What Do I Need Post-Surgery?

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joyko
joyko Member Posts: 104

I finally got my surgery date --- next Tuesday!  Yikes!!!  This is starting to make me reallllly nervous now that I have a date!   

What will I need to have post-surgery that I should buy now?  I am having a uni mx  --- and I am not sure if there is something I should buy to take with me to the hospital....certain bras, etc????

I really would appreciate any and all suggestions from those of you have been down this road. 

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  • AmyD
    AmyD Member Posts: 75
    edited March 2010

    A small pillow to put under your arm/armpit.  This was suggested to me and it was very helpful.  Helps cushion and take the tension off of the incisional area.

    I also got a couple of "front-loader" sports bras.  I was able to tuck the drain/tubing in this.  Also, front opening blouse to wear home from hospital.  A friend bought me two pair of "lounge pjs" with a pocket in the front, which was nice to hold the drain when I walked around.

    Hope this helps.  I had an uneventful recovery.  I started the arm exercises as soon as possible.  I have absolutely no problems with the mastectomy side now.

     Dx:  7/15/09, DCIS 4.5 cm Stage 0, Grade 3.  Left mastectomy 7/27/09.  ER+/PR+.  

     

  • sweatyspice
    sweatyspice Member Posts: 922
    edited March 2010

    I got an Amoena post-surgical camisole.  It has two removable fiberfill foobies (you'd only need to use one of them, you could remove the other - and you can also adjust how much fiberfill is in them, if you want to make the foob smaller) and two velcro drain holder things.  I lost one of them and used a safety-pinned tennis sock as a replacement.

    I have a barely used size large (in white), I'll be happy to send it to you if you'd like, just send me a PM.

    Your Dr, should be able to write you a prescription for it and depending on the store, they might not charge you, or if they do, you might be able to get the price reimbursed by your insurance company.

    There are other companies who sell them too, Amoena isn't the only one.  It cost $50, which I think was highway robbery, but it's a niche market, so what are you gonna do?

    Most of the hospitals in NYC have shops where they sell what I'll term "cancer wear" - the bras and the wigs and the scarves etc etc etc.  Check to see if your hospital has something like that, or tell me where you live and I'll look through all the handouts and pamphlets I've accumulated and see if I can find anything in your area. 

    Worst case, you can probably get something mail order, but it's better if you can try it on first. 

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited March 2010

    I had a lumpectomy so I defer to others about specific mastectomy needs though I did notice that my surgeon's office had a catalogue of all sorts of mastectomy supplies.  I would suggest calling the surgeon's office and asking the nurse.  They probably have a complete list of things you need to have and need to bring with you. 

    However, as my lumpectomies weren't my first surgery --I had a hysterectomy 5 years ago---I feel qualified to address certain regular post surgery needs.

    Comfy new jammies for when you get home.  Buy yourself some new special ones and don't plan to get out of them for a few days.  I find cotton to be best because it does breathe.

    Complete sets of DVDs for your favorite TV series.  Nothing intellectual--this is NOT the time to try to watch Pride and Prejudice [though its a great series], this is the time to watch Grey's Anatomy or whathave you.  Libraries have lots of these so you can check them out now.

    Light reading.  Serious reading on percocet is pointless though you can save money when you find you have read the same page 8 times and STILL can't remember what its about.

    Stool softeners.  And maybe even a laxative.  Those stupid drugs can block you up like a bowlful of cement.  Start them NOW.  And ditch the coffee--that just makes it worse.  Pick some nice flavors of herbal tea. 

    Fresh batteries in the remote. 

    A basket with a handle for next to the bed or on the bed or next to the sofa where you can store all your goodies like the water bottle, the magazines, books, pain meds so they don't get lost in the covers.  It is so annoying to be unable to find something after you do the inadvertant percocet nap.

    Treats.  Chocolate, ice cream, baked goods, name your poison.  Get lots.  Everyone knows that for the first 4 days after surgery, calories go right through you. . . .Innocent

    Mostly don't push yourself too hard.  Let yourself rest.  Don't have high expectations. Yes, some women may leap out of bed the day after and go shopping.  But don't expect that to be you.  It may be but don't try to make it.  If you listen to your body, you will know if its right for you.  I have to say, that was the VERY hardest thing for me.  I have never been a sitaround sort of person.  When I am sick, I think I am home slacking if I don't do all the laundry.  In other words, I am a CRAPPY patient.  Women on the Hystersisters list warned me that recovery could take a lot longer than I expected but I was sure they meant someone else, not me because I am SUPER woman so I set myself for coming back to work 4 weeks post surgery.  HAH!  My surgery made me pay attention to what my body was telling me in ways I had never done before. I was completely wiped and ended up having to be part time.  Now that I am dealing with breast cancer, I am so glad I learned that lesson.  I am so much better at giving myself time and not feeling guilty about just sitting or walking out of the office early. 

    Anyrate, stupid lecture over, point being listen to your body and do what feels right for you.

    Good luck!

  • sweatyspice
    sweatyspice Member Posts: 922
    edited March 2010

    Ah, yes!  I second stool softener and other things to make pooping possible.  The inability to poop was a huge issue for me.

