Vision

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Diana63
Diana63 Member Posts: 773

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  • Diana63
    Diana63 Member Posts: 773
    edited January 2010

    I am two years out from dx and about one year out from chemo. Did anyone else still have vision problem this long after treatment? I am going to get my eyes checked but I was wondering whats me and what is still the chemo floating around in me? Its pretty good in the mornings but then it gets worse as the afternoon wears on.

  • Celtic_Spirit
    Celtic_Spirit Member Posts: 748
    edited January 2010

    Are you on tamoxifen? In about 1% of cases, it can cause some form of retinitis. As a precaution, my onc has recommended I have an eye exam yearly while I'm on tamoxifen. I'm not having eye trouble except for what's normal for a 50-year old (reading glasses). BTW, I'm just shy of being two years out from diagnosis as well.

  • Diana63
    Diana63 Member Posts: 773
    edited January 2010

    TY Celtic, yes I'm on tamoxifen so maybe thats it, some days I feel like I am slowly falling apart. I will get my eyes checked soon, its on my very long to do list

  • helena67
    helena67 Member Posts: 357
    edited January 2010

    Hi,

    Could VERY well be the hornone treatment!

    (Or maybe we are all getting older, hah!  Smile)

  • helena67
    helena67 Member Posts: 357
    edited January 2010

    See, I can't even spell! Talk about vision.

    I meant hormone treatment. Or rather anti-hormone.

    -Helena.

  • Flamin_nora
    Flamin_nora Member Posts: 52
    edited January 2010

    My vision has dropped like crazy since I started on Tamox----I play competitive tennis and notice blurriness and sometimes "black spots" instead of the tennis ball! 

    Not sure if it is the tamox itself or just the lack of estrogen---I'm 47 (menopause brought on by the chemo), so apparently this is the age when a women's eyesight changes due to menopause.  I was told to wait a couple of months before going to the optician/optomotrist ---a question of waiting for my eyesight to stablize a bit before ordering new contacts---will probably be going in the next couple of weeks---I'm curious to see how much of a change and what is recommended----will let you know

  • Diana63
    Diana63 Member Posts: 773
    edited January 2010

    Thank you ladies, its probably a combination of chemo, age & Tamoxifen. I am going in ASAP and get my vision checked, at my physical they said my right was 50/ 50 and my left was 30/20.

  • jinnypel
    jinnypel Member Posts: 73
    edited January 2010

    Ah now I know that its not just me with the black spots ... thought I was going dulally at the time.

    But can't explain the old age away (yet!)

  • weety
    weety Member Posts: 1,163
    edited April 2010

    Hey all, I'm joining in on this thread--I hope you all haven't disappeared from it since it's a few months old.  I have the vision problems going on as well!  I'm still doing my herceptin treatments, but it's been 4 months since the last chemo.  Are your eyes blurry all the time, or does it seem  to come and go?  Mine seem to get clearer when I blink a bit and move them around.  It's almost like there is a film over them, but it's not the same as the "gookies" that I used to get in my eyes that were definately covering the cornea before breast cancer diagnosis.  Those were for sure little pieces of mucous or something yucky.  I'm not sure what this is. 

  • Diana63
    Diana63 Member Posts: 773
    edited April 2010

    Yes, mine comes and goes, if it stayed the same I would get my eyes checked. I am almost 2 years out from chemo but still having problems with vision. Yours might clear up in a few months, since you are done with chemo now.

  • weety
    weety Member Posts: 1,163
    edited April 2010

    Thanks Diana!  So you never ended up getting your eyes checked?  And you are still having problems with it 2 yrs later???  That's not what I want to hear--I don't want this to be here 2 yrs later!  It's driving me crazy.  Like I said, the only way to "clear" them (and it's more my right eye than my left, but even that one does it sometimes) is I have to kind of blink and hold it closed an extra second or two.  Usually it's clear when I open it back up again, until the next time . . .

  • Diana63
    Diana63 Member Posts: 773
    edited April 2010

    Weety, I am also on Meds for congestive heart failure and that messes with my vision, I'm sure yours will get better soon. Tell your Oncologist maybe he/she can recommend something like eyes drops. I know I have heard of ladies having dry eye after chemo.

  • ladyod
    ladyod Member Posts: 152
    edited April 2010

    Hi.  I am an eye doctor.  Dry Eye Syndrome causes blurred vision as the day goes on, especially if you are on the computer a lot.  with vision of 20/50 and 20/30, you may just have a normal vision change for the worst:  the eyes progressively change in the 40's and 50's and people who had great vision before, may begin needing glasses.  Some chemo and rads can cause cataracts which also affect vision, but this would not get worse as the day goes on.  Cataracts are worse in bright lights for instance driving into the sun or headlights at night.  You for sure should see your eye doctor, but in the meantime, go to the pharmacy and get a good artifical tear:  the preservative free ones are the best such as Systane PF or Refresh PF (I am not connected to any company: these are some that I have found work well for my patients).  A thicker solution, such as Celluvisc gel, is great for bedtime:  it will last longer through the night.  You must use the drops AT LEAST 4 - 6 times a day to see a benefit.  Your dry eye should get better after using the drops consistently for several days.  Some times, if your eyes are extremely dry, you may need a prescription to increase your tear production (Restasis), but using the over the counter artificial tears  prior to your appointment will not hurt anything and if they are not helping at all, the doctor can prescribe something else.  I hope that this helps!  BTW  Anyone seeing spots or flashes of lights should be seeing their eye doctor on a regular basis.  Also some systemic disease such as Diabetes can also cause blurred vision which is not stable.  Good Luck!

  • weety
    weety Member Posts: 1,163
    edited April 2010

    Thanks Ladyod,

    I don't feel like my eyes are dry, but maybe it's not necessarily something I can feel???  I'm not seeing any spots or flashes--just the here-and-there blurriness that comes and goes.  I do notice that sometimes when I'm reading a magazine and the lights make a glare on the page that it bothers my eyes a bit.  THat's actually how I started noticing the whole blurriness in the first place.  I would always read magazines while waiting for my radiation treatments and I started noticing that I was having to repostition the magazine quite a bit to avoid seeing the glares from the lights being reflected on the pages.  I never had noticed this before, so . . . I figured it had to be something chemo or herceptin related.  I will try some drops and see if it helps.  THanks again.

  • ladyod
    ladyod Member Posts: 152
    edited April 2010

    Dry eye symptoms often go unnoticed, but in severe dry eye you can have watering, a gritty feeling, burning, excessive blinking, or any combo thereof.  Chemo and rads can cause deposits in the cornea, retina, or cataracts.  Hopefully it is dryeye or just a vision change, but no worries;  cataract surgery is very common, painless, quick and effective.  Or if they aren't too bad, a pair of glasses will help make up for the vision loss from them.  If you try the drops before your visit, you can tell your doctor you have already tried them and that will rule out dry out.  I am sure that will be one of the differential diagnosis that he/she comes up with. 

  • 116
    116 Member Posts: 108
    edited December 2012

    Even though I have always had 20/20 vision until getting old enough to need reading glasses, I too have had a lot of trouble with my eyes since finishing treatments including chemo and rads. It was a lot worse while I was taking tamox, which I stopped taking, however the problems with my eyes just continued. At one point right after chemo it was thought that I had an infection. The medication drops my general doctor gave me made my eyes worse. I saw the eye doctor who told me to stop the drops right away and instead use moisture drops, Ladyod is absolutely right about this. I stilll have to use them quite frequently. It feels like the chemo wreaked my tear ducts or something. By using the moisture drops on a regular basis I have a lot less problems now and if I fail to do this all the problems just start right up again.

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