Post workout naps?! Why am I so tired??

Options
1WonderWoman
1WonderWoman Member Posts: 2,065
edited June 2014 in Working on Your Fitness

Hello-

For about the past 6 months, and prior to dx, I have been complaining to everyone, and my gp, that I was very, very tired.   What's more is when I workout this relatively new thing, over the past 6 months or so, is this overwhelming desire to NAP after a workout.   Does anyone else experience this?  Remember, I am not even being treated yet for bc as was just diagnosed a few weeks ago.  Today, I lifted weights (which I love) and did about 25 minutes of Step (sort of freelance as I used to teach) and then I hate some soup.  About 1 hour after I rode the recumbent bike, fighting my desire for a nap, for 1/2 hour.   Right after that, off to bed for a 2 hour sleep fest. 

Was anyone else markedly tired from this, prior to dx, and was anyone else having these nap requirements after workout?   Guys, I am so wiped out all the time and I do have that thyroid nonsense, too, but the blood work was perfect 3 weeks ago.   Any information is appreciated.  I have to workout and am just wondering how I am going to handle this nap nonsense when I get back to work.  I will have to get up at 5 to workout, then go back to bed at 6:30 so I can nap and then get up in time to get ready and get to my job (5 mins from my house thankfully!) for 10AM. 

Everyone and anyone please let me know if you are experiencing something similar. 

Thank you-

Liz

Comments

  • NatureGrrl
    NatureGrrl Member Posts: 1,367
    edited April 2010

    Liz, I haven't been through that and I don't know what's causing your fatigue but I do know your body is telling you it's tired... so maybe you could look at the whole picture and try to figure out why.  Are you taking a day (or more) off exercise each week?  Your body needs to rest once in awhile to recover from regular exercise.  Daily with no breaks will catch up with you.  I assume you're sleeping OK?  Eating healthy?  Avoiding stimulants (caffeine, alcohol, etc.) and other things that would mess with your body/blood sugar/etc.? I'm not suggesting you're doing anything wrong, just trying to point out the many things that can contribute to fatigue and give you a jumping-off place to try to figure out what's going on.  Finally, if my GP was ignoring my requests for help figuring this out, I'd keep asking or find another GP.  You sound exhausted.  Good luck, I hope you figure this out, and in the meantime, try to respect your body's need for additional rest... I know how frustrating that is but there's a reason you're so tired and to me it makes sense to try to give your body a chance to bounce back.  Best of luck. 

  • 1WonderWoman
    1WonderWoman Member Posts: 2,065
    edited April 2010

    Nature-

    Thank you so much.   I have been on some medical sites and the information states, quite clearly, cancer can make you tired!   My body knew this was here long before I did and I remember not want to go for my 2 yr mammo (b/c I don't like the radiation exposure...what a farce that is now!) as I just turned 40 and had my first one at 38.  My GP told me an ultrasound (or sonogram...I forget) would at least be a step in the right direction with negligible radiation.  I decided to do it and I remember the person doing that procedure taking that roller across that spot on my chest so many times and expanding the view etc... and it hurt.  I rather wished she would stop.  That was early March.   After what she did, I was feeling very fatigued.  Personally I think my tiredness is my body fighting cancer.   I think her procedure "woke it up" for lack of better words...like sneaky cancer knew it had been caught!

    The human body is amazing and it knows cancer is in us LONG before we do.   Clearly it needs energy to fight it and I can only imagine if I was a body, needing lots of resources to fight this, I would using up the body's resources thereby making the body tired.   I still do like to sleep but I am no where near as tired as I was.  I think perhaps maybe I just knew something was wrong with me.  Who knows?  All I know is this post-workout nap has got to stop!
    Liz

  • NatureGrrl
    NatureGrrl Member Posts: 1,367
    edited April 2010

    I'm glad you figured it out... I guess I didn't suggest cancer-related because I thought you had already ruled it out, and because it's not an issue for everyone, but it certainly makes sense.  Don't discount the emotional toll your dx is taking/will take -- that can make you tired too.  As you go through treatment, whatever that may be, you'll likely have more fatigue from that, too.  Best of luck, and take good and gentle care of yourself.

