If I don't RANT, I'll burst.
OBVIOUSLY I need to stop smoking COMPLETELY...No S*!t Sherlock..
We (my rad onc and myself) have had many discussions, during which not one did he ask and/or explain to me any risks involved with radiation. He failed to mention to me anything about the damage to your lung - long term heart disease - risks of smoking - yadda yadda yadda. So I bring these things up to him (shouldn't it be the other way around?), and I get the master sales pitch of how insignificant these risks are in comparison to the benefits of it. I must have IDIOT tatted on my forehead.
He is very aware that while I have dramatically cut down on my smoking, I still smoke, however much (my limit is down to 5/day now, working on it), I STILL SMOKE. Call me weak, call me idiot (after all it is tatted on my head), call me late for dinner, whatever - the fact remains and I admit it. Granted he is waaaaay smarter than me, but it's not rocket science, smoking causes lung cancer - factor in the part of lung that is hit by the radiation and your chances are now as good as gold.
Perhaps it's just my f*#%ed up way of thinking, but shouldn't this be addressed BEFORE one commences treatment?? I mean, if I haven't been able to kick the habit come crunch time then what, that's YOUR problem not OURS, we're doing it anyway? Now THAT'S what I call job security.
So now, given the circumstances, I feel backed against the wall, which makes me even more PISSED OFF, which makes me want to smoke even more, not quit... I wonder just exactly how much concern they have for my health or just exactly how much concern they have for making their car payment. Tomorrow is treatment number 3.
I'm not exactly confident with doing rads in the first place even if I didn't smoke. Correct me if I am wrong, but radiation causes cancer too! Mention that and the master sales man kicks in high gear again telling me how safe it is nowadays, blah blah blah. Ok then Mr. Rad Onc. You can stand here and hold my hand while I'm getting the next 33 treatments if it is so safe nowadays. And explain why you are hiding behind that 3ft thick iron door, with the DANGER RADIATION signs posted all over the parking lot.
I'm bald, I'm pissed, it's my life and I'm pulling the plug until I'm a genuine quitter. RANT RANT RANT.
Comments
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It's amazing that they leave out the little details,like heart disease and lung damage and it's not just the rad onc, its the breast surgeon the PS, the regular onc ect. They fail to tell what might happen if you have surgery or treatment, I would love to turn it around sometime. And I am sure they are concerned about making the car payment, but how about the medical code ethics? I could go on but, I would be here all night.
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Hi there,
First of all, I think your photo is absolutely beautiful. I hope the photographer realizes how lucky she is to have captured that.
And I agree - I've only just begun this radical journey, but I'm finding that unless I ask a specific question, the docs are not forthcoming with info. It's almost like they think, "Oh, you wanted to know about THAT?" DUH, people. We want to know everything. Our heads are swimming with what we are learning, and OMG what do we not know?
As for smoking - give yourself a break. It is a physiological addiction to chemicals, just like caffeine (withdrawal headaches, anyone?), heroin, crack, whatever. As a former smoker I can tell you that quitting is THE MOST DIFFICULT thing I've ever done, besides giving birth. But I quit before giving birth so I didn't know that at the time. Anyway, if you're down to 5/day, you're soooo close; allow yourself the grace to love yourself through it.
Well, I butted in here, but I do really love your photo.
Kathy
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YOU hang-in there Kiddo ! "Mother" is back and very angry that the Medical community has just placed 99 % of the women out there on the "Ditz" list and actually get-away with not telling them much of anything. . . much less the TRUTH, and never "THE WHOLE TRUTH ! If the "whole truth" were known, many decisions would be quite different, and someone ought to stuff a rag in their pushy mouths because they pressure the women into "immediate" decisions that may or may-NOT be the right ones, based on the knowledge that is out there.... OUT THERE ? Yes, and pretty cotton-pickin' scary too ! Not enough **NEW** stuff available to make an informed decision ! What is "out there" are pictures and text about mostly OLD (worse-yet) procedures..... It is almost impossible to imagine what THOSE women went through.
Next, there is no difference between an addiction and an addiction, and smoking is no different of a comfort to get through something awful any more than sucking you thumb in the corner with your Blankie would be ! Smoking is a real medical problem and should be addressed as one, with help and aids, and something other than the "You are weak and stupid" act, or worse, "Go ahead, eat instead ? That is a great one, Chemo didn't put enough weight on you ?
The Rad-Onc should be personally responsible for that decision that the "QUITTING" is complete and the woman is back into some sort of comfortable mode * before starting * ...... how hard can THAT be given today's resources ? OK, OK, I do know that every step is even scary than the one that proceeded it, but where is everyones priorities ? ? ?
