Starting Chemo February 2009?

KerryMac

I was told by my BS that no PS would touch me for a year following Rads. You could certainly start getting consults though, it will probably take a while to get it all set up.

Cold weekend here, but this morning it looks nice and sunny out. 

Hope everyone has a great week! 

Jaimieh

I have heard any were from 6 months on for recnstruction after rads. I didn't have them but I have been thru a bunch of recon.



It's cold here in MD...:( I have 7 days to get everything done for my DH before I leave for a week. You should see the schedule that I had to set up in order to get everyone at the right place at the right time. It's insane...but it will be worth it. I will also be going to warmer weather so I am excited about that. I love, love warm weather.



So actual chemo related problem still I thin after almost a year I am going to lose my big toe nails they hurt all the time and the nail has not grown at all. Chemo the gift that keeps on giving....



Kerry are you feeling better ??



Judy- how is Julai doing ??

MicheleS

Jaimie~ How 'bout May 1st?  I think I might be able to get someone to cover call for me that day.  I could get there in time for an earlyish lunch (11am) and then we could go to the zoo??  Or, we could plan something different... just let me know what you think and I'll call Web.

Judy~ Yeah, we need a Julia update.

 xxoo to everyone!

apple

hi everyone..

my bones and muscles ache.. I've been working my tail off.

o my.

Jaimieh

Michele~ May 1 sounds good to me   I should be out of the hospital in 24 hours so I am sure I will be up and around....   I will PM you my cell phone.

Apple~ take it easy.....   I hope things are coming along.

apple

good luck Jamie

do not click on my status or on any messages in FACEBOOK  from me. it infected me last nite... araarrghgh - a nasty trojan

MRSROCKYTOP55

Hey ladies, I have been away a long time down here in Costa Rica going about God's work, but I need your help.  Saturday I had an ultrasound and it showed two areas of concern near the incision site.  The report says one nodule hypoecioc with thick walls 18.8 mm X 26.2 mm and the other much smaller.  I am scheduled for a biopsy tomorrow.  Anyone have any ideas.  I am still on Herceptin for three more treatments so I can't imagine it is a recurrence this early.  Help!  Missed everyone, Kathy

xpectmiracles

Hey Kathy. If it is along your incision maybe its scar tissue. Ill be thinking of you.

Well Jaimieh, my DH and I will be going to Baltimore next month. Did I catch you saying you live in the area? If so, we should get together!

Judy, I will be coming to Michigan again in the summer. Wanna get together then?

Ladies, I have been having blah moments lately, too. I have been seeing the councelor at the cancer center and it is helping me understand what it's about. I think I am trying to adjust to the "new normal" avter diagnosis. I am mad that I will never have the life I did before BC.

But, I am happy about my breast reconstruction. I did not have radiation so I started with the tissue expander at the time of my mastectomy. I got my permanent new girls in the summer.

Okay Furies! I'm done chatting. Have a great day.

KerryMac

Hey Kathy - thinking of you too! My first guess would be scar tissue. Whatever it is it is small, which is good. Did you have Radiation?? Keep us updated.

Hope everyone is having a good week. Just back from a run. It has been sunny and lovely here, I have been enjoying working in the garden.

Jaimieh

Cheryl~ I do live in Baltimore   Let me know when you are coming up I would love to meet up with you and maybe we can do lunch or something. 

Kathy~ I am thinking scar tissue also.  Thinking of you and check back and let us know how you are doing.

Nancy~ How are you ??? 

Kerry~ How is your infection ???

6 days until I board a plane and I am not ready....as normal....lol...  I have a ton of things to do this weekend.  I am meeting with a potential client on Saturday for a wedding in October,  I might be second shooting for another photographer followed by a bunch of ball games.  I love being busy so it's a good thing. 

KerryMac

I'm good - all cleared up. But I think it tends to be recurrent, so I am being very vigilant to watch for it again.

Glad you are busy - the count down is on! Bet you are excited!!

MicheleS

Kathy~ I'm also thinking scar tissue but I can understand your concern.  Prayers!!  Pls update as soon as you know something.

Kerry~ I need to get going on my garden.  Things have been so busy here.

Jaimie~ I asked for a back-up for May 1 so plan on it!!  I'm going to call Web this weekend.  Are you sure you don't mind if I bring along Maggie??

Cheryl~ I'm seeing a counselor.  Sometimes I feel like seeing her is helping... other times, not so much.  I find that I'm increasingly resentful of people who seem to have it easy. I can't believe I just admitted that!!

