Class of 2010

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  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    irish47,

    Hard to be teenage girls without mom.

  • irish47
    irish47 Member Posts: 109
    edited April 2010

    yep Teka, and my girls 20 and 18 (my son is 13).  No good age to lose a mum, I count my blessings every day. But hate this xxxxing disease! Even though in the greater scheme of things i have got off lightlly.

  • LINDAGARSIDE
    LINDAGARSIDE Member Posts: 345
    edited April 2010

    Hi Pink Peeps...Alas, the moonwalker is also tired.  Not of doing the moonwalk, but more from shuffling too and from radiation appointments.  I think it's called "Radiation Fatigue".  Let's make up a new dance step for that, shall we?  Perhaps one where we're lying on our backs on a recliner and our foot jerks up for no reason from time to time.  LOL.

    I will be seeing the radiologist oncologist (not sure if that is what her title is or not...but it sounds good) tomorrow and will find out why they wanted to take an x-ray after my bone scan.

    Katie, if they found something behind your eyebrow...why would they make an assumption that it is benign?  Is there some other test they can do to be sure?  I'm just saying that because if it were me I'd be worried all year until the next scan.  I don't know about you but I'm getting pretty tired of worrying about things.  I'd like to really move forward and start to put this all behind me.  I'm sure many of you are feeling that way too.  Ok, let's just keep swimming...there is a light at the end of the tunnel...and yahoo...it's not a *#%@ TRAIN!

  • oceancitygirrl
    oceancitygirrl Member Posts: 6
    edited April 2010

    Hi Ladies,

    Figured since I've been finding these boards so informative that I'd give in and join.  I was diagnosed in Feburary and had surgery (lumpectomy & 8 lymphnodes) 2 weeks ago.  My mother has been in remission from BC for over 25 years (Diagnosed at 27) and my aunt recently passed away after a long battle, she was stage 4 when it was diagnosed in her 40's.  I was shocked to find out I was BRCA- with all of that family history!

    I met with the Oncologist today and he is running some additional tests on the tumor to decide if we should do Chemo.  Right now the pathology leads him to think that Hormone Blockers and Radiation will do the trick, however I'm PR+ and only 30 which concerns him so he wants to check a few more things out...totally fine with me!

    Sounds like you are all doing well fighting the good fight.  I'm anxious to get started, seems like everytime I go to an appointment there is always something else they want to check so it seems like the process is dragging out.  I'm sure once I get to start treatment it will go by quickly but I'm a bit impatient : )

    Annette

  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    LINDAGARSID,

    There are so many false-positives on test.   I have hated mammograms for 20 years because I was called back for repeat films, ultrasounds, and (2) biopsies before being diagnosed with BC.   There is nothing worse then doctors that over react at the patients expense.   I hope my doctors use good judgement with my BC treatment.   Worry can be worst enemy.   Let me put it another way - if only if only the hair on my ass was spun gold I would be rich!   The day is coming when we move beyond our BC.

  • perky
    perky Member Posts: 241
    edited April 2010

    Linda, You slayed me with the TOB! So true! I also agree that I would have been happy to get a makeover any other way or not at all but since I have plenty of lemons... No need to keep complaining about the things I can't control.

    Annette, Welcome!

    Katie, If you have EVER had a sinus infection, you would be amazed at the areas that scar. Hoping that puts you at ease but if not, you can insist on a biopsy.

    Irish, I am so sorry. 

  • cathyqk
    cathyqk Member Posts: 19
    edited April 2010

    Damn I wrote a bunch of stuff and I went back a page to check what someone wrote and it all went away!!!  #$%&&^$!!!!!!

    Welcome Annette!! Let me be first to say I think you will not regret biting the bullet!

    LauraM and Arubajan..  My fingers are crossed for you as you join in the chemo fun and games.. 

    I have to say Pickles I have think week one was a lot harder than I expected.. maybe not as hard as yours.. my tongue hasn't gone weird and I have no welts.. BUT I crashed hard day 1 post chemo and I have been struggling since..  Lot of pain in my back and general discomfort in my mid section... Barely made it to work Monday / Tuesday.. and didn't even bother today. Have been in bed all day since I got back from my injection... hoping most of it is due to the injections.. and will be all better once they start... 

    Katie i would also get the def on that "thing" under your eyebrow.. but otherwise very glad to hear all well!

