help with vit D levels
Comments
-
cs7777,
One of the important findings in my daughters hormone tests was that of her thyroid, and she received the bio-identical thyroid med also. I did find this link.
http://www.beyonddiscovery.org/content/view.page.asp?I=436
They found that a hormone produced by the parathyroid gland is critical to maintaining adequate levels of vitamin D hormone in the blood
-
another link..
http://www.vitamindcouncil.org/
and from the above link...
Vitamin D's Co-factors
Vitamin D has co-factors that the body needs in order to utilize vitamin D properly. They are:
- magnesium
- zinc
- vitamin K2
- boron
- genestein
- a tiny amount of vitamin A
Magnesium is the most important of these co-factors. In fact, it is common for rising vitamin D levels to exacerbate an underlying magnesium deficiency. If one is having problems supplementing with vitamin D, a magnesium deficiency could be the reason why.
Read more about vitamin D's co-fac
-
which is the daily dosage of magnesium we have to take?
-
Hi PreciousTime
You asked about continued D3 supplementation after normal or optimal levels are reached - it seems to be an "it depends" sort of situation (don't you hate that?!
) . I believe the goal is to keep your vitamin D levels in a "normal" range, but as you can see, we all seem to have different inherent abilities to make or store vitamin D in our bodies, so the only way to know is to monitor your levels via blood work and supplement as indicated.
I personally think it's unwise and likely dangerous to decide on your own to take huge doses of *any* supplement without careful research and monitoring.
Nan - I'd love to read more about the hormone/vitamin D link too. Would your daughter maybe have some further information about it? I'm interested in sources showing the connection, since I'm triple negative like she is.
I'm still very unconvinced about the whole "hormone balance" concept, especially with regard to BC. Most of the information I find is from supplement manufacturers/sellers, and so is hardly considered unbiased. Conspiracy theories aside, I'd really like to see some objective evidence.
PS - Gogo_xago - extra magnesium supplementation should be monitored, and dosages depend on your magnesium levels. Like everything, too much of a good thing isn't necessarily healthy or beneficial.
-
Nan, thanks for all that information. I'm glad your daughter is taking charge of her health and doing what she feels she needs to do for herself. All my best to her (and you, of course!).
I'll note that the parathyroid and thyroid are different glands, so your daughter getting thyroid hormone isn't the same as getting parathyroid hormone that regulates vit D in the blood, as you noted. That notwithstanding, indeed the parathyroid hormone (aka PTH) is a well-known part of vit D regulation and therefore of Ca regulation too.
Thanks for including the link to the vitamin D article on the National Academy of Sciences website. It's 10 yrs old now, but it explains in a very understandable way how vitamin D acts, and interacts, in the body, esp focusing on bone health, but with one section on other actions. A really good read, if anyone is interested. A pdf of the entire article, with very nice illustrations, is here: http://www.beyonddiscovery.org/includes/DBFile.asp?ID=91
thenewme, I hear you regarding questioning the hormone balance thing, given that, as you say, most people talking about it are also selling something. I too would like to see more controlled scientific research on this. I do believe it's possible for our bodies to get way out of whack, but we also need to recognize that the natural variations in "normal" levels of hormones (and other chemicals) in our body are really huge. There was a really interesting article in the NYTimes a couple wks ago about the potential benefits and risks of BHRT that highlights how fraught the research field is right now; you can find it here: http://www.nytimes.com/2010/04/18/magazine/18estrogen-t.html. For at least young-ish, non-BC women, it appears that considering taking BHRT is more reasonable than one might think given the outcome of the Women's Health Study in 2002 that people interpreted as "HRT = bad". The article was not focused on possibility of (B)HRT after BC, though.
-
I just got a call from my doctor. My vitamin D levels are now at 54 ng/ml after five months on 4000IU per day of D3. I will retest in another six months. Yes, I am taking 1200 mg of Calcium and 350 mg of Magnesium.
-
Good for you!! I can't wait to be retested next week.
Do you mind me asking what your levels were 5 months ago and what part of this world do you live in? Just curious if you are in a sunny warm climate or like me, winter, winter, winter!! (New England)
-
gogo_xago, The short version of an answer to your question is take your calcium and magnesium supplements in a 2:1 ratio. (RDA is listed as 350mg. for adult women.)
