please help

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  • EWB
    EWB Member Posts: 2,927
    edited March 2010

    sad to say "they, the stoopit ones. walk among us"

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  • 1Cathi
    1Cathi Member Posts: 1,957
    edited March 2010

    Hi Elaine -  sending you good day wishes -  XOXOXOXOXOXOXOXO

    I was thinking have I missed something Shirlann has not posted in a long,  long time?

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  • 1Cathi
    1Cathi Member Posts: 1,957
    edited March 2010
    Missed the neurologist call on Wednesday - Amanda was busy doing something and didn't make it to tele in time,  so hoping she can reach them this AM.
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  • cloudhowe
    cloudhowe Member Posts: 236
    edited March 2010

    Hi Girls

    My you have been quiet lately!!

    herceptrin today and I was a bit wobbly. 2 bloody infections in the last few weeks. Getting better is a long, slow haul my dears!

    Big Whisper, however, turned the corner! This time last week he was still in obvious pain and distress, then abracadabra! - he seems so very much better, even going outside to ahem ... attend to his needs. Such a relief.

    My wee 20 year old niece is due in the next couple of weeks and she and her dad, my bestest cousin IN THE WORLD are coming up for a long weekend on Thursday, leaving next Tuesday. Next time I'll see them I'll be a great auntie to Lily Rose! My cousin Marie is also due about the same time so lots of cause for celebration. My niece Theresa took her new boyfriend through to be interrogated by me on last Sunday. He is adorable, a 27 old history teacher who has travelled extensivly though Asia and Australasia. I feel 100, I still feel they're kids and one is due and the other has a serious boyfriend. When did this all happen??????

    Anyhow my lovelies, that the news from the front. What's the script with you guys?

    With all my love.

    Nettie xx

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  • 1Cathi
    1Cathi Member Posts: 1,957
    edited March 2010

    Nettie enjoy your guests and best wishes for the soon to be new little one,  guess everyone is busy or so many are on FB now.  We all do a lot of our everyday chit-chat there.  But this (at least for me ) is a safe heaven to rant,  rave and carry on with anything to do with BC or for that matter anything tha really ticks me off.  I am kind of careful about placing to much personal info on such sites. 

    Anyway not much news on my front,  still no PET Scan approval - UGH.  Landen's EEG came back clear,  but neurologist still has some concerns as he tends to 'TWITCH"  a lot.  So on 3/24 he will be in the hospital for 24/Hrs with his momm for some type of EEG monitor that is more exact - what ever that means.

    Sending  happy vibes form my coast to yours -  XOXOXOXOXOXOXOXOXO

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited March 2010

    Cathi, for heavens sake! With mets already to the bone, why would they not approve a PET scan? Yell

    I don't envy Landon's mom having to explain why he has to stay "there"....

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  • Ezscriiibe
    Ezscriiibe Member Posts: 598
    edited March 2010

    Cathi! You GO on that nincompoop airhead selfish lazy twit!

    Some people have more mouth than sense!

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited March 2010

    Did I miss something EZ????

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  • Ezscriiibe
    Ezscriiibe Member Posts: 598
    edited March 2010

    Well, technically, I "missed" it. It was from a March 9 post about some old lady who was trying to diss her for taking a parking spot too close to the stores. I sort of posted out of context! LOL!

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  • 1Cathi
    1Cathi Member Posts: 1,957
    edited March 2010

    Thanks Michele,  it was one of those days I had a lttle back bone to stick up for myself,  I am usually not very good at that.

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  • NancyD
    NancyD Member Posts: 3,562
    edited March 2010

    Cathi, when I read that story, I pictured it happening at the Beall's outlet store...they always seem to have gray-haired people cruising the parking lot trying to get as close as possible to the door. The thing that makes me laugh is it's not a very big lot, and even walking from the furthest spot from the door, you wouldn't work up a sweat.

    I've been back at work for two weeks now, and am a little miffed. They didn't cut a check for me on Monday. Apparently no one told HR that I was back. I don't know how long it will take them to straighten that out. Thankfully, my bonus check was posted and that will more than carry me over to next payday.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2010

    May those who love us, love us.

    And those that don't love us, May God turn their hearts,

    And if he doesn't turn their hearts, May he turn their ankles, So we may know them by their limping.