    I'm looking at wigs tomorrow at the cancer center attached to the hospital.. I think I too have left it late.. Hoping for a little fun with the fitting part!

    Ladies you are all keeping me going more than you know!

    Thanks PinkPeeps! 

  • cathyqk
    cathyqk Member Posts: 19
    edited April 2010

    Darn.. one of the things I wrote and that got erased was how sorry I am Irish for your loss. Ar dheas De go raimh a ainm.

  • ttechred
    ttechred Member Posts: 5
    edited April 2010

    I am new to the Class of 2010.  Had a core biopsy done Monday - preliminary result was positive.  Decided to pick up a copy of the pathology report today - invasive poorly differentiated ductal carcinoma.  I have an appointment with the surgeon Friday to tell me what happens next.  The scary thing for me is that my mom died at age 39 (I was 7) with breast cancer that had mastetized (sp?) in her bones.  I have two daughters - 11 and 13 - who know I'm being tested, but don't know yet that it was positive.  Husband and I plan to tell them Friday after school.   I am definitely scared of what lies ahead, but reading the survivor stories here is very encouraging.

  • LINDAGARSIDE
    LINDAGARSIDE Member Posts: 345
    edited April 2010
    Welcome ttechred to the club I'm sure you never wanted to belong to.  This must be quite scary for you as you've had quite a history with the beast already...and at such a young age.  I am so impressed with your spunk.  You went and picked up your report...didn't wait for someone to hand it to you...and now have a game plan in place for telling the kids and are moving forward to the next step.  Something tells me you are quite a little fighter.  Welcome aboard soldier.  You are in good company.... and we're all here for you...try not to be too scared.  It's easy to say I know...but if it helps any...I too was VERY scared when I first started down this path.  That seems like so long ago and it was only 5 months ago.  It does get easier and you are absolutely right...reading all of the wonderful stories helps a lot.  I'm sure your story will become one of them.  Take care and remember...don't worry until you've got something to worry about.  
  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    oceancitygi and ttechred,

    WELCOME!Smile

  • etk02038
    etk02038 Member Posts: 150
    edited April 2010

    Pickles...sorry you had such a bad reaction a white swollen tongue does not sound like fun.

    Katie...I have the same feeling about this never ending. And I had a mild headache for my first 2 weeks of radiation. They said radiation would not cause this. But I checked out the rads postings and a lot of women were complaining about headaches. Drink lots of water, it could be dehydration from the rads. 

    I have 9 rads to go and still waiting for results on pelvic ultasound for whatever is wrong with my ovaries. Again the waiting game!

    yah...I think I will be a man next time too...what the heck, why wait? Will just go in for a sex change!

  • Pickles
    Pickles Member Posts: 80
    edited April 2010

    ETK-

    You made me giggle!  Yea!  I don't think a sexchange is covered under our insurance though... My ovaries often swell when i am ovulating and can develope a cyst at that time that disappears over time.  I had a partial Hysterectomy in 2007 and still have both ovaries.  It's pretty common and should show on the ultrasound.  Don't be suprised if they have you come back for a follow up in a month.

    Welcome to the new ladies!!  We're here for the long haul and always ready for questions! 

    Cathy! 

    Glad you don't have swollen white tongue..."maybe I should change my name from pickles to white tongue?"  but sad to hear you are feeling so yuck! 

     I have to say it's day 8 post Chemo #1 and I think I've turned a corner.  The amazingly ugly rash is slowly going away and my tongue is now a normal size and color!  Hurray!  I did have to get to the rest room rather quickly this morning, almost stepped on a cat on the way. but after that, breakfast actually tasted good and has stayed in my stomach for an hour!  whoo hoo!  I'm celebrating the small wonders today!

    Strength and peace to you all today!  I'm off to take in some sun!

  • LINDAGARSIDE
    LINDAGARSIDE Member Posts: 345
    edited April 2010

    PICKLES!   So happy to know you are turning the corner...yahoo....I guess the saying  "this too shall pass" is very true.  I had to laugh when you mentioned almost stepping on the cat.  We have two of them (Tex and Charlie who are brothers but look nothing alike).  I often find Tex under my feet and for some reason his tail ofen seems to get caught in the sliding door.  Poor thing.  He never learns though and continues to hover at our feet and doesn't seem to remember he has a tail when he goes out the door. 

