Rant/ Got a Letter in Poor Taste
OMG, some people are just so stupid..... I got a letter in the mail today from a neighbor, who by the way, I never once heard from the entire year. I'm going to type it exactly the way it was written to me.......................
Dear Barbara & "DH"
Most of us know someone whose life has been touched by breast cancer. I lost my sister after a 5 year battle with this disease. She fought long and hard: somehow we thought she'd pull through. Unfortunately that was not the case.
This year I've made it my mission to do something toward ending breast cancer. For two days and 39 miles. I'll join others who share my conviction to end this hideous disease. On October 16 and 17 2010, with a community of thousands, I'll walk the "AVON WALK FOR BREAST CANCER" in New York City.
I will honor my sister, Carol, and teh 40,000 people whose lives will be cut short by breast cancer this year.
Please help me and all who are impacted by breast cancer, by making a donation payabel to"Avon Walk for Braest Cancer". It's easy-no walking involved. Your ta de-ductable donation will help me reach my 2000.00 fundraising goal.
Please mail or place your donation in my mailbox at.....................
Uggg, my DH got the mail and was so annoyed by it. I know it's good she's involved with fundraising, but, please.............. Could she have sent me a card or something????? But a form letter with a pretty pink ribbon on it. I've been depressed enough this last year, but this just freaking burns my butt.
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Barb
Comments
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I have a neighbour who does a walk here too, and always drops hints for us donating money for her. I just say I've donated enough already...(like a breast, my hair, etc)
Yep, I agree, it was in poor taste.
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I would be fuming. Is it at all possible that she didn't know you had breast cancer?
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Shana.....how unbelievably insensitive!!!! Could she have atleast sent you a personal note, or better yet a phone call!!! No that would take effort....
I do the RFTC and last year crewed for the Komen 3 day and will do so again this year.....but that is for me.... When I donate money its because I want to not because someone has tried to guilt me into it....and I've been known to donate in my honor!!! There is one small BC "charity" in NY that was started by a survivor....one time I donated in honor of myself and she wrote a personal note on the thank you letter....
Didn't mean to hijack your thread....like Kerry said, your neighbor has no tact!!!
Sending you hugs, Karen
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You're posts got me worked up. Now I'm going to rant:
What irks me is the hospital sending me requests to donate while I'm still getting treatment there. Like I'm not giving them enough business already!
The year I was diagnosed, one of my boyfriend's coworkers, whose wife has breast cancer, was collecting money for a breast cancer walk, and my boyfriend wrote him a check for $100. He never even got a thank you. What are people thinking?!
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I belong to a neighborhood association, and after speaking to two neighbors that have kept in touch with me to see how I am doing, I know she was aware that I hav BC. Ok, so I am sorry her sister "lost her battle with this hideous disease" but anyone with an ounce of common sense and compassion wouldn't write about it on stationary with a huge pink ribbon with my name in it, and proceed to tell me about the person who fought long and hard but "didn't pull through" Uh well I'm sorry but cancer is not the pretty pink battle that everyone wins. WTF, am I supposed to feel all fuzzy and pink and cheery because she sent this letter out with my name written across the pink ribbon??????
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Crap Barb, sometimes people do the dumbest things without thinking. I think you all that said "we've donated enough for now---i.e. my breasts, hair", etc. had the PERFECT comback!
Side note to Alicia, I got a letter just yesterday from Johns Hopkins where I was treated (and plan on recon there) asking for money. For God's sakes, they are a University hospital and I had to sign releases for them to use my case and body parts for research---isn't that enough????Sheesh!
Love you all!
Sharon
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that is crazy....I am sorry that happened to you. Send her a note back and tell her hwo you feel. ( in a nice way of course:)
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Pup, Alicia, I know right? Don't we donate enough because of this disease?? Pure, Oh I really want to respond back to her but am not sure how to word it without offending her. Insn't that pathetic?? I'm always the one that worries about hurting their feelings!!!

Barb
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This kind of reminds of two friends who were supportative during my journey. However, when they go for yearly their mammogram, I get to hear how concerned they are and then report back that all is wonderful and clear for them. Don't get me wrong - - I'm glad they are cancer free but they don't need to rub it in like I'm defective. I had no family hx and was completely taken by surprise when diagnosed. Also, comments about so many people dying of cancer. Duh.... do you think I'm not aware of that fact.....
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I'd write back: Thank you for raising money for the event in your sister's memory. However I have donated my breasts, my hair, my dignity and quite a lot of money as of late due to medical bills related to my breast cancer. I hope I don't become one of those people who die of breast cancer like your sister did. While I am unable to fund your mission you have my best wishes as you do your walk.
Clueless people, gotta love em.
