MARCH 2010 Rads Group

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  • Irishmom
    Irishmom Member Posts: 52
    edited April 2010

    Congrats to those that finished today....hooray so happy for each of you.  May all good health always be with you.  Chat again tomorrow.

    Karthy

  • Mommaof2
    Mommaof2 Member Posts: 112
    edited April 2010

    Sealed Congrats to all finished that today!  I'm so excited for all of you!!!

    Sherri - are you all through today?  I must say I'm a bit envious of you as we were on the same chemo schedule and I still have a ways to go.  But, I'll be finishing up right behind you so all is good. A BIG congrats to you!  I hope you have a big celebration planned for today!

    Cabmom - my onc is scheduling a bone scan for me.  Frown  My hips have really, really been bothering me at night and she wants to rule out any problems.  She said it would be highly unlikely if it is a BIG problem (can't bring myself to say the word) so hopefully it's not anything to worry about.  I just hope it's a combination of working out too much., chemopause and just my poor hips getting old.  We'll see next week.

  • Raili
    Raili Member Posts: 435
    edited April 2010

    3monstmama, I am not driving TOPLESS, silly!! :)  Just reaching up my shirt to apply the aloe!!

    I love your Family Zen idea.  And brushing your teeth while the aloe dries...I will have to try that.

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited April 2010

    Mommaof2 - tomorrow is my last day.  I would have been done today except they have trouble last week when switching to boosts (my anatomy didn't match "the plan") so I missed a day of treatment that got tacked on to the end. Perhaps your sore hips have something to do with lingering effects of Taxotere...just a thought.  I'm sure you'll be fine but keep me posted.

    Sherri 

  • beceen
    beceen Member Posts: 15
    edited April 2010

    Raili

    I can relate somewhat to your experience at radiation treatment and understand that whole gown issue too.   I thought I was handling this whole situation pretty well, but now I'm thinking I wasn't dealing with it.  Today was my 10th treatment and still to have a day where I'm not crying on my way home.  I do pretty well while I'm there and it's fine until they start that machine and I do that breathing technique and can't take my mind off of why I'm there due to the constant concentration.  I will say it's better now, but I didn't think I would ever be able to make it through after the first day of a 45 minute session with the x-rays and then the treatment.  I was talking to a girl from work last night.  She has a very strong family history and she is so worried every time she goes for her annual mammogram and sometimes she has had the follow-up because of something suspicious.  She said sitting in that waiting room you feel so alone.  There is no one that can do anything for you or help you, you are by yourself and you do what you have to do, doesn't make it easy though. 

    When I come out of that clinic, I just want to grab something to hand on to, even if it is my car keys. 

    So we are alone, but not totally alone.

  • Raili
    Raili Member Posts: 435
    edited April 2010

    beceen, sorry to hear you've been struggling with rads, too!!  I know what you mean, sometimes it feels like you're handling it just fine, and then sometimes you're NOT... it's been up and down for me.  I think it was after my 10th treatment that I had a full-on, sobbing meltdown.  It took 2 techs and a nurse to calm me down.  I emailed 2 people for therapist recommendations, including the oncology social worker, and called the breast cancer support group leader to get back on the email list for that, and went to see my oncologist for a prescription for anti-anxiety meds, and even emailed my surgeon to vent about all my troubles (she is so sweet and listens to me and calms me, even if she's not the one who can "do" something about my problems), and met with the rad onc again to have him explain to me AGAIN why I need so much radiation... oh, man.  Sometimes it feels like cancer is my full time job right now. :(

    As for feeling alone and wanting something to grab onto, I know what you mean.  What's been helping me a little bit is my MP3 player with soothing songs, 72% dark chocolate as a mini-reward after every radiation treatment, and reading the Tao te Ching.  I also find it helpful to stuff my jeans pockets full of little love notes from friends and family, photos of loved ones, crystals and stones, and various little things that friends have given me, like a tiny angel figurine and a piece of lucky sea glass.  I try to focus on this love instead of the terrifying radiation.