  • hymil
    hymil Member Posts: 826
    edited May 2010

    Liz, You sound so tired, I feel awful for you. Your body has so much to cope with! But i do believe that being fit now will help you get through the trials of the coming months of treatment, and exercise is meant to be good for stress relief too if we don't overdo it, but like Naturegrrl said, you absolutely do need the rest days inbetween, to let your body repair the damage, and that needs sleep and good diet too.

    Would it be possible to reschedule so that you exercise in the evening and then have a regular early night? I guess you would sleep SO well. One thing about active treatment, when you get into surgery you get time off work and suddenly there's so much more free time, although you aren't really well enough to make the most of it. It does take the pressure off, and you feel progress, something is being DONE about it at last. Hang on in there!

  • idha
    idha Member Posts: 4
    edited May 2010
    Hi All , after 20 mints of aerobics and 40 mints of stretches alternate with stepper and weights..i am completely zapped out..suprisingly durring chemo i could repeat the exercises to twice a day ..but now after radiation..i am on herceptin now..i cant..muscles and bones ache all the timeFrown
  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited May 2010

    Liz.....

    I didn't experience this during diagnosis and even did a cycling tour prior to the core needle biopsy.  But, I think this is the mental energy you are using right now that is making you physically tired.  I just went through some professional stuff and have a meeting later I'd rather not do.

    So yes, all I wanted to do was fall into bed last night. 

    Exercise is probably the best thing you can do right now to prepare yourself for this journey BTW.  Because it is an endurance event, and the stronger you are going in, the easier all around.  Good luck.

  • 1WonderWoman
    1WonderWoman Member Posts: 2,065
    edited May 2010

    Hello all-

    Hymil-I broke up my workouts and it seemed to help plus my doc put me on a few things that are both reducing anxiety and helping me sleep better.  Sadly, however, recently I was working out and hurt my gastroc, an old injury, which hurt my knee in tandem and periodically this week it keeps acting up so I am quasi-limping on occassion!  I am a mess!  I don't want to go to the ortho to start with that because I am still securing a surgical team to deal with this bc...I don't know where to begin and I am falling apart!

    Idha- I am so sorry about the radiation and herceptin causing you not to be able to workout.   Perhaps pilates for a while?  Also, and even though it may hurt, I would fight right through it.  LIke I have a Weider pro in my basement replete with a leg press etc.. and even though my gastroc and knee are acting up (largely b/c I did step on the CONCRETE basement floor = imbecil!) I forced myself through 6 sets of leg press, 6 sets of curls and 6 of extensions just to force my legs to get stronger and for my gastroc to get back in place.  I set a gastroc injury years ago b/c it was a long holiday weekend when I over-extended during stretching and the very inadequate Norwalk Hospital in CT send me home with an ice pack and told me to take Advil until I could see an ortho the following week!   It was a 4 day weekend and the injury pretty much set over that time but I was able to walk and do all my stuff again after having left it up and did the heat/ice (20/20 min intervals...surely we are all familiar with this?!) so I just traveled on.  Not good.  I would fight through it.  Don't let this herceptin hold you down.   How long will you be on it?

    Claire-it is mental energy and it is also that unfortunately I have been in a long"ish" term depression since, about 3.5 years ago, when Iboth lost my business and had to break up with an Ahole who I was really in love with but who was also no good, so I just fell apart and let myself go.  I still worked out but my heart was not in it.  Finally, my GP who I have been with for 30 years, and who I adore, was able to get me to admit this and I have agreed, with the help of another professional, to start to address this depression before it gets potentially significantly worse during the rigors of dealing with bc.  I was trying to get someone to agree that they, too, were exhausted when their body was fighting bc so I could reassure myself that I was not depressed but rather the bc-fighting was the cause of my tiredness = wrong!   I guess something good comes out of something bad after all as I have been forced to look at issues that have been plaguing me.

