Motivation
Comments
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Spring - yes I did get the email. You did good!
Harley - think positive. You will find another way to get to school.
The heat is really bad. Shadow justs looks outside and goes back to bed. We walked last night at midnight. And then again this morning. Not far today. Will walk again after work tonite.
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Harley, I just asked the powers that be up there to help make a way to get you back to school. Hang in there, maybe it will still happen...
Today I did my weights at the gym and then walked 2 miles on a cool treadmill while reading a magazine. I'll tell you, that is so much better than 90+ temps with the humidity!!!
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Harley ~ Your situation made me think of a tile I have in my kitchen that says, "When God closes a door, He opens a window." I'm sure you will find the path you're supposed to be on, whether it's funding for school from a different source, or a new direction. You have so much to offer! Don't let the negative people in your life get you down.
And let us know what your onc says. Do you think it might be a bit of truncal lymphedema brought on by the summer heat?
Spring & Joy ~ How neat that you two are going to ge to meet!
Well, I'm off to find a Father's Day gift for DH. Still haven't gotten back to my walking routine; it's been so hot here, but at least we rarely get humidity with our heat. Deanna
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Thanks, everybody. I haven't called the school yet, or the financial aid office. I have been too busy with other things.
Spring, thanks for the prayers.Deanna, thanks for the inspirational message.
Oh, and my back and neck have been really sore all week. It feels like I felt before I was dx'd, and that really scares me! Part of me thinks that this back/neck pain is from the Femara I'm taking, but I still worry. The underarm pain could be from truncal LE, I suppose. It felt like a really bad cramp!! I've had that pain before, but this time it was worse.
Hope everyone has a great weekend!
Harley
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Harley, sounds like you should go in and see your Onc like he asked. And not let your boss intimidate you into not taking care of yourself.
Did 3 miles on walk with DH yesterday. Should have weightlifted, but will need to add that in today
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Harley - you come first! Take care of you and start feeling better. I'm sure you will find another path for school. It will work out for the best and probably a better way.
Any one want this humidity?? The a/c wasn't working at church today so there were many prayers and I think they were all for the same thing. Hot flashes weren't noticed because everyone was having them! Going to the beach Monday morning. Some releif anyway. Have a great day.
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We are down in Wilmington for Diana's college orientation at UNCW!! Joy and Harley and all, you won't believe it, but on the way here the temp got up to 100 degrees!!! Holy cow! No exercise for me today.... I am trying to eat as clean as possible!!!
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Try to stay cool. The humidity is bad here but there is a breeze. Will walk again tonight when I get home after 11 PM. Taking two boys to the beach tomorrow morning. Need to wear them out for their mom so she can get housework done. Of course she is going to tag along too. She couldn't turn down time at the beach.
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Yes, it is getting HOT!, and the humidity... ugh... Today my dh and I went to the beach, and it was SO HOT, that I finally couldn't stand it anymore, and... I got in the ocean, and splashed around for awhile. That really seemed to help. It was much cooler when I got out.
Anyone going to the beach tomorrow, enjoy!!
I am going to the onc. tomorrow. I'm also giving my notice, because this was 'the straw that broke the camel's back,' as they say. Something else will come along. For now, I will just relax, enjoy the summer, and work on my fundraiser. It is coming together nicely.
Hugs
Harley
P.S. I'm meeting Shirley Hughes, from bco for lunch tomorrow, after my onc. appt. That is always the best part of these appts. On June 11th, she couldn't make it.
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Harley ~ Have a wonderful lunch & visit with Shirley! It is certainly special to meet our bco sisters, I have met several & would do it again in a heartbeat.
Less stress from that job might be just the ticket for you.
{{hugs}}
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Harley, I just let out a sigh of relief hearing you put your notice in. I'm so jealous you're meeting Shirley for lunch. One of my favorite BCO sisters. Please tell her I said hi. Hoping you report back with a good visit with your Onc. I thought the advice to consider truncal lymphedema was good. Those lymphedema first signs can be nagging.
