As Stage 111 is it too soon to remove port?

Options
echosalvaje
echosalvaje Member Posts: 191
edited June 2014 in Stage III Breast Cancer
As Stage 111 is it too soon to remove port?
«1

Comments

  • echosalvaje
    echosalvaje Member Posts: 191
    edited March 2010

    OK Ladies, here's my struggle. I look to your wisdom and experiences about this.

    Today is my 1yr. canserversary. For the past couple of visits to my med onc I've asked about port removal. His initial response was, "well, you are stage 111 after all, so I am hesitant to remove it for a couple of years."  So I'm thinking, a couple of years? This is not giving me much confidence about all the treatment I've gone through....am I just totally screwed? OR, is this primarily a convenience for all the blood draws every three months?

    So, I saw him again last week and asked again about port removal and without missing a beat he says, "sure, you can have it out whenever you want."  WTF?  So I made the appt. to have it removed in two weeks and now I am having second thoughts about my decision. So I ask you, did you keep your ports in for a couple of years or did you get it out as soon as you could? I don't like it one bit, but have gotten used to it and removal seems more like putting closure on treatment, but I'm worried that I could be jumping the gun here. Your thoughts??????

  • Bugs
    Bugs Member Posts: 1,719
    edited March 2010

    I wanted mine out as soon as chemo was over.  My onc said he wanted to wait at least 6 months post chemo.  At 6 months, I said "I want this out" and he agreed. I felt so much better mentally once it was out.  It is such a helpful closure on treatment. 

    Very worst case?  You'd have to get one reinserted.  Worth it, IMO, for the mental therapy getting it out brings.   

    My thought....keep that appt!  I brought sparkling apple juice with me to the hospital and my surgeon and the nurses came in my "post op" room (it was day surgery...just sedation) to celebrate with me.

  • jenn3
    jenn3 Member Posts: 3,316
    edited March 2010

    I had my port put in during my bi-lat surgery in June (09), finished chemo December and the port came out the day I started radiation.  I was initially told it would be in for a year, but then the onc and surgical onc decided to take it out.  So.........I'm going to bury my head in the sand and say this is it  - no more!  

    I don't know what makes them change their minds or if they say what they're thinking at the moment without really thinking it all of the way through, but it can be confusing to us as patients. Back in June I was told as a TN that I needed to be deemed cancer free to have my port out and to have recon.  When talking to the surgeon (while he was taking the port out) he seemed to have forgotten he said that and said I could have recon whenever I was ready.  I asked what they meant by cancer free and he said having surgery and gone through treatment and no further signs of cancer. I was happy to get my port out don't regret it. 

    Good luck with your decision.

  • weesa
    weesa Member Posts: 707
    edited March 2010

    I got that sucker removed the first chance I got, right after finishing radiation. Had trouble with it throwing clots and had to take coumadin if I kept it so I was really motivated to remove it. Went to my surgeon's office, he numbed the area slightly and removed it. I drove myself home.` We have a similar diagnosis, echo, and if you want it out I support you totally. It is so easy to pop it in and out if you should ever want another. Also, in the summer they tend to show under the skin. 

  • Kandy
    Kandy Member Posts: 1,461
    edited March 2010

    I had my port taken out 4 mos after chemo. My oncologist wanted me to wait til I was through with radiation and I had a hysterectomy done. She said after that that it was time to have it out. I dont think they really worry about an occurrence until a couple of years. She says it is too early to be looking for mets so I quess there is no reason to leave one in with the thought of what if? I would have it taken out and there is a sense of closure with it, that you are actually done. If that stupid stuff does decide to come back in the future you can just have one put back in but hopefully that will never happen. Best wishes to you

  • Billynda
    Billynda Member Posts: 121
    edited March 2010

    I had to do AC, and my surgerires, and blood work, and PET with no port for 8 mos. and I have the teeniest veins ever - I love my port.  I wish I could keep it forever and never get poked in my poor left arm again.  I've only had it 5 wks though so I might change my mind!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2010

    So WTF???? what's with his comment "Your stage 3 after all, so I'm hesitant to remove it for a couple of years'???????  I bet you just wanted to kick his a$$.