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited March 2010
    Good one! Except I limp AND I love you! Undecided
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  • 1Cathi
    1Cathi Member Posts: 1,957
    edited March 2010

    OMG Nancy you hit the nail on the head -  thats exactly where it happened. And you know they have those spots right across the front of the lot between Bealls and Publix,  a few are handicap some are not, I don't even park there if there are empty ones,  because I try to be kind. That parking lot is crazy this time of year -  again I have theutmost respect for our seniors -  Hell in a few months I'll be eligible for AARP-LOL. But please drive a car that you can handle, and it scares the heck out of me when I see them come out of the store hardly able to walk (Nancy you have been here you know what I mean) and get into a huge SUV or caddy that they can't even see over the wheel. 

    So got a call from Onco - Insurance refused PET because my Blood work (Tumor Marker) test isn't elevated ENOUGH to warrent the test,  he is pissed,  said he has had that happen a few times and will fight it.  He does tumor markers on a regular basis  -  but does not rely on them as NO ONCO should he said,  my history and current bone status and his feeling of enlarged node should in it's self WARRANT the test -  his exact words. 

    On a good note,  the SE from the neuroblocker have improved greatly-  I am not sleeping the days away,  I do still have what I feel is a "thinking" issue sense starting them -  hard to explain but sometimes I really have to concentrate on simple routine tasks especially when working on the computer.  I am still having some breakthrough pain however most days tolerable,  sitting and bedtime are the worst -  reaming stationary for too long seems to be a common problem with my mets location.  But having much better days -  I do miss wearing my heels though,   bought some cute little summer kitten heels  - hoping I can wear those longer each day -  I know it's stupid thinking about shoes - but I LOVE SHOES,  and they make me feel GOOD.

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited March 2010

    That's not stupid at all about the shoes Cathi! We have so little control over things, that it IS the little details that count.

    Used a wheelchair yesterday with Paul while doing chores and back to my cane to get in and out of the car. Used the cane for the first time IN the house tonight....sigh. Big steps backwards. I have my oxycontin twice a day with oxycodone-IR for breakthrough pain and had to take TWO at work today! That would make me illegal to drive home, but hey, you do what you have to!

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  • 1Cathi
    1Cathi Member Posts: 1,957
    edited March 2010

    Oh Barbe sooooooooooooooooooo sorry about all the pain, while I have not had to use a cane or WC I sure do know how frustrating living each day in constant pain can be, it SUCKS!!!!!!!!!!!!! WOW you did drive under the influence - PLEASE BE CAREFUL! I don't drive very far these days or very much even because I am afraid of the SE the meds have had,  now that my fuzzy groggy head is much better I have gone for coffee and up to the stores a few timees on my own. Sure hope you have a better day - XOXOXOXOXOXOXOXOXO

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  • hrf
    hrf Member Posts: 3,225
    edited March 2010

    Barbe, so sorry to hear of the pain you are experiencing. I hope the docs can get it under control for you.

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited March 2010

    I had a brain flash last night and took my Cipro for a possible kidney infection! OMG this morning I feel SO much better and I can move freer. I will take the antibiotic for 2 more days anyway, just to be sure, but it seems like I figured out what was putting my pain over the top this week.

    I have to keep the Cipro on hand due to my kidney defect and it occurred to me by the way I was walking around work yesterday (so gingerly) that I was "protecting" my kidneys. My DH had to meet me at the car last night and almost carry me into the house it was that bad. If I didn't figure it was kidneys I would have had him take me to the ER. I had about 25 Percocets worth of narcotics in my system and was still in agony!

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  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited March 2010

    barbe sorry to hear you were in so much pain.

    I had a tooth worked on Tuesday, prep for a crown, and yesterday I felt totally horrible. I was having chills and stomach cramps. I got home and didn't feel like going to church. My son came in the LR about 10 pm last night to give me a hug and he said I was hot to the touch. I took my temp and it was 101, no wonder I was feeling like crap. I don't know what was going on but I did feel better this morning and temp was back to normal so I came back to work.

    Sheila

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited March 2010

    Interesting you say that Sheila. I had teeth cleaning about 10 days ago and I used to take antibiotics due to a heart defect before I had dental work as there is so much bacteria that gets into your bloodstream during the treatment.  I don't get the antibiotics anymore as the medical industry changed the parameters on the prophylactic meds. I wondered if that was what caused my infection. You could have had an infection from your dental work too! Very dangerous as it is in your bloodstream. Keep an eye on it. The infection would show in a weak or damaged area of your body (think breasts!).