Spring. What weightlifting are you doing? Free weights, nautilus? Are you doing manual drainage after? Just wondering because you're getting such good results from the lymphedema. I've not had my weight lifting aggravate my LE, but, not noticed it helping. Since getting treatment for the hypothyroidism I'm finally noticing some return of muscle strength, but am worried I've been aggravating the LE. I'm noticing a little more swelling and aching. Of course, I'm using it a lot more at work now so who knows. I'm sure getting off some of this weight would help. So, freakin aggravating. I'm down to less then 1000 cal a day and getting only very little budging of that stupid scale.
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Not that I want to be poor I am not I am rich with luck of being here every day but with FASA I am a SR SECT. at the University here at the Nuclear Reactor but I do not make allot and my son is able to go to school for nothing on the fasa which is great for him no loans of much some for flying he is in Aviation but I do hate filling it out but every year is easier you just update it online. Review everything before submitting because some times computers mess up. I am back to curves too a week off to deal with my non hair but got it shaped and I am showing my scalp and it looks fine to me I cannot handle a hat but will have to wear a wig for sons wedding in August but that is ok, I dont want to ruin his picutres he told me my hair is beautiful and I would never ruin his pictures but his new bride might feel different.
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Went to the beach and spent several hours. I played with a 10 year old. His mom wouldn't get in the water so I did. Some of those waves were killers. Next time I will wear 1 piece! I hope to go back on Sunday. My next day off. Going to go see DS in a week. Haven't seen him since Jan.
Enjoylife- do whatever you feel comfortable with. A lot can happen between now and Aug.
Harley hope everything went well at the ONC and you had a great lunch.
Hope everyone else is staying cool. My exercising is out the window. But I still walk the dd twice a day. She is enjoying the walks after dark when it is cooler. Might do some yoga now. Better than watching TV and veggie out. HUGS
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Hi All!! Sounds like we're all plugging right along. Danced the night away at my DD's reception in So. San Francisco Saturday night, and I'm sore! haha was exhausted, didn't get tucked in til 1a.m. - YIKES, that is so NOT me! So I was pooped yesterday. Did yoga and that felt great, oh and I bought 2 more herb plants, to go with my basil - oregano and parsley. Our zucchini are coming in and we've eaten 2 already! YUMMY, the tomato plant is growing, hope we have a good crop like last year. I was watching the Food Network yesterday and Big Daddy was making a salad and his dressing looked yummy, so I bought the plants and made the salad and dressing as my dinner. OMG! Fabulous taste!
Walked at the mall during my lunch hour, but only managed 23 min. Still sore! LOL
keep cool and keep moving! xo
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Enjoyfil, what a wonderful son you raised. I hope your DIL to be feels the same way.
I've decided this is the song that explains how I feel most days now.
http://www.youtube.com/watch?v=OC6IErss1iE&feature=related -
KMMD, at the gym, I do the assisted chin ups and dips - do you know the machine I mean? I do several sets of those, once in the start and then at the end. in between I do all the rest of the weight machines, both upper and lower body, and I do abs twice (start and finish). But I think it is the assisted chin ups and dips that are helping because it does a whole huge area of your upper body, including under the arm pits and the sides. I wear my sleeve, but I am no longer wearing the body compression thing.
Today in Wilmington it was hot but then we went to the beach and it was GLORIOUS when the sun went down. not cold, not hot, breezy - like heaven! We went to Shell Island and walked around where the ocean turns into a sound. Very cool!!!
Our butts are flat though! Ate terrible! No exercise! good thing this is our last kid going to college! the orientations are not good for us!!! ha!!!
Spring.
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I saw my onc. yesterday. He felt my underarm, and he thinks I may have just pulled a muscle. I said: What muscles?? I don't have any muscles!! LOL He was really very nice; he said:
You sound like you are scared. So we talked and I explained that my back was hurting and it felt like it did BEFORE I was dx'd... He tapped my back again and said that if I am still having this problem with my back in a couple of weeks, I should call him and he'll order a bone scan. He mentioned it before he examined me, and I just froze up, the thought of a scan scared the daylights out of me. But, I agreed that if it continues, I'll call him. It seems to be feeling better. He told me to take Rx strength Ibuprofen, but I didn't like having to take THREE pills!! So I went home and took THREE Motrin.
