Now I'm Really Going to Be a Lop Sided Basket Case

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Anonymous
Anonymous Member Posts: 1,376
edited June 2014 in Stage III Breast Cancer

 So I've mentioned on another thread how nervous I've been about the calcifications in my right remaining breast.  And the question of whether or not I should have it removed prophylacticly. I got a lot of good advice from a lot of you with various opinions.Then I saw my BS yesterday and discussed it with himUndecided now I'm more confused then ever.  First he was very against me having it removed because he's just not in favor of it especially after reviewing my January mammogram. Second, he felt that the calcifications they've been watching are not anything to be concerned about.

Well this is where I got upset.  He mentioned something I wasn't aware of previously.  Along with the calcificatons there is a "nodule".  That also is nothing he said.  Now I'm pissed because I kept insisting to him that I fear a new primary developing with these.  He said that's probably unlikely.  Another thing that's freaking me out is that after I saw him I saw my PS for a followup about finishing the reconstruction of the left side.  She's also going to include a little bit of a lift on the right side so there's more symetry with the reconstructed side. I'm having the nipple done and she's going to use the remaining breast for some tissue to build the nipple.  I told her all my fears about the possibility of a new primary, and she was more inclined to go along with my BS opinion.  "And in the event of a new primary developing in the remaining breast" another mastectomy with other reconstructive alternativesYell Ugggh, whatever, bitch, like I'm really going to feel like another reconstruction after all this,  I'm thinking to myself during this conversation.

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Barb

Comments

  • lexislove
    lexislove Member Posts: 2,645
    edited April 2010

    Hmmmm...ok. Try...try not to freak out.

    When it comes to our docs and asking questions about our cases....sometimes we can take what they say  the wrong way.(your BS)

    Remember...your chances of a new primary are low.

    Sorry about the confusion. It would be nice to have an answer huh? But the thing is...noone knows. Noone has that crystal ball.

  • karen1956
    karen1956 Member Posts: 6,503
    edited April 2010

    Shanagirl....((((((HUGS))))))))....if you are not happy with the BS and PS, can you get a second opinion for peace of mind?....I really believe we are the consumer and the docs work for us....we need to feel good about what they tell us....I've fired docs before and have no trouble if I would need to do it again...I fired my ob/gyn who delivered my 3 kids a week before I was scheduled for my ooph and I have never looked back!!!  Hope you get some peace and answers you want.  Hugs., Karen

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2010

    Karen  I know, right?  I'm going to discuss it with my onc first and see what he says next month. I can't feel comfortable about making a decision to finish reconstruction at the end of the summer with this over my head.  I even asked him if I should biopsy the calcifications, and he looked at me like I'm crazy.,  Thinking about it all,  I really want to feel comfortable about his advice, because the very last thing I feel like going thru is another mastectomy and SNB, drains and recovery and facing reconstruction all again.Frown

    image

    Barb

  • blondie45
    blondie45 Member Posts: 580
    edited April 2010

    Shanagirl - sorry you are going through all that you are. When I talked to the doc that I want to do my DIEP he told me if I really wanted the other breast off he would do it when he did the DIEP and then reconstruct both sides. Problem for me is my insurance currently won't let me see him and won't allow me to take off a nondiseased breast. I agree with the poster that said get 2nd opinions if you are not comfortable.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2010

    blondie45,  I had the "free tram flap" done during the mastectomy.  Reconstruction on the other side would have to be a different type.  The thought of losing my breast at the time was horrifying enough, it didn't occur to me to consider the other one done at the same time. I wish I had though.

    image

  • blondie45
    blondie45 Member Posts: 580
    edited April 2010

    Shanagirl - can you tell me the difference between the "free tram flap" and the "tram flap?"

