Class of 2010
Comments
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Welcome Lauriez and Pickels...and congratulations to the new bride, Elen! Elen, your new husband is a "keeper" as my sister used to say.
Lots is happening in the land of the Pink. I'm so glad we've found each other as together we are going to fight and not stop fighting. It feels good to belong to such a strong group of women.
Lauriez, I personally did not have any problems after the SN, however I've read that the axillary disection is a bit more to jump back up from. Don't try to do too much lifting for sure. I know as a nurse this is a crazy thing to say....but you're going to have to put your own needs ahead of the needs of others for a little while. This is so hard for any of us who tend to be "care-givers". I am so guilty of this. Right now I'm suffering with a pulled back muscle from lifting too much...and it's not on my bad side! LOL.
Artsymom...I too had quite a bit of swelling in the breast area and it also was VERY red and even itchy at times. A bit of swelling under the arm but not too much. I noticed the swelling around the incision actually went right down about a week ago...and my surgery was January 8th. Thanks by the way for your very nice personal note to me...I've been pretty busy with work lately and somewhat pre-occupied wondering if somehow I've managed to develop IBC. I know this sounds like a real wild shot but two doctors mentioned "Peau D'Orange" on my breast and that condition seems to be closely linked to IBC. I will be talking to the Dr about it next week, for sure.
Take care my pink peeps....we're doing GRRRRRRREAT!
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My surgeon asked me to take a week after the lumpectomy, because, she said, I'd earned it. I was swollen, but could have worked (desk/computer job). Later on, the shooting pains from nerve damage bothered me, but I was still very able to work. Didn't lift big stacks of books or move book carts around (library). No numbness.
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Oh, and I carted around a puppy the week following surgery
Inside, outside, inside... -
luariez - I had lumpectomy with sentinel node biopsy on a Friday and returned to work Monday. I only had one node removed but the surgery went really well and healing process was uneventful. I did have 4 physical therapy sessions with exercises, stretching and massages which may have helped.
Teka - I just didn't feel "normal". Following treatment #1 I took one anti-nausea pill a day occasionally the first 5 or 6 days when I started feeling a little queasy but never really felt sick. I did have a strange taste in my mouth and food/drink didn't taste the same as normal the first week or two after but by the third week, I almost felt 100% normal.
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elle40,
Thank You!
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Hi all-
Just found this page today and is like reading the first three months of my own ear a little bit. I found a lump last year.. maybe around early november, shortly before I walked the three day susan g comen for the cure (check it at the3day.org) walk for a cure for breast cancer. An incredible event I recommend to all pink peeps! Its 60 miles in 3 days.. and so much inspiration.. Anyway I was only a cancer tourist at that point. On Jan 4 2010 I finally went to get the lump checked, and on 18 JAN 10 I was diagnosed with breast cancer. Very similar timeline to yours I think Irish47? I had surgery on 10 FEB.. partial with SNB.. went well but small micro-metastasis in one lymph node. I am 44 and already postmenopausal thanks to the life gift of 2009 ... And so the tumor staged at early stagy 2 (T1C N1MI). I recognize most of the terminology on the earlier posts here.. but not all.. I am in glendale CA, so a neighbor to Katie in Pasadena I think?!
Anyway since the surgery i have had the mammosite radiation therapy, on a clinical trial, and am waiting for results of a BRCA gene test next Thursday. If that's negative, then 6 course of TC chemo, once ever three weeks.. if its positive.. well that different isnt it?
I have been surviving without any net support all this time because I have great friends and a wonderful boss.. and I think its all doable.. until recently.. Now with the chemo looming and a lot going on at work ( I am a director at a biopharmaceutical company) I am scared and confused and I was SOOOO thrilled to find this group which not only has answered already a lot of my questions, but has such cool people and even some Irish compatriots. I was born and raised in Cork city and have been here on CA since 94, but go back all the time. Not this Summer it seems
. My Mom is coming to visit on Tuesday and I am hoping that chemo doesn't start until she leaves, coz I don't want here to have to witness that and then go home.. I want to have some good times wit her before I go back to all the uncertainty..Thanks you all for a great read. I look forward to spending time with you.
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cathyqk,
Welcome!