    Also, I have been parking my car a half hour walk away from the hospital, and walking to and from the hospital as many of the days as I can.  Getting a pedometer made walking more exciting, ha.  Also, the techs laugh because they can tell which days I've walked to the hospital because my chest is all sweaty when I take my shirt off.

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited April 2010

    I'm not sure any of us really get used to the treatment.  I cried the first day when they were doing the set up and also got very emotional week before last when I met with the rads onc. He prescibed Ativan, which I take at night before bed. It freaks me out knowing that when I'm being treated, the red lights are flashing saying "Radiation - DO NOT ENTER" "Doors closed"...because I know I'm inside where nobody can go. Hang in there ladies, we'll all get through it!

    Sherri 

  • charmainejensenvoisine
    charmainejensenvoisine Member Posts: 369
    edited April 2010

    I actually cried like a baby on my last day of radiation.  On my last day as I was walking into the treatment unit, all the ladies said to me 'congratulations your graduating today' and I started to cry, cry and cry some more.  They all hugged me, and hugged me more when I left.  Even when I was lying on the treatment table I continued to cry...  the last day of treatment was very, very overwhelming for me.

    My treatment team was absolutely incredible with me the entire month.  So much so, that I ordered a basket for them, filled with 'bunch of fruits, crackers and cheese, tin can of danish cookies'.  I also purchased a nice card to be attached to it.  I was surprised when it was delivered right around time I was finishing treatment, but was happy to see them receive the basket - -  wow was it ever an incredibly large basket.  They were worth every penny I spent on the basket. (did not do this for the chemo team as did not receive the same compassion and support unfortunately).

    So for those of you that have already finished your RADS, was your last day a emotional day for you too?

    Charmaine

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited April 2010

    Charmaine - that's a great idea.  Where did you order the basket?

  • charmainejensenvoisine
    charmainejensenvoisine Member Posts: 369
    edited April 2010

    Sherri: I went into my local florist and asked them if they do baskets and they said yes and asked me what I wanted in it.  Sherri, most well known florists will do baskets if you ask them to, just tell them what you want in it and often they will go out and get the stuff to put in the basket.

    Look in the Yellow Pages for Florists and look for advertisements that state they do baskets..

    Another thing you could do also for your team - if you know of someone that does a 'large variety of different cheeses and crackers' and buy a couple bottles of sparkling apple cider to go with it.

    or

    You could contact Subway Sub and they usually deliver - order a platter of mixed meats sub quarter sandwich platter (usually a whole bunch on a platter of quarter size subs)...

    So many ideas...

    Charmaine :)

  • ATeamNana
    ATeamNana Member Posts: 464
    edited April 2010

    Today was my last radiation also!

    Went to work greeted with people in pink, flowers, signs, and Specialty Cookies in Pink Ribbons, Smiley Faces and Spring Flowers...what a great bunch of co-workers!

    My sister goes with me for treatment and she had a bracelet for me to commemorate the occassion as well.

    I was very emotional as well.....it's a weird feeling...knowing I'm done with treatment...So so happy just kind of in Awe! that I made it!

  • TreadSoftly
    TreadSoftly Member Posts: 192
    edited April 2010
    Today was my last treatment too! So delighted its over!  Cant really say I found it that emotional, I just smiled through it and almost ran out of the building!   Smile   Gonna celebrate by going for a nice Italian meal with my fabulous boyfriend this evening, he has been so good throughout this whole ordeal....
  • joanneasiata
    joanneasiata Member Posts: 719
    edited April 2010

    WOW

    So many have finished CONGRATULATIONS to you all

     iIthink Ive done around 19 of 30 im getting redder now and my chest is itchy with lots of little pimple thing there .

    Talking to your boob how cute, lets hope it doesn't talk back,if it did i wonder what it would say to you ?????

    As for emotions, i had a melt down on Monday tears were rolling down my face through the whole process but the staff were great ,Ive had to get bloods done cause of all the pain through my body feels like arthritis lets hope nothing major just swelling in my joints .

