CT-PET - what to expect?
Comments
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I'm having a CT-PET on Thursday and would like to know if any of you who've had this scan can tell me what to expect. I had a CT scan when I was first dx but not this and I'm a bit nervous.
But...nervous about the results? Me? Nah.
<sigh> Scanxiety.
Leah
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Preparing for the procedure
When you schedule the examination, you will get detailed instructions on how to prepare. Tell your doctor about all medications you are taking, and review with him or her whether you should take your regular medications that day. Review any drug allergies or other medical conditions you have, especially any allergic reactions you've had to iodine.
Women should tell their doctors if they are breast-feeding or there is any chance that they are pregnant.
You may be told to drink only clear liquids starting at midnight the night before your exam. You may be instructed to not eat or drink anything for at least four hours prior to your scan.
You may want to ask if you can bring your own music. Some facilities allow patients to listen to music during their examinations.
You will be asked to sign a consent form that states you understand the benefits and risks of the PET-CT scan and agree to have the test done. Talk with your doctor about any concerns you have about the scan.
During the procedure
When you arrive for the PET-CT scan, you may need to change into a hospital gown or remove clothing or jewelry that could interfere with the scan. This includes belts, earrings, shirts with snaps or zippers, bras, and glasses.
A nurse will then inject the radioactive sugar molecules needed for the PET scan. The injection is often done through an IV line inserted in your vein. The IV line will feel like a pinprick when it is inserted, but the radioactive material will not create any sensation in your body.
After the injection, the radioactive substance will take 30 to 90 minutes to reach the tissues to be scanned. During that time, you will need to lie quietly without moving or talking; too much motion can affect the sites where the sugar molecules accumulate.
Depending on what part of your body will be scanned for the CT scan, you may also be given a contrast agent (dye). It may be administered orally (as a drink), through an IV line or an injection. The dye travels through your bloodstream and helps to create a clearer picture of specific parts of your body.
If you are given the dye through an injection, you may feel heat or itching at the injection site or have a metallic taste in your mouth; both sensations should disappear after a few minutes. If you have a severe reaction, tell the technologist immediately.
When it's time for the examination to begin, a technologist will help position you on a padded exam table outside of the PET-CT scanner. The table may have straps or pillows to help hold you in place or a special cradle for your head. You will probably lie on your back, though you may be asked to lie on your side or your stomach, depending on what part of your body is being scanned.
During the examination, the technologist who monitors the procedure will be in an adjoining control room, but he or she will be able to observe you through a window or by means of a video camera, and you will be able to communicate through an intercom system.
The PET-CT scanner resembles a large donut. The exam table will slide back and forth through the large hole in the center of the machine as the scanner rotates around you. For the first scans, the table will move rapidly through the scanner; these help the technologist confirm that your body is properly positioned. For the remaining scans, the table will move more slowly. The scans are done sequentially: first the CT scans, then the PET scans.
A PET-CT scan is not painful. You will need to lie still for the entire scan, and you may need to keep your arms raised above your head, which could become uncomfortable. The PET-CT scanner needs to be kept cool, so the examination room may feel chilly.
You will hear whirring or clicking sounds from the machine; some machines are noisier than others. You may be asked to hold your breath during part of the scan because the motion created by breathing can blur the images. The exam table may be raised, lowered, or tilted to create the correct angle for the scan; ask the technologist performing the scan to tell you when the table will move.
The examination will generally last up to an hour, though the scanning itself takes only about 30 minutes. If a larger part of your body is being scanned, the procedure may last longer. The technologist should be able to give you a time estimate before you begin.
When the scan is finished, you may be asked to remain on the exam table while a radiologist reviews the images. If the images are blurred or otherwise unreadable, you may need to have additional images taken.
After the procedure
You can expect to resume your normal activities immediately after your PET-CT scan, including driving. You may be told to drink water to flush the contrast material and radioactive sugar out of your body.
Hi Leah,
I had one in 2007 and it wasn't as big a deal as I thought it would be. I'm highly claustrophobic and took Ativan, which greatly helped.
Good luck with your scan and results!
Jelly
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I think it takes about 30 minutes. It's hard for me to stay still that long, lol. I am a bit claustrophobic so I had to keep my eyes closed a lot of the time. It's pretty non-eventful, though. You'll do just fine!
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I've not had one, but just want to wish you well. Hope it is noneventful, and everything comes back clear.
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The ones that I had were part of a research study and they lasted 3 hours. I was told the normal clinical scan was 60 minutes -- the rest was research.
For my scans they were always on my back. I was "strapped" in with some velcro strips but it wasn't very tight. Wiggling fingers,toes or even hands and feet was acceptable. Noise wasn't an issue like the MRI. Constant hum. They'd play music for me but it was hard to hear over the hum.
I prefer the PET over the MRI for comfort and anxiety. But I still took ativan. Since my were so long I usually managed to fall asleep with the ativan. I guess they didn't have any problem with snoring or drooling either!
Just in case you have a port -- they won't use it. At least they won't at UW due to the possiblily of the radioactive fluid not being entirely flushed through. So it always had to be a separate IV.
Clothes were never an issue. I wore jeans and a bra without an underwire. Didn't have to change into a gown unless I forgot and wore a bra with the underwire.
Hopefully yours is first thing in the morning because I did have to fast and the only thing I could have after midnight was water and black coffee.