    It is not often that life is easy but it is always an experience!!!!!!!!!!!   Thanks for you all taking the time to respond....this bc dx has been cathartic!

  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited May 2010

    Hi back....

    Unlike many women on the boards, I never did get depressed during treatment.  There were times I couldn't wait for it to be over, and there were times I was dragging, but never felt "depressed".

    So getting that in check sounds like a great idea.

    You have to remember that I had breast cancer when I did the Seattle-to-Portland last year.  This is a 200 mile ride which most people do in 2 days, but some maniacs accomplish in one day.  I did better than the prior year.

    The mental thing I think I can say that is now different for me is that I am much less worried about the long term.  I am convinced that I will be just fine.  This doesn't mean that I can't go nuts over things having to do with daily living.  Like extricating myself out a professional pickle I had gotten myself into!

    I got out!!!

    The great news is that you don't have to deal with the Ahole during this journey.  Hard enough during normal times, but you need people around you who are supportive and positive.  The word you to describe this dude indicate he most likely wasn't.

  • 1WonderWoman
    1WonderWoman Member Posts: 2,065
    edited May 2010

    Claire- I did not even start getting treatment or surgery for bc yet.   I was just dx'd....what did depress me over this past decade started with losing my boyfriend and several other friends in 9/11, my father dying of lung cancer, and a host of other dreadful things which was rounded out by this bc dx just a month ago.  I am  hopeful that decade is going to be followed by good times to come.  

    That was very clever inference on my self-censored description of my ex!   Funny.

    That is great about you improving your performance on that 200 mile trek, over the past year, post bc dx.   It is wonderful to challenge yourself and feel a sense of accomplishment and the endorphins help tremendously in all facets of life!   Good for you.  I don't know if you ever saw "Dodge Ball" but there was a scene with Vince Vaughn where he is having a pity party and Lance Armstrong meets up with him in an airport bar, mid party(!), and he declares how he almost gave up when he was dx'd with testicular, brain and (some other) type of cancer.  It is a wake-up call for Vaughn and an embarrassing one at that!

    I wish you the best and keep biking, sister! 

    Liz

  • Suzybelle
    Suzybelle Member Posts: 920
    edited May 2010

    Hi, Liz:

    I just posted a very similar question in the LE after surgery forum - I am having horrible fatigue and suspect that it's related to my lymphedema.  I didn't have this until my arm started giving me fits.  I can literally go to sleep at 4pm in the afternoon - I have NEVER done this and until a month ago was energetic (other than recovering from the BMX) and going 90 miles an hour!

    I don't think it's anything cancer related...but I want to know how to get rid of it.  Some nights I will sleep for 12 hours!  Other nights I'm up at 3am with the arm hurting.  So I have no clue. 

    Hope you get to feeling better soon!  I'm sending energetic thoughts your way.  Smile

  • 1WonderWoman
    1WonderWoman Member Posts: 2,065
    edited May 2010

    Suzy...you need YOUR energy...don't spend it sending me energetic thoughts!!!   This is just me shooting from the hip about your tiredness and lymphedema.   Muscles run on water and if water is being unnecessarily retained in your arm, muscles also provide energy.   The muscles get cleaned and "wrung out" during a workout which is necessary for energy....this is why working out gives us energy.   Obviously your body has enough water beyond the lymphedema but in some way or another, that water in your arm had a date with the other parts of your body therefore they could very well be missing that water and causing your energy to go down as a result.   Your muscles won't starve or dehydrate but they are left wondering where that water delivery is!  Plus, the bc, bmx and lymphedema, not to mention recovery, takes so much out of you to get over, it is a confluence of events designed to force you to rest so the body can rebuild.  Bottom line, if you are sleeping, you need it, albeit for now.   Friday night I went to bad at 12:30AM and woke at 12:30PM....wth?!   I woke and watched some middle of the night tv but, aside from that, 11 hours of sleep.   That is outrageous...I have not slept like this since my teenage years! 

    I blog every day of my experience since my dx.   It is helpful and you can do it through many of the blog sites online.   It is cathartic so you can go back and view your journey.   This will help you remember in 3, or 6 or 12 months how tired you are today and how much better you will be at some point in the future.