I hope chemo treatments start after your mom goes home. -
LaurieZ, I had lumpectomy with SNB on Feb. and axillary node dissection on Feb. 22, in total 23 nodes removed. I was back to work after one week with the first surgery, and felt good. The second time around I went back after eleven days, and probably would have gone back sooner if I didn't have the drain, but I am glad that I didn't. The second surgery knocked me for a loop, and I probably should have waited a few more days. I work in retail, and found it difficult to keep up with the physical demands (lifting, standing all day, reaching), I was exhausted after my 8 hour shifts. I am 51 years old, and like KatieMom, I am pretty tough, pretty good with pain and not a wussy. I am good now, but it took longer than I expected.
Listen to your body.
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Thank you Teka! And I hope things are working out for you.
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Cathyqk...welcome to our little group. Wonderful to have you aboard. Sounds like you've got a lot of compassion...not wanting your mom to have a memory of seeing you not well. That speaks volumes about your character. I hope you have a great visit with your mom...and try not to worry if she is around when you have to have your chemo...if you were my daughter I might crawl over glass to be with you while you take it. It will be ok. I look forward to your posts and to hearing about your progress as you move toward full health and wellness! Take care pink peep....
....we're all here for you...as you are for us. I'm off to bed...lovely evening out tonight with good friends...they made a lot of great East Indian food...wow....yummy in my tummy. -
good morning all...Well it is Sunday morning and I had my first chemo on Friday morning and so far so good. I felt a little off on Friday night. Fine yesterday, it was beautiful here and went for a 5 mile walk with friends. I don't want to jinx myself but so far so good. Drinking lots and lots of liquids. I am waiting to see what the weeks brings but so far so good.
Elle40 sounds like your SE's have not been bad either.
lauriesz - are you a MSU fan! I will be cheering for them today!
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Thank you Teka and Linda for the welcome! Hope you are both having a great weekend.
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You're giving me hope Dublin! I am praying I can work and do as I normally do through the chemo.. If you can do a 5 mile walk on day 2 then I'm going to try that also! Good for you!
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cathyqk,
Sorry I missed your earlier posts...welcome to the club none of wanted to be a part. You will find a wonderful support system here of women who are fighters and friends. Stay strong.
I really do believe that the whole fight must be body, mind and spirit.
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It is the left breast. I do still have the drain and I really think I wore too tight of a shirt on Friday. I wore very loose clothing yesterday and was better. Am trying to do some little range of movement exercises and climbing the wall. What about walking? Is it a good idea to swing those arms or keep it tucked in?
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artsymom,
NO idea!
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Hey Dublin4-MSU fan-you betcha! My husband and I will be watching today! Go Green!
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Thanks to all who posted to my questions regarding post op course for lumpectomy, SNB, and axillary node dissection. It helps alot! I work 2 12 hour shifts/week. I will consider asking my manager if I can work 3 8 hour shifts instead, if it comes to that.
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lauriez,
Good Luck!
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lauriez....
GO SPARTY!!!!! FInal Four! What a great game.
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artsymom thanks for asking. i am back to the living. feeling not bad but my mouth is now getting sores. hard to eat most things. i am now free until april 8th when i have to see radiologist, have lab work and see oncologist. chemo on april 9th.
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Dublin4....YEAH BABY! What a game!
Teka: Thanks!
Cathyqk: Welcome!
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Just been reading thru this thread and wanted to say Hi. I'm newly diagnosed (3/24) with Stage 1b Breast Cancer. I have been given the options of Lumpectomy with Radiation or a Mastectomy. I was just tested for BRCA status. (My sister in neg. but I don't know what my grandmother or mother were).
I've been reading a lot, including the Thread where Linda? was talking about regrets. (Sorry don't know who everyone is yet, give me time
). while trying to decide which way to go. If the testing comes back positive than no question for me, I want them both removed. If it comes back neg, then I have to weigh my options. I am leaning towards asking for having them both removed. Cancer is to strong in my family to ignore it regardless of what BRCA says. Every female on both my mothers and fathers side has had cancer. Both of my grandmothers had breast, my great aunt had ovarian, my mom had very aggressive breast cancer. I knew I would be dealing with this at some point in my life but I didn't expect it at 40. My kids are going to be 11 years old next friday and I want to be around for them for a long time. I am just afraid that if I have the lumpectomy, I will regret not having the mastectomy. For me its a feeling of not if the cancer returns but when it does. On the plus side, after having triplets, I have lots of extra skin around my belly that they can use.
