Starting Chemo February 2009?
Comments
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Nancy ~ I'm so glad that the surgery went well, but I hate that you are in so much pain. I hope you get your results soon and that you hear nothing but good news!! *hugs*
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Nancy - oh that does not sound like fun. Sorry to hear about it all, but I am glad they could remove it OK. So, not sure what lymphoma is - is it another type of cancer? Fingers crosed it was just enlarged, and you will be OK.
Jaimie - happy to hear you are home safe and sound. I can just imagine the kisses you are getting!
Judy - well, hope you are doing OK - fingers crossed no more clots or problems or anything.
Artemis - Happy Chemo finishing anniversary day! Mine was a week or so back, I am just happy I am here and feeling healthy.
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{{{{Nancy}}}} Let us know when you get that path rept!
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Kerry, lymphoma is cancer of the lymph glands - Hodgkins Disease is one form.
Michele, I will definitely post the path results. May not be for up to 2 weeks according to the surgeon.
Trying to walk as much as I can but the lung is SO painful. When I walk I cough.
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Nancy: I do hope your pain gets better soon, and that your results come back and show NED. I think 2 weeks is way too long for test results, hopefully you hear sooner.
I finally see my onc this month...I have a few questions for them. At the ER the other night, they noted a "bone island" in my left arm, so I will probably get a bone scan for that (haven't had one yet anyway, so why not). My period has been heavy for 5 days straight now, starting to wear me out....I'm assuming part of it is due to being on the blood thinners for so long.
It's gonna storm all day today, so I plan to take it easy, nap. Steroids had me up til 3:30 last night, so I'm pretty tired.
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Happy Mother's Day Ladies!!!!
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Happy Mothers Day from me too!
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Happy Mother's Day to all of you!!!
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best if luck Nancy. I like the sounds of the on-Q ball.
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Okay ladies how was your Mother's day ??? Mine was boring....just the way I like it
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I did have a breakdown on Mother's day about my recon. which I adore but one little spot was bothering me and now I feel silly because it looks like my bra was causing it. Anyhow I feel better now. I think surgery after surgery is getting to me.....So I think I am done even if my minor flaw is not fixed for a while.
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Hi Jaimie! My Mother's day was way too busy, since I had the MIL over, I did all the work. Oh well, maybe next year I'll sit around and let everyone do everything for me (ok,probably not, it's just not me, lol)
After 2 weeks of not being able to breathe, feeling like something was crushing my lungs 24/7, today I was finally able to start clearing them out. Over 2 weeks of steroids, breathing tx's, it's been awful. I felt like I was dying. I will NEVER use my wet saw without a face mask again. All that wet dust settled like concrete in my lungs, and did not want to budge. I've been so happy today just to be able to breathe at 50% capacity, lol. Spent the whole day running errands in the pouring rain, but still, it was great!
Oh, and my friend, who owns a catering company, offered me an on-call job! $20 an hour! No problem if I say yes or if I say no, I'm on a call list. So glad about that, but hope I'm physically up to it, it's a lot of work.
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Hello ladies and a happy belated Mothers Day! Isn't it wonderful we are here to enjoy it?
Got the final result of the biopsy late yesterday. As we had hoped it was negative Whoot! Whoot! Biopsy showed it was due to a past infection - reflecting, it had to have been when my lumpectomy area got badly infected last May. Then my onco said to get myself to the surgeon and have that mediport removed. Double Whoot! Whoot!
Can't seem to stop the water works, now. I cried for 2 1/2 hours yesterday after that call and all through the bottle of champagne we popped open to celebrate. But these are happy tears. I refused to cry tears of self pity these past 16 months. Must have been a lot backed up in those tear ducts.
Glad the lungs are feeling better. That sounds incredibly painful.
Boring? I'll take a little bit of that "boring"!
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Oh Nancy, I am soooo relieved to hear this! YAY!!!! I've been thinking about you, and am glad to hear the great news!!!!