    I wish you well-

    Liz

  • hymil
    hymil Member Posts: 826
    edited May 2010

    Liz, I think you read my mind there about the water, LE and tiredness.. We are having a very hot snap here (rare in the UK!) and I don't tolerate heat well. Went to the gym thursday, got going on the arms machines very gently (i'm three months post Mx+AND and haven't been allowed on them before) and next day Oh dear, my armpit swelled up. I didn't think I had overdone it but between that and the hot weather i spent the next two days virtually hibernating. Eat sleep wilt doze eat sleep wilt.....it does fit with your theory.

  • 1WonderWoman
    1WonderWoman Member Posts: 2,065
    edited May 2010

    Hymil-

    Just so you know, when we "lift" our body thinks something is wrong so it send the equivalent of a first aid kit to the area in question.   Much of that first aid kit is water and some of it is blood.  Now, as we know, blood has it's own interstate system in our bodies called veins (!) but water is transported, at least in part, through our lymph nodes...sad for us bc girls!   In any case, what you now have is water backed up in your arm.  I don't know what the story is yet w/bc and our ability to take over the counter diuretics but I would totally avoid sodium, drink green tea (sug free) and try protein shakes and salads for a few days.    Help your body through diet move the water.   I am totally not in the medical profession nor was I a bio major but I just know a bit more b/c of my years weight lifting.   Don't forget to give your arms 3 days off before lifting again.  Man, you need a PhD in exercise physiology just to try to save yourself after bc and this lymph node crap!

    Liz

  • hymil
    hymil Member Posts: 826
    edited May 2010
    Thanks for the advice Liz. Right now it's gone midnight and pleasantly cool, and i feel fine (yeah okay so I'm tired, what's new) but tomorrow is forecasted hot again :(   I did have a lot of nodes out with my Mx, 18 i think, (all perfectly good ones too, it's sad they can't put them back in) so I have to learn to handle this. I need to find out how much I can lift before my body decides it's an emergncy! I think I heard that diuretics don't help much, because it's not a kidney or overall fluids issue, it's local to the arm. But that might be wrong. I'm also going to get my breast-care nurse to check if there's any more fluid she can draw off, she wouldn't do it during rads and it slipped my mind since. That would help with the backlog.
  • 1WonderWoman
    1WonderWoman Member Posts: 2,065
    edited May 2010

    Hymil-

    I saw the most wonderful, talented, wicked knowledgeable bs today and I quickly discussed weight lifting and lymphedema.   She told me weight lifiting will HELP manage lymphedema so even though initially your muscles are calling for more water, perhaps you will notice these swelling fits get shorter and eventually subside through continued, moderate resistance training.  Don't forget, higher reps will also tire muscles.   For me, higher reps don't feel as good as heavier resistance training but at the very least we can get a workout in.

    I don't love the heat either.  I live in Connecticut and really like the seasons.  In many ways I prefer winter but I do like the season change nonetheless.  It is funny, though, for someone who does not covet heat, my brother lived in FL for years and I found that as much as the day heat in FL in the summer is stifling, I do love those hot nights!  I especially love cruising the highways at night on those steamy FL nights!  I found that to be so weird!

    In any case, keep in touch and let me know how your arm is doing.   It is a shame they took so many nodes unnecessarily.  Any reason why?  They test them in this country before arbitrarily removing them.   I am sure there is more to your story relative to why so many were removed.  Also ICE your arm after a workout, especially in that bedraggled heat.  I will be joining you tomorrow as it is supposed to be 92 here :(

    Liz

    L

  • Member_of_the_Club
    Member_of_the_Club Member Posts: 3,646
    edited May 2010

    I am known in the lymphedema section for my exercise fanaticism (for example, I ran 12 miles yesterday.  I also lift weights, handweights) and I have to gently chime in here and say this theory about water is incorrect and could be dangerous.  First of all, lymphatic fluid is not water.  Of course, our internal fluids include water, but what is circulating in our lymphatic system is not teh same thing as water.