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2010

    blondie,  the "free tram flap", is done with microsurgery in reconnecting blood vessels and more muscle sparing as in the DIEP.  I had the immediate reconstruction during the mastectomy. When I awoke in recovery I had a "breast" that was warm round and soft and the added benefit of the tummy tuk.  I am happy with it, but would not want to do this all over again .  Below is info about the flap surgeries.

    DIEP Flap,

    SIEA Flap, TRAM Free Flap

    With advances in microsurgery over the last decade, there are several new procedures that are being widely sought after by women. While the pedicled TRAM flap is still the standard of care in the United States, some surgeons have expertise in advanced microsurgical techniques, which provide women with more elegant, optimal solutions when utilizing abdominal tissue. These options allow for achieving better aesthetic results with fewer donor site complications. Nevertheless, these are longer procedures with potential for other complications such as total flap loss. The success rate in transferring tissue in this manner is very high in the hands of surgeons who perform microsurgery regularly, in institutions with experience monitoring these flaps. However, if blood vessel thrombosis (clotting) occurs in the transplanted flap, urgent re-operation is required for flap salvage, or total flap loss will result. Before proceeding, the patient should ask the microsurgeon as to their volume of experience, and their overall rate of success.

    DIEP Flap

    DIEP Flap Reconstruction

    DIEP Free Flap Reconstruction

    Click Image to Enlarge

    The deep inferior epigastric perforator (DIEP) flap is based on the deep inferior epigastric vessels, an artery and vein at the bottom of the rectus abdominis muscle. These vessels provide the primary blood supply to the skin and fat of the lower abdomen. In the DIEP flap, the lower abdominal skin and fat is removed without having to harvest any of the rectus abdominis muscle. Instead, blood supply is provided through the perforator vessels that are teased out from the rectus muscle, using a muscle incision alone. The surgeon will apply judgment in the operating room to determine how many perforators are needed to provide sufficient blood supply for the DIEP flap to survive.

    Once the DIEP flap is raised, a microscope is used to transplant the tissue to a recipient set of blood vessels on the chest wall. The tissue is used to create a breast shape without having to be tunneled under the skin (as in the pedicled TRAM flap).

    In order to avoid using any muscle, it will take longer to harvest a DIEP flap than a TRAM flap. However, this results in the advantage of minimizing injury to the abdominal wall muscle, resulting in less pain, and a lower risk of hernia formation as compared with TRAM flaps.

    SIEA Flap

    SIEA Free Flap Reconstruction

    SIEA Free Flap Reconstruction

    Click Image to Enlarge

    An alternative free flap that utilizes the skin and fat of the lower abdomen is the superficial inferior epigastric artery (SIEA) flap. The SIEA flap involves no incision through the abdominal muscle because it does not utilize the deep inferior epigastric vessels. In an SIEA flap, incisions are made in the skin and fat only, allowing the flap to be transferred based on the superficial inferior epigastric vessels. This allows for even less post-operative pain, and no risk for hernia.

    As with the DIEP flap, the SIEA flap is first harvested and then transplanted to the chest wall where a microscope is used to attach the flap vessels to a recipient set of blood vessels on the chest wall. The tissue is then used to create a breast shape.

    Unfortunately, only a minority of patients are candidates for the SIEA flap because the superficial vessels are very small, limiting flap volume, and increasing the risk of flap loss. In some patients, these vessels may not be present because of previous surgery such as Caesarean-section or hysterectomy.

    TRAM Free Flap

    TRAM Free Flap Reconstruction

    TRAM Free Flap Reconstruction

    Click Image to Enlarge

    The TRAM free flap is similar to the DIEP flap in that this type of flap is also based on the deep inferior epigastric vessels. In the TRAM free flap, the lower abdominal skin and fat is removed along with a small portion of the rectus muscle. The portion of muscle removed carries these blood vessels with the flap.

    Using a microscope, the TRAM free flap can then be transplanted to a recipient set of blood vessels on the chest wall. As with the DIEP or SIEA flaps, the tissue is used to create a breast shape without having to be tunneled under the skin (as in the pedicled TRAM flap).