The longer version is that you will find recommendations ranging from 1:1 to 4:1. Well, the thing is that if we all could be tested on how well are intestines are capable of absorbing those minerals, we'd have a better idea. Age, as well as medical factors, and various medicines, can decrease an individual's absorption. That goes for both minerals whether found in diets or supplements.
The longest version of an answer is Google keywords magnesium, calcium, ratio, absorption, balance, etc., etc., etc. and there is so much out there that you will have endless reading on the subject.
--------------------
I have a calcium tablet with 600mg. (the max. you should take at one time) and a magnesium that is formulated at 250mg. I take both of them twice a day. That's not quite 2:1. Close enough for me not to worry too much about it.
-
I have been told not to bake magnesium with calcium....to take them at different times. Any thoughts on this. I also think I read it somewhere. I'll try to find it and see what you gals think.
-
It should not be necessary to take magnesium supplements to achieve high levels. A well-balanced diet should provide all the magnesium you need. Green vegetables, nuts, seeds, legumes and cereals are all good sources of Mg. For example, one cup of cooked spinach will provide 157mg of magesium. Unfortunately, most of us don't eat balanced diets so supplementation may be necessary but keep in mind that you are also getting magnesium from your food, so you shouldn't need to take 500mg/day as a supplement.
Elimar, I see the NIH lists the RDA for adult women as 320mg/day (higher for pregnant women). RDA levels are established by the IOM and they also list the RDA for Mg as 320 for adult women (31+ years). Also they set the Tolerable Upper Intake Level (UL) at 350mg. They say "UL = The maximum level of daily nutrient intake that is likely to pose no risk of adverse effects. Unless otherwise specified, the UL represents total intake from food, water, and supplements." Source.
-
ShirleyHughes, calcium and magnesium can be purchased combined in the same tablet. I have not heard they cannot be taken together.
MaryNY, Once a woman hits menopause, just about every doctor and his brother is recommending calcium for women, I'm saying that women need to consider that the two supplements work synergistically, so if you are going to take calcium it is a good idea to supplement with some magnesium. Are you saying that is not a good idea? I'm not sure if you are in agreement or disagreement. I made a comment that I take 500mg. of magnesium supplement a day. You posted "you shouldn't need to take 500mg/day as a supplement." I am going to disagree with you on that, as I do want to keep a balance between my calcium and magnesium supplements.
-
Makraz,
My original Vitamin D level was 22. After a year on and off 50,000 IU of D2, my level was 30. When I switched to D3 I had a retest after 6 months and my level was 30D2 and 30 D3 for a total of 60ng/ml.
Now that the D2 is out of my system and after another 5 months on D3 my Vitamin D3 levels are 54 and I expect my level to continue to rise until I hit 70ng/ml and will then probably level off. I will continue to have a test every six months just to make sure that what I have read works for me.
I think taking D2 was a complete waste of time.
I live in the South but because I am prone to skin cancer, I don't garden without a hat and long sleeves in the summer. I might as well be in Canada for all the sun I get.
I think 4000IU a day is a reasonable and safe dose for me.
-
Elimar: personally I would be reluctant to take more than the UL of magnesium (i.e., 350mg) as a supplement, esp when I'm also getting magnesium from food. Just because a vitamin or mineral is good for us, doesn't mean that taking more if going to be better for us.
From what I've read, the body copes well and recovers quickly from taking excessive doses of magnesium and toxicity occurs only at much higher doses than the UL. Nevertheless why take excessive amounts if it's unnecessary.
-
Thanks notself. Your story is similiar to mine, except I LOVE the sun and beach, but because of where I live, I don't get to enjoy it that much. I hope your levels continue to rise! I am going to be tested again next week or so, I will let you know what my level is then. I was 20, then 35 after the RX (useless) and 4,000 daily. I know take 5,000 daily. I hope it's working.
-
MaryNY, I imagine each woman on this thread will come to their own conclusion as to which supplements are necessary for themselves, the same as you have. Vit. D has an RDA of 200-600 IU (depending on one's age,) but many women on this thread have been found to have low levels of Vit. D, when tested, and those levels only show an increase when they take daily supplements of 1,000-5,000 IU or more. Taking the so-called RDA was not helping them at all.