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Welcome mom2aej! I'm sure you are not excited about joining our ranks...but it sounds like you are not too surprised either. I don't remember if it was me or not who posted somethng about regrets...but I certainly recall a recent post where someone was really unable to decide what to do and kept going back and forth. A good friend of hers suggested something which I personally think is an excellent idea. The suggestion was to choose one of your options and live/breath/think as though this is 100% your decision for the following 3 days. Then, change and decide the other option is your decison and then live/breath/think as though it were your true decison for the next three days. For our pink sister who tried this she knew right away which was the best choice for her as she had a real peace of mind and could sleep without worry etc and this is how she found what was her best decision. As you know, this is such a personal decision and it will come down to you and what you want.
Sounds like there are certain factors that will make the decision for you (from what you said) but if it falls into the 'dreaded grey zone'...then you are not sure what to do...is this right? I'm guessing here...but it sounds like you are leaning toward a double Mx...but are worried that it is too radical a choice. I'm just going to throw something in here...not that you are asking me directly or anything...but as you can probably gather from my posts, I'm a little outspoken...but in a nice way and with love in my heart
. So, I'm going to say if it were me, regardless of the results of the genetic tests, and with the history your family has, your young age and the fact you believe in your heart that if you had a lumpectomy it is only a matter of time before it comes back...I would personally choose the double mx and throw everything else I could at it. You can get nice implants and like you say...you've got some extra skin so you might as well put it to some good use, sista!! Regardless of what you choose, good luck to you and again, welcome aboard.
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Mom2aej,
Welcome! I was numb for 2 weeks after my radiologist told me I had BC. Thankfully, it gave me time to calm down before talking to surgeon. Good Luck!
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Hi Teka...I was thinking about your post and do you know what? At times I still cannot believe my own diagnosis. It is like I'm in a dream or nightmare of some sort. At times I actually forget and then all of a sudden I remember again. I think one of THE defining moments happened for me when I had an ultra sound done on my breast. The technitian picked up the phone and called someone into the room. I didn't know who was coming or why anyone else had to even join us so Iasked her who did she call and why? She said she thought it was a good idea to have a "little biopsy" done. I said, "ON WHAT?" I could not believe what was going on...and that she thought there could be ANYTHING there to biopsy!
Of course, as we all know, a lump was indeed there and I had an invasive carcinoma...1.8 cm. I'm wondering if the feeling of denial ever really goes away....we're a funny bunch aren't we? Not the pink peeps so much...just people in general...we seem to block out things we don't want to accept...or maybe this is just me? LOL.
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Hi Peeps,
So many newbys in just a few days.Sorry you are here but this is a great place for support and info.
Mom's funeral was a terrific tribute to her. Unfortunately the night before I could not sleep until 6 AM and had to leave for the church by 10. It lasted until 1 PM.. We had a party from 4-8 at our home and I have never been so exhausted in my life.
Terry held up and is still feeling better but is getting antibiotic drips still twice daily and once daily on the weekends.
I am done radiation and next week I will start the arimidex.I still have numbnnes and some pain under my arm. I don't know if it will ever go away. My breast is still pink and kind of lumpy. When I am home I go without my bra as much as I can.I meet for a follow up with my surgeon in another week.
I still have family with me until Wednesday. I will check in again.
Hang in there peeps. We are in this together.
GP Jeannie here
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Hi GP...you've been missed! So much has been going on for you...your head must be spinning at times. YAY!! No more radiation! And the pinkness will calm down, I'm sure. Were you pink and/or lumpy before you started?? Did you have the numbness before the radiation? I hope it doesn't last too long for you.
Glad Terry is home and well on the way to full recovery as well. Sounds like you both need a vacation don't you think?
Goodnite, GP. Glad you are well...and that your dear mother had such an amazing send off...she would be pleased, I'm quite certain. I hope my kids do something like that for me one day. God bless you.
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Welcome to all the newbies!
GP..Glad your Mom's funeral went well and hubby is recovering. You deserve a break now!
Mom2aej..good luck in your decision. I had a lumpectomy and now doing radiation. The strange thing is I haven't yet had the BRCA testing. Kind of backwards to me. It was just assumed I would have a lumpectomy. I didn't know enough at the time to question it. I don't have brca in my family but on my Dad's side there are very few women. If it comes back positive I think I''ll freak!
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Irishtess, Irishmum, Dublin 4, Irish47.. Are the Irish more prone to breast cancer?!!
Elen, congrats on the wedding :-)
Katie, you may not be as jealous of your workmates when I tell you it is lashing rain here, to continue for the week and possibility of snow...
Railli, I know what you mean about the tweaking, was on the table for 50 minutes today as they made adjustments and boy was it uncomfortable.
Artysmum, a friend of mine who was diagnosed a month after me had a lot of problems with swelling also, had to have it drained twice but it is fine now.
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