**NEW** Starting Chemo March 2009

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  • nasharayne
    nasharayne Member Posts: 139
    edited March 2010

    Francine...it's Tanasha. I put it in my earlier message

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  • crusader1
    crusader1 Member Posts: 1,222
    edited March 2010

    Yes Tanasha,..I knew you had told me it but I had forgotten and could not locate the email. I don't think the other ladies knew your real name. Would be so great joining us for the delegates dining room. Please let me know for sure as I know one must make reservations. We will take a tour prior.

    Patti.Great that you too will be coming to meet all of us.

    I am so happy that all are happy with my itinerary. I believe that at the Museum ( saturday morning) I should be able to get all in for free. One less thing to pay for.

    Hugs,

    Francine

    I am so thrilled all is coming together.

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  • jdeking
    jdeking Member Posts: 408
    edited March 2010

    Hi all,

     I am so sad today. My dad went into the hospital last Monday, with a very sore back and generalized weakness. They did lots of tests, and it turns out that he has acute plasma cell leukemia with multiple myeloma. They are giving him only 3 weeks - a few months to live. It has been a very tough week, and I think it will get only worse. He started chemo today (Velcade), and if he does well, they will give him Cytoxin on Wed, Velcade again Friday. Then if he does ok with that, they are looking at another 4 drugs in a constant 4-day infusion.

     I had to cancel my trip to NY, which is making me sad as well. I was really looking forward to it, and to meeting all of you, but I really need to help my mom and dad out at the hospital, and I would never forgive myself if he passed away while I was gone. This was the 1st time I used Priceline's "Name your own price" feature, and I got 3 nights at the Warwick for $175/night. Of course that means no cancellation or refund... but I called and explained, and they said they would make an exception if they get medical documentation.

    So please, if you have time, pray for my father to have strength and peace. His name is Richard DeKing, and the more people I can have praying for him, the better.

    Sorry to have to cancel. I hope we can plan on something again in the future.

    Janine

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  • bethr
    bethr Member Posts: 259
    edited March 2010

    Janine,

    I'm so sorry to hear about your dad.

    He will definitely be in my prayers....

    Beth

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  • pickle
    pickle Member Posts: 1,409
    edited March 2010

    Janine: So sorry to hear this news. I am sure that your Mom and Dad will appreciate you being there for them. I will be praying for all of you. Take Care and keep us posted.

    patti: That's great that you are joining us. Really looking forward to it.

    Francine: Everything sounds great! Yippee...can't wait.

    Tanasha and Beth. I got your e-mail..thanks.

    Kim: I will be rootong for your son to do well in his bowling tournamnet. We will miss you but who knows...maybe this will be an annual event!

    MMMMM.....sticky wings sounds YUMMY!

    Christy: How are you doing? I bet you are thrilled to be Deported and Done!

    Chris: It will be great to celebrate with you in NYC!

    Hugs to all

    Beth P

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  • ccbaby
    ccbaby Member Posts: 985
    edited March 2010

    jdeking...I am so sorry to hear about your Dad...he is in my thoughts and prayers

    pickle...I am doing alright, just very sore and tired. I had a lot done...We made it home last night from the 11 hour drive back home from NOLA....Yes, I am so HAPPY to be all done and deported! Now, to get on with life!

    For the girls going on the trip...I hope all of you have fun and please take a lot of pictures and post on here or Facebook please!

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  • ChrisC433
    ChrisC433 Member Posts: 553
    edited March 2010

    Janine:  I am also sorry to hear that your father is ill.  You are right where you need to be.  Your family is in my prayers.

    Franicine:  got your email about the comedy club and the tickets said CA or somewhere else??  Is this in NYC as well?  My sister would like to see a show, so maybe after breakfast we will go (2:00 matinee).  Not sure yet???  We will hook up again for dinner and the comedy club.

    Really need this weekend...my MRI is moved up to this Thurs. and Mammo and BS to 3/31.  Keeping my fingers crossed for good news!

    Take care,

    Chris

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  • crusader1
    crusader1 Member Posts: 1,222
    edited March 2010

    Janine..so sorry to hear about your dad. Too bad you had to cancel your trip. Next year you can join us.Your father will definitely be in our prayers.