As far as your feeling that the 500mg. of magnesium that I take daily (a mere 150mg above the RDA) is excessive, that conclusion has never been reached by anyone other than yourself, including the doctor and lab. that routinely screens my electrolytes.
-
RDA means, as you all know, Recommended Dietary Allowance. What you may not know is that it is only the amount needed to avoid deficiency. The RDA of calcium is the amount needed to avoid rickets and osteomalacia. There is another measure called Daily Reference Intake (DRI) which lists the amount required for optimal health. Unfortunately there has not been research done on most vitamins and mineral to determine DRI.
The RDA for magnesium for women is 320mg. Here is a pdf file that explains the things that affect magnesium. Scroll down for the heading "Intake of Magnesium" for the DRI.
http://www.nal.usda.gov/fnic/DRI//DRI_Calcium/190-249.pdf
The information above is from the USDA and the section on calcium is extremely dated. I suggest that this information be used as a base line for review of other research from other reputable organizations.
-
Notself: Funny, I live in Canada and manage to get quite a bit of sun for about 7 months a year...lol!
Edited to add: After re reading what I wrote it sounded sarcastic, but that's not what I intended...just meant to say that we have our share of sunshine up here so you'd have to cover up here as well!
-
Another thing to consider, ladies, is that chemo depletes the body of magnesium. The oncs I used to work with routinely prescribed 500 to 1000mg of magnesium daily to patients getting chemo and for several months afterward. While you are getting chemo magnesium levels should be checked regularly.
-
NativeMainer,
WOW!! Oncologists who apparently know what they are doing? Chemo depletes the body of everything IMO.
Just found another interesting article, but this was on males.
-
You ladies were so right...I had my Vit. D levels drawn initially seven weeks ago. It was 21.8
My family doc told me to take 1000 IU's daily. You all told me that wouldn't do a thing, so I was taking 3000 a day, and also 1500 mg of magnesium (it's a calcium/mag/zinc supplement).
Just had levels redrawn this week. After seven weeks of 3000, the level had gone up to a whopping 30.2 Oh my goodness....at this rate, it will take a year to get to where it needs to be.
good grief...
thanks for all your advice, ladies...you're the best
blessings..robin
-
Hi all, I just got my vit D blood test again after a 5 month repletion regimen so I thought I'd share that. Since late December, my level rose from 13 ng/ml to (drum roll please) a whopping 60 ng/ml. Yay! "Normal" is generally reported as something like 30-100 ng/ml. So, I'm back to normal. FYI, to get here, I took 50,000 IU 1x/wk for 10 wks (although the first 4 wks were vit D2 inst of vit D3, so not sure that time helped much), and then 5800 IU/day vit D3 for another 10 wks. The GP told me to take just 2000 IU/day after the 50,000 IU/wk part was completed, but my research suggested that wasn't going to be sufficient so I took the larger amount (my research also made me comfortable that more wasn't going to hurt me).
Robinlbe, the good news is that your level is going up, and that you're now at least into the "normal" range. Best to you in raising that to your target level! Sounds like my GP is like yours - pretty conservative and "by the books", which in the case of vit D are very outdated! Mine also told me to take just 1000 IU/day (although after doing the mega doses for 8 wks...I did 10 because the first 4 were D2 from a stupid generic scrip). When I called her to say I didn't think 1000 was enough she said "well, 2000 IU/day is ok, we have data that it's safe, but I'm not comfortable with you going higher." I guess she'll just have to be uncomfortable... : )
notself, thanks for the info on DRI and the link. Very useful.
CS
-
CS, great news! I'm glad your level went up. I am anxiously awaiting my test results. Will share with you all next week.
Soak up some sunshine!
-
I've read over and over again that one should take vitamin D3 with calcium and magnesium. Can you take all 3 together at the same time, or do you need to take one or some in the morning with food, others at night before bed with no food??? What about if you add CoQ10 in to the mix? What about adding in a regular mulit-vitamin (such as women's one-a-day)? All at the same time? With food or without?
-
I take one calcium in the morning and one in the evening. I split my Vitamin D3 into morning and evening. I take the magnesium (one pill) in the morning.
