Any Northern Virginia ladies on this discussion board?

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2010

    Olive Garden doesn't do call ahead or reservations, so I will try to get there a little early to put us in for seating.  See ya'all tomorrow.  HUGS, Dawn

  • cellardoor
    cellardoor Member Posts: 50
    edited April 2010

    Aw, I hope you all have a great time tomorrow. I'm unable due to financial reasons. Maybe the next one!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2010

     Hey there girls,  Enjoyed meeting the new faces today and seeing the ones I know again.  Enjoyed lunch, glad you all could make it.  We'll plan for another again in a few months.

    REGINA - Next time we want you there for the whole time - nice to meet you even for a short while.

    KIMBERLY - Thanks again for making the trip up from Richmond.

     KATSY - We'd love to buy you lunch so that we can see your sweet face, missed you today.  Next time we want you to make it.

    Here are a couple of pics from today.  HUGS to everyone, Dawn

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2010

    ANGELA (Koryn's friend) - Could you pm me your email so that I can add it to my list?  Thanx Dawn

  • cellardoor
    cellardoor Member Posts: 50
    edited May 2010

    Looks like you all had a good group! Sorry I missed you all. Hugs to all!

  • EngTchr
    EngTchr Member Posts: 184
    edited May 2010

    I'm sorry, too.  I really want to make it to the next one.

    Becky

  • BRCA-BRAT
    BRCA-BRAT Member Posts: 89
    edited May 2010

    Hi Ladies.  I had my bilateral, skin- and nipple-sparing mx with DIEP recon last Tuesday.  Surgery was 10 hours, recovery room was 2 hours, then ICU for one day.  Came home Friday evening and have done well.  I have four drains, one for each breast, and one on each side of my abs.  Also have a Q-ball surgically attached beneath the ab skin to deliver continuous pain med.  7 incisions total - the four drains, one under each breast and the very long, hip-to-hip from the diep flap.

    The incision under each breast are left wide open, with petroleum guaze over, then covered with tegaderm.  We changed that dressing last night - what a freaky experience to see a hunk of flesh shoved inside my breast skin.  But the overall outcome looks great, considering they are still very swollen and black, blue and red all over.  Better each day.  Pain is managed.  And pathology showed no breast cancer so I feel very blessed.

    Hope to see you all soon.

    Regina

  • EngTchr
    EngTchr Member Posts: 184
    edited May 2010

    So glad to hear your great path news, Regina!  Take it easy and good luck with your recovery!

    Becky

  • BRCA-BRAT
    BRCA-BRAT Member Posts: 89
    edited May 2010

    Becky:  Thank you for your post.  I hope to make it to the next lunch gathering.

  • DCMom
    DCMom Member Posts: 624
    edited May 2010

    Regina,

    So glad you are on the road to recovery.  The lunch was wonderful and I only regretted missing the earlier lunches.  I'll be anxious to see you at the next with your new girls.  The best thing was just getting to chat about our normals (kind of like a mom's group talking about baby issues).  These were also about the most welcoming group of ladies I have ever met...we have a lifetime common bond and I consider them friends already.

    Thank you so much to Dawn for getting us all together (by the way I have to comment how wonderful her girls look!)

    Susan

  • Ang7
    Ang7 Member Posts: 1,261
    edited May 2010

    Hi ladies,

    I bugged my onc. to test me for Vit. D levels.  I told her "All the ladies at the lunch were on Vit. D why haven't I been tested?"  My number was an 18 and she put me on 50,000 at 1 pill a week for 8 weeks.  Am waiting for my hernia surgery to be scheduled as I was too anemic to have it last month.

  • BRCA-BRAT
    BRCA-BRAT Member Posts: 89
    edited May 2010

    Ang7:  Let us know when you have a surgery date.

    Susan:  I look forward to meeting you.

  • olivia218
    olivia218 Member Posts: 257
    edited June 2010

    I live in Arlington and had a MX in Feb. I would love to join you all the next get together.  

    Olivia 

  • thriceblessed
    thriceblessed Member Posts: 39
    edited June 2010
    Anyone else in the No VA area battling severe fatigue?  I sure am.  George Mason University is studying fatigue in breast cancer survivors - focusing on recent data suggesting that some markers in the blood may help explain the causes of fatigue. I saw the flyer at my P.T.'s office.   They're looking for participants in their study.  I have an appt there this week.  If you're interested in learning more, contact Patrice Winter, pwinter@gmu.edu
  • EngTchr
    EngTchr Member Posts: 184
    edited June 2010

    Sorry to hear about your fatugue problem, thriceblessed.  It was rough for me last summer and fall when I was having chemo and radiation, but things seem to be better now.  Stiffness seems to be one of my biggest complaints.  Takes a long time to get moving.  I don't know how much Femara contributes to that.  My onc says the more I exercise the better it should be.

    Did anyone do the Susan Komen race last weekend?  I didn't, (maybe next year) but I loved the article in the Post on Sunday about all the T-shirts.  The paper mentioned all these: 

    "Yes, they're fake.  My real ones tried to kill me."

    "Operation Support 2nd Base"

    "Stop the War in Myraq"

    "Save the Tatas" 

     "Walkers for Knockers"

    I had my last Herceptin Monday and am getting my port out today.  Hurray!

    Becky

  • Ang7
    Ang7 Member Posts: 1,261
    edited June 2010

    Hi all,

    They have scheduled my hernia surgery for next Wednesday, June 16th.  If you would think good thoughts that day around 11:30 that would be appreciated...

    My doc said it should be "a piece of cake" compared to the DIEP...

    Thanks!

