Radiation
Starting my 6 weeks of rads tomorrow. Any tips or things you wish someone would've told you before starting? I got aloe vera, extra mild organic soap, and natural deodorant from the health food store and planning on keeping very hydrated the next few weeks. One thing so far, I didn't know there was going to be a handle behind my head that I would have to hold, and since I just got the expanders it really hurts to hold it!!! Been doing some stretches to avoid that...
Comments
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I am done with rads next week. I haven't used any cream or anything. Not tired-really very uneventful-just a PITA to go every day! Hopefully you have no se's-my guess is you wont.
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Hey, I started Rads a year ago today! It will be over before you know it, I didn't find it too difficult at all (no pole for me though...)
My only advice would be to try and get an early appointment time. That means less waiting (they get backlogged pretty fast) and you are less likely to have your machine break down. (that happens a lot too!)
For me, the Cancer Centre was a very friendly place, I bought my kids alot (they would have breakfast while I was being Zapped) I felt that they were less scared than if I had just disappeared off somewhere strange every day.
As for taking care of your zapped areas, I used loads and loads of cream (I used Glaxal base), 4 or 5 times a day and thick. I put it on every time I thought of it. I went a bit red, but did not have a bad reaction. How much of that was due to the cream, and how much just lucking out, I do not know. I also didn't use soap on the radiated area at all.
Good luck! You are in the home stretch now!!
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I am on my 5th week got 1 to go. So far so good. Booster's next week. I was told NOT to use deodorant under affect arm and only use Glaxo lotion/cream. Be sure that your Aloe is 100%. You will have to raise your affect arm beside you up in a sling device (above your head). I had 4 field or rads. Each rad lasts for 30-40 seconds (x4). I think you should likely be okay as it is fairly quick and uneventful as Pure has stated. You could always check out the RADS forum for more info.
Good Luck!
Frankie
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Hi There! Congrats on getting to the Rad part of your tx. It was the easiest for me& hopefully for you too.
You may feel abit more tired as the txs go, and it takes about 2 weeks to fully restore your energy, but it's not that bad.
Also, the very best advice I rec'd was do not use any soap on the radiaited area & during tx do not use ointments , only creams. Once finished you can load up onoitments, which help healing.
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Oh, another thing I did which helped mentally - We have a big whiteboard in the kitchen for grocery lists, etc. I wrote the numbers backwards from 25 (the # of Rads I had) all the way down one side, and each day I would cross of one number. Really helped!
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Billynda - I will be thinking of you as I drag myself out of bed at 4:45am to get to a 6am rad appointment!!
I just had my 6th today. So far, so good. I am using emu oil and aloe. No issues yet. Its so great to hear you guys had very little issues.
Its funny...I got away for a little bit. I finished chemo, had more surgery so I got about 8 weeks off treatment. I felt it all slipping away a little. Rads makes me feel like a cancer patient again this week. Some times I am good...eat the right things, exercise, meditate. But sometimes I am bad, work too much, don't stop going 100 miles a minute, and drink too many beers on the weekend!!
I need to find that happy place in the middle.
And PURE...AGAIN!!...I Love your honesty. We all think much of the same things...only YOU have the guts to post it. No apologies.
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I'm at 21 treatments down, 12 to go! My skin is very red and is getting pretty bumpy/scaly in spots (ouch!). I've only used the lotion (was told to use only Aquaphor) once a day, so maybe that was my mistake? The stuff is so thick, I can't imagine needing to add more to it, though. I'm just happy the end is in sight!
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Hi there,
I just finished rads about a week and a half ago. They set me up with a form fitted mold to lie in so my arm just rested on that. You might ask about that if yours hurts. My skin did really well until about a week before it ended, then the underarm area where they were zapping the node area got really red and raw. They said to ONLY use their creams---Silvadine (sp?) which is actually made for 2nd to 3rd degree burns and the Aquaphor. They have helped tremendously, and even thought the under arm area is now peeling like a bad sunburn, the pain is gone.
Overall rads were a breeze compared to chemo.
Good luck!
Sharon -
Billynda....My rad onc told me to use cornstarch (the cooking type) instead of deod....also she would not let me use any cremes unless she approved....I tended to wear 2 piece outfits so all I had to do was take off my top.....I didn't have to hold a handle, so no advice there.....I too had my expanders during rads......I was lucky as the machine didn't break done during my 25 rads....I had the last appt of the day, but they ran pretty smoothly and barely got to sit down before I was called for my appt....don't think I was there for even 30 minutes....As lkc said, you will feel tired by the end and it will last for about 2 weeks after you are done....Congrats on hitting this milestone....there is light at the end of the tunnel....hugs, Karen
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Use the type of creams that are recommended by the Rad Onc. I didn't and was very red and crispy by the end. It has been a year and 4 weeks and I am still red. Bit tired at the end and just wanting not to have to go someplace each morning!
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my mom's rad onc, said DO NOT use any kind of cream, 3 hours before and 3 hours after treatment. So be careful of that or ask your doctor. She had to used moisturizing cream 3 times daily.
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gee whiz-Thank you:)) I try...
What is a boolster? I keep hearing about boolsters:)
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My cancer ctr. recommended Glaxal base cream only. "They" found it created the least barrier. Certain oils, like vit. E oil even if you put it on at night retain a barrier to the radiation's penetration.
Good luck, I thought it was the Best part of treatment if you can have a best part LOL. I brought my son a few times as well and the techs let him watch me on the screen and talk to me on the mike.
It will be over before you know it!
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Rads went so fast compared to chemo, even with the daily visits. My techs were so supportive and nice. I thought of it as my daily affirmation, (remember Stuart Smalley from SNL?) because one guy was fond saying "beautiful" and "perfect" and all I had to do was lie down in the correct position.
My skin started "breaking down" a week or so before the last treatment. It was itchy and wearing a lap belt was uncomfortable. I got pulled over by the cops for tucking in under my arm and the guy said I could have asked for a doctor's exemption. My underarm was the worst spot but luckily I have so much nerve damage I didn't feel a thing!
Aquaphor was suggested to me as well.
Has anyone been told to limit sun exposure for life due to rads? A friend in England was given this advice. I'm not using any sunscreen to help me absorb vit. D.
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Billynda -
I'm glad you asked this question because I'm going to be starting soon myself. I keep expecting the phone call to set up my first session.
All the comments about the creams are interesting. My Rad onc said that his women swear by calendula cream so he suggested I go out and get some. I just don't have a clue what type to buy.
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Clariceak- I was told by my Rad Onc to cover up the radiated areas from sun for at least a year.
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