  • retrievermom
    retrievermom Member Posts: 522
    edited February 2011

    As for "stepping in it or on it," at least it was almost the cat.  Last night, my pup brought in something from outdoors.  I pried open her jaws, said "drop it" and it was a large, dead mouse.  Told her if I'd wanted a ratter, I would have gotten a terrier.

    Welcome to new folks.  You will find great gals here to buoy you up in hard times.

  • LINDAGARSIDE
    LINDAGARSIDE Member Posts: 345
    edited April 2010

    Hi pink peeps...please join in with me as I shout "Hurrah".  Thank you.   I'm asking you to celebrate with me that there was no cancer found in my bones.  What was found was some extra bone growth or spurs or something like that (I have to admit I didn't listen too close after she said "all clear").  She explained that is why I'm having back pain and that she will refer me to my GP for helping with treatment for my back...as it is NOT cancer related at all.  Yahoo.  I'll suffer through until all the cancer treatments are over and then pay a visit to my GP. 

    Hi Annette and welcome to the club.  Look forward to your posts and to being a support for you.  Sounds like your mom will be able to give you a lot of guidance as well.  I can't even talk to my mom about it...she says it gives her shivers up her spine to think about it.  What can I say?  She is French Canadian.  Not that I mind French Canadians...it's just that they can be whacky at times...LOL  My mom is 85 now and still going strong.  She has been very upset this year as four of her seven kids have been diagnosed with some type of cancer in the last few years and she thinks she must have done something wrong...but we've all tried to tell her different.  Oh well...what can you do?  I'm just so happy I still have my mom here.  I love her to bits.  We're going on a cruise to Alaska in May and she is coming.  I think we'll be sharing a room as my husband isn't going to come. 

  • LINDAGARSIDE
    LINDAGARSIDE Member Posts: 345
    edited April 2010

    Hi pink peeps...please join in with me as I shout "Hurrah".  Thank you.   I'm asking you to celebrate with me that there was no cancer found in my bones.  What was found was some extra bone growth or spurs or something like that (I have to admit I didn't listen too close after she said "all clear").  She explained that is why I'm having back pain and that she will refer me to my GP for helping with treatment for my back...as it is NOT cancer related at all.  Yahoo.  I'll suffer through until all the cancer treatments are over and then pay a visit to my GP. 

    Hi Annette and welcome to the club.  Look forward to your posts and to being a support for you.  Sounds like your mom will be able to give you a lot of guidance as well.  I can't even talk to my mom about it...she says it gives her shivers up her spine to think about it.  What can I say?  She is French Canadian.  Not that I mind French Canadians...it's just that they can be whacky at times...LOL  My mom is 85 now and still going strong.  She has been very upset this year as four of her seven kids have been diagnosed with some type of cancer in the last few years and she thinks she must have done something wrong...but we've all tried to tell her different.  Oh well...what can you do?  I'm just so happy I still have my mom here.  I love her to bits.  We're going on a cruise to Alaska in May and she is coming.  I think we'll be sharing a room as my husband isn't going to come. 

  • KatieMom
    KatieMom Member Posts: 127
    edited April 2010

    Hurrah Linda!  Don't want to find that nasty c thing in your bones!  or mine, or anyone's!

    Cathy - how are you feeling today?  Did you get to work?  I am worrying about you.

    Felt better today, think maybe the bone can injection brought me down a little and it wasn't all the rads or maybe my body is adjusting?  Who knows any more?  I used to be so in tune with my body...  Now?

    Katie 

  • oceancitygirrl
    oceancitygirrl Member Posts: 6
    edited April 2010

    Linda,

    Omg...I know exactly what you mean!  When I first told my mom she automatically assumed my diagnosis was her fault because she had BC also.  Ridiculous.  Though your family having a lot more incidents is scary!

    The one good thing that came from my mom's BC was because she was 28 at the time, my doctors have been very diligant with my exams.  I have had annual mammograms since I was 27 and my doctor though it would be a good idea to do a baseline breast MRI this year.  No reason for the test and that's the darn thing that found it!  Figures.

    I go in for another post surgery check up tomorrow.  I'm trying to make more of an effort to use my arm but I can't wait until I can move it the way I used to.  Or at least raise it enough to shave! 