    The advantages of this surgery as compared to a pedicled TRAM flap are two-fold. First, only a small amount of the rectus muscle is used, with less post-operative pain and less risk of abdominal bulge or hernia. Second, the blood flow to the skin and fat is much greater than that of the pedicled TRAM flap. This allows more abdominal tissue to be safely transferred, and patients who are not optimal candidates for the pedicled TRAM flap (diabetics, smokers) can usually be accommodated.

    The disadvantage of the TRAM free flap is that the small amount of muscle used is still more than in the DIEP and SIEA flap approaches where no muscle is utilized. As such, compared to DIEP and SIEA flaps, the risk of abdominal wall weakness is slightly higher when the TRAM free flap is utilized.

    Choosing the Abdominal Free Flap

    In planning breast reconstruction with abdominal microvascular free flaps, the surgeon should explain the risks and limitations of these approaches. Ultimately, the final choice of free flap depends on the patient's anatomy. In the course of surgery, the superficial vessels used for an SIEA flap are first encountered. If these vessels are adequate in size and could support the needed flap volume, an SIEA flap may be performed without incising or harvesting any muscle. Otherwise, the perforators from the deep system are exposed in order to elevate a DIEP flap. If these perforator vessels are sufficient, then the DIEP flap is completed. If the perforator vessels are found to be inadequate, the operation could then be converted to a free TRAM flap.

    The length of surgery for abdominal microvascular free flaps can range from five to seven hours for one breast, and seven to twelve hours for both breasts. The hospital stay is typically three to five days, and the recovery can take several weeks before returning to a regular activity level. Secondary procedures after free flap breast reconstruction can be done after about three months; however, if chemotherapy is needed, any additional surgery must await completion of treatment. At that point, the patient can have revisions to the breasts and abdomen, and the nipple areola can be reconstructed. Such additional procedures are typically done as outpatient surgery with a rapid recovery.

    You are an ideal candidate for abdominal microvascular free flap breast reconstruction if you:

    • desire autogeneous reconstruction, and want to minimize muscle loss
    • do not want or are not a candidate for implant reconstruction
    • have enough lower abdominal wall tissue to create one or both breasts
    • have compromised tissue at the mastectomy site
    • have been previously radiated
    • have had failed implant reconstruction
    • are having immediate reconstruction at the time of skin-sparing mastectomy
    • are having delayed reconstruction following prior mastectomy
    • desire reconstruction to fix a lumpectomy or quadrantectomy defect

    You are not an ideal candidate for abdominal microvascular free flap breast reconstruction if you:

    • do not have enough lower abdominal tissue to create the flaps
    • have had previous abdominal surgical procedures such as abdominoplasty (a C-section scar is usually okay)
    • cannot tolerate anesthesia for long periods
    • do not wish to have a lower abdominal scar

    You may refer to the Post-Operative Abdominal Flap section to learn about care after abdominal free flap breast reconstruction.

    Please go to our Personal Stories section to see before and after photos.

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  • blondie45
    blondie45 Member Posts: 580
    edited April 2010

    Shanagirl - Thanks for the explanations of all of the procedures.

  • Texas357
    Texas357 Member Posts: 1,552
    edited April 2010

    Barb, your reaction is the same as I had when I asked my oncologist about the risk of recurrence in the other breast. He announced, "We will just treat it with more chemo!"

    I'm sitting there -- suffering from a very long list of chemo side effects -- not to mention the time it took out of my life, and he's treating it as an "oh well, if it happens, we'll take care of it."

    This is a highly personal decision, and I don't want to sway you either way. You've got to decide if you can move on emotionally and just continue to watch the mammogram results for changes, or if you want to take more action now.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2010

    Texas357,  Yeah I know, right?  I know this is such a personal decision, I'm going to be talking at length about it with my onc and just try to rely on what he thinks about the risk of calcifications with a nodule..

    image

    Barb

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