    Chris..No problems in making decisions for Saturday. I will make reservations for dinner on Saturday evening. All the rest of the stuff will be without reservations except the delegates dining room. I also checked out the Comedy club which on the site said Times Square and got nothing. Maybe I will call tomorrow.

    See ya'll soon..

    Hugs,

    Francine

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  • Alyad
    Alyad Member Posts: 817
    edited March 2010

    Janine, I am so sorry to hear about your dad. We will be praying for him as we hike on the trail.

    I made a video slideshow with some of my hiker pictures for anyone that's interested.

    http://www.youtube.com/watch?v=l661dEgic3Q

    Dayla

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  • crusader1
    crusader1 Member Posts: 1,222
    edited March 2010

    Oh Dayla,

    I just finished seeing your video. So well done!  It made me cry at first and then cheer.

    Go for it and enjoy your walk on the moon.

    You and Jasper deserve it.

    Hugs,

    Francine

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  • pickle
    pickle Member Posts: 1,409
    edited March 2010

    Dayla: That video and song are awesome. Soak it all in and enjoy every minute. So proud of you!Smile

    Hugs

    Beth P

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  • pickle
    pickle Member Posts: 1,409
    edited March 2010

    Francine: Hi Francine. If my memory is correct...you will be getting your last surgery tomorrow! I will be thinking of you and sending prayers and positive thoughts your way for a speedy recovery.

    Big Hugs

    Beth P

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  • crusader1
    crusader1 Member Posts: 1,222
    edited March 2010

    Yes Beth tomorrow is my exchange.They called yesterday and made me the first surgery. So I have to be there at 6 am. Happy to get it over with...Thanks for the positive thoughts.

    I am so ready for this. I am not all that concerned... I even just bought Broadway show tickets online for Friday evening. I guess I am an optimist.

    Please wish you a successful surgery..and an infection free recovery.

    Hugs,

    Francine

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  • ccbaby
    ccbaby Member Posts: 985
    edited March 2010
    Dayla....Your video is awesome! I know I couldn't do it. Take care and be careful.
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  • nasharayne
    nasharayne Member Posts: 139
    edited March 2010

    Janine your family is in my prayers

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  • pickle
    pickle Member Posts: 1,409
    edited March 2010

    Francine: Cheers to a successful surgery and infection free recovery.

    Janine: Thinking of you today. I am sending prayers of strength and peace for your Dad, Richard Deking. I pray that he has good results from the chemo they are doing.

    Hugs to all

    Beth P

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  • ChrisC433
    ChrisC433 Member Posts: 553
    edited March 2010

    Francine:  May the luck of the Irish be with you tomorrow!  Enjoy that show Friday and recommend it if its a good one!

    Janine:  I pray that your father is responded well to the chemo.  He is lucky to have you for support.

    Dayla:  AWESOME video.  I would love to hike!!!

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  • crusader1
    crusader1 Member Posts: 1,222
    edited March 2010

    Ladies,

    Off to the hospital..5:30 now in NY. I am optimistic all will go well.

    Janine..your father had all of us to pray for him.

    Hugs,

    Francine

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  • Dawnmrn1
    Dawnmrn1 Member Posts: 446
    edited March 2010

    Francine!  Good luck today!!

    Janine!  Your family is in my prayers!

    I am having my implant out and deported on the 30th, can't wait!!! Best to all!!  Dawn

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  • pickle
    pickle Member Posts: 1,409
    edited March 2010

    Francine: Hope it all went well. Looking forward to hearing from you.

    Dawn: Good luck on the 30th. I bet you are excited to get deported. Are you having a breast implant removed or did you mean the port?

    Hugs to all

    Beth P

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  • PattiB
    PattiB Member Posts: 421
    edited March 2010

    Good luck and well wishes Francine!

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  • jdeking
    jdeking Member Posts: 408
    edited March 2010

    Francine - thinking of you, and hoping the exchange is going well!!

    CCbaby- congrats on being deported. Yay!

