just turned 30, have clusters of microcalcifications
and I know that it isn't diagnosed yet, but I am fearful that because I don't fit into the factor group for this (I've read a lot that women after menopause? are likely to have this? Could I be wrong about that? I have a stereotactic core planned for Tuesday and they seem to think I'll have results by next Friday. I am preparing myself for cancer, because if it isn't, I'm ok, right?
I asked a million questions and I know from the radiologist that it's suspicious and is in a cluster. They are varying sizes and density which is scary. How often is it DCIS? I know they say 80% is benign but my gut tells me I am in that 20%. I just turned 30 and just got married.
Some thoughts? Has anyone had a similar situation that turned into DCIS? Sorry if you think I don't belong on here but I need some guidance and thoughts from people in this situation. I'm tired of people telling me "it's probably nothing" and "you're so young".
Thanks,
Erin
Comments
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Erin, you will be ok either way. You really do have an 80% chance of this not being DCIS. Even if it is DCIS, this is NOT life threatening. No one ever dies from DCIS and there are a variety of treatments for it. Before I was diagnosed, my doctor advised me to stay away from the internet because I could scare myself reading things that didn't apply to my situation. I recommend the same for you.
I had very low grade DCIS, and it probably first appeared when I was 43, so before menopause. Another condition that causes microcalcifications is atypia, which doesn't require surgery.
I've got one bit of advice for the stereotactic core - you might ask for valium or percoset to cut the pain during the procedure. It is a manageable procedure that leaves no scarring, but I wish I'd had some painkillers.
Feel free to send me a private message if you'd like. But, please don't go searching on this website for more information until you have your diagnosis. Take walks with your husband, meet with girlfriends, have some wine, see some movies, distract yourself. Best wishes,
Kristen
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Hang in there Erin -
As scary as this is you WILL get through it. My oncologist and breast surgeon recommended that I either avoid the internet or stay on websites like mayoclinic during the time of my workup as well - I think that it was helpful for me in terms of keeping stress level down. I know this is easier said than done. My best advice is to surround yourself with family and friends and try to take it as easy as possible.
I don't know if this is helpful or not but from my recollection of the most recent data you have to screen 10,000 women under 35; of that group ~1300 will get a callback for further testing (possibly including biopsy) to diagnose 16 cancers, so the odds are on your side. There can be a lot of reasons women have microcalcifications and the mammogram just can't always tell you what is going on and in fact my situation was the opposite - my microcalcs looked benign on mammo but were in fact DCIS that was completely treated by surgery (and I could have done a much less extensive procedure than I did, although I am at peace with my personal decision for a variety of reasons). So you just don't know until the biopsy is done. So try to hang in there! You will be ok!
take care,
Meredith
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ebarb -- I'm not sure about clusters of micocalc's typically being AFTER menopause as you will find a lot of women on these boards who have had these clusters who are not near menopause yet. This includes myself. I am possibly having peri-menopause symptoms, but diagnosed at age 46 two summers ago with cluster of microcalc's being the first 'sign' and I am definitely not past menopause yet.
While I DID end up with a diagnosis of DCIS after my cluster was taken out by surgical excision, it is true that 80% of calcifications are NOT cancerous diagnoses. Do you know what your BIRADS score was? Mine happened to be BIRADS 4 when my cluster was discovered. BTW, with my excision having just 1.6 mm of DCIS and clear margins, I have not done any additional treatment whatsoever other than the surgical biopsy although I am definitely in the minority where that is concerned.
Here is a website with a ton of info on calcifications. You may find it helpful or you may find it to be TMI at this point, but it might be useful for you to look at.
http://www.radiologyassistant.nl/en/4793bfde0ed53
Good luck with the sterotactic and here's hoping you get completely benign results!
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Namaste!
e-barb,
The best things you can do right now are as others have suggested. Be with friends, family, do some activities that you enjoy and occupy your time and thoughts. Going for walks is great. When I had my BXs I had one ultasound guided and two stereotactic. I didn't have any meds before but they used local anesthetic. It was a lot less discomfort than going to a dentist. The only real uncomfortable part was having to lie so still for so long on the stereotctic table (two BXs and the machine stopped working for a while) and my jaw was resting on the hard top edge of the table and I though my jaw was going to dislocate or something. So make sure they position you so you can remain reasonably comfortable without moving for the whole time.
Good luck and I wish you the best.
Karla
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Thank you all so much. It is comforting to hear from others who went through this. I am in pretty good spirits considering. They didn't tell me the BIRADS for my mammo, so I don't know what that means. I've already called 3 times after my mammo so I think I'll wait til Tues. when I go for the biopsy to ask what that is.
My husband has been really supportive although he doesn't want to know much about what it 'could' be until we definitely know what 'it' is. I guess that's typical or normal?
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I just read this other post on your profile and had to laugh. Men seem to have the luxury of a quadrant brain. They file things they need only for immediate use. ie/ "Call me when it's cancer, and we'll deal with it. Meantime, stop sucked up energy worrying." He means well and like yours, mine is TRYING to do everything right.. coming with me for my bx on Thursday, taking the day off work, the works. But like I told him.. the best analogy I can give is when a little kid tell you they're afraid of the dark. You don't dismiss them.. you turn on the light, and show them their are indeed no monsters. Right now, we're waiting for that light to come on. And waiting is miserable! He's had health scares and I am the one who is a frantic mess, doing all the research to understand what all the tests are, mean and what they're looking for. He sat their in ignorant bless -- in the end, he was better for it. But that's our nature.
Like you... I feel too young to be worrying about this... my kids are young and I'm haunted by my g-mother dying of BC when my aunts were about my son's age (5) and how much her absence affected their lives. But we need to remind ourselves... if if either of us face this, it's not the 1960s anymore.
Hang in there.... I'll be with you in spirit (and in location - we drive to NJ this weekend! We live in CT).
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I was just wondering if you had any followup on this? I am kind've in the same boat, 29 with microcalcifications and am meeting with a surgeon to get an MRI August 1... I haven't found much about young people (30 and under) with microcalcifications and not have cancer at some point because of them... hoping for a positive outcome here?
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