February 2010 radiation starts anyone?

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  • Sotiredofthis
    Sotiredofthis Member Posts: 17
    edited March 2010

    I just found this site and am looking for more information than I'm getting from my radiologist.  I've just finished 4 weeks of daily radiation and have 3 more to go.  My armpit looks really dark and the fold under my breast has an almost grayish cast to it.  Also it seem like skin tags are going into overdrive and turning dark brown.  Yuck!  Is anybody else experiencing this?

  • YramAL
    YramAL Member Posts: 1,651
    edited March 2010

    Yes, sotired-I have experienced all of that and more. Watch out for the fold under your breast-mine actually had some skin breakdown that was quite painful. I had to wear gel burn pads on the area for over a week. I have 6 more treatments to go and I am so ready to be done!

    Mary

  • Sotiredofthis
    Sotiredofthis Member Posts: 17
    edited March 2010

    Yikes!  That sounds very painful.  I have been pretty much in the dark without a support group so it is reassuring to hear some one else had the same thing.  What does skin breakdown look like?  Also, have you had to take time off work (if you work)?

  • Sotiredofthis
    Sotiredofthis Member Posts: 17
    edited March 2010

    Would the gel burn packs have helped you earlier?  Are they something you buy over the counter? 

  • YramAL
    YramAL Member Posts: 1,651
    edited March 2010

    My skin actually split along the line under my breast and started oozing fluid. The area around the split was very red, and the whole area was very painful. I did take 2 days off from work so that I could just sit around and do nothing but sit still and let the area heal. Now that the area is pretty much healed, I've been using a combination of hydrocortisone cream and Aquaphor on it.

    Looking back on the whole thing, I don't know if there was anything I could have done about it except perhaps complain about it more and earlier to the rads nurse.  The gel pads are called Carradress. I got them at the treatment center. I don't think you can buy them over the counter. I looked them up online and they are over $90/box! I'm sure that will show up on my bill somewhere, but really, they were worth it. 

    I have friends who have been through radiation and this has not happened to them. They are all rather small breasted, though. I think the fact that I am a DD cup had a lot to do with it. There was a lot of heat trapped under there!

    Best of luck to you, sotired! Don't be afraid to ask for what you need. 

    Mary

  • jacee
    jacee Member Posts: 1,384
    edited March 2010

    My radiated area was the left side. I had a mast so no breast tissue. But my underarm area did turn grayish and blistered in several areas. Big, bubble blisters, that broke eventually. the scarline that got the boosts also broke open. I don't think it's too unusual, but definitely doesn't happen to everyone. I didn't have to take off work, but I only work part time. Definitely had to go braless most of the day. Just tried to keep it all well moistened.

    It does start drying and healing quickly.

  • Sotiredofthis
    Sotiredofthis Member Posts: 17
    edited March 2010

    Did the area fade back to normal eventually?

  • jacee
    jacee Member Posts: 1,384
    edited March 2010

    Yes, that skin that was gray just sort of dried up and peeled off. There is nice pink skin underneath.

  • MaryNY
    MaryNY Member Posts: 1,584
    edited March 2010

    I was doing great on rads until now and thought I would be spared any burning. I had #23 on Friday. Over the weekend, my left breast has turned rosy and itchy. I have two more full breast treatments, then will start the boosts (eight of them) on Wednesday. Those of you who are finished, does the rest of the breast start to go back to normal once you start the boosts?

    Off now to apply more aloe vera. 

  • YramAL
    YramAL Member Posts: 1,651
    edited March 2010

    Yes, MaryNY, the boosts are much easier on the rest of your breast. I had my boosts last week and will have a couple more this week before going back to the full breast treatment. That was to give my sore areas a break. I just hope they don't come back with the full breast treatment.

    Mary

  • edenh
    edenh Member Posts: 16
    edited March 2010

    Hi everyone, I just finished 27 out of 33 today, woo hoo!! tomorrow will be my last full breast rad, then I start the boost! My skin is very red, hot and itchy. I have a peely part in my armpit that kills, also under my breast is peely as well. can't wait for this to be over. My rad therapists are not so warm and fuzzy, but my rad onc is great. Does anyone have any skin treatments that have worked? I have some different creams that are OK, and pure aloe from the plant seems to cool the area. 

  • YramAL
    YramAL Member Posts: 1,651
    edited March 2010

    edenh-I had the same problems you have-the killing armpit, and a very sore area beneath my breast. My rad onc actually switched me over to boosts early to give me a bit of a break. Just finished the boosts today and I go back to 4 more full breast treatments starting tomorrow. Then I'm done! The area under my breast was so bad that the nurses gave me some gel burn dressings to wear. I used them for a week, day and night. Now I'm using hydrocortisone cream and aquaphor on my previously sore areas to keep them from getting sore again.  The aquaphor really helped on my peely armpit. If you can stand the greasy feeling, aquaphor all over the breast feels really good as well. I stopped using the aloe because I found that it stung on my open sore areas.

    You will probably feel a lot better during the boosts. I'm not really lookiing forward to going back to the full breast treatment, but it will be short this time.

