Class of 2010
Comments
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Hi Olivia and welcome. Sorry you have to be here. Michele-so funny, schools tend to be a little uptight sometimes. I hope they enjoyed your green head. Happy St. Patty's day.
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So, of course, the office staff bent over backwards saying, "It wasn't us, we understand, we just had a lot of complaints and we had to do something."
I call Bravo Sierra, but I was glad that it made them cringe a bit!
Here's my St. Pat "head covering" that they had to look at!
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Happy St Patty's to all,
Michele- loved your story and what a great laugh! I love your picture. You have such a wonderful smile.
My husband is doing much better. He is still getting the IV antibiotics but not continued drip. May come home tomorrow. His white blood count is coming down and his strength is coming back. Oh thank you God and medicine! He will continued out-patient.Thank you all again for your good wishes.
I am down to four more radiation treatments. I really had no side effects except for red itchy rash and pink/red booby.
Where has Linda been? I hope you are ok.
A special blessing to you Irish47-Cora on this day and dublin4. Today here was cool and we had a soft rain. I wore my green raincoat I bought in Adare. A perfect attire for the day. Terry and I will make up for the celebrating we love to do on this day.
Here is to the luck of the Irish and may it be upon us all.
hugs to you all from;
GP Jeannie
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Jeannie - I hope you husband is felling better!
Michele - that is story is so funny OMG. It is amazing what schools spend their time and efforts on.
Elen - I am glad you finally got your last drain removed! It is so liberating. I felt that way when mine were taken out.. for a at least that short week until they last surgery where they gave me one new drain. It should be out on Tuesday, so no biggie.
I posted on another post earlier but thought I would give this group my latest update on my stomach. I had mentioned below that my stomach scar kept opening and draining on my left side, well after my surgery on Monday (to remove all my nodes on left side) my right stomach scar started to open up. This morning I woke up and my scar openings had doubled in size on my left side and I FREAKED out. Went to the ps today and it turns out that I am allergic to the metal sutures that were used in my Tram reconstruction.. who would have know? They had to go in and remove them today and pack up the now 4 inch opening on the left side and smaller opening on right side. I feel like 1 step forward.... 2 steps back, but I know healing is starting... I can feel it. Luckily I have home nurses who will be coming on the days I don't go the doctor to get all the bandages changed.
Well happy healing to all! HAPPY St. Patrick's Day!
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Michele, fab picture!!
Jeannie, great news and hope you will visit Adare again. Linda is I believe visiting her son.
Have been all over this board tonight, must have kissed the Blarney stone.. (Not really, haven't been sleeping well for a while, wonder why!)
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Michele, that's hilarious. I hope that you put the anal tyrants in their place!
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Hi pink peeps! I've been away visiting my son (he has Adult Onset Stills Disease) and is not well at all. I did a lot of cooking/shopping...mom stuff. He appreciated it very much. He's lost a lot of weight and is in constant pain. I hate complaining about things when I see what he endures every day. I know there are a few of us at this site who have children with special needs...it is humbling as they rarely complain. Oh my.
Now, for my complaints: I will not be doing the twice a day radiation...but rather once a day to the whole breast...25 regular treatments and 5 boosts. Not sure the difference between a regular shot and a boost shot...but I'm going to rely on our GP to tell me...LOL. I start next Monday morning. I also will have to see the Dr once a week (radiation dr).
No other complaints other than that actually. I guess that wasn't so bad.
Michele....you are amazing. I love what you did with the excellent teaching opportunity St Particks Day provided you (and all of us) with! Yahoo. You ROCK!
GP...so sorry to hear about your dear husband...and so happy that he is well on the way to recovery. What a very bizzare kettle of fish that you somehow have landed in....first you....then your mom....then your husband....for crying out loud!! What is going on? Well, they say things happen in threes (who in the heck are "they" anyway....a haggle of people running around with lab coats and clip boards and pocket protectors? I've never been able to figure that one out personally) so let's hope that your bizzare luck of events has run it's course and you are back on track now. Phew.
Welcome, Olivia...and anyone else new that I've forgotten! You've found a good place to vent and learn about what the heck is going on with your body. It really helps to compare treatments and to find out why certain things are important and other things less so. It takes the mystery out of the equasion somewhat. When we can de-mystify a thing it is less scary, right?
By the way...did you all read about the new treatment for breast tumors? Amazing study shows that freezing them (while they re in the body) kills them....who knew? I'm sure a lot more is going to come out soon about this...but I was so intrigued I cut the article out. Anyone else hear about 'cryotherapy' for treating invasive breast tumors rather than surgery?? Dr Peter Littrup is apparently the lead on this initiative. I'm thinking that it might be a real break through for breast cancer that has travelled to areas such as the brain?