Thanks for all the warm wishes. I think it will all turn out ok. My back seems to be feeling better, I still have some stiffness, but it isn't as bad as it was last week. I will just keep taking the Ibuprofen and see if the pain goes away.
I am thinking about trying to connect with some of the people I have met through my fundraiser work, and maybe I will find a job through one of these organizations.
Harley
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Isn't there a saying that "when one chapter ends there is another one starting". I was told when I separated from my husband that a whole new life was starting. The same will go for you Harley and you get to do the writing of the next chapter. You can and will do great. It is "attitude".
Spring - wasn't the beach relaxing?
Kari - are you still recuperating?
Ainm - where are you? You must still be doing WII. When you take a break you will miss it and get right back to it.
Everyone else have a cool week and keep moving.
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kmmd, shoot - can't access youtube at work!
Spring, you CRACK me up - flat butt girl! haha You sound like you're doing GREAT at the gym, you're gonna be all buff! I was supposed to do some weight work last night, but NO I did nothing! I was really tired.
Harley, I know how you feel. I had to have xray and bone scan last year, from bad back pain and neck stiffness, it started with rads and Tamox, but the scan was clear! Thank goodness, I was scared. So did you give notice at your job? hope something new comes along soon.
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Joy, I missed your post! I'm doing fine, still sore, but got up this a.m. 30 min early and did some stretching, I'm all tightened up! UGH Love your attitude!!
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Feet are screaming but, did a little jog then walked an hour with DH. Long but fun day at work too. Sure love this group, you guys keep me going.
Harley, my chemobrain is acting up and I can't remember the official name. Navigator? Have you looked into being a breast cancer advocate or patient navigator? I'd sure love to have you holding my hand if I was new and scared and going through the system
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Joy, Kari, kmmd,
Thanks for all the great ideas and the warm wishes as I move on. I talked to my boss before I left today, and told her that I would work 2 or 3 more weeks, since one of the other cashiers is having some problems, and isn't working. Her husband was just dx'd with kidney cancer. I will work either 2 or 3 weeks, I guess. My boss didn't get it. She totally changed her story and said that she NEVER said I should make my dr. appts for days that I was not scheduled to work. Gee, I wish I had a tape recorder... I will tell her tomorrow that I thought about it and I really need to quit. I have that fundraiser to work on and lots of other things.
kmmd,
Thanks for thinking about me and my plans to become a patient advocate or social worker.
I got a letter from the financial aid office, and it said that I do not qualify for any scholarships. I don't want to have to get loans to go to school. So, it looks like the patient advocate plan may not happen. However, I have been meeting with lots of other people from non profit organizations, and maybe I'll end up working for one of them. Maybe something else will turn up.
Oh, my dh and I went out this morning (early) for a run. He wants to run a 5 mile race in September, and I am trying to train with him, so maybe I can run this race, too.... only I am the one that has to nag him to get him moving. When I run with him, I can't keep up, and I have trouble just running the entire 2 miles. When I run alone, I am ok.
Harley
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kmmd ~ I really like the Youtube video you posted, but after watching it and looking up the lyrics, I'm confused if you mean that you're mostly feeling positive of negative these days ??????
Harley, as long as you can afford it, I think quitting that job that makes you feel bad is still a good idea. And shame on your boss for not owning up to what she'd said! You don't need that kind of negativity and game playing in your life.
As far as exercise goes, the last time I walked had been on 6/9, before we left for NM, so I was starting to wonder if I'd even be able to get back into it. But I did 5.62 miles yesterday morning, and 5.84 this morning, thanks to a nice breeze at 7:00 a.m. I also went to the athletic club last night and did 20 mins. on a bike and another 25 minutes of weight bearing stuff. And I was actually able to go up a weight notch on some of the machines.