    Second, lymphedema is not a question of water being in the wrong place.  Its a matter of the lymphatic system being compromised so that the fluid doesn't circulate, it pools.  It is very important to stay hydrated if you have or are at risk for LE.  Heat and dehydration can increase symptoms and may bring on LE in the first place.  In other words, do not take diuretics!  In fact, no one should take diuretics unless prescribed by a doctor for a medical condition.

    If you have any swelling you should not lift weights without wearing properly fitted compression garments.  This is absolutely critical and I will say it again.  If you have LE, don't lift without properly fitted compression garments.  If you are planning on doing any lifting, see a certified LE therapist and get fitted for compression garments.  I believe my lifting is what set off my LE, so I'm very serious about this.

    Lifting helps with LE ONLY if you are also wearing the garments.  Otherwise it will put you at risk.

    And be careful about icing your at-risk arm.  Extremes of temperature can also be a problem for LE.  icing is for strains and injuries and if you have such a thing on your affected arm, you should be seeing a doctor and an LE therapist anyway.  Frankly, as I said, any woman who has had nodes removed and wants to lift should see an LE therapist.

    Lizzy, I hope you get to the root of your fatigue.  No need to shoot from the hip about LE (and frankly, its such a serious issue, you probably shouldn't anyway).  We have experts right here in the lymphedema section who can give you advice based on the science. 

  • hymil
    hymil Member Posts: 826
    edited May 2010

    12 miles ohhhhh my goodness! Thank you for the encouragement and the warnings. I went out early today while it was still cool, that was much better than yesterday and just did a moderate short run, didn't lift anything heavier than my house key!. Im hoping to swim tomorrow. Later in the week I might get back to the gym but I will be very very gentle and just mostly stretch out. I'd like to get me a slim waist while i'm here....  I will give the ice a miss, I still have a large numb area below & behind my armpit as well as chest wall and back of upper arm. Do you think a rowing machine is a bad thing to work with in my gentle laid back pace on a low resistance?

    I think there is something in the idea of fluid being in the wrong place, or flow being blocked with pressure and toxins building up, because i do feel better all round after my legs have been worked busy and my lungs have been fully used. The deeper breathing seems to help and i suspect hormones and salt balance comes in to it too. It's obviously not a simple situation and it will take me a while to learn what my body needs and can tolerate. Example, more stuffing in my softie gives less pressure because the lateral edge of my bra cup then lifts away from the armpit skin - exactly the opposite of what I had thought; you would think less stuffing = less pressure, but no., adding padding was a good move ;)

    The large number of nodes, Liz, this was because I did have one enlarged node (but thankfully it was clear) my surgeon doesn't yet do sentinel node biopsy, he is starting it next year. Instead he dissects up to a certain muscle boundary I think it's level 2 clearance, the edge of terres minor? and i suppose i just had a lot of nodes in that area. I would rather have it that way round than not bother and leave cancer-infected nodes behind. I'm not sure how you can test nodes without taking them out, he had the consultant radiologist do a very thorough ultrasound in fact it took two of them and a tech more than half an hour in the diagnostic stage, compounded when I asked them about this lump on the other breast. They checked it as well and "relax, it's just a fatty lump". Well Hallo, now i'm a fatty lump. Grrrreat. My BMI is just over 25 and I decided maybe i best get to the gym....  My tumour was large 6.5cm but low grade mucinous and apparently the node status is the biggest single guide to survival prognosis and treatment protocols so he wanted to be very sure. There's not so many of us that they can make very convincing statistics, and barely one hundred in the whole UK in a year who are under 50, so they don't really know what to do with us (especially if you're a non-reconstructer). But the nodes he got were all good so i didn't need chemo, and the decision for rads was borderline, I took it rather than tamoxifen which i had been on 4 months before surgery and my brain couldn't handle. I know they don't act they same way, as rads is local treatment while tamox is all-body, but i figured i could do one and not the other. Irrational I know. Hope that makes sense.

