fingers crossed for faith

OK.

Now just sitting here in a puddle of tears.

Sorta happy tears.

Tears from feeling cared about.

Thanks to everyone for the encouragement, support & the links.

Yes. It is Kinesio Taping that we're starting with. The link is very 'good' and refelcts the art project my "Hunny" created on my chest. Well, I'm a variation, but you get the idea. Sorta. She has literally 'woven' my octopus legs in an elaborate cross hatching creation.

I LOVE the arm-warmers site -- which has gotten my creative juices flowing.

Binney. You're right of course, about 'solidarity' for the child who is "different" for whatever reason. I realize what a whimp I am, by not wanting to call yet more attention to myself & this newest chapter of my journey.

I will aspire to being a better role model. Currently I am just attempting to get to my gigs & then not fall apart in front of my audience (be they children or teachers.) I have a long way to go with the 'acceptance' portion & don't know that I'm capable of holding up to inquisitive minds. Well, not just yet anyhow.

Maybe if I can sew some polka-dots  as a 'clown-sleeve' cover-me-up, over the flesh wrap, I could at least appear "in costume." I think that would give me some courage.

Again, I ramble, but thank you again team.

xx00xx00xx00xx 

Cookie, my darling. Sending you encouragement, too, as we each sort out the pain & swelling. How very odd indeed that we would both be somewhere on this tangent together????

Edit begins here:

Oh, STOP it! I did not just start a new page????

For Pete's sake!

Must 'edit' to include picture for top of page.

Here's what my rainbow looks like these days,

as seen in the elementary hallway earlier this week, painted by 1st grader:

Faith, I'm a bit behind here on the boards so just coming in for a quick hi and I do hope you are getting sorted.  It can be such a tough road.

Gentle hugs.

Sending prayers your way Faithie...

Thought of you when I saw this......sand, water, waves, calm, serene, sunshine, hope for better things to come........here....sit.....relax.....breathe in through the nose--breathe out through your mouth......aaaaaaaaaaaaaaaaaahhhhhhhhhhhhh

(((((((((((((FAITH)))))))))))))

love love love that pic //  i see saint and her sisters in that

I just posted this on the beach-thread, but thought I should paste it here -- for those of you concerned for me, but maybe only reading here:

Last Monday, I think that I was at my lowest ebb emotionally & physically.

Today, just one Monday later I feel soooooooo much better: emotionally & physically.

Honestly having my hubbie back under the same roof is a big portion of the equation. He tells me constantly how much "better" I am than 3 weeks ago, when we were last together. Actually I think that he is correct -- not just blowing smoke to make me happy -- tho that is welcome too.

When I think back 3 weeks ago, I have to agree.

I think my shoulder is finally "thawing" and that was a big part of the pain.

xx00xx00xx00xx

((((((FAITHIE)))))........Thinking of you today........DD fixed my laptop so now I can really post.......Glad you are better......

Dear Lord, please heal Faith's shoulder and take her pain away.......I know first-hand how much a frozen shoulder hurts and don't wish it on anybody......Lord, please bring Faith through this and bring back her cheerful spirit.......In Jesus' Name...Amen......... 

GIRLS ROCK

Hope you're having a wondermous day Faithie!!!

I just LOVE the little girl on your blog---------Girls Rock !!

You make alot of little people happy-----big ones too

(((((((((((((((big hugs))))))))))))

Praying that you continue to get well from the LE.  I did not know.

Hugs♥

I will be praying that your second opinion goes well for you, Faith.  Relax, you're in good hands...His.

I hope tomorrow's appt. goes well Faith.  It's been a long time coming.  Good luck and gentle hugs.

Copied from the beach, want all to know this GREAT news!! 

My 8:30 appointment had a requirement for us to be there at 8:00 this morning, which meant we left home at 7:15. Thru a variety of snaffus around my previous charts arriving to the right office etc., I finally met my new doctor at 10:30. I LOVE her.

The first & foremost issue for today was to deal with this "knot" of an egg sized protrusion that's along my scar line. My regular PCP described it as 'hard as a brick' when she saw it in April. It has been the source of MUCH of my pain.

Long story short.......... Dr. Yee did a complete physical exam of the scar line and felt immediately that it was still fluid based. She got out an ENORMOUS syringe and drained off nearly 60 ccs of fluid that was laced with what she described as 'old blood, tho not blood clots."

They will send that off for review, but she has no reason to be concerned about it. Within 30 seconds I could breathe again. I do mean "literally" breathe again. The knot was so painful that I could just barely take little shallow breaths previously. I'm breathing while I am typing!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Oh happy day!!!!!! The pain along that side of my body dissolved instantly.

They have asked us to wait in town for 24 hours to see if it stays deflated -- that there's every reason to suspect that fluid will return...... and that this may require a series of visits to resolve completely, draining every couple of weeks to stay on top of it, perhaps. 

SHE LISTENED TO ME!!!!!!!

So that huge concern is now under her watchful eye. I want to type this whole message before I sit here and have a good cry.

Now her thoughts on LE.

You'll be thrilled to know that OSU takes complete arm measurements prior to every surgery. There is a complete LE facility attatched to her office. She feels that I'm something of an odd duck. (Not what she said exactly but what she meant.)

She feels that a dx of LE for me is off in the future, if at all, but that we will be watching fastidiously as time unfolds.. She felt that between the frozen shoulder, the cellulitus making a mess of things and this crazy seroma/hemotoma (not certain which this knot/egg thing will ultimately be classified as) that all of that combined into lymph going awry.

She thinks there is reason for hope that due to catching it sooooo early (thanks to you swell BCO angels) and all the early intervention of PT/kinesio taping/LE exercises/MLD that I may truly be a transient case. That I may be able to get things resolved now that I can actually breathe deeply again. That the lymph may return to more near normal pathways.

She thinks that time will tell in the long run. She wants me to continue with self-monitoring, wearing the sleeve/gauntlet when doing just about anything, hydrating, MLD -- in essence, all that I have been doing.

We discussed the fact that theortically we would long be gone for the entire summer to northern WI -- away from heat & humidity by now and that my PT visits have been used for the calendar year. She was comfortable with waiting till we return in Sept to see my over-all status & then appeal to my insurance if it proved necessary.

So I think technically I still have not been diagnosed with LE. (Craziness: if it walks like a duck and quacks like a duck yada yada.) 

In any case it wasn't that she was the least bit dismissive of LE, or that I had to talk her into it. She laughed and said that LE therapists certainly were capable of making the actual dx.

I think she honestly believes that mine is going to be very minor/minimal even were it to be finally classified as such, but that she honestly believes that I still have genuine healing that has to unfold from all of this other nonsense & complications, before the definitive answer is given. 

The fact that she performed a proceedure that allowed me to breathe deeply for the first time in 3 months, probably clouded my judgement in dogging her down to the ground on LE. I literally did hug her.

I have peeked at my scar line about half a dozen times in the last hour, thinking it/fluid may all be back in there, but it appears to be remaining a very flat tire in appearance.

OOOOOOOOOOOOOOOOOOH Hallelujah!

I wanna go jumping from the roof top, but that's probably not in order, so I will just sit at the keyboard and smile from ear-to-ear.

Thank you dear Team January, for keeping me company thru this whole sordid tale.

xx00xx00xx00xx00xx

Strength and courage.

Strength and courage.

Strength and courage!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

(((((((((((((FAITH)))))))))))♥