as supple as I used to be, and the straps and blocks are a real plus for me.  Also, I have LE, and the gentle yoga tends to avoid poses like downward dog that really stress the arms and shoulders.  Like Joyce's instructor, this instructor is very good about reinforcing that we invite the body to do these poses, but if the body cannot do it without pain, then don't force it.  It is definitely not too "soft" for me - I tend to do concentrate too much on aerobic exercise, so this is an excellent class that forces me at least once a week to do slow down and a different workout. I had an injury that forced me to miss class this session, and I really miss it. 

    One weird thing I've had ever since chemo is that I cannot sustain positions like forward fold for very long without having a muscle on left side of my ab cramp painfully, to the point where I have to pull out of the pose and arch my back for several seconds to stretch out the muscle for the cramp to subside.  I'd blame it on my DIEP surgery, but I had a delayed DIEP that wasn't done till months after I'd finished chemo, and this started in the first yoga class I took 2 weeks after I finished chemo.  I keep meaning to ask my surgeon about it during one of my followups, but keep forgetting.  I do get the occasional odd leg or foot cramp during yoga, but I blame femara for that, so maybe this big cramp is part of that as well.

    Joyce - sending out good thoughts that the biopsy shows all is well - please keep us posted.  

  • don23
    don23 Member Posts: 512
    edited July 2010

    I am starting to think that this gentle yoga class is for me! I can't wait to try it out. The first session isn't until July 19th which isn't too far away. I am looking forward to it. Thanks for all your input ladies! I'll let you know how it goes.

  • koshka1
    koshka1 Member Posts: 678
    edited July 2010

    Hi ladies...

    If you don't have a cancer center near by that offers yoga classes for cancer patients....check out "Restorative Yoga" classes at some of your nearby recreation centers and studios.

    Restorative Yoga is done with pillows, blankets, blocks and all of the props.  It is very slow paced and you will enjoy it.

    Also, tell the instructor prior that you are a Survivor.  We need to know this of our patients if it is not a participant specific class.

    Hugs and Namaste

  • NatsFan
    NatsFan Member Posts: 3,745
    edited July 2010

    Can anyone recommend a good gentle yoga DVD?  Due to a (non-b/c) hospitalization last month, I had to skip the Summer session of my gentle yoga class.  I am now realizing how many more AI aches and pains I have since I haven't done my gentle yoga for a month or so.  I'd like to purchase a DVD to do on my own till the Fall session classes start.  Any suggestions?  I looked on amazon.com and there were 5-6 different gentle yoga DVDs so I'm not sure which one to buy.

  • jizogarden
    jizogarden Member Posts: 375
    edited July 2010

    I have found a gentle yoga class near me.  They have bc people in the class :)  I hope to start soon.  Meanwhile I'm continuing with my own gentle practice at home.....

    I hit a large bump in the road this week...my heart freaked out and I ended up in the hospital diagnosed a weakened heart muscle :(  Long story, too shell shocked to give all the details.  I am not on exercise restriction...and with beta blockers and ace inhibitors my cardiologist says I can most likely rebuild the strength of the heart muscle....I'm holding onto that for now. 

    NatsFan, for a yoga program at home there is "Yoga for the Rest of Us" by Peggy Cappy....she does a chair yoga tape that is nice....also I posted a You Tube link that has a nice routine for free :)  http://www.youtube.com/watch?v=Lasm-FmdQ3c&feature=related   

    So yoga is still part of my recovery from bc and now heart cardomyopathy =(

    Strength and healing,

    Laura 

  • koshka1
    koshka1 Member Posts: 678
    edited July 2010

    Oh my goodness Laura...

    As if the breast cancer was not enough.

    Sorry this has happenend to you.

    Hugs and be strong.....and is it safe to tell you to "just breathe deeply?"  :)

    Kosh.............

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