    Suzybelle hope you are feeling less tired now

  • Member_of_the_Club
    Member_of_the_Club Member Posts: 3,646
    edited May 2010

    Please know that you are at risk for LE even with just a sentinel node biopsy.

  • 1WonderWoman
    1WonderWoman Member Posts: 2,065
    edited May 2010

    Member-

    Just a reminder: hymil and I are just 2 non-professionals having a conversation.  Neither of us is claiming to be a doctor and as bc patients, I am only pretty sure I speak for both of us when I say we don't have a shortage of doctors.  Our conversation was all together innocuous and germane.   I am sure hymil knows where to get *professional* advice.  I am not quite sure your response was warranted.   I don't think either one of us is mentally inept thereby not knowing when we need medical advice.  Just 2 people shooting the *s* here...sort of like at any other public gathering place like a saloon or a coffee shop!

    Consequently, when you lift, muscles tear and water is one of the ingredients called to the scene of the accident.   The water then gets trapped in the arm.  I don't know what you read or what you inferred but I sure don't require direction on how to get to my doctor's office.  As a matter of fact, I think bc patients at large probably get way more *professional* opinions and see way more doctors than we ever wanted to.

    Liz

  • hymil
    hymil Member Posts: 826
    edited May 2010

    Member, Thank you for the advice. I am trying to get the nurse to take it seriously, and I'm tired of hearing her say " These things take time". I feel that if I was 75 and burst into tears, they would DO something, but as it is, I look like i'm coping fine and nothing Happens. (Sorry i;m in rant mode, i had best go rest). But it seem hard to know whether the various areas of puffiness is due to hot weather or LE starting, and then, when I went before it was cooler that day and the silly arm wouldnt do it's pitting fingerprints that it did the day before, so then I was being Overanxious. . Also im trying to get back to work and I need to have some idea what i can and can't do safely.

    Ed: Cross-posted with yours Lizzy. and  BTW you don't know that i'm not a professional, surely even doctors must get ill occasionally and might need some support...we are all here to help each other. let's not squabble..

  • Member_of_the_Club
    Member_of_the_Club Member Posts: 3,646
    edited May 2010

    Lizzy, I'm sorry I offended you but it is pretty common on these boards for old timers like myself to chime in, helpfully, when we can offer our hard won information.  I know I have benefitted from this over the years, especially lymphedema advice from some of our amazing experts over at the lymphedema section.

     Please remember that this is a public forum and not a private conversation.  You are welcome to have that private conversation in PMs.  But when information is put out there publicly, others who may have additional expertise or even a disagreement have every right to post.  This is for teh benefit of everyone.

     This is particularly important when it comes to lymphedema because, unfortunately, most women don't get great advice on the subject from their doctors.  Many get no advice at all.  Since we believe that lymphedema can be prevented in some women and controlled as mild in others (I fall into the latter category) it is very important to get accurate information out there so women can protect themselves.

    I wish it was true that women were getting way too muh advice from their doctors about lymphedema.  Alas, the opposite is true.

    Hymil, puffiness can be due to hot weather AND lymphedema.  Hot weather makes it worse.  I'm glad you are trying to see an expert, but until then we have have experts right here if you want to mosey over to teh lymphedema section.

    I had the same experience.  The first time I went to show my doctor my swollen hand it was -- presto -- not swollen.  So frustrating, of course he didn't believe me.  But I went back one day when it was clear, so he diagnosed me then.   

  • 1WonderWoman
    1WonderWoman Member Posts: 2,065
    edited May 2010

    Member-

    I worked on Wall St for years and was a trader.   Do you know how many, many, many times I overheard, in a public setting and on chat room boards etc..., people passing what I new, as a professional in that field, to be misinformation?   Hymil and I do not have to PM to be sure that other NON PROFESSIONALS don't weigh-in, as if they are professionals, trying to save us from ourselves.

    When I overheard people talking and passing back and forth misinformation, I never interrupted or got in the middle or on chat room boards interjected with my information as someone once put me in my place by telling me : it is not a fundraiser; no one asked your for your 2 cents.  Two people can have a chat and not be concerned the chat police are coming to castigate us for out-of-order chatting.