DH is having a laser eye procedure tomorrow at 11:30. Any prayers or good thoughts would be very appreciated! Oh, and I have a dear friend, Patty, who could also use some prayer. She started having strange weakness about 10 days ago, and ended up literally not being able to walk. The dx is Guillian-Barre syndrome. She's very funny ("I'd rather be on a road trip" was her comment after a spinal tap), but she's facing a long haul of rehab.
Okay... gotta check my blue corn chicken enchiladas. Can you believe I found blue corn tortillas at Trader Joe's? Deanna
P.S. Speaking of songs, here's one that totally resonates with me these days ~
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Deanna, both really. I think that's why the song resonated with me. Overall I'm doing well. I've shed the sadness and fear that the diagnosis and treatment and worrying about the future brought. The neuropathy really gets me down. The lymphedema I can live with, but the constant pain from the neuropathy gets me down. I've exhausted all the home remedies, supplements etc. Called about clinical trials etc. But all I can really do most days is put one foot in front of the other and keep breathing. At those times I think about the stats about risk of recurrence that's what I tell myself too. I love your song too. It is so true.
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Harley, as you talk about school funding, my DD called...and I had to buy another book for school for her! It never ends....I've spent a lot of money over the years, but its so worth it! My older DD paid me back once she got a job, cause she wanted to say she paid for school herself. She's amazing to me. My younger DD is still plugging away, I told her that when it comes to school, I will always help, even if I'm broke! LOL! but it all works out somehow. Best of luck to you on your journey of what's next for you...I believe something will come along that makes you happy. Don't give up!! If you are having trouble keeping up with your DH while running, maybe he can join a training group, that's what my DD did earlier this year. Don't be so hard on yourself, do what you can.
kmmd, you amaze me girl! you keep plugging along. I can't offer any suggestions on the neuropathy thing, I have some slight stuff in my left fingers and my toes/feet if I overdo it once in awhile. I just smile at you though, because you really are inspiring to me. hugs
Deanna, sending prayers and PV's for your DH and friend Patty. I looked up that syndrome...not fun at all! Keep us posted on both DH and Patty. And you're so good! you got right back into your long mileage walks!
I, on the other hand, did no exercise yesterday, had lunch with a coworker, then to dinner at DD's house. Too hot out to do anything! UGH I got up this a.m. and did 20 min. of body 'stuff'. Have to walk at lunch...will be a mall walking day, its hot out!
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Deanna, I'm praying for your dh and your friend, Patty, too.
Kari,
Mall walking is a GREAT idea! only one problem for ME... We live about 35 minutes away from the nearest Mall. When I finally get myself into the frame of mind to exercise, I better do it RIGHT AWAY, or I won't go.
You are ALL the most amazing women I have ever known!!
Harley -
Hi to all! I am thinking and praying for all those who need it.
I have been reading, but not posting. It is so hot in Vegas that I have to go to the gym now, I hate that. I would so rather just walk and not have to do the treadmill. We are planning weekly hikes up into the mountains, those are fun.
Enjoy your Wednesday everyone.
diane
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Work has been so crazy. I feel wiped out!
90 min yoga yesterday, nothing yet today.
ugh!!!
Yes Joy, the beach was really really nice.
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Got up and finally got my butt back on the treadmill before work this a.m.!! I was really tired when I woke up but forced myself. I've been wide awake all day!! 1.5 hours to go at work...taking a quick break now. I didn't realize how much strength I lost during tx, I used to be stronger, I could do pushups, pullups-now I'm really struggling...taking baby steps trying to strengthen my body again!!
Diane, hope you don't have too far a drive to the gym, I know what you mean about having to drive to the treadmill. You have months of HOT weather ahead...sigh
Spring, I can relate cause work has been crazy today for me!!
Supposed to be a cooker weekend here-UGH! Sending love out to ALL!!
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Spring, I'm with you, they're trying to kill me this week. Haven't worked out the last two days, but, been on my feet non stop. Not a good combination really. You feel wiped out but you know there is no aerobic activity in there. Tomorrow not lookin much better, but the weekend I should be able to squeeze something in--if I make it that long. Epsom salts must be helping because its the only reason I'm walking.
Harley, thinking of you since DH looked at me today and said I don't know about this maybe we need to think of you not doing this anymore
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