    I'm going to be getting a crown too. Was it horrible? Yell

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  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited March 2010

    Barbe, I have had quite a bit of tooth work done this year, one extraction instead of root canal and crown, redo all my fillings due to decay around them (I didn't see a dentist for 3 or 4 yrs) and I planned ahead by adding extra to my medical spending card to cover the expenses. This tooth was too bad to try and fill but didn't need the root canal but needed the crown. It wasn't too bad, he gave me 3 novicane injections (2 in the jaw and one next to the tooth) and I was numb from the center of my mouth all the way to my jaw. I thought maybe it was a reaction to the novicane since I was on the hydrocone cough syrup for 2 weeks and since they are in the same family of drugs. The cough syrup will give me cramps and constipation like I was feeling yesterday.

    The dentist I am seeing now said that my teeth are weak because when I was growing up I lived in the country and we had well water so no fluoride to help strenthen my teeth. I am now using 10 dollar a tube toothpaste that I got from his office to try and strengthen my teeth. No other dentist has said anything about my teeth being weak, they would just keep filling the cavities and tell me to brush and floss better.

    I now have a plastic temporary tooth cemented in while the permanent crown is being made and I will get that put on April 1.

    Sheila

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  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited March 2010

    Hi everyone!  I just wanted to pop in quickly to wish you all a great weekend.  It's absolutely gorgeous here today, and I'm hoping to get some outdoor work accomplished.  I'm sorry for being MIA--with the new house so close to being complete, I've been incredibly busy!

    Prayers are going out for those of you who are having difficult times.  Cathi, Barbe, Sheila---I hope you find relief from pain.  Also, everyone who isn't on FB, say a prayer for our sistah Cheryl.  She says that she'll share her story with everyone here soon, so I won't go into detail.  She REALLY needs our prayers and positive thoughts right now!

    Love and hugs to all,

    Karen

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  • 1Cathi
    1Cathi Member Posts: 1,957
    edited March 2010

    DITTO on Karens words for Cheryl - Prayers  -  and hugs to you my dear friend. 

    Our weather here at the beach is going to be Absolutely perfect,  bad thing though getting out of even the driveway will be horendous,  snowbirds,  spring breakers,  there is not enough public parking to handle it all,  so the streets are lined with cars -  oh well the small price I must pay for living in paradise. 

    Thanks for your thoughts Karen - repain,  right now I guess I just gotta learn to live with the breakthrough, it is better for about 7 hours,  if I keep to a schedule I can pretty much handle the last hour before another neuroblocker is due,  my next Onco appointment is 3/29  hoping he has the PET scan with insurance taken care of,  and he says he will adjust meds again at that time if still having pain. 

    ANY WAY HAPPY WARM SUNNY WEEKEND TO ALL - XOXOXOXOXOXO 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2010

    Cathi, my daughter is the manager of the claims department for a health insurance company here and is incredulous that you were denied. If ever there was a clear-cut indication, it is yours. It had better be approved soon!

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  • cloudhowe
    cloudhowe Member Posts: 236
    edited March 2010

    Hello my dearest brethern

    Ok. On for a wee bit of a rant.

    Not for me, just can't walk. Taxotere has affected the thighs.

    I am just sooooooooo angry that so many of you are worried about the cost or effectiveness of your treatment.

    Please accept and embrace and, continually, question universal heathcare.Be it's worst critic. We do in Scotland. It's not perfect - but strives to perfection. 

    Sermon over. I would love to welcome comments.

    My very best love to you all.

     nettie, xxxxx

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  • my3girls
    my3girls Member Posts: 3,766
    edited March 2010

    Hi sisters!!

    A quick hello!!

    Sorry about the pain, nasty old people that you all are experiencing!! Cathi...I could just picture what happened!! The nerve!  You handled it well though!!

    Shame on the insurance company!

    Hugs to Cathi, Barbe...and anyone else experiencing pain.

    Good weather here too.....much love to all. At work...hoping to go to Arizona tomorrow, if the flights are not full.  I need a break from work!!

    Love to all!

    xoxo

    Lisa

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  • 1Cathi
    1Cathi Member Posts: 1,957
    edited March 2010

    Ahhhhhh Nettie I sit on the fence with our health care reform here in the USA,  I guess because I have fallen on both sides of that fence,  I have had WONDERFUL INSURANCE, espically at the start of my DX, before that while I always carried insurance I hardly ever used it,  nw I pay an arm and leg for very less than adequate insurance sooooooooooooooo?????