    Annette

  • arubajan05
    arubajan05 Member Posts: 140
    edited April 2010

    So I have calmed down about the wig issue now... It's funny what a good night's sleep does. The next day I felt better ...  it will all work out.  Thanks for your support and kind words.

    It's funny how I am NOT sleeping tonight though.  It is 2am here in San Diego... I have my first chemo tomorrow at 2 pm.  I really thought that I feel okay about it and am ready for it!  "Gosh, enough of this waiting! Let's get on with it already and MOVE FORWARD!"  but I guess I am more anxious than I thought since sleeping is usual one of my strong suits. LOL .

    Hey irish, that volcano is something!  It effected me way out here in CA but in a good way... my friend from Germany was supposed to go back last Friday after a visit to SD her former home, but she couldn't get out until this morning so we were able to squeeze in a few extra lunches this week! Nice...

    HUGS to all!

  • etk02038
    etk02038 Member Posts: 150
    edited April 2010

    HURRAY! Linda. A deep sigh of relief or you.

    Jan, good luck with your first chemo. 

    One of my pet sitting clients had to cancel her vacation due to the volcano. I was happy I didn't have to sit for them. It meant getting to their house at 6 am, a midday visit and then back at 11 pm. Way too tired for those type of visits now. 

  • LauraM
    LauraM Member Posts: 251
    edited April 2010

    oceancitygi and ttechred - Welcome to this wonderful group!  We are here to help and support you any way we can.  For me, the hardest part was all the decisions in the beginning and waiting on all the results.  Once I got through that part and I knew the direction I was heading, everything else has been easier to handle.  It hasn't all been easy but it has all been manageable. 

    Katie - I am glad you got the results of your bone scan but sorry that they had to find something behind your eyebrow.  It must be frustrating.  So follow your gut and all will work out.

    Linda - Glad that your bone scan results were good! 

    All you ladies having chemo - you are  in my thoughts and prayers as you go through your treatments. 

    Chemo Question, are any of you taking multi vitamins or any other supplements during chemo?  I am on a Multi vitamin, extra iron, probiotics and a fish oil, all natural products that I started when I was having issues healing from my surgery.  They have made me feel great and I have so much energy since I started them.  I was very excited yesterday when my oncologist office said that I can continue taking all of them during my treatment.

  • LINDAGARSIDE
    LINDAGARSIDE Member Posts: 345
    edited April 2010

    Caution everyone!  I was told by the cancer nutritionist recently that patients taking chemo and other cancer fighting drugs should NOT be taking supplements that help their immune system. (Supplements that boost your immune system...they usually are the "oxident" family if you know what I mean).  What you will be doing is helping your cancer live or hide in your cells and resist the drugs that are trying to destroy them.  I know this sounds crazy but when you think about it...the drugs are trying to destroy things in our cells that are trying to kill us...if we fortify our cells, we fortify the enemy that is hiding within.  Check this out if you are not certain but this information came straight from the cancer society here in Canada.  Certainly after wards (when treatment complete) it is critical that we help our bodies and build up our immune system again.

  • retrievermom
    retrievermom Member Posts: 522
    edited February 2011

    Jan  Thinking of you and your first round, hoping everything will go smoothly and you will experience few SEs.  Pre-tx anxiety is normal; as you know what to expect, it should ease each time.  I've found I process a bit more with each visit with my onc.  He's a calming, but matter-of-fact person, and that helps, too. 

    Annette  So good they were following you closely, and that you had that MRI.  Thinking of you.

    I thought my 85 year old mom would be freaked out over my dx, since my oldest sister died of brain cancer several years ago, but she's taken it in stride remarkably well, I guess because she knows of others who've "gone through" bc and are "ok now."  Like it's this hump in the road.  I read all you gals' posts and wish I could do something tangible for each of you, cause I know there are days it feels like nothing will be "ok" again. 

    Linda:  Hurrah, Hurrah, Hurrah!  I hope you can feel the smiles coming your way.

  • irish47
    irish47 Member Posts: 109
    edited April 2010

    Hi all and thanks for the condolences on the loss of my friend.

    Cathyqk,  thanks, - where did you learn the Irish? 

