Mother-in-Law refuses to be diagnosed, now what?
My in-laws are strongly anti-modern medicine. They don't trust doctors, or western medicine and my mother-in-law is downright terrified of the whole establishment. She has a long history of depression, self-diagnosis, and self-treatment using alternative methods. She's 55 years old.
About 6 months ago she told my wife that she had detected a lump in her breast. She said, "I don't think it's anything to worry about, just thought you should know." Then, about a month ago, she told my wife that she's lost 12 pounds recently (she weighed maybe 120 lbs to start with). This obviously worried my wife, but with no other information, she didn't say anything.
This weekend my father-in-law asked my wife to call him, which she did. He said that the "lump" is now the size of an egg, is accompanied by heavy bruising and bleeding from broken skin on the breast, and the nipple is "gone." He told my wife, "now's probably the time to say anything to mom that you might want to say." When questioned further, he said, "We're hoping we have 6 years, but it might be 6 months." The only reason he called is because my wife, sensing things were not good, bought plane tickets to visit them in a couple of weeks. He didn't want her to be startled by her mother's appearance when she arrives.
My mother-in-law hasn't been to a doctor. She hasn't had a biopsy. It could be a bad spider bite for all we know. It certainly sounds like cancer, and with the accompanying weight-loss, seems like probably the cancer has spread. But we have no way of knowing. My wife obviously wants some sort of an idea as to what she can expect, as do her brothers. They know there is no way their mother will get treatment, but they feel they at least deserve to know what the story is. Do they have 3 months left to visit and see their mom, or might she be around to see the brothers get married, see our kids be born, etc? We have no way of knowing, and the parents are refusing to divulge any useful information.
Obviously no one can diagnose a woman based on a third-hand account of symptoms, but we'd really like to know what we should/can expect here. Should my wife be looking to spend this summer across the country with her mom? Or does she have a few years, and might better spend this time having a baby (which we're working on) so her mom can be a grandma? What's the best way for my wife and her brothers to approach their parents and try to get a diagnosis?
Comments
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I feel for your Father-in-Law, it seems he is desparate to get his wife to seek help, but you can't force someone to go to the doctor. My father resisted doctors for way too long when his "chest infection" kept on not getting better despite repeated antibiotoics, because he just knew he would be told to quit smoking. By the time he was admitted as an emergency with obstructed bowel due to build up of ascites fluid, he already had secondaries to liver and brain, and he was dead within six months. He didn't want any aggressive treatment. If he had been diagnosed earlier, he might have just had more years of endless hospital visits and worry, so who am I to judge what he chose? I don't say that to frighten you, more to show that actually it's her body and she must be so so frightened. i don't think you are absolutely entitled to any information if she doesn't want to share it, but equally your poor father-in-law is in need of so much support in his awful position. And also your wife and her brothers.
Do you think she would consider non-western medicine, and if her condition does turn out to be cancer, do you know if it might have anything to offer? Its not something I know much about.
I want to say two other things, BeingChange. First, her decision and its conesquences are not your fault, and you sound like you are doing everything you can to support them both as the best son-in-law you can be. Second, you and your wife are in my prayers, may you be guided to good decisions and words of comfort. Your love counts as much as medical treatment.
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I cannot tell you how long she has. Ideally,she would decide to seek some kind of treatment. However, having had breast cancer, I have a better understanding of those who defer treatment. In the early stages, most of the time (and certainly in my case), it doesn't hurt. It is easy to defer painful treatment while you still feel normal. Not sure whether this helps, but it gave me a better understanding of one of my relatives who also deferred treatment. Good luck.
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Here's my take:
She approached her daughter and told her about the lump. That could have been a "cry for help". Maybe that was the opportunity to help her. With the mother sayings "it's probably nothing" she wanted reassurance from her daughter. Otherwise, why even mention it? Why should your wife "know about it"?
With years of depression and mistrust of doctors there is nothing you could do to get her in for treatment. From all I've read on these threads, my guess would be she has 2-3 months at most. When "whatever it is" is breaking through the skin and "eating up body parts (nipple)", then it is pretty aggressive. Not to say it's cancer. A spider bite is a very good guess!
You don't lose weight with early stage cancer necessarily. I've had over a dozen family members dies of cancer of one form or another and have almost seen it all. Is this a cry for attention? Your wife hasn't even seen her mom's chest has she? I can't see her dad telling her to "say what she needs to to her mom" if the dad thinks she has 6 years left! Very mixed messages coming through.
I hope you get a visit out there to assess what's really going on. Maybe your father-in-law is just getting verbal info from your mother-in-law and he hasn't seen it at all.
When my dad was dying of lung cancer he took every treatment they would throw at him. He felt terrible for the last 2 years of his life. He didn't LIVE for 2 more years, he DIED for 2 more years. It doesn't sound like much except emergency treatment could possibly slow the tide on what is growing on your mother-in-law. MRSA? Infection? Cancer? Mastitis?
Good luck. Your family will be added to my prayers. And no, I'm not a doctor and don't pretend to know exactly what's going on, but you asked for thoughts and these were mine.
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Dear BeingChange,
I want to answer your question a different way. My mother had undiagnosed lung cancer which is actually sneakier as usually no obvious symptoms until way advanced. Even during the last weeks of her life, we thought it could be pneumonia.
She died 17 days after entering hospital, but from a blood clot on her other functioning lung.
I am so glad I was there to see her at Easter, even if I got there a day late for my next visit as she had slipped away during the night.
I am saying this to answer one of your questions.....tell your family to get there if they want to be sure they see her. Best case is that you are mistaken and she has many more wonderful years left.
I am hoping your wife gets to share with her mother that you are expecting a child (which I am hoping happens very soon). That is what you should plan, given what you have written here.
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I am so sorry. I have known two women who died from breast cancer. In one case, the woman refused all surgery and relied on "natural" methods. I'm sorry that I can't recall how long it took--I don't think it was a year but that sort of thing depends greatly on how virulent the cancer is. Some take longer than others. In the other case, the woman had surgery but refused radiation or chemo. She died with brain mets, not recognizing her family. In both cases, the family members suffered as much or even more than the patient but one can't make an adult see a doctor and be treated.
I would second what Claire says: if your wife and her siblings want to see their mother, do it now. Best case, you have made a short trip for "nothing," worst case you got to see her and be with her before it was too late. And maybe by being there, you will get a better feel for what the circumstances are.
Good luck.
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My mother-in-law chose not to get her BC treated. She was, however, 78. We only found out that she had cancer when my FIL turned over in bed, and his fingers brushed against her breast. She was planning on dying without anyone noticing - I guess!
Then I announced that I was pregnant with her first grandchild. Her doc respected her wishes, but had her try tamoxifen, which she tolerated very well, and she was able to see her granddaughter turn 3. Before she died, she told me that she wished she had had a mastectomy, as the appearance and smell were very unpleasant.
I am sorry you have to go through this - your MIL is younger than I am, and I'm planning on a lot more years.
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Sorry if my initial response was a bit blunt and tactless, and thank you to everyone else who has teased out some of the threads of what i was trying to say. It is shocking how we have all had people close to us in similar positions, and I hope my reply didn't offend anyone else here. Your replies helped me process some of my dad's choices which are still quite fresh in my mind, being only four years ago. When Gran broke her hip at 82 she lived abroad, and at the time i was a single parent with a small child, but I made the effort to visit her, and I have to this day never once regretted it, going to see her while she was still alive. As it happens i was also able to go to her funeral some three years later, but if it had to be one or the other, i would still choose to visit earlier not later.
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