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Nancy~ I may cry some happy tears for you. Beyond thrilled for you!! Now do not stay away so long.....
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Oh, Nancy, that is WONDERFUL news!!!! I'm sooooooooooooo happy and relieved!!
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Nancy, best news ever! I am so relieved for you.
Judy - how're the lungs??
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Nancy~ great news!!!!!!!!!!!!!!!!!!!!!!!!!!
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Hi, Furies ~
Have we talked about bc-related dreams? I don't think we have, but maybe I just don't remember. I have chemo brain, y'know!I've dreamed about my hair five times since all the junk started, but have not dreamed about my breasts at all. I find this odd.
Twice I dreamed that it was long like before (once I was washing it, once I was braiding it), twice I dreamed it was shoulder length and I was happy to find that I could braid it, and last night I dreamed that I was getting some blonde highlights. I told the stylist that I wasn't sure my hair was long enough to work with then all of a sudden it was VERY long.
I wonder why I haven't dreamed about breasts? Not that I want to, mind you. Maybe it's just my mind looking forward to having that bit of normalcy returning.
Soooooooo...what's in your dreams?
Hugs to everyone!
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Okay I was having a pretty good day until I found out that the person who helped navigate my care when my Mammogram was suspicious was re-diagnosed with BC recently...
She had surgery and all I heard was that she had 22/28 positive lymph nodes......So if you can send some extra prayer my friend Terry needs them. I hope everything else is NED...
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Oh, shoot Jaimie, that sucks. If it is any help, there are a few women I know here who had many many + nodes, and are doing well over 5 years out. Still, it sucks big time. Fingers crossed for her.
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Wow, Jaimie. Yuck. FWIW~ My mastectomy bra (and foob) fitter had 19/23 pos nodes over 5 yrs ago with no mets. She had a Mx, chemo, and rads.
lots of prayers for your friend.
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OhJaimie, I'm so sorry to hear that. Prayers out to your friend. I'm with Kerry - I believe I remember my former next door neighbor having that many nodes and faring well so far. Scary but beatable.
Linda, how are the lungs? That sounds SO painful!
I've been thinking about this dream thing. I have dreams but they make a swift exit from my brain once I'm awake. Upon reflection, though, I remember hair being a big subject. My feet and hands were the other. I still feel like someone has taken one inch bands and wrapped them around my instep. Neuropathy sucks. I've signed up for a blind study between a local university and my hospital system that will start soon. They are using 4 types of "holistic" non-prescription treatment: yoga, reiki, meditation and patient education. We will be placed in one of those groups for 6 weeks. What they look to accomplish is to learn whether any of these helps with the long term neuropathy. Me? I vote for hand/ foot massage but that wasn't an option. Of the options, I'm hoping for the yoga.
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Michele - you should post that on the Stage 3 forum. We love stopries like that ...
Funny, my only dreams too have been involving hair. I guess I don't think about my missing boob much at all.
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Kerry~
Feel free to repost! She's doing well... feeling good. In fact, her onc told her to forgo chemo and go into hospice when she got her dx and she told him to f--k off; got a new onc, and started chemo.
So, how have you been able to get past your mx? I feel so much more comfortable physically since the 2nd mx but am still an emotional wreck. I feel sooooo unattractive and sub-par. <sigh>
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God morning ladies and happy Sunday. A couple of things this lovely day -
As anyone heard about the new Showtime series starting this summer? It's called "The Big C". Feeling I need to watch it - I will take any opportunity to laugh at life and especially this cancer thing. It provides such relief. I will confess to the blatant plug - my best friend's godson is involved with getting it produced, but it does sound intriguing and the buzz on it is good.