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Suz, that was awesome. I'm hoping to get some more suggestions from some more ladies here,and I will then use some of the comments in my response to her. Thanks so much. I really want to let her know that we with BC do not need people telling us about their dead so and so who "lost the battle"

Barb
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Shanagirl I so agree with you. I have had so many people, both men and women, tell me about a family member or friend they know who died of breast cancer. I mean how are we to respond to those comments? I had someone tell me his sister was diagnoised with breast cancer ten years ago. He went on to say, "She had her treatment and they told her she was fine. Two years later she developed a cough and went the dr. and found out the cancer was in her lungs. She died two months later." This comment was made to me while I was still recieving chemo. I mean WTF? What is wrong with people? Sorry, but I had to vent.....that one has always really bothered me.
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I love Suzca's response. It is polite so it won't alienate your neighbour (if you care) but it also sneds the message that the form letter sent to you was at the very least tactless!
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WHAT A JERK!
I am sitting on my hands so as not to write the response that I would send to her!
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And she also mentions in her letter that there will be "40,000" more who's lives will be cut short..So how the hell is that supposed to make me feel. She talks about her "conviction" to end breast cancer, but she should have more of a conviction to be morse supportive to those who's life has not yet been cut short.

Barb
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You could write back that you've already offered your body for BC clinical trials and research and that is worth more than any money you have in your wallet or bank account. Of course, I don't expect you to every have to deal with BC again but you could use it to shut her up. I use it regularly, even when I was in remission. Shut's 'em up goooood. {{{{{Barb}}}}}
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Barb, I applaude you for not walking straight over there, ripping off your shirt and screaming " I contributed enough thank you!" WOW what an as#ho!e neighbor you have.
So happy for her that she NOW wants to put an end to this terrible disease. She could have helped someone in need by picking you some flowers or cooking you a meal.
I really just hate people. I gotta love how she is drawing out how looooooonnnnggggg the walk is and just hooooowwwwww much she is doing. REALLY? Get real. Reminds me of ppl that just want to do something so that they can say they did. I have met a bunch of them like that.
If you cant be real you cant be my friend.
Sorry, didnt mean to jump in and rant myself, but ya struck a nerve. Love Ya!
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Shanagirl/Barb, I hope it's okay if I slip in here to offer a comment.
I was visiting my mom two years ago this summer, just 2 months after finishing chemo (Taxotere & Cytoxan). There I was, sitting on her sofa next to dh and talking to my mom, when there was a knock on the door. I was in "casual" clothes (T shirt and jeans, flat on one side 'cause I wasn't wearing my foob). Oh, and I was sporting a ball cap to cover my head, which was totally bald from chemo. And my eyebrows and eyelashes were gone by then, too.
In walked my mom's neighbor, all cheerful and perky. She announced to my mom that she was going door-to-door raising money for the upcoming "Relay for Life", in which she was participating because breast cancer is such an awful disease that kills thousands of women each year etc. etc.
As my mom rummaged around for her wallet, I looked at dh, and he looked at me ... and the neighbor looked at the two of us, and said, "Oh, maybe you'd like to contribute something, too?". She knew who we were -- we'd been introduced previously -- but I had no idea whether she knew I'd had cancer.
So I took off my ball cap, showed her my very bald head, and said, "Um, what I usually say at this point is, 'I think I gave already, at the cancer center'." She didn't miss a beat -- she said "Oh, yes, well, then I suppose you really understand what this fund-raising is for, and you'd be especially interested in helping out!".
(grumblegrumblegrumble). I think I just said, "No thanks, I don't think so." My mom slipped her a little money, and she left.
I keep trying to work out something smart-*ss to say to these people.... something that would surprise them and make them realize how silly it is to be approaching us for money, especially if we're obviously still in treatment. I mean, good GRIEF!
The best I've come up with (which I haven't used, yet) is to tell them, in my still-developing syrupy-sweet Southern dialect, how much I appreciate what they're doing, because (as they can probably see) I am one of the people who might benefit from their fund-raising efforts. We need all the research and support we can get, and it does take money ... so, thank you sooooo much for what you're doing to help women like me!". And then just sit there, smiling.
We now return you to your regularly scheduled programming.

otter
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I am going to play devil's advocate here. I walk along with friends and family every year in the Komen Race, and also accept donations. I do this in honor of me and every other person that has been affected by this horrible disease, and we all know it is horrible. I don't know that I think your neighbor was being thoughtless. People are just not sure of how to react to anyone with cancer. I would rather others around me treat me the same as I was prior to this disease, even if that means being thankful that their mammograms are clear. I am blessed to be here today because of people that take their time out to raise money for research. I don't take it personally because I was the one touched to live with this. I truly believe they didn't mean any discontent or maliciousness by this.