May God Bless all of these brave women, and give them inner courage beyond what they need. Hang in there Kiddo ! Love, Bambers88 *Mother* ~ ~ ~
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I can understand your frustration. One would expect that doctors would understand the difficulty in stopping smoking, even when you want to. And that they would be more encouraging and recognize that, given the stress you are under, being down to 5 a day is something to be proud of.
We have a friend now who just lost a lung to lung cancer. And yes, he smoked for years but interestingly enough, at my cancer center, they cut me off when I said something about smoking and lung cancer and said that many many people get lung cancer who didn't smoke and that because of that, it wasn't correct to draw a link for our friend. I found that interesting.
With one lung and being into chemo, he is now quitting. His doctors have given him the electronic cigarette --which delivers a small dose of nicotine---and a nasal spray which also delivers nicotine. Its still not easy but it is helping. Maybe one of your doctors can do something helpful for you and give you a prescription?
good luck!
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I remember when I met with the radiation oncologist and he sort of slipped those risks into the end of his presentation. I was like "Wait, hold on - permanent lung damage, permanent heart damage, permanent deformity to the breast - WHAT?" He downplayed them, said in 30 years of practice, he hadn't seen them happen (he was chair of the department), talked a lot about how targeted the beam is, how superior than previous technologies, etc. I went ahead with it and came out completely fine - the whole thing was a total breeze for me (ESPECIALLY after chemo).
But here's how I look at it. Maybe it will help somebody.
Radiation (or chemo, or surgery for that matter) aren't perfect treatments. They have risks of side effects, some of them quite scary. But for where medicine has evolved to, right now in 2010, this is the best we've got. We can take it or leave it, but these doctors (as imperfect as THEY are, just like the technologies) have devoted years of training to the purpose of saving and prolonging lives - NOT making car/boat/vacation home payments. This is a very difficult field to be in - they have seen many people die. No one would choose oncology just for the money.
So IF someone said "Hey, you DON'T have cancer but do you want radiation? Here are the side effects" - OBVIOUSLY you would say no. But this isn't a preventative. It isn't a theoretical thing or experimental treatment. We ALREADY have developed cancer. If untreated, it will grow, spread, and kill us. Sometimes I have had a hard time grasping the truth of that, since I never felt sick, or had symptoms other than a small lump. But it is true nonetheless. So given that cancer has ALREADY happened to me, the importance of treating it is paramount. Small % of possible side effects pale in comparision to the known effect of the cancer if it progresses. For me, that was a chance I was willing to take. And these doctors have SEEN the effects of cancer that spreads. They live with the reality of the people who did not beat it. I think that is why they place this priority on treatment - knowingthese are the only weapons in their arsenal to give us, and hoping we will avoid the worst of the side effects, beat the cancer and go on to live long happy lives.
i'm NOT deifying doctors or nurses. But I have had such wonderful compassionate care that I really hate when people villify them or accuse them of alterior motives. They're just regular people trying to do a very difficult (and probably often painful) job.
From the way the rad onc explained it to me, the statistical improvement in chances of survival after radiation are much higher than the risk of side effects caused by the radiation. That was enough for me to be convinced to go ahead.
I hope maybe my convoluted thought process might reassure somebody out there.
Amy
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Amy, beautifully said. And I must say I agree with you competely. This is a long difficult road for all of us but I will take some of the side effects that are possible rather than the known outcome of untreated cancer. I have three treatments left and I guess I must say I have fared pretty well. Long term??Who knows- but rad onc said there is now a study that says if there a recurrance in the same breast - targeted radiation is showing promising results. I told her thats great but the only place I ever want to see her again is in Walmart:) Everyone have a good day. Nancy
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I would be very proud to say I was down to 5 a day, good for you! My oncologist told me " smoking is bad for you (when I started chemo) however now is not the time to be worrying about that, you do whatever (my husband asked could I smoke pot!) it takes to get through this." He repeated the statement when I was diagnosed with breast cancer the following year. I still smoke a pack a day, not proud of myself for this, but we all have our vices, bet your rads onco is addicted to golf, fancy cars and expensive meals lol
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Susan, Hi! I agree- we all do have our vices- I have mine too- three oncs have told me to quit drinking- especially my pinot noir (all red in general) - not going to do it. I enjoy 1-2 glasses every night and if that is what is going to contribute to a recurrance or even my death so be it. This cancer takes so much away from us already I won't allow it to take the one enjoyment I do have. As far as the pot question- my teenage boys asked me the same thing
Enjoy your day. Nancy
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