Boy...talk about "brain freeze"...LOL
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Michele-great pic!
Laura-healing thoughts to you.
Linda-I start right behind you on Tuesday. Good Luck. I am anxious to start and finish.
We are getting so spoiled here with the weather. It hit almost 70 today and more warmth and sun thru Sunday. We went right from Winter to Summer! I jogged 3.5 miles today...it helps me relieve stress that and my Lexapro and Ativan. I sleep very well now.
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Fellow pink pals -- it's been a while since I posted but I have been through my first chemo treatment (#1 of 4 TC) and continue doing quite well all things considered. I had five physical therapy/massage sessions to help eliminate fluid build up and aid my lumpectomy/sentinel node surgery recovery. I am continuing to work daily and have not had too much trouble with the SEs yet. One week post treatment #1 and still holding my hair. I did have some muscle/joint pain due to the neulasta shot but nothing a Tylenol couldn't relieve. I was even able to go for a light run the other day.
Love the hairdos!
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Hi Peeps,
OK, I have three more boosts to go! I hope I never walk into that Hospital again for a very long time. Tuesday will be my last one.All along they kept looking under the breast for redness, and I never got it. Now I do! Don't know why as I don't think this area is treated with the boost, but I am afraid to say any thing because, I do not want to delay a day to the finish line.
My husband came home from the hospital today. He was diagnosed with a UTI. He has to go for ten days twice a day, for antibiotic IV drips. He is weak and tired, but the DR said that is from his body fighting the infection. He has to keep the IV port on for his daily drips. We will get through this!
April 1st I will be GP again for the Arimidex. Anyone else taking that yet?
Wear your pink and feel good.
Hugs from GP Jeannie here
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Hi GP. Arimidex is one of the hormonal treatments isn't it? I'm already taking tamoxifen but am curious why the oncologist made that decision rather than arimidex. So far I've not had any real side effects from the tamoxifen. I have to admit, I feel a bit blue today but I think it's because of my son and his situation. So so sad.
Very happy to hear that your husband is on the mend and is home where he belongs. Yahoo...
By the way...my breasts have been a little itchy underneath...not sure why. Haven't started my radiation yet...but they are already itchy. I admit I like to scratch them because it feels so good...as they itch underneath, right where a wire would be if I were wearing a bra that had wire underlifts (which I'm not). But it does feel good to scratch right there. Hope I'm not causing any problems.
OK...over and out pink peeps.
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From what I understand tamoxifen is for pre-menopausal pinks and arimidex for post.
Tooth pulled wasn't any big deal, but hurts now 24 hrs. later. Nothing some good drugs can't handle. And tomorrow is Friday!
Welcome Newbies.
Katie Wait-ie
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Hi Katie...yes, I as well thought that tamoxifen was for pre-men and the other drugs (I think there are about 3 of them) are for post-men. Perhaps I look quite young to the oncologist? LOL. I believe he asked me about menopause and I said that I've been through it, although hard to tell due to having a hysterectomy at a young age. Perhaps that is why he did it...because I don't have a uterus? For sure, this is going to be one major question I will ask him when we meet on the 13th of April.
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Hi Katie...yes, I as well thought that tamoxifen was for pre-men and the other drugs (I think there are about 3 of them) are for post-men. Perhaps I look quite young to the oncologist? LOL. I believe he asked me about menopause and I said that I've been through it, although hard to tell due to having a hysterectomy at a young age. Perhaps that is why he did it...because I don't have a uterus? For sure, this is going to be one major question I will ask him when we meet on the 13th of April.
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Hi all-
welcome Newbies-
Linda- becareful of the scratching even before. Maybe put some corn starch, I think I read that. I am getting it now too. More sore than itching under breast.
Two more to go. I asked the tech why now I am having this redness and she explained it is accumulative, the radiation. She said that is why over the weekend you may get more redness than the day of or after. I must admit, aside from the drag of going every day, it has NOT been that bad for me. I am lucky for that I guess.
Linda- I am so sorry for your son's illness. That has to be so hard. It is so hard to see your loved ones suffer. This life is a tough road, with many joys and many heartaches.
Have a good night all and be well.
GP Jeannie here
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Arimidex- I had a hysterectomy at age 45. No uterus either.
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SPRING HAS SPRUNG!
Mutts - SHPRING HAS SHPRUNG!
Artsymom, hope you're on the mend.
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Hi everyone. I'm a newbie to this board and my name is Susan. I was diagnosed with DCIS in my left breast on 2/3/10 and man have I had my ups and downs. Because my mother had BC at 36, the BS suggested I take the BRCA test. Negative! Then when I had my breast MRI, they found another suspicious area on the left and one on the right. When I went for my MRI guided biopsy, they determined that the additional left area was OK, but biopsied the area on the right. Negative!