KerryMac

Michele - I have had similar thoughts. Not that I would wish this on anyone, but sometimes it just seems so unfair. Esp when people complain about the stupidest things.

You guys gotta take a ton of photos! 

gcpommom

Kathy:  sorry you're going through this, I agree with the others, if it's on the scar line, could be scar tissue so try to not worry too much (easier said than done)

Nancy:  I've been thinking about you, hope everything is ok and that we hear from you soon...

Cheryl:  let me know when you'll be here : )

Julia Update for those who asked:  not much has happened here since her diagnosis of SMAS....she has also been diagnosed with something called Ehlers-Danlos syndrome since then (not sure exactly what it is yet, but it has to do with extreme flexibility in the body, including veins/arteries).  She's always been super flexible, captain of her high kick team on pom, all 3 splits without even stretching, she can turn her elbows to flex the wrong way (which is really gross, lol).  anyway, we are looking into the Mayo clinic for her surgery, it's gonna take some time. 

Jaimieh

Michele~ Honestly please bring Maggie   I do not mind a bit.  I am recentful of people that seem to have it easy....I know peole that drink, do not pay attention to what they eat, do not exercise .and are just not nice people and yet they do not have BC....I am especially recentful if they are like that and they are pregnant....I love being pregnant and I know that my chances of ever having another child are slim to none but yet these people do not take care of their children and continue to have more....  Can you tell it is a hot button topic ???

So I am gardening, cleaning, organizing, spring cleaning, meet with potential brides, and just running around like a crazy lady.  The good thing is I know that I will get some rest next week ....

KerryMac

Oh, yeah, and people that are very overweight, don't exercise, eat crap, and don't get cancer....they are on my list too.

Jaimie - there is a woman on the Stage 3 boards (littleflower) who was Her2+, she's about 5 years out and newly pregnant. So, you never know, there is still a chance.

apple

morning..

prayers for everyone.

Jaimieh

Okay so I am sitting in patient first waiting to be seen for a rash on my back. Grrrr... I am hoping that it is nothing but dermatitis. I really do not want to wait another couple of weeks for stage 2. I have everything worked out with the kids, school, sports, etc... And I do not want to get everything together again my oncologist does not think it is shingles so who knows what it is

apple

i know this old lady.. she is skinny,, uuuuuuuugly, smokes like a chimney and is as active as a 25 year old.  she is always smoking.. I talked with her today.. (she owns a stinky laundromat and I was buying beer next door)... she's 88! she sounds like a basso profundo

http://www.youtube.com/watch?v=IyIB3yPTivM&feature=related

MRSROCKYTOP55

Thanks everyone for your responses.  I have missed you ladies.  I went for the biopsy and the doctor wanted to do another ultrasound at the hospital.  She said the first one was not clear enough for her.  She did another and found that it was an area of fluid collection from the surgery and radiation.  She said to watch for fever, rash or swelling as this could become infected.  She will ultrasound again in three months.  She was so nice, she said to just come by the hospital in July and find her and she will take care of it then.  God has been so good to provide great doctors here with alot of compassion.  Thank you again for being there for me as I drop in now and then.  I pray for all of you often.  We will be headed for the states next Thursday and I am doing to do the Breast Cancer walk at the Mall of America with my mom, sister and two nieces and so I am really looking forward to that.  Take care all and God Bless

MRSROCKYTOP55

Thanks everyone for your responses.  I have missed you ladies.  I went for the biopsy and the doctor wanted to do another ultrasound at the hospital.  She said the first one was not clear enough for her.  She did another and found that it was an area of fluid collection from the surgery and radiation.  She said to watch for fever, rash or swelling as this could become infected.  She will ultrasound again in three months.  She was so nice, she said to just come by the hospital in July and find her and she will take care of it then.  God has been so good to provide great doctors here with alot of compassion.  Thank you again for being there for me as I drop in now and then.  I pray for all of you often.  We will be headed for the states next Thursday and I am doing to do the Breast Cancer walk at the Mall of America with my mom, sister and two nieces and so I am really looking forward to that.  Take care all and God Bless

Jaimieh

Kathy~ I am glad the doctor offered to do another US.  Have fun doing the walk with your family. 

So I have dermatitis   Never been so happy about being allergic to yet another thing.  I guess I need to pack...lol.... and finish getting the house ready.  It has been raining pollen and I have had a headache for the last couple of days. 