    Mary

  • msmpatty
    msmpatty Member Posts: 818
    edited March 2010

    Edenh - I've been using a cream developed specifically for radiation patients called Miaderm.    It has calendula, aloe and something else I can't remember...all found useful for preventing skin problems with radiation.  Problem is you have to order it online and they mail it to you...so you may be done before you get it.  I'm also using Emu Oil, which I found at the health food store (Whole Foods does not have it, however).   It is creamy and somewhat oily but not as gooey as Aquaphor.   The combination of these two has kept my skin in fine shape -- I've got a reddish tan but no peeling, no itching, no pain.  My last rad is tomorrow and although my rad Onc said my skin might blister and peel after I'm done, she doesn't think it will because it is doing so well.

    Patty

  • micheleboots
    micheleboots Member Posts: 1,993
    edited March 2010

    Two days after my rads were done my skin started falling off in lovely large gross chunks.  It is the skin inn my pit and so it hurts like hell.  The onc gave me a prescription for Flamazine.  Lets hope it starts to work soon.

    Good new is that I had a mammogram on "Good" breast yesterday and all is good...finely I can relax and enjoy the fact the treatments are over..Yah me.

  • jacee
    jacee Member Posts: 1,384
    edited March 2010

    Yay Michele on the mammo report. Try to  enjoy a beautiful Easter weekend. Is it the same in Canada? Anyway enjoy being out of treatment!!

    I have to say as bad as my skin and armpit were burned, blistered and  peeling...it has almost all healed. No more pain and very little redness or even tanned skin. I can't believe how good it looks. So all you ladies still in treatment, there is a rainbow on the other side!!

    Joni

  • micheleboots
    micheleboots Member Posts: 1,993
    edited April 2010

    Joni, yes it is going to be nice here this weekend.  And I am off...yahoo.

  • Sotiredofthis
    Sotiredofthis Member Posts: 17
    edited April 2010

    Anybody else get a break in treatment?  I had my regular rad treatment on Monday and met with my Rad doctor.  Due to my skin issues I was given the rest of the week off and will have the sessions tacked on the end.  (I'll freely admit I was very excited to get a 6 day break to let me skin heal a little.)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2010

    Hi to all,

    I finish rads next Tues all 36 of them YEAH!!  Did not have any skin breakdown until last weekend the area at my collar bone and a place under my breast. Looking forward to being finished with rads. I am sure the rest of you are to. Hope everyone has a nice holiday.

  • YramAL
    YramAL Member Posts: 1,651
    edited April 2010

    sotired-I did not get a total break, but I was switched to my boosts for 7 treatments to give the rest of my breast a break. I'm sorry you're having breakdown...it really, really hurts, I know. Rest and heal during your break.

    I will be done next Monday! Yay!

    Mary

  • edenh
    edenh Member Posts: 16
    edited April 2010

    Thanks, all the information is really helpful. I will try the Aquafor, I don't mind the greasy ness..! The doctor would have switched me to the boosts early if she had caught the skin irritation early enough. Oh well, I have three more boost left, and then no more rads!! I am so happy to stop that I almost don't care anymore about how gross my skin looks!!  some of it is starting to bubble and blister, so I have some ointment the rad onc gave me to stop the itching. 

    I hope everyone has a wonderful holiday tomorrow, and I won't think about going to the big machine at all!!

    waiting for that big rainbow at the other side!!  

  • YramAL
    YramAL Member Posts: 1,651
    edited April 2010

    Happy Easter everyone!

    Tomorrow is my last treatment!!!!!

    Mary

  • micheleboots
    micheleboots Member Posts: 1,993
    edited April 2010
  • micheleboots
    micheleboots Member Posts: 1,993
    edited April 2010
  • YramAL
    YramAL Member Posts: 1,651
    edited April 2010

    Today is my last treatment. I'm baking brownies for my rad team. They were wonderful.

    Don't feel much like celebrating, though. My husband's 19 year old coworker was killed in a car crash early Easter morning. My husband works with his grandfather and mother and father as well. Sad day. :(

    My husband and I are going to Disneyland in a couple of weeks. Maybe we'll feel a little more like celebrating then.

    Mary

  • jacee
    jacee Member Posts: 1,384
    edited April 2010

    Oh Mary...sorry to hear of the death of your husband's friend. We lost a friend on Good Friday. It is sad.

    And congrats on your LAST treatment....you did it!!! You will heal very quickly. I was amazed. Hoping Disneyland provides the R&R you need. Enjoy this time.

  • YramAL
    YramAL Member Posts: 1,651
    edited April 2010

    I'm done, I'm done, I'm done!!!!!

    Mary

  • msmpatty
    msmpatty Member Posts: 818
    edited April 2010

    Mary - Hooray,  Hooray,  Hooray!!!!! 

    Patty

  • micheleboots
    micheleboots Member Posts: 1,993
    edited April 2010

    Yaah Mary, so glad it is over....such a relief isn't it...celebrate like crazy.

  • MaryNY
    MaryNY Member Posts: 1,584
    edited April 2010

    Congrats Mary! Are you doing Tamoxifen next?

    One Mary down and one to go. I will have my final treatment on Friday. Just wondering for those of you having final treatments soon, do you plan to bring anything in to the techs, nurses or oncologist to thank them. I would like too but don't know what. Maybe I'll just take the easy way out and follow up with a thank you card.

  • chinablue
    chinablue Member Posts: 545
    edited April 2010

    My rad team was really kind to me.  They took such care and with such a great attitude that I felt comfortable at each appointment.  On my last day, I brought in a chocolate babka and sliced sweet oranges.  I thanked each one personally. I even hugged my rad onc!  

    What a world of difference they were from my grumpy cold chemo team.   

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