I had a lumpectomy on 3/9/10 with a SNB (2 nodes). Negative! I was like YAY no chemo. Spoke too soon. My path report says I have IDC and that my tumor is 90% HER2+ (a minority under this topic I see). So, more than likely, I will need chemo AND radiation. I'm prepared for that, but I am more scared about my mood as I was diagnosed w bipolar disorder 2 (means I tend to have more depression) in 2003 and have been VERY stable. I'm afraid that chemo will put me "in the basement" so to speak.
Lastly, the day after my surgery I looked down at my breast to get a glimpse of what transpired and I had a stitch in my nipple! I didn't understand why it was there, but just figured the BS had done some surgery there. Uhm, it looks like I have one headlight on and one off. : ) When I saw the BS on Friday, 3/19/10, I asked her if she was going to take the stitch out and she said to leave it in as long as possible. It still wasn't registering to me why it was there. So I asked her nurse what the deal was and she said because I have inverted nipples, the doc wanted to "fix'" my left nipple because a tumor behind the nipple can pull the nipple in. From here on out, I will be "very aroused" on my left side versus my left. LOL. I just wish someone would have explained it to me when I was in recovery on 3/9 rather than getting the whole story on 3/19, ya know? Plus I had to wait an hour to meet with the BS on Friday, too. Grrr.
Thanks everyone for being here. I have the support of my family and friends, but it doesn't compare to talking to all of you brave women who are going through the same thing!
P.S. Can't wait to tell you about my involvement in a BC research study at my hospital. It's a real hoot. : )
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sslepski,
Welcome!
You seem to be upbeat today, and enjoying BC research study at your hospital. I take breast-cancer treatment one day at a time.
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Hi Teka,
Wish I could tell you that I am contributing to BC research! Unfortunately, it involved taking breast fluid after heavy duty massage and VERY HARD pinching of my nipples resulting in very little fluid coming out. (The research tests estrogen in the breast fluid itself.) This went on for 15 mins and I couldn't take it anymore so I bowed out. Kinda bummed me out, but the pain was ridiculous and not worth it to me. Still, I get $50 for my participation. OK, I guess my experience does not classify as a "hoot" per se, but I have to admit I am a bit amused by it after the fact. I don't know how the 450 women they collected fluid from could stand it. To each her own, you know?
BTW, nice kitty picture - is that your kitty?
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sslepski,
I could pass on that BC research study!
Teka is a spayed silver tabby maine coon kitten. My baby. Does your kitty help to keep you upbeat while going through breast-cancer treatment?
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Hi there Susan, another pink peep! Welcome to the troops...I am sure you never thought you'd belong to this particular army, but so glad you found us. You have REALLY been through it haven't you? And to top it off, you are dealing with bipoloar issues. Please tag up here as much as you want as we will be a great support for you. I am surprised that someone made a decision to "fix" your nipple without asking you if you wanted it fixed. My eldest daughter has one inverted nipple...she was born that way and nobody has ever suggested she change things. She was even able to nurse on that side. I recall when I had bladder surgery, I found a stitch in the outer skin of my vulva. I was wondering what the heck? The nurse told me the Dr put a stitch there as an "anchor" to hold up some sort of drapery or something. I was really mad and the nurse said she didn't blame me. The Dr had to come up to my ward and remove it as the nurse refused to. He was not pleased and seemed embarassed about it. I digress.
That sucks that you had DCIS and then IDC...and HER +. But there are so many excellent drugs now for all of that...it truly is quite amazing.
We're so lucky to be living in these times...so many before us have been our guinea pigs and have endured all kinds of tests and trials...and now we have all this progress made. I am quite surprised about the study with the breast fluid! Never heard of that before...and they paid you for it! Amazing.
Keep well and stay in touch....we're all here for each other.
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Hi Susan and welcome. BC is bad enough but when you mix other problems like BP I am sure it gets more complicated. I have always suffered from anxiey and depression. The BC dx made it worse until I was done with all the waiting for results. Once I knew the plan I was much better. I am mood wise, pretty much back to where I was. I don't have to do chemo just radiation starting Tues and then Tamoxifen. I am worried about the Tamoxifen causing issues with my mood. I try to exercise a lot to relieve stress and that seems to help the most. Good Luck to you.
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I was gonna try to post some today to catch up, but seem to be having a "bad bones" day. (This is where all my bones in my body feel like they're in some kind of vise that is trying to turn them into power.)
So I will just say, hugs to you all. I think of all of you often and hope that you are doing well, or at least tolerating what comes down your path.
Nitey and will try to stop in again tomorrow.
Oh, before I go: Go Cats! (Kentucky Wildcats) (PSPS: My Kentucky Wildcats are playing my father's alma mater, Cornell, in the next round! Sorry dad!)