-
weety-- I have to take an iron supplement, so I take that with Vit C in the morning and then I take D3 with magnesium and calcium at bedtime. I've been taking calcium and magenesium at bedtime to help me get to sleep for a long time, so it made sense to add the Vit D to them. I also take Omega 3 morning and bedtime, so that covers the fat necessary to carry the Vit D.
-
Four months after a terribly bad reaction to chemo, I was still feeling fatigued BEYOND fatigue and I am a healthy (was a healthy) woman. Never felt so awful. I went to my PCP and he did blood draws on me. I have never had a problem with Vit because I am a fanatic BUT, he found that because of chemo, my body was no longer producing Vit D (processing it). I am now on prescription of 50,000 Units a week. I also had perniscious anemia (despite iron supplements) and put on higher iron dosage and my thyroid was burned out by the chemo-so on large dose of synthroid to try to jump start things and last, on B-12 shots per week. Cemo messed me up in ways i could not anticipate and needed a docs help to sort it out. Two weeks into the new med program I am finally starting to feel like I can get out of bed and feeling like human being!! Vit D so important but correct dosage so important-and i found out other things were going on that I thought I had under control-like iron. And I was told by my Doc that there are vitamins one can overdose on-this is news to this old hippy chick! Prayers and good luck my dear, but get checked out for real! XXOOO, SV
-
Just got my third results back. Here's are the results in a nutshell:
11-09 tested vit D was 20. Took RX D2 for 12 weeks and also took 3,000IU's of D3. Retested in mid February and went up to 37! Not great but moving in the right direction. I started taking 5,000 IU's and was restested this week and am not at 35!! How the heck did that happen?
The weather is getting nicer so I am spending more time ourside. I waslk outside daily for about 4-5 miles. Just doesn't make sense. Of course Dr. thinks it's Ok because I am above 30. I went to Walgreens today and ordered Vitamin D3 Extreme, 50,000 IU's of D3. Has anyone else used these and if so, what are your recommendations for dosage? Any other advice?
I live in the Boston area and am a BEACH BUM from June through September. I am hoping that will help increase my levels.
Thanks Ladies,
Linda
-
Makraz, can you say what the dose of your RX D2 was and how frequently you took it? And, are you saying that you were taking the RX D2 simultaneously with the 3000 IUs D3 (I assume that was 3000 IU/day)? Note that the blood test is measuring the TOTAL of D2 + D3 in your blood (in the forms of 25-OH-D2 adn 25-OH-D3).
-
Yes, I took the RX D2 once a week for 12 weeks, along with 3,000 IU's of D3 daily. I do believe the test measures both D2 and D3. It's called vitamin D 25-OH.
Linda
-
Hi Laura, I'm going to assume the D2 that you took was 50,000 IU dosage. So there are a couple of things to think about WRT your #s. The straightforward thinking is that you went from 71,000 IU/wk (50,000 D2 + 7x3000 D3) to 35,000 IU/wk (7x5000 D3), which is about half, and the latter was just enough to about maintain you at the same level and not build you up further. That's not unreasonable. Since it was D2 that you took the huge doses of, that muddies the thinking somewhat, since it's not clear that D2 builds up as much or sticks around as long as D3. So that might also contribute to your #s not building up more than they did and also not maintaining better.
From what I've read, it seems that the 50,000 IU doses of D2 just don't seem to "fill the tank" the way that D3 does, and my recommendation would be to repeat your weekly high dose regimen using the D3 that you just ordered. That is, 50,000 IU D3 1x/wk for 8-12 wks, then a daily maintenance dose of a few thousand IU/day. If you really want to get aggressive, you could do 50,000 IU 2x/wk, which I have seen only very rarely talked about in the medical lit, but I personally wouldn't take more than that. Picking a maintenance dose is tough. Standard docs almost always say no more than 2000 IU/day; personally I take around 5000 IU/day based on a lot of reading I did that made me comfortable with that.
Regarding sunshine, remember that you make NO vit D3 in your skin during quite a long stretch in the winter & early spring because there's not enough UVB in the sun to stimulate it. I see you .live in Massachussets, so you're probably only now starting to make D3 in your skin, after not any from approx Nov-Apr. Sunscreen completely blocks it UVB, so if you use sunscreen, then you won't make your own D3 either.
Good luck to you!
CS
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team