Now then, to unpleasantries. Anyone ever been introduced to c-diff (clorstridium difficile I think it's spelled)? Seems I may have brought home more than I bargained for from the hospital last week. I've lost around 8 pounds - not unhappy about that, but the way I lost it, I could give up. Got on meds Friday, eating lots of yogurt (really do wish I liked it, but...). I think this morning I may very well be turning the corner. At least I hope I am. I've been getting the requisite string of emails from my boss wondering what my plan is to get over this "latest minor setback", and "aren't I hydrating myself", etc. I honestly think she believes I'm milking my absence. I sense she had no idea I had approved FMLA. My last response to her was the question of whether I should readdress the FMLA with HR - never heard from her again. Have to say I'm sorely tempted to take ALL of my hospital records, including the video snapshots of the procedure and drop them on her desk in the morning. I hope I come to my senses by tomorrow morning as legally she has no right and I have no obligation as long as I have the FMLA.
Anyone else encounter work issues?
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So sorry for TWO posts this morning, but I finally read more carefully Michele's post. Any doctor that says "there's nothing more I can do" or "you need to get your affairs in order" I have no respect for, particularly when there's nothing they have even DONE second time around !! Just this month reconnected with my lost lost college roommate after 35 years. In 2003 she was diagnosed with anal cancer. In 2007/2008 she had mets in the soft tissue of a lumbar disc. Her onco told her the same thing - the getting affairs in order and the nothing more to be done statements. She went to another city for a second opinion, underwent laser and chemo and is still here to talk about it. We have to be aggressive until all possible options are exhausted and then some. She and I are really counting on seeing our kids settled, hopefully married or at lease happy with their lives, grandkids, the whole enchilada. Why NOT expect this?
So Michele, tell your friend: You GO GIrl!!!! I'm with you!
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So this time last year was my last day hopefully forever getting taxotere and carboplastin......and MORE IMPORTANT.....MY baby turns 5 today
. I am looking forward to his birthday celebration this weekend without feeling like garbage.
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Have a great Birthday celebration, and an even bigger "one-year-after-last-chemo" celebration! Life sure is better than it was last year.
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Jamie ~ Your friend Terry is on my prayer list. I'm so sorry she's having to go through this junk again.
Nancy ~ good luck with the study; neuropathy like that sounds just awful. I hope you get some relief soon!
So glad I'm not the only one dreaming of hair and not boobs. One more "normal" thing in the New Normal, heh.
Michele ~ my emotions are still all over the place. I'm actually crying more now than I did all through treatment. I fell apart a few days ago because it hit me all of a sudden that I HAVE NO BREASTS.I don't know what to say about how to feel attractive because I'm in the same boat. I didn't feel attractive before, and I certainly don't now. I'm just a mess these days. I think I need to go back on antidepressants.
Jamie ~ Happy Last Day of Chemo Anniversary, and a very Happy Birthday to your little one!
(((Furies))) -
Nancy: ugh, I'm so sorry you got sick, that's a bad bug to get. I'm glad you're starting to feel better now. Stupid hospitals and their germs! Your boss needs to get over it, good for you for putting her in her place! My employer pretty much replaced me while I was out for chemo...which was fine by me, since I didn't want to work for her anymore anyway.
Jaimie: enjoy your son's birthday! hard to believe we're all coming up on a year since chemo...I just wish I felt a bit better by now.
Artemis: I'm with you on the emotions...and the body image thing, too. I saw my onc today, and we discussed things, and I realized I'm not doing quite as well mentally as I had thought....she wants me to go talk to someone, so we'll see...
My onc PA didn't do a whole lot today. No scans, just bloodwork. She put me back to every 4 months for my appts, which is what I was supposed to be in the first place, but the onc had pushed it to 6 months. I'm glad we're back to 4 months between appts. She set me up with another PS, and a pulmonary doctor to see if we can get my breathing back on track. I told her I'm sooo tired, but she skirted that issue. She seems to think everything I'm experiencing is stress related....of course I'm stressed, but I don't know if that's causing my fatigue, my breathing problems, my palpitations... She also took me off the coumadin again, so now I can stress about clots as well. UGH
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