    There have been probs with my rads appts all week cos of the broken machine and parts needing to be flown in from Germany -  have had a two hour wait most days for my rads. Flights all back to normal and so no delays next week :-)

    However the delay has meant that I got talking to other women, normally I am in and out and don't have time to strike up a conversation. What amazed me about most of these women was they didn't know their diagnosis - not even if it was IDC, ILC, DCIS etc. Most knew the grade but still, I can't get my head around having this bloody thing and not doing the research! Guess we are all different.

    No.19 done today and ladies, I am whacked.. TGIF. 

  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    LINDAGARSID,

    List of my daily medications okayed by doctors.   Enablex, Prilosec, Glucosamine/Chondroitin, Multi-Vitamin, Vitamin D-3, and aspirin.   There is no specific guidelines for radiation or chemo.   Big debate among doctors.

  • Pickles
    Pickles Member Posts: 80
    edited April 2010

    Linda-

      I love it when we get to celebrate the good news!  Hurray! 

    Irish-

      I'm sending soothing restful thoughts your way...and no volcanic ash!

    My onc also has me on Vitamin D supplement but no multi-vitamins.  Went for my Nadir blood work today.  My WBC is low, but it's expected.  I am hoping to get it up without the Neulasta shots, so I've got twelve days to  eat lots of salmon, pork and organic beef!  Still have my hair, but plan on buzzing it down on Wednesday.  Not looking forward to seeing my rash ridden scalp, but hopefully most of the rash will be gone by then!  Getting back more and more energy every day!  Actually chased my cats around the yard today.

    Hope we all have a SE free, sunny, spring flower-filled weekend!

  • LINDAGARSIDE
    LINDAGARSIDE Member Posts: 345
    edited April 2010

    Hi pink peeps...don't want anyone to stop taking their vitamin D...that is for sure!  LOL.  But, after talking to the cancer nutritionist, it was very clear that there are some supplements (certainly not all) that are dangerous for patients who are taking chemo or radiation.  You don't want to take things that boost your immune system (there are a host of supplements that do this...I'm not smart enough to know them all in my head...sorry about that!) when you want to get into the cells and do a cleaning or in this case, a killing!  I think this might be a good sort of backward analogy: It would be like spraying raid everywhere in the room and then wonder around with a fly swatter looking for flies to swat.  You can't really find the flies anywhere and you wonder where they went to...PSSSTTT...they are hiding until the smell goes away!    So, I'm thinking lets expose the flies...and not give them any warning that the swatter is comming after them.  Hope this makes better sense than my initial comment!  LOL.

  • ttechred
    ttechred Member Posts: 5
    edited April 2010

    Thanks for the welcome.  Saw the surgeon today.  Turns out the IDC is "textbook."  What's not common is this - in addition to the axillary lymph nodes, it looks like the ancilliary lymph nodes are involved.  In other words, the chain of nodes down the middle of my chest appear to have tissue density changes.  My surgeon is referring me to M.D. Anderson Cancer Center in Houston.  I am fortunate that I only live 1 hour from Houston and will have access to that level of care.  It is frustrating however because all of the test results haven't come in yet, and I still don't really know what happens next. 

    My husband and I told our 11 and 13 year old daughters this afternoon.  It was the hardest thing I've ever had to do, but they handled it much better than I thought they would.  I've had some moments of panic this evening when I can't help but think about their lives if I don't have a good outcome.  Trying to think positively, but I'm still struggling to accept that this is real.  Saw my husband cry today - made me really mad at God. 

  • LINDAGARSIDE
    LINDAGARSIDE Member Posts: 345
    edited April 2010

    ttechred ..  myheart goes out to your husband.  He is in a lot of pain and he loves you very much.  My husband really struggled at first as well.  We've only been married for 13 years (second marriage) and we've got so many plans for the future.  He was devastated and in fact I know he was angry at God as well...which is odd as he often says he is "agnostic". 

    Let the tears flow...they are lubrication for the soul.  If you read some of the posts you will find there are long term survivors who have had much more serious diagnosis.  I'm not saying what you have isn't serious...everyone's case is serious.  I'm trying to gently hug you and encourage you by reminding you that there are many here who have successfully beat back the beast.  Chin up, soldier.

    I will pray for you and your family...for courage, for strength and for joy.  I'm so glad you live near such a remarkable facility...you are very lucky, aren't you?  Yahoo...already something to celebrate!  Take care, pink peep.

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