    I didn't do much TV watching or reading, I mostly slept.  When I was up, I got tired very quickly and just went back to sleep.  I'd say that lasted about 5 days.  I prepared for a lot of reading and TV watching, but it didn't happen for me.  Maybe one or two days of that at the end, just before I was pretty much "back."  It's still worth preparing for, just in case you're awake more than I was.

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited March 2010

    My brothers brought me movies (my personal netflix) and it took me 3 days to watch Chronicles of Narnia where I understood all that was going on. It was nice for background noise though.

    I third the stool softener or anything to help things along. My 2nd surgery (exchange of implants) I forgot about using the stool softener until 3 days later and I was in extreme discomfort.

    I also wore the cotton granny house dresses inside out to put the drain bulbs in the pockets.

  • Just-Sher
    Just-Sher Member Posts: 68
    edited March 2010

    Hi - Good luck with your surgery!

    Before my bilat mast.  A friend who went through one told me to plan on sleeping in a recliner.  We didn't have one so we borrowed one.  It truly made a difference.  I slept in it for 3-4 weeks.  It was so much easier to get comfortable in a reclined position, than trying to stuff pillows at a slant in bed.  The surgery does make it a little hard to get up from laying on your back.

    Just-Sher

  • ladyod
    ladyod Member Posts: 152
    edited March 2010

    Someone gave me a care bag with the little pillows for under your arms, a long ribbon to tie up the drainage tubes (you will get something from the hospital, but this way it won't get wet) and ear plugs for in the hospital.  Of course, hospitals are always super dry so hand cream, lip balm, and eye drops.  I will second the stool softener idea:  narcotics have a way of slowing up your system.  And finally a positive attitude:  no worries, you are on your way to being cured!  Good Luck!

  • RegulJ
    RegulJ Member Posts: 244
    edited March 2010
    Also something to think about is getting a seat for the shower, stay out of the bathtub you won't be able to get in or out of it! (I got stuck) Tongue out
  • sweatyspice
    sweatyspice Member Posts: 922
    edited March 2010
  • 3monstmama
    3monstmama Member Posts: 1,447
    edited March 2010

    Forgot to say try to get the pain meds prescriptions filled pre-surgery so you can just go straight home.  Mine gave me the prescriptions a week before which I thought was standard but I am reading more and more about people getting prescriptions at time of release and having to stop by on the way home---which is such a drag because all you want to do is go home--so I thought I would add that.

    Also a husband has posted a link to his blog with a pretty detailed description of his wife's post mastectomy experience that you might find useful.  I think his log-in in mywifeismyhero

  • Kitchenwitch
    Kitchenwitch Member Posts: 374
    edited March 2010
    I ditto 3monstmomma's comment about calories and the first few days after surgery... in fact I think if your body has undergone a trauma, a higher caloric intake really is OK. That magic substance in chocolate probably also really helps healing (just sayin).
  • hymil
    hymil Member Posts: 826
    edited March 2010

    Safety pins for the drains and their tubings, and any heavy shopping for a few weeks ahead eg boxes of juice because you won't be able to carry heavy things for a while, i mean like 4pint bottle of milk was too heavy for me for six weeks. Lots of credit on your mobile phone, and your charger,  it was my lifeline in hospital.

  • joyko
    joyko Member Posts: 104
    edited March 2010

    Thanks to all of you for your many suggestions!!  I am off to the stores tomorrow to get all my necessities!  A question - the hospitals allow cell phones?   For some reason, I assumed that you couldn't be using one --- that's great news if I can!  

    I am getting extremely anxious for Tuesday ... and still hoping every morning that I will wake up from this bad dream.  I have accepted this (for the most part) ... but I am scared of the surgery and the GA.  I've never had an operation .... and this is quite intimidating for me!!!  I keep telling myself that if all of you wonderful ladies could do it --- so can I!!!!

    Thanks again ....   xoxo 

  • sweatyspice
    sweatyspice Member Posts: 922
    edited March 2010

    The pain meds I got right after surgery ... was it percocet?  Crap, I can't remember anymore.  Whatever it was, I got nauseous in the middle of the night and pressed the call button for the nurse.  They said it was a common side effect of the meds and put an anti-nausea drug in my IV, which solved the problem very quickly.  And then they brought me a snack, I think it was chocolate pudding and crackers and water or ginger ale or something.  Perfect!

    I ate like a pig in the hospital, goodtimes!

    Anyway, just so you're aware that nausea can be a side effect of some of the pain meds, and they can take care of it easily.  Don't worry if it happens.

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited March 2010

    Sweatyspice and all

    thats a good point.  Some people get that reaction from opiates like the morphine and I guess percocet though I thought percocet is oxycodene but then I guess thats an opiate, never mind!   I always thought it was standard to put the anti-nausea stuff in the drip with the pain meds.  You can also get nauseated from the anesthesia so its good to ask them to add something to that drip as well.  The last thing you need is to wake up and start throwing up!

  • CAROLMARIE427
    CAROLMARIE427 Member Posts: 206
    edited March 2010

    Agree totally with asking for the antinausea meds! I was fine after my mastectomy but deathly ill from anesthesia after my exchange surgery. Make sure you ask for it before hand. Have a lot of good books to read, a pillow wedge, DVDs and all the other supplies that have been provided in other posts. Hang in there. You will get through this!!!!! I never had surgery prior to my mastectomy either. I was a wreck. The waiting was actually harder than the surgery itself. Stay strong. Try to keep yourself busy. Hugs.

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