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Hi Michele....sorry to hear you are having a bad bones day...I hope when you wake up your pain has subsided somewhat. I wish you strength and power as you move forward fighting the dragon. Tomorrow I start my radiation. I bought the nursing bra tonight, in honour of our GP. I was going to get two of them but they were $22 so I just got the one.
Did the green dye come out of your skin? I had to chuckle about that...it was pretty funny. I don't think your grandson's school will try to pull that one again. LOL. I've got 6 grandchildren and I would probably have done the same thing. One of my grandaughters (she is now 7 yrs old) had an excess of estrogen and was growing breasts at age 2. She stopped after about 6 months but was closely monitored. She is now in a real growth spurt again and they are checking her hormone levels. I'm concerned about her future, especially now that I've developed breast cancer. Hope she is going to be ok. My daughter is right on top of things and keeps a close eye...but still it makes you worry a bit. Some things are just out of our hands, aren't they?
Well, good night my pink peeps...sleep tight. Tomorrow is another day for battle and we need our rest...
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Hi- I was just diagnosed with IDC, grade 3, on March 12. Having a breast MRI tonight, with hopefully quicker results than "3-5 business days". I just joined this discussion board today-oh, okay, I actually registered last week but for the life of me could not remember what I chose as a user name
(spent about an hour trying to find it on the members list-finally, just made a gmail account, and re-registered!)
So anyway, this site is so very helpful, especially the discussion board! Here's what is causing my current feeling that I'm about to vomit-who out there, has chosen lumpectomy vs mastectomy and why did you choose mastectomy if lumpectomy was recommended? I met with 3 docs last Thursday, ONC, Surgeon, Rad. ONC, and they gave me all of the outcome stats of both (there's no difference between the two, they say). OK so when they ask me what I think I will do, I was leaning toward lumpectomy if the MRI is ok. I've spent a lot of time here today, looking at various people's experiences, diagnosis, etc (I had a lot to catch up on-bills etc and now I'm in a nauseated frenzy). Can anyone give me some feedback on their experience? Maybe Class of 2010 isn't the right forum to check this, I don't know.
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second chemo done. had port put in on thurs. chemo on the friday. so far so good this time. .. on the thurs finally the pathology i was waiting for. they found some kind of nodule which some big specialist doesn't know what it is. could be benign could be malignant whatever it is is unusual or rare... the ductal cancer has a 5 cm clearance all the way around. don't know exactly where this nodule is... seeing my surgeon on monday,,, they want me to see a radiologist. there is no breast left so what the hell would they radiate... very depressed and despondent about everything. thinking whether i could afford to go to the mayo clinic for a second opinion....being canadian i know it is a lot of money and i live on disability. regarding the tamoxafin issue they do give it to post menapausal women. i was on it.....at 60.
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Hi Laurie,
Welcome to the club nobody wants to join..
Like you I did a lot of research and as you say there appears to be no difference in outcome. From what I gather, some women prefer to have a mastectomy, they see the affected breast as 'bad' and just want it gone.
Some women prefer to have a mastectomy and avoid radiation therapy, depending on their type of tumour. Some women with DCIS choose mastectomy because of the risk of recurrence or even a bilateral mastectomy as there is a higher risk of recurrence in the other breast.
If there is more than one tumour, or if the tumour is behind the nipple, a lumpectomy is not an option.
You are right to be doing loads of research; good luck with your MRI results and let us know how you get on.
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Hi Laurie...welcome to our army. I too was told my chances were the same with a lumpectomy as a masectomy. I chose the lumpectomy as it seemed less invasive and as well, the placement of my tumour along with the size and grade of it seemed to suggest this was the best option for me. I also have very large breasts and having to go without one would throw my back out for sure. LOL. You don't say how old you are...this could make a difference as well. In the end, it really is up to you and you alone. You have to ask yourself if you'd be ok without one or both of your breasts. You have to have radiation when you have a lumpectomy...and that is a given. If your tumour is in your left breast I think it is important to think about the long term effects of radiationon on your heart. I know that today they try to avoid having the radiation touching the heart but sometimes it is impossible not to get some of it radiated. Sounds like you have a great team working hard and fast to get you sorted out and on the road to recovery...Yay!!!!
Hi Shopper...I've actually heard of some people getting radiation when they've had a masectomy. I know this sounds strange but in some cases it seems to be warranted. For sure I'd take a pen and paper to the the Dr's and find out why they want to radiate and as well, what is that lonely little nodule doing on it's own in the hinterland...just being a real bug. Let's hope they can stamp it out quick. Who knows? Maybe that is why they want you to see the radiologist...to zap the nodule that way??? (Just a guess)
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I will be definitely having a left breast mastectomy - perhaps a bi-lateral...either way, I am having radiation. This was decided from day one. I was never given an option.
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