Can you/did you ever miss a day?
I'm scheduled to have 6 weeks of radiation, M-F. I know this is standard. What happens if you skip a day?? How horrible is that? Does the rad onc freak out on you?
I still don't understand why EVERYONE seems to get 5 to 7 weeks of M-F rads, no matter how different a person's case is in terms of age, size of cancer, stage & grade, type of cancer, size of margins, general health, ETC. Why doesn't any of that stuff matter/affect how much rads is prescribed? And really, in the grand scheme of things, would missing a day REALLY be such a huge deal?? Yes, I am thinking of attending a work meeting that can't be rescheduled. :P
Comments
-
When I was taking radiation from 12/08 - 2/09, I had to miss a day due to snow and slick roads. It was no big deal. They just tacked an extra day on to the end of my treatment. Some women actually end up taking a break mid-radiation if they are having lots of skin reactions. Good luck with your treatments!
-
Yeah, no big deal. I had a three day weekend over Labor Day because they were closed. Then, in the fifth week, I was so fatigued and getting sore, I asked for another three-day weekend just to have an extra recovery day and they said sure, no problem.
-
Absolutely not a problem to miss a day. My treatments started before the holidays, so I missed Christmas and New Year's days automatically, and then missed a couple of other days at other times due to bad roads. For me, they just tacked on the missed days to the ends of my treatments. I had 38 treatments total.
You might ask your radiation oncologist about the questions you have about people getting similar treatments. I think the every day thing is standard partly because it's easier on people to get less strong treatments more often than stronger treatments farther apart. Within that, I'm guessing dosage, etc., may vary quite a bit. I had most of my treatments on the entire breast but the last 5 treatments were targeted to where my lump had been. There's room for a lot of variation within the every day program.
Meanwhile, plan on going to your work meeting! And good luck!
-
I skipped EVERY day - refuse it all 6 year ago. So far, not doing radiation has worked out just fine for me.
In answer to your other question about why individual differences don't seem to matter when it comes to treatment like radiation, it's because it's being prescribed under a standard of care. Individual differences aren't taken into consideration under standards of care. Under standards, treatment is prescribed according to what's been determined to be most beneficial for a large group of people as a whole rather than what's best for each individual in that group. So they deliver treatment to everyone who meets the standards criteria to recieve it - whether they personally really need it or not, they get it. It eliminates a lot of the decision making process for the physician who would otherwise have to make treatment decisions individually and in a more indepth manner. As long a a physician prescribes treatment under a standard of care, they're more or less protected from being successfully sued if they prescribe treatment that doesn't turn out well for the patient.
-
It is ok to skip a day, I asked. No big deal.
-
Yes, you can miss a day; they'll just tack it on at the end. I was GLAD to get as much radiation as they wanted to give me, because I NEVER want to play this game again!!!!!!!!!!
-
Like everyone said, you can miss a day. I knew I had a couple of long planned three day weekends and told my radiation oncologist about them up front. She scheduled me to start a week later to fit one in and ok'd my missing a day for the other one.
I am more inclined to think that everyone gets relatively the same treatment for the same reason we can buy tylenol or whatever for a headache as opposed to having some drug compounded---its a treatment that works a particular