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Well said, Nursecal. Its hard. Very hard. But I too would like for people to treat me as they did before. I don't want anyone thinking they have to be on eggshells around me.
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Suz and Otter....I love your comments...you have such a way with words.....Karen
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Gee, I feel really bad. My mom died of heart disease, so when the American Heart Assoc. was looking for a neighborhood representative to send out little pre-made cards about donating money the AHA etc. I agreed to do it in honor of her. Now, I suppose that everyone in my neighborhood who has had a heart attack/bypass surgery etc. thinks that I am an insensitive jerk!
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Not to change the topic too much but what is happening to all the money raised on all these walks, runs, etc? The National Institute of Health does research with tax dollars. The pharmaceutical companies do research can recover up to 75% of the expense of developing the drug in tax credits. Then they have exclusive right to sell the drug at any price for 20 years.
I won't donate to cancer charities unless they are for "less known" cancers where research is underfunded.
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I will donate to mobile mammogram units so poor women can get the breast exams they need.
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I agree that the woman was not intentionally trying to be insensitive....it's one of those cases where you have no idea what it actually feels like until you have been there yourself. A lot of people just don't think. Breast cancer was always one of those things that I never thought would happen to me and the statistics didn't make an impression on me at all. It's a poor admission on my part, but guess I was living in my own little bubble. After I had my diagnosis that the BC had returned and I was Stage lV, I became very active on another message board for Stage lV survivors. I have never been sure what makes you a survivor, but guess it is just the fact we are still here and alive. Anyway, one woman and a friend of hers started a letter writing campaign....they were not asking for a dime, only asking people to take time to write a letter to the president asking that more funding be put into reseach toward finding a cure for breast cancer. The idea was like Miracle on 34th Street...that the letters would be delivered to the White House and the mail would be overwhelming and make a big impact. I was very into it, got all my neighbors and friends to write, asked patients at work, asked strangers on the street and in stores and even gave them stamped addressed envelopes and had a letter typed up as an example as to what they should write. That year I participated in the Susan Komen BC walk and it was when I was having a lot of joint pains and problems with my feet.....I raised over $1,500 on my own and was so proud when I turned in my money and asked if I could hand out information on the letter campaign. I was told that I could not, that they didn't want the walkers to be burdened with a lot of literature and that they were there to walk for the Susan B Komen event, not participate in something else. I was really upset....I was not asking for money and how much does one little envelope burden someone?....plus when they took my envelope with contributions all I got was a thank you and it wasn't even a sincere thank you. They didn't even take time to count it, just took the money and said Thanks, get in line over there. So I was upset, disappointed and I don't know what else I felt. Then that scandal came out about the person in charge at the cancer society who was embezzeling funds and that was when I quit contributing to breast cancer campaigns. I buy breast cancer stamps and that is it for me. I will participate in BC programs and help out with surveys, but no more financial contributions on my part. I get solicitations on the phone and tell them I have my own problems, sorry. The one thing I do always contribute to is any sort of animal cause....SPCA, Humane Society, Best Friends Animal Society, Humane Society of the United States, PETA, you name it. I am a sucker for animals and they aren't able to go for help themselves.
Nursecal, I commend you for taking part in the walks, but my experience just left a bad taste in my mouth.....perhaps it was just a volunteer with no people skills that I dealt with that day.
Ruth, I would not worry about offending your neighbors.....you are far from an insensitive jerk.....you were just trying to do your part. I shouldn't say I don't contribute to anything because I do contribute to the Arthritis Walk, and different causes that my friends have been affected by and participate in.
Notself, Good question, Where does all this money go to? Seems to me they could have made a little more progress than they have by now.
I myself do not like the way everyone is sticking a pink ribbon on their products....maybe they are genuine in wanting to raise money for BC, but I always think the real motive if just to get more people to buy their product. Marybe
Diagnosis: 4/1998, IDC, Stage IV, 0/19 nodes, mets, ER+/PR+, HER2- -
I do think that there a quite a few of us who have been offended by the sheer stupidity and insesitivity of others over our BC. I agree, I don't want to be treated differently because I have breast cancer, but the fact is many of us are treated differently because of our diagnosis. Either, by people using our diagnosis to bring attention to themselves or just to put us in a specific nitch on how we should be with our illness., or for that matter how we should not be. In this case, this women did treat me differently, by sending this letter, and obviously views me as someone soon to die within 5 years, or most likely be one of the statistics in her 40,000 figure. As far as donations to various causes, I have in the past, but dont usually any more. I do believe in volunteering my time and do so regularly for dogs coming into rescue. I never know how much donations go towards the initial cause, so I prefer donating my time to the rescue cause I am involved with.