What are they looking for? Or is it just a routine test to ensure everything is clear?
You'll do fine. And I really, really hope the results are clear!!
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I've had all the scans (CT, MRI, PET/CT, bone, bone density, MUGA) and, sorry, but I get them mixed up. I am wondering if it was the one that reminded me of a MRI....What I do remember is that the PET/CT was not the scariest one and was easier than I thought would be. I am not particularly claustrophobic but don't like the idea of some machine inches away from my face. Right from the beginning I have closed my eyes for all the scans, as soon as I can. Then I don't see if I go into some tube or how close the machine gets to my head. That way I can just concentrate on the fact that I can breath so there is nothing to worry about. It has worked for me and I have never been near having any panic.
I'll be crossing my fingers for you.
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Oh yeah - I forgot that part. The tube is very similar to the MRI tube. But they never put me all the way into it. My eyes could always look at that ugly ceiling. And the clock -- I watched the clock a lot when I wasn't sleeping....
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Thought I would weigh in again after reading Christy's experiences. I don't think my PET/CT was longer than 30 minutes. I suppose it is a question of how much of your body they are imaging. I can't IMAGINE laying there completely still for 3 hours! I wasn't strapped in at all. I also asked them to tell me every 10 minutes how much time was left. That helps me to know that it will come to an end.
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I've found them pretty easy, they've always given me headphones with my choice of music- can still hear the machine, but it's not bad. I just close my eyes and focus on not moving, and it never seems to take too long. I have a rx for klonopin that I can use for my scanxiety which helps a lot- my psych refers to it as "scan-itis," it's pretty common! I look forward to having the results, always better for me to know than to not, so, while I'm getting ready for the test and having the test done my anxiety level goes down... it's the waiting before that's the hardest! Good luck and best wishes!
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Thank you to everyone for the info, advice and good wishes.
I was only told to fast for 6 hours pre-scan, and that I can expect the whole thing to take about 3 hours. I think I'll wake up very early to eat something since my appt is 11:00. That way I won't be very hungry but I will be tired so maybe I'll doze off.
I'm having a mast on the non-cancer side plus bilateral diep and BS wants this plus an MRI before the surgery.
Leah
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Leah....the only one I had was during Dx and all the diagnostic testing, so I hope I am remembering the details correctly. I was given a radioactive injection and had to wait at least 1/2 hour before the CT/PET scan. But for some reason, I think I was told to be there and some test or something was done, then had to wait a couple hours for the next part, but don't really remember. I also don't remember any special instructions (oh well, I guess 4 years is too long for this rusty old memory to work...sorry to be so fuzzy). The scan was in an "mri" type machine. I had to have my arms raised above my head, so that was the only uncomfortable part. The test itself was was about 45 minutes.
Good luck with it and wishing you only good results. Karen
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For me, the worst part was sitting in a dark little room waiting for the scan to begin. I was instructed not to use my cell phone or even read! That would be too much "activity".
Also you mayneed to drink a giant bottle of fruit flavored goop prior to the scan. I think my choices were banana or berry.
The scan itself was non-eventful and lasted around 30 - 40 minutes.
I just had a flashback. The noxious drink can cause the runs. I was walking around downtown Seattle when it happened and luckily I remembered the public restroom in the art museum.
Diagnosis: 9/8/2009, IDC, Stage IIIb, PR+, HER2- -
Gosh I can't wait for that yummy drink. And the aftermath.
I am DEFINITELY getting up early Thurs am to eat. That way I'll sleep during the waiting-for-the-material-to-distribute part. I have zero patience for sitting without reading. If I'm reading, well, if they want me to wait for HOURS I'm fine.
Leah
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They had us lie down on a bed in a darkened room for a half-hour before the test. You might want to avoid sugar or carbohydrates if you eat in the morning before you have to fast. As I understand it, the test measures sugar "uptake" in the body. The drink has alot of sugar or carbohydrates and cancer loves sugar, so where there is alot of sugar is cancer. The problem is you can get false positives by doing physical activity before the test which is why they ask you to be still.
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One thing that hasn't been mentioned (unless I missed it) is that you will be "radioactive" for about 10 hours after the scan and should try to keep your distance from other people, especially children. After my PET, I took the subway home and kept having to dodge kids who kept sitting next to me... lol!
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I had a PET/CT a couple of weeks ago and it was no big problem, no lasting SE's or pain. Waiting for results after the test was the hardest part. I wish you all the best on Thursday!
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Leah...its early Thursday morning by you....thinking of you and prayers and good wishes for only good news....Hugs, Karen
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Thinking of you today Leah.
Wishing you only good news.
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Leah - thinking of you. I hope they let you read while you waited.
Banana or berry?
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Well, it's over.
It seems they do things a little different here. Once I got the shot I was told to wait in a seperate waiting room and not leave, but we sat in armchairs, there was a TV on and no one objected to my reading (I have 6 kids, reading with the noise of the TV or any other noise is a nonissue.
The hardest part was keeping my arms up during the scan - since rads it's been hard to do that. The drink was like Koolaid (which I dislike intensely) and it was someone's idea of berry flavor. Well, that berry doesn't exist in nature.
Results should be ready in a week. Now comes the hard part.
Thank you to everyone for your good wishes.
Leah
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Glad it went well!
Ohh, you are right, the waiting is the hard part.
Let us know when you hear anything.
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