 Then I got the phone call that I need to have another Kidney test soon .....so I will go in a couple of weeks for the kidney test from hell again.......  They will inject lasix into an IV and then I can not use the bathroom for 20-45 min.  I am worried about my kidneys so I think that I will do it as soon as I can get it done after stage2. 

BTW, Kerry ((hugs)).  Hopefully I will come to terms with just having 2 babies  

gcpommom

Kathy, glad to hear you're all clear, that's great news!

My younger sister had her hubby call me today, he said she had gone in for a follow up mamm, and called upset, and wanted me to drive out there.  I had no idea why or what was happening.  I raced out there, and arrived just as she was leaving...turns out they took images of her breasts for over 5 hours, scared the crap out of her...they finally decided the lumps were just cysts, and she had some calcifications that they will look at again in 6 months.  So it all turned out in the end...

webbie

Hey Ya'll! It's Webbie, yup, same old one, new account. I've been locked out of here forever, and just decided you'd probably know it was me under this name. Sucks I don't have my history or PM's tho. Anyway, I probably should've done it sooner, since I don't get to see all of you on FB, but I'm not even going to try to excuse it. I've tried to stay out of here for quite some time. Seeing the hordes of new "kids" coming in the door, watching those I've grown to know and love so much go out the door the other way...and like many of you, I'm struggling with this so called "new normal." It's no longer new, it certainly isn't normal, and I don't think I like it very much most of the time. But, we lost Analemma last week, and I resisted the temptation to commiserate with those that loved her on the Stage IV board just as long as I could. Of course, I couldn't leave without stopping in here to check in! And now that I have, well, the habit will probably be hard to break again, haha!

Jaimieh, Michele, by ONE day, I think I can pull this off. Monkey has recital on Sunday, so it will be a bit nuts...but so far, I CAN DO IT!

I love you all!

(And if you're not on FB or are and I don't have you, I'm webwriter there too!)

 

KerryMac

Hey Webbie!! Great to see you back on here!

Jaimie - I'm happy you have dermatitis too!! Sorry about the Kidney test though, but you are right to keep on top of it.

Judy - glad your sister is OK. My sister freaks out at having to have mammos, etc, too. I know they are no fun, but they do beat the alternative.

Kathy - fantastic news!! 

Hope everyone has a great weekend! 

Jaimieh

Webbie~ Happy to see you back on here.  I believe that coming here has made me deal with things better.  I hope you can come   I will be hopped up on pain pills but I promise I will not say anything too bad.  Michele's little one will keep me in line.

My dermatitis is still there looking odd and I hope it starts going away soon.  I would love to put some topical benedryl on it but I am not allowed to because of the Anesthesia next week.  Oh I think I am ready for next week but my DH keeps adding new things on my list of things to do....  His latest is updating our passports so we can go on a cruise   I am excited about it because we are celebrating our 10 yr. anniversary.  It will be the first vacation in forever with just the 2 of us.

KerryMac

Oh, I am so jealous. I've always wanted to do a cruise! So, who gets the kids? We went for two nights last year after I finished treatment, and one night for our 10 year wedding ann. in Dec. Hoping for one night over summer. My MIL can only handle the kids for 1 or 2 nights.

Jaimieh

My MIL will be getting my babies   We are going to do a short one either 4 or 5 days.  I am trying to push for the 5 day one.  I just want to go someplace and not have to cook or answer to Mom for a couple of days . 

2 1/2 days until I am on a plane

KerryMac

5 days on a Cruise sounds like a little slice of heaven! And you with your new boobies in a bikini - how wonderful!!

Nancyb7912

 Hello all. I'm so sorry not to have kept up with my status, but my brain has been more befuddled than not lately. So here's the deal  - my last Herceptin was Friday, so that's good news.

But the CT scan was repeated last week and the A-P Window lymph node that was enlarged has not gotten smaller. So I will see the thoracic surgeon on Tuesday in preparation for surgery Wednesday May 5. Up side is the heart, lungs, etc. are still looking good. We just don't know why the lymph node is so large and it wasn't there when I started treatment. If it's malignant, he says it will be classified as mets since it's on the same side as the BC. Plus, it will be back to chemo for me. I've determined that it's not mets but something completely different. Easier to cope with that way.

Kathy, so glad you got better news with your possible recurrence. It can be maddening to think the BC is already back.