Barb
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My friends don't treat me any differently because I think quite honestly I have been dealing with cancer for so long, they forget about it unless I am expressing anxiety over scans or doing a treatment that has bad SEs. However, with others if I tell them I am Stage lV, I can see this look of horror in their eyes or worse yet pity, and sometimes they will make comments like Oh you poor thing or something like that. I had one person say to me, My God, you are going to die from that. I wasn't quick enough to respond with So are you one of these days, you just don't know what of. I have been very fortunate in that I have never looked sick so unless I choose to tell someone, most people don't even know I have cancer.
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I had a good and bad experience along these lines. Good: A coworker put a note (obviously written himself, not a canned form) about his participation in a national, well known BC fund raiser. His wife is the same stage as me. I really appreciated his sharing and would not otherwise have reason to talk to him (we work in different departments.) I felt pretty isolated till I heard from him.I appreciated both his candor and low key approach. (Not like he personally solicited us.)
Bad/annoying: A fellow HS grad (not a particular friend) got in touch via FB. Her contract job had just ended.. I suggested she might want to help with volunteer project at our alma mater. (Does not take much time at all, a very minimal commitment.) First she said yes and then she came back with too busy due to family, church and community projects. I was peeved so I dropped the cancer card. Did she ask how I was? Offer to help? Nope! She mentioned her many years participation in a BC fundraiser walk and asked if she could wear a ribbon for me. Amazingly, she was able to still keep things all about her!
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Shanagirl -
I can understand you're being upset at the letter and your reasons why. But had it been one of my neighbors that had done that I it would not have bothered me. I know it's trite, been said before, but it is all so true - each one of us are different.
It wouldn't have bothered me because I would think that at least this person is doing something about her sister's disease rather than the way I acted about it. After losing my sis to BC I just allowed myself to get mad at all the orgs asking for money and all their talking about how so many women are being cured. I felt like screaming. It doesn't end that way for all the BC women and I was feeling that pain firsthand. Too many people have heard the 98% cure rate for early stage cancer and think that the problem is licked. I was feeling ignored and hurt.
After I got BC it really woke me up. All the little gifts that I got from these orgs put together by people I didn't know. Paid for by people I didn't know. All they knew when they put their time and money together was that they were doing something for someone out there who was going through the trauma of cancer treatment. Those gifts (some useful, some not) have meant something to me. It tells me that people do care and it has made me feel ashamed that I didn't put that anguish and emotion from my sister's death to better use.
We each mourn and face death (especially family members) in different ways. Had it been me sending the letter then I would have needed to keep it less personal. Because if the recipient didn't want to contribute I needed to know that it was because they didn't want to contribute to the org or because they didn't like my letter. If I kept it personal then I would be feeling like they were rejecting me and my loss - that my loss wasn't important to them.
Now that I'm a cancer patient I want those request for contributions to be kept impersonal. Don't look me in the eye with the expectation that I'm going to give to your cause because it's related to my disease. It's still my choice to privately donate or not.
For those of you wondering about how this money is used in research you can visit the ACS or Susan G. Komen site and look at their pages on their research programs and what they are funding. I'm not a huge advocate of these types of orgs because they get so big and funds get misused or embezzled. But I will contribute more now that I've been the beneficiary of some of their good work. Just my personal decision.
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AnaCortesGirl, Well said, and I really do agree with you about much of what you said. But I think that the fact that she is a neighbor, who I've known here for 16 years, and been together at all the holiday and political functions in our neighborhood association, barbeques, etc, hurt me. She walked her dog in front of my home everyday, for over a year, knowing I had gone thru this. She never called, or sent a card. I did get calls and cards from some other neighbors I've been closer to, and one cooked dinner for me and the other took me out to lunch. But this neighbor walked by my house every day, knowing we were having problems financially as well, because my husband had lost his job, knowing I had cancer and surgery, Then all of a sudden we stopped at a red light, and she said "oh high!!, how do you feel? you look so great, and your hair is growing back, Call me if you want to take a walk." Then 2 days later she hand delivers this letter and puts it under my door mat. Whatever....... I just thought she didn't need to do that. Even if she would have called me and invited me to go walking and talk, but the impersoanl way she went about bringing the attention to herself. I thought it was odd, rude and in poor taste. And yet I do remember how clueless I myself was before BC. I had no idea what it was all about, and didn't really want to know, only that I knew I would never get it because I always went for anual mams, had no family history,and ate healthy and exercised. Was I in for a rude awakening. I guess none of us had a clue until we went thru it ourselves. So basically we all want to be treated with kindness and dignity when people are dealing with our diagnosis.

Barb
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