    I had not port and was so releived to find out my onc doesn't use them.

    image

    Barb

  • Beverly11
    Beverly11 Member Posts: 443
    edited March 2010

    That is so strange.  My dx is similar to yours.  I was told I could have it out the day of the last chemo or I could keep it in for a while for convenience for blood tests.  The choice was mine.  My understanding is that the only women that keep it in for a long time are those who are getting herceptin.  I too hope you gave him a kick!!!

  • kalyla
    kalyla Member Posts: 258
    edited March 2010

    I was stage lll and had my port removed about 2 months after chemo. It was the most liberating thing I could do. It made me feel so good to have that alien lump off my chest. Stage 4 diagosis came one year later, this Christmas, and I had to have a new port put it, but I didn't mind. I really enjoyed the time without it. My opinion it Take It Out!

  • Pure
    Pure Member Posts: 1,796
    edited March 2010

    I didn't get one and no one EXCEPT the nurses told me i should get one. I have small veins so i bought this hand exerciser and wrapped my arm 2 nights a week so my veins would stay healthy. I have  had no problems . For me a port was ONE MORE THING that screamed I had cancer. I refused it... My husband had chemo 10 years for colon cancer. They didn't have ports then-he did just fine. People got chemo b-4 ports existed.

  • NancyD
    NancyD Member Posts: 3,562
    edited March 2010

    My onc made me wait a year from finishing chemo. I just had it out last September. I didn't mind having it in other than having it flushed every six weeks. Because their office doesn't open until after the last commuter bus leaves for the city, I would have to take a day off from work for a 10 miinute procedure.

    If I ever need one again, I'll just have it put back in. No biggee.

  • blondie45
    blondie45 Member Posts: 580
    edited March 2010

    I also don't want to give mine back. It really does not stick up at all. I can only pray that my BS did as good a job with my unilateral mastectomy as she did with the port placement. I have had it 10 months. I have had to stop herceptin, may still get it again, don't know at this point so not coming out anytime soon for me.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2010

    I didn't even have a port. I would get it out.

    As others said, worse case scenario you can get one put in again.

  • Moissy
    Moissy Member Posts: 550
    edited March 2010

    Surgeon asked me if I wanted mine out when I was done with chemo. Yes! Had a friend whose onc told her she should keep her for a couple of years. After the few years, finally they let her get it out...and told her that it was so clogged up they couldn't have used it anyway. Loved getting mine out!

  • diana50
    diana50 Member Posts: 2,134
    edited March 2010

    it is like a breath of fresh air getting that port out. they wanted to leave mine in too....i said NO.

    those doctors are drama queens....Sealed  kidding....

     . 

  • diana50
    diana50 Member Posts: 2,134
    edited March 2010

    it is like a breath of fresh air getting that port out. they wanted to leave mine in too....i said NO.

    those doctors are drama queens....Sealed  kidding....

     . 

  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited March 2010

    I have a port and don't regret having it for a second.  I have veins that are hard to access sometimes even before chemo, and for sure that crap messes them up even more.  It is kind of ugly, but if it makes the treatments easier I was for it.  We've had no discussion of removal yet of course as I still have 2 more Taxols to look forward to.:)  It would be nice though to get it out before summer though so it's not glaring in a bathing suit, etc.  Although I'll still be bald then and I'm sure people will be staring at me wearing a bandanna. 

    I'm with the others that think the doc was pretty insensitive to say what he did about stage III.  Sometimes I really don't think they hear themselves.  My general surgeon, right after he told me I had breast cancer, was discussing whether I had life insurance.......WTF??????