    If either one of us needs a doctor's opinion, I believe we both know where to go.  I am sure Hymil is getting some information from the lymphedema chat you suggested, however, and in the end, we were just chatting.

  • Member_of_the_Club
    Member_of_the_Club Member Posts: 3,646
    edited May 2010

    Lizzy you have every right to have a chat and say what you want.  But I am entirely perplexed by this idea that I interrupted or got in the middle of a conversation.  This is a public discussion board.  There is no private discussion (unless you send private messages -- thats what they're for).  I have been coming to these boards for over five years and I have never read someone assert that they own a thread and others can't participate.  Hymil doesn't even think she's having a private conversation with you.

    I really have no idea why you are so upset with my posts.  After all, you don't have to read them. 

  • 1WonderWoman
    1WonderWoman Member Posts: 2,065
    edited May 2010

    Member-

    You are obviously very comfortable with the way in which you interjected in this discussion and now you have all but decimated the topic.  

    Are you finished?

  • hymil
    hymil Member Posts: 826
    edited May 2010

    Im grateful for all the help i get on these boards. It is a public forum and benefits by people jumping in. I think my main mistake was posting my gripe onto a fitness thread and not in the LE Section. My bad. Lizzy had initally been writing about her tiredness and it was me that accidentally hijakked it talking about summer and LE. Sorry. Member you are right i need to get over there. I am also very good at killing threads, so maybe this is happeing more than i realise and you are all just too nice to say.



    I'm sure you both like to know that i think i have now got an expert on the case. She can't see me for a while and by then the hot weather may have passed over - sigh. But my view is, hot weather would make both arms swell equally, right.

  • Suzybelle
    Suzybelle Member Posts: 920
    edited May 2010

    Hymil, you are not a threadkiller - I love your posts!!!  And Member, thanks so much for the info.  I would be lost without you and Kira and Binney in the LE forum.

    Lizzie, thanks so much for the kind words.  I am doing okay this week - got an exercise tape that Binney recommended that focuses on clearing out the lymphatic system and I started using it today.  I'm taking it one day at a time.  Cool

    Peace to all - I consider myself very blessed to have my cyber-friends on this board...you guys are the only ones I can talk to about a lot of this stuff.

  • 1WonderWoman
    1WonderWoman Member Posts: 2,065
    edited May 2010

    Hymil-

    You did not hijack anything...we were just talking about issues.   I am glad you got an expert and hopefully they will help you but don't forget, and before there were experts, there was common sense!  Don't forget to listen to your body.  There is nothing wrong with presenting your case and assessing what people are telling you without feeling every time you are having a symptom you must race to the doctor for assistance.   If you try something and it does not work, try something else.  Exercising, however, is one of the best things you can do.  Exercise gets your juices flowing and this will help to enhance circulation.  

    Suzy-YOU ARE BACK!   I am glad you found a tape that is working.   After my father had surgery for lung cancer his arms were very weak.   He took one of my plates, tied a rope to it and hung the rope over a pipe in our basement.   He then made a wrist wrap and would simply lower and raise his arm against the resistance.  It was certainly unconventional but it worked.   I don't ever remember being told exercise was NOT good!

    Have a nice weekend-

    Liz

  • 1WonderWoman
    1WonderWoman Member Posts: 2,065
    edited May 2010

    Suzy-

    Also, I appreciate the support on these boards also.  My first surgeon, who I fired, never even gave me much information about my situation.  They simply stated my situation, the 3 options and that was it.  I came home and got on this website to learn more about my fate.   This site has been a total education and support system for me as I got nothing when I left my doctor's office.  My new surgeon asked me if I was given any information when I was first dx'd and I sheepishly admitted I was not given anything except a quick talk about what cancer is.  I appreciate the first surgeon gave me but with no family history, I had NO clue what I was into.

    I agree with you that there is great support on these boards.  It sure saved me when I had no clue what just happened.

    Liz

Categories