Oncologist visit (and ovaries)

Options
Christine2000
Christine2000 Member Posts: 176
edited June 2014 in Stage III Breast Cancer

I am just about 1 year out from diagnosis--last summer was all about chemo and being bald. Saw my oncologist today on my every 3 months check up--have been panicky about it for days. All was well, but got very emotional being there (and I was JUST there in may for zometa!) --- came home and had an early glass of wine! We discussed removing my ovaries (my mom died at 57 of ovarian cancer) -- Dr seemed a little less certain about it then she did before. I am inclined to go ahead and do it-- any reason NOT to?

Comments

  • karen1956
    karen1956 Member Posts: 6,503
    edited June 2010

    I can't think of any reason not too other than its surgery.....I had my ooph after finishing chemo and rads.....had one shot of Lupron (3 month shot) 3 weeks post chemo, did rads and 6 weeks later had ooph done laproscopically....for me it was one less worry.....

  • SpunkyGirl
    SpunkyGirl Member Posts: 1,568
    edited June 2010

    Christine,

    I dunno....I did a lot of research and I couldn't find any data to show me that an oopherectomy provides any additional "cure" beyond the chemo/rads/surgery that I already did, so I haven't done it so far.  Go back to your doctor and ask her more specific questions about why you should or shouldn't consider doing it, then go with what you think is best.  If anyone here has any great data on the benefit of an oopherectomy, I'd love to see it!

    Thanks

    Bobbie

  • jessamine
    jessamine Member Posts: 322
    edited June 2010

    There are many reasons not , yes!! I had the ooph because of my BRCA status, and you may decide to due to family history, but I would advise all to think LONG and HARD!! I have had a very hard time with the after effects- I am young, and if one was post menopausal it might be easier but the surgical menopause has been TERRIBLE. I'm sure eventually the hot flashes will let up (though it's been almost 9 months and no sign of it) but I will never be able to have sex (and not just intercourse but anything involving touching my vaginal tissues) without pain again without having an estring in (4x a year, $250 each without insurance). My libido is considerably diminished anyway, and will probably never be the same.

    But much scarier than that stuff are the increased risks of osteoperosis and heart disease, which are high! The osteo. can be treated for , somewhat, but the heart disease (the number one killer of women in this country) cannot.

    I think it's a scandal the way they are advising oophs to women without talking about these issues. I think there are cases where it can be the right thing given the limited options we have- my cancer was highly er/pr+, i had it done before chemo and had a terrific response to chemo- the ooph may have been the extra piece that was the reason for that. I don't know. I will tell you this though, which is that I just started arimidex and ooph or no oooph there was still estrogen in my system, cause the difference is HUGE.

  • SpunkyGirl
    SpunkyGirl Member Posts: 1,568
    edited June 2010

    I agree with you wholeheartedly!  When you are dealing with cancer, and trying to do all that you can to make sure it never comes back, an ooph logically makes sense.  Yet, I don't think the data supports an added benefit, and one has to weigh all the risks to the heart and bones.  I also believe that many doctors are cavalier about it....

  • Celtic_Spirit
    Celtic_Spirit Member Posts: 748
    edited June 2010

    I had an oophorectomy at age 49. Although I am BRCA negative, my mother died of breast cancer and her sister died at age 72 of ovarian cancer, and I really don't want a repeat of this whole cancer thing. Two oncologists agreed. My primary onc said that, by age 50, your ovaries have done about all the good they're going to do for you. The literature I read confirmed this and cautioned only women younger than 40 about having oophorectomies as they may suffer more heart and bone issues. I had one foot in menopause as it was, and shutting down the estrogen tap was worth it to me. A recent bone density test confirmed that my bones are in very good shape. If you do elect to have an ooph, work with your doctor to monitor your bone density and heart. Cheers!

  • jillyG
    jillyG Member Posts: 401
    edited June 2010

    My surgeon indicated he would not recommend ooph for anyone under 40 regardless of BRCA status.  He mentioned strokes, heart attacks, bone loss, blood clots and a host of other less serious side effects.  He said if my results come back BRCA+ we will just monitor carefully.  I have a complex cyst on my left ovary and am getting a recheck on June 9th so the ovarian cancer is on my mind the last few months.  My attitude was let's just get rid of it all, but surgeon said not a good idea.......not yet anyway.

  • helena67
    helena67 Member Posts: 357
    edited June 2010

    If you are a carrier of a BRCA1 or BRCA2 mutation, that would be a good reason to consider an oophorectomy. But you could wait doing that procedure until after age 40. If your mom had both breast and ovarian cancer that would be a strong indication of such a mutation. You may want to discuss with your onc if you should take a test?

  • KerryMac
    KerryMac Member Posts: 3,529
    edited June 2010

    I did it last year.

    Not one regret.

    My onc didn't suggest it, (she said Lupron) but never once tried to disuade me. Neither did the Gyn who did the Surgery. 

    Coincidentally, I came across this just this morning.....

    http://www.medicalnewstoday.com/articles/190837.php 

    For me it was a "gut" feeling, rather than one based on any statistical advantage. Will it lengthen my life?? I don't know, but I would absolutely make the same decision again.

  • TerriD
    TerriD Member Posts: 591
    edited June 2010

    Good info! Thanks. Did anyone do the oooov INSTEAD of Tamox?  and those who were ER+ and had teh ooov, are you all doing Arimidex?  I have to make this decision too. I was avoiding the bRAC test, but see it is importnat in making this decision. Thanks again.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited June 2010

    I am on Arimidex, but others stay on Tamox.

    In Europe, they sometimes do it instead of hormonals. 

  • Beverly11
    Beverly11 Member Posts: 443
    edited June 2010

    I have discussed the ooph with a specialist and have decided for the time being not to have the ooph.  His input was that as my periods stopped during chemo there was no advantage to having an ooph.  If they resumed, then we need to definitely revisit the situation.  Lupron shots would be the minimum treatment option.   He told us that there are other hormones that the ovaries provide other than estrogen that can be beneficial.  These could benefit things such as cognitive functioning and memory.  Age can be a factor for surgeons recommending oophs.  I was 45 when I started chemo so the likelihood of them returning is less than even a 40 year old woman.  Such an indvidual decision.

Categories