    Take care,

    Sharon Smile

  • echosalvaje
    echosalvaje Member Posts: 191
    edited March 2010

    Thank you ladies, I sure appreciate your insights to the port thing. I think I'll keep my appointment for the 23rd to have it removed. I guess my confidence level regarding treatment is a bit shaky because I spent the day at a funeral for a friend that died of liver cancer....it made the issue of having a port in seem insignificant. However, if I get my mind on the positive side of things (which is hard only a few months out from treatment) then I don't need this glaring reminder of the past year.

    Oh, and spring has sprung so there is much to be doing besides worrying about ports, right? Love and hugs to all of you....Mary

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited March 2010

    Get it out if it bothers you....

  • karen1956
    karen1956 Member Posts: 6,503
    edited March 2010

    I had my port taken out 3 weeks post chemo....and that was at the onc's suggestion.....I was more than happy to have it taken out....it was in my upper arm....it was done by an intervention radiologist with a valium and a relatively easy procedure....don't miss it at all!!!

  • cherneski
    cherneski Member Posts: 726
    edited March 2010
    I finished rads December 23, port out Feb. 5th! Done with it.  I now keep it in a specimen cup on my desk~lolTongue out
  • kimber3006
    kimber3006 Member Posts: 586
    edited March 2010

    lol @ keeping it in a specimen cup on your desk!  I've been thinking more along the lines of some sort of ritualistic burning for mine.....

    My onc said he likes his "high-risk patients" to keep them in for "a while".  He said most of his patients like the idea (mostly superstition - if they leave it in, they won't need it) but I'm of the opinion that as soon as I'm done with Herceptin, I want this thing out.  If I do ever recur, getting a new port will be least of my problems, right?

  • echosalvaje
    echosalvaje Member Posts: 191
    edited March 2010

    I met a woman last week who told me she took her "pretty purple port" outside and beat it into smithereens with a hammer. I like that idea.

  • Octobergirl
    Octobergirl Member Posts: 334
    edited March 2010

    I wanted mine out as soon as chemo was over but probably would have kept it longer if my onc recommended it. He said it was best to get it out because they can cause issues when not used regularly...no problem to reinstall if I need it.  I had mine out 3 wks. later when I had recission surgery to get clean margins.  The PS did that so I told him I hoped he could fix up the scars the radiologist made installing it.  He laughed....and then did a superb job.

  • Annie62
    Annie62 Member Posts: 1,081
    edited March 2010

    Echo - my onc said the same thing - keep it you might need it. I'm glad I had it for chemo but I got it out. I wasn't going to use if for itty bitty blood tests. Mine stuck up. I felt like a Borg. Now maybe if I had felt like the Borg Queen...

    4 years later, I'm glad it's out.

  • Billynda
    Billynda Member Posts: 121
    edited March 2010

    LOL, Spring has sprung?  Well, no one told CA that!!!  It snowed last night!  :)  That makes me happy :)

  • Billynda
    Billynda Member Posts: 121
    edited March 2010

    It's funny how everyone's perception is so different.  For me, I am so mad at my stupid body that it betrayed me like this and just want every part that can cause cancer off (too bad I can't remove my skin, j/k - I read something about a dr. saying that in another thread), but I love my port and in a morbid kind of way look forward to chemo every time because I know it's doing something to get this s*** out of me.

  • kimber3006
    kimber3006 Member Posts: 586
    edited March 2010

    Billy - I don't think that's morbid.  I "look forward" to chemo in a weird way, too.  I wish there were a way to get the last few drops in that IV bag into my body. 

  • krcll
    krcll Member Posts: 343
    edited March 2010

    I made the chemo nurses wait until you could see the last drops going down the IV line- then I let them switch me over to the saline solution ;-)

  • echosalvaje
    echosalvaje Member Posts: 191
    edited March 2010

    WoooHoooooo...I'm being DE-PORTED on Tuesday the 23rd!!!!!

     I had an awful dream last night that the day after I was deported I went for a walk up this steep hill in my neighborhood and halfway up the hill my vein where the port was removed started spurting blood all over the place and I died on the side of the road...Hmmmmmmm....( think there's a little anxiety here? ) LOL.

Categories