    All - thank you so much for your thoughts and prayers. My dad had his first chemo Monday, and tolerated it well. He will have another Friday, and another next Monday. They are holding off on the Cytoxan until his kidneys get a bit better. He has bedsores already, we are working on that.

    Dayla- congrats on how much you have accomplished already on the AT! Way to go!!!!!

    Priceline was super nice, and allowed me to cancel my trip, and refunded most of my money. The customer service was outstanding, and so caring over the phone. I will definitely be a customer for life!

    Hugs to all, and thank you once again. I will try to check in at least once a week to keep you posted.

    Janine.

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  • pickle
    pickle Member Posts: 1,409
    edited March 2010

    Janine: Glad to hear that the first chemo went well for your Dad. I will keep you and your family in my prayers. Looking forward to your check-ins.

    Hugs

    Beth P

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  • crusader1
    crusader1 Member Posts: 1,222
    edited March 2010

    Hi Ladies,

    All went so well today. I am just tired. The most amazing thing is that I am in almost no pain. I can actually get in and out of bed. Am I thrilled. Also my new breast feels soft already. That TE felt like a rock. The PS decided today to put me on a heavier antibiotic. He spoke with my Infectious disease doctor yesterday.Fine with me. Yes I had two PS's operating once again. Am I a lucky girl. Also no drain. Yeah. Friday I can take a shower. The PS put on a binder to keep something in place. I posted a question on the Reconstruction board where many smart ladies are.

    Janine..WE will keep your dad in our prayers.Glad he  tolerated chemo so well.

    Dawn, Patti. and especially Janine ..thanks for the good wishes.and Pickle of course

    Dawn good luck. Are you having an exchange?

    I think I am finally approaching the end of my tunnel and the sunshine.Notic the phrase at the bottom of my posts.

    Hugs to all and thank all so much for the caring that you show..

    Francine

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  • pickle
    pickle Member Posts: 1,409
    edited March 2010

    That's Great News Francine. Glad you are relatively pain free!

    Hugs

    Beth P

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  • Dawnmrn1
    Dawnmrn1 Member Posts: 446
    edited March 2010

    Francine!  I am so happy to hear you are pain free!!! good luck woth your new implant!!!!

    I am a whole different case!  My implant is coming out. I had one put in at my exchange last Jan, when they found my second Ca, all it has caused me is discomfort!!! It dropped down so it hangs out under my bra is very hard as it is under muscle, and causes me muscle spasms!!! My left breast is gone and not reconstructed, I use a prosthesis on that side and look forward to using one on the right after the implant is removed!! My Docs think my discomfort comes from my assymetry, so this should help me!  I am loking forward to it!! the port doesn't bother me one bit I have it flushed monthly and use it for bld draws, but my BS and my Onc want it out before I develop a clot or infection. So out it comes, I hung on to it for a year thinking I may need it again, but I don't need any more trouble so out it comes on the 30th.  Please don't doubt your reconstruction because of me!  I wished I had a beter result, but I think with my second Ca my whole situation changed!!! Hang in there and I wish you all the best!!! thanks for the good wishes!! Dawn

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  • crusader1
    crusader1 Member Posts: 1,222
    edited March 2010

    Dawn,

    Thanks for the note.

    I know that so many have troubles with reconstruction. I am keeping my fingers crossed and hope all will turn out well for me and you too.

    HUgs,

    Francine

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  • ChrisC433
    ChrisC433 Member Posts: 553
    edited March 2010

    Glad to hear all went well.  Keep up on the antibiotics and stay healthy!

    You have had such a long road and lots of surgeries...cheers to the last one!

     Janine: Glad to hear the chemo was tolerated well by your dad.  I wish him, and you, all the best.

    Time for bed!

    Chris

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  • crusader1
    crusader1 Member Posts: 1,222
    edited March 2010

    Hi ladies,

    Just checking in. I am really doing fine.Tomorrow I can shower. Yeah..

    Finally a  warm spring day.

    Hugs,

    Francine

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  • pickle
    pickle Member Posts: 1,409
    edited March 2010

    That's great Francine. Glad to hear that you are feeling well and that the weather has improved. Good weather is so uplifting.

    Have a wonderful day!

    Beth P

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