    I truly believe the USA is a wonderful country and we should and must help those less fortunate than us,  but as I have been denied testing (I am sure with Oncos help it will be approved) but still it's a fight that should not be,  thousands of Americans are with out healthcare.  hope I don't offend anyone,  but right here in our state we have over 3 dozen Hatians from the quake  receiving care expensive medical care,  EVERYONE should be able to be taken care of when the need arises NOONE from anywhere should have to suffer,  but that hurts me when so many need care here and are refused. 

    Well anyway it's a vert touchy subject,  I try hard to not discuss politics with ANYONE.  In my mind my perfect world there would be care for all,  the proper care when needed. 

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  • cloudhowe
    cloudhowe Member Posts: 236
    edited March 2010

    Amen Cathi.

    I don't want to be presumtous but things will change for the better. Just remember that YOU guys are in control. There are some things JUST TOO IMPORTANT not to fight for and always scrutinise and strive to improve. There. Said. My hope and best wishes to each and every single one of you.

    Well Hugh and Kez (darling niece her her dad) are gong home tomorrow. Her wee baby, Lily Rose's head is engaged, so she could pod at any time. We were up talking till 4am this morning. She is only 20, looks 10!, and the whole thing has become so real for her now. We have all been buying stuff for the baby and we were oohing and aahing, so many beautiful wee things (all infant, she will grow out of them in 2 shakes of a lamb's tail, but who can resist baby garments??) Her dad is already spoiling both of them rotten - she is an only child, go figure ...

    I got my bone scan and a CAT scan last week as I am pretty sore, but that is probably from the fall before Christmas. Scan is just for peace of mind. I did set off Geiger counter in the day room though!! All of these things that would have scared the tar outta me this time last year are nada now. Also got my date for the bowel op (Gulp) 9th April. I think they are giving me a general - that was the script when I was down last time in November when there was too much trauma to proceed.

    Will master Facebook - have looked up some of your photo albums, thank you for sharing. Have you checked out Devin's? He is a talented photographer for certain sure and took some cool pics of Skye and Oban when he was up visiting. He is coming up in April again and it will be sooooo good to see him again. By that time I'll have worked out how to bluetooth pics ... Never been much of a photographer I'll confess ...

    Big Whisper the cat is much better, but very ungainly and timid (he was the friendliest cat in the  world before, but he was cuddling in to Kez last night when we finally hit the sack, purring away)

    Love to all of you, Hugh and Kez will be home soon so better get prepared. We are all absolutley exhausted (doesn't take too much for me at the moment, and they have been on a whirlwind of visits, catching up etc) Will miss them terribly when they leave tomorrow evening, but will see them when baby pops up!

    Godbless sweethearts

    Nettie xx  

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2010

    Enjoy Arizona, Lisa. Sounds like a dream. I'm so happy for you.

    I'm with you, Cathi. Political discussions generate so much heat with so little purpose. Most of us are too stubborn to listen objectively or offer our views respectfully. To me, life is too short to waste that much energy.

    All I can do is hope that this legislation levels the playing field for all without creating too many new problems. Time will tell. I strongly support reform, but this is so very complex it's hard to say how it will go. I hope you're right, Nettie.

    Nettie, it sounds like you are overdoing it, as usual!!! But that's what families are for, I'm afraid. What bowel op? I must have missed something. Will you be up for seeing Devin? Has he let you know yet that he has moved the dates one week later? Knowing him, probably not! He's going to get to meet our Sue, too! Why couldn't it be me???

    Here's a photo of Devin on Beer beach in Devon with the Beer cliffs in the background. A college student's dream, especially one named Devin! He took this photo himself, since the girl he was with has no talent whatsoever in the photography department.

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  • 1Cathi
    1Cathi Member Posts: 1,957
    edited March 2010

    What a handsome guy that Devin is.  Judie about the only one I discuss politics with is Ed,  we may not always agree on things but we listen with respect.  I do have to say though that glancing through a few posts on the other forums from time to time,  looking at some of the groups added on FB  -  YIKES. In my lifetime of being an adult and kinda knowing whats going on -  seems to be a lot of disrespect  - mean nasty  disrespect.   I know  it has always been there regarding politics,  I have just always distanced myself from the fights like you I don't have the enery/time to waste  but groups started saying 'KILL THE PRESIDENT"  WOW.  In my opinion thats pretty bad.

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