    A gift for everyone sounds so nice they do deserve it , i was thinking of baking them a heap of home made choc chip cookies and putting them in a nice jar with a thank you card, $$$$ are a little tight right now so cookies would be nice and also light on my pocket

    Hmmm a gift for me ???? now that gets me thinking , the shock of finding out you've got cancer is worth gold, the price of having surgery is worth jewelry ,the price of having to go through chemo is worth diamonds, the price of having to go through rads is worth putting all that together and its a ring , and now the price of living with the fear of this all coming back again is worth my husband saying yep go for it

    KEEP WELL LOVELEY LADIES

    JOJO

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited April 2010

    DeniseAckerman - congratulations on being done.  I see you are triple negative, too.  I'm glad I'm done today but am a little nervous about treatment  being all over now because there's nothing else us TN's get other than chemo.  

    TreadSoftly - enjoy your meal out with you b/f....you deserve it  My family is going for dinner tonight, too.  I'm looking forward to not having to cook dinner.

    Well I'm off to get ready now for the final zap!

    Sherri 

  • txstardust
    txstardust Member Posts: 599
    edited April 2010

    So many people finished or soon to be finished!  Congratulations to all of you!  I've got 3 more boosts, and I'll be finished on Friday, yippee!  My skin held up very well, thank goodness - since chemo was a nightmare for me, I figure this is the universe giving me a break.  

    I hadn't thought of a gift to myself for finishing treatments - maybe a big block of dark chocolate?  Or specialty coffee - I am addicted to coffee.

    I definitely want to give my rads team something for their kindness and dedication.  I like your idea of baking cookies, Jojo.  I think I'll do that too.

    Hugs to all,

    Shelby 

  • Mommaof2
    Mommaof2 Member Posts: 112
    edited April 2010

    A BIG CONGRATS to all that have their last treatment today!  WHOO HOO!!!  I hope you all go out and celebrate!!  Even though I still have a couple more weeks to go, I'm already planning what I'll do after my last appt.  I'm going to let both of my kids play hooky that day, so that my family can all be there when I ring the gong, then out for a nice lunch and if the weather is nice, maybe we'll go to the zoo. Smile

    Sherri - thanks for the words of encouragement, I'll keep you posted about my scan.  CONGRATULATIONS on finishing today!  FINALLY through!  You must be so relieved!

    JoJo - I'm right behind you on treatments. today is #18 for me.  I also have the itchy spot thingys on my chest.  My nurse gave me samples of XCLAIR cream to try out, so hopefully, that will calm the itching down some. 

    Happy Wednesday to everyone.Smile

  • fan2544
    fan2544 Member Posts: 22
    edited April 2010

    Hello all~ More congrats I see for those finishing!

    JoJo: there were so many people to thank at the Cancer Centre where I did my Rads that I did do a thank you card but also found some little cute clear candy bags at a gift store and filled them with Hersheys "Hugs" & "Kisses" and tied a bunch of the bags up with some pretty pink ribbon. Seemed to go over well and not too pricey but done with love.

    Take care all..................Smile

  • cabmom
    cabmom Member Posts: 388
    edited April 2010

    DeniseAckerman, Treadsoftly, and Sugar77.....congratulations to all of you on your last day of treatments.  I know how happy each of you are today.......

    Charmaine, yes it was very emotional for me.  It was actually the first time that I cried at radiation and all of the staff have been so kind to me.  They even had tears in their eyes.  I cried almost the entire time I was on the table.....it just hit me like a ton of bricks as I was laying there that this was my last time and I was overcome with emotions and I couldn't control them at all.  As hard as I tried to stop.....I just cried harder.  It was quite a day!  So thankful to be done. 

    Hope everyone else is having a great day and all the rest will be over soon.......