  • GramE
    GramE Member Posts: 5,056
    edited June 2010

    Good thoughts and prayers for speedy healing, Ang.   Hugs, blessings and all good things for all, Nancy

  • Ang7
    Ang7 Member Posts: 1,261
    edited July 2010

    Hi ladies:

    Well, the hernia surgery is done and I am getting my strength back...

    "What are you going to do after all your treatments are done?  I am going to Disneyworld!"

    We are heading to Disney on Monday. (first time for the kids...)

    I just hope I have enough energy to keep up with all of them.

  • GramE
    GramE Member Posts: 5,056
    edited July 2010

    There is a meet up in October in Williamsburg - go to Gatherings and the info is there.   Too far ahead for me to know if I will go or not, but I have never been to Williamsburg...

    Hugs and good thoughts for all.    Nancy 

  • wellsey66
    wellsey66 Member Posts: 34
    edited July 2010

    Greetings everyone

    I live in Burke, Va.  I would love to join your group.  I was diagnosed on April 16, had a lumpectomy on April 28 and started chemo on May 27.  I just joined the May 2010 chemo group.  I am getting TC @3 weeks X 6 and then will get radiation.  I go for my third chemo this week.  Yea!  I will be half way through!  Have any of you been to the Life with Cancer Family Center in Fairfax?  They offer a lot of classes that are free to cancer patients and their families.  I couldn't find the info on the meet up in Williamsburg if someone could head me in the right direction.

  • EngTchr
    EngTchr Member Posts: 184
    edited July 2010

    Hi wellsey66, and welcome.  Sorry you have to go through it all, but this is a great group of women to be in touch with.  I live in Herndon and went to the Look Good Feel Better session and the Life with Cancer Family Center.  The woman who did it was great and I enjoyed it a lot.  They do offer a lot of different classes and it's a beautiful facility.   Everyone is very welcoming. 

    Sorry, I don't know anything about whatever is in Williamsburg.

    Becky

  • GramE
    GramE Member Posts: 5,056
    edited July 2010
    Hello All. I have made the arrangements for the 2010 October BCO Chatters get together in Williamsburg, VA. October 7, 8, 9.  Please email me for details if you don't happen to get an email. I send info via email to all that I had email addy for, and am hoping that others are fwd it around. jterryo1@prodigy.net. There are one and two bedroom condos so several people could share or go solo. Got a good weekend rate. You will need contact info for rental place and key word for discount so if you didn't get the email, contact me. More info to follow about activities.
  • GramE
    GramE Member Posts: 5,056
    edited July 2010

    PS, this is not me who made the arrangements.  It is TerryO.   

  • EngTchr
    EngTchr Member Posts: 184
    edited July 2010

    At the last luncheon (I wasn't there) did you make plans for the next one?

    If not, how about late August or early September?  It's been a while and I'd love to see everyone.

    Becky

  • imatthew
    imatthew Member Posts: 206
    edited August 2010

    hi everyone, has anyone worked with Dr. Mark Venturi in McLean for their reconstruction?  We've heard wonderful things about him and are meeting with him soon to discuss DIEP reconstruction.

     Thanks! 

  • BrandonMom
    BrandonMom Member Posts: 412
    edited August 2010

    I'm planning to attend the Williamsburg get together!  I hope others make it as well. I'm not going to stay at the resort, but I'll be at a hotel close by.

  • wellsey66
    wellsey66 Member Posts: 34
    edited August 2010

    imatthew... i just asked for a PS referral from my surgeon and he gave me Dr. Mark Venturi.  I haven't made an appointment yet.  I have a gyn appointment tomorrow and thought I would ask her.  I am looking for breast reduction in the other breast since I had a lumpectomy.

  • imatthew
    imatthew Member Posts: 206
    edited August 2010

    Hi all, has anyone worked with Dr. Edmiston in Fairfax, we've heard she is one of the top primary surgeons in the area.   thanks!

  • BrandonMom
    BrandonMom Member Posts: 412
    edited August 2010

    I went to Dr. Edmiston twice.  My experience is that she is probably a great surgeon, but I did not like the way she treated patients.  The first visit I thought she was just having a bad day.  The second visit confirmed that in my experience, dealing with patients is her least favorite thing to do.  She hated answering my questions, as evidenced by her condescending answers.  She was extraordinarily late for both appts, which I normally wouldn't mind, except that I think it further demonstrates her lack of consideration for her patients.  I felt that if she loves what she is doing, she would also enjoy talking about it and explaining. I only asked her to explain the lymph node removal and what lymph nodes would be removed.  She was dead set that I need to have the sentinnel node test, even though we already knew I had positive nodes from a fine needle aspirate of an enlarged node. It would have just been a painful, useless procedure.  My only guess is that she wanted to show a student how to do the sentinel node testing.  I left her office and never returned.

    I ended up at Johns Hopkins because they would cover both the surgery and the plastic surgery as in-plan on my insurance, and were awesome.  I did meet with a really nice surgeon that I would have used if I could get a plastic surgeon on my plan in the northern Virginia area.  She definitely seemed to thoroughly enjoy what she is doing and wanted to make sure all your questions were answered.  She does surgeries at both Reston and Loundon.  Her name is Dr. Chiantella.

  • hd1017
    hd1017 Member Posts: 24
    edited August 2010

    Hi, imatthew, 

    I saw Dr. Edmiston in 2008 after my first diagnosis of DCIS. My GP recommended her. She tried to hurry through our consultation, and tried to hurry my mastectomy surgery, saying it needed to be scheduled for the following week, even though she said I may have had DCIS for years. I requested a breast MRI, and good thing too. The invasive cancer ended up being in the other breast! In the meantime I did some research myself, and found a team of surgeons at Georgetown, who I love. 

    PM me if you want more details.  

    Best of luck with your decision making.

    Helen 

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