  • Irishmom
    Irishmom Member Posts: 52
    edited April 2010

    So happy for all that finished today. A big hug to all of you.   Just wondering for some of the girls who finished a few weeks ago - how is the healing coming along and has the emotions gone back to normal.  I fell like I can cry so easily now and I'm wondering will that ease once the radiation is done.  Hope everyone is enjoying there day.  Kathy

  • schipmom
    schipmom Member Posts: 119
    edited April 2010

    OK, so I had the set-up for my boosts today.  My chest now looks like it has a giant bulls-eye drawn on it.  They used markers and told me to be sure not to wash them off.  Now how the heck, short of not showering for the next week and a half, am I supposed to keep these marks on???!!!!  Does anyone that has already gone through boosts have any tricks or ideas as to how to keep these things from coming off?  My poor little SB definately deserves a treat after what she's been through :-)

  • MaryNY
    MaryNY Member Posts: 1,584
    edited April 2010

    Hi Deb:

    My experience was that the marks do not wash off too easily unless you rub soap on them or scrub them while they're fresh. It's almost two weeks since I finished rads and now I'm trying to get rid of the marks and they are still there, but fading.

    A couple of days after my markup, I was a bit too liberal with the aloe vera gel and the marker started to come off on my t-shirt. The tech reapplied the marks the following day. After that I was careful not to ge the aloe on it. I would smear the aloe on the rest of the breast, then put a couple of spots inside the marked area and spread that with a cotton bud, avoiding the lines. That worked well.

  • cabmom
    cabmom Member Posts: 388
    edited April 2010

    Forgot to ask the onc but I'm assuming it's okay to start using regular deodorant.....does anyone know for sure?  I know....dumb question but I figure better to ask than be sorry :)!

  • MaryNY
    MaryNY Member Posts: 1,584
    edited April 2010

    cabmom: my discharge instructions said "it is very important to continue with your daily skin care routine for at least three weeks following the end of your treatment course." I take that to mean that one should avoid deodorants or use Tom's of Maine or Crystal Stick only for the first three weeks. And of course continue to apply aloe vera or your slather of choice.

  • cabmom
    cabmom Member Posts: 388
    edited April 2010

    Thanks Mary....I didn't receive discharge instructions but I appreciate the information.  I think I might be rushing things because I just want to feel COMPLETELY normal again!

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited April 2010

    I'm done....yay!! I didn't receive any discharge instructions. I'm curious when I can start my antioxidants again.  Does anybody know?

    Congratulations to TreadSoftly, who also finished today. Mommaof2 - you're nearly there!

    Charmaine - I ended up buying a box of Laura Secord chocolates for the rad techs. They were very appreciative.  There were all so sweet. 

    Sending good vibes for minimal discomfort to everyone on this tread. We're off for our celebratory dinner out.

    Sherri 

  • beceen
    beceen Member Posts: 15
    edited April 2010

    They use marker pens for my rad treatments, and then they put a clear sticker over them which is very flexible and you don't even feel them.  If they start to get a little loose on the edge, they just replace them.  Can shower without a problem.  Only had to have one replaced so far.

  • cabmom
    cabmom Member Posts: 388
    edited April 2010

    YAY.......congrats Sugar77.  Happy to hear that you are DONE :)!

  • irish47
    irish47 Member Posts: 109
    edited April 2010

    Had number 17 today and am exhausted! am lucky to be off work, for those of you working thru this i commend you, dont know how you do it!

  • MarieK
    MarieK Member Posts: 911
    edited April 2010

    I am 11 days PFR (post final rads) and I have to say that my skin is sooo much better.

    As Mary said it is important to continue with the daily (2 - 3 x ) moisturizing with whatever you using during rads and continue with gentle washing.

    Most of the dark patches are "shedding" off and the skin underneath is fairly normal looking.

    My collar bone area - where the skin split - has healed nicely and that skin is nice and pink and normal.

    Just thought I'd share this with those of you that are still in the throes of radiation treatment and wondering about their skin!

    Hugs to all!
    Marie

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited April 2010

    Marie - did they say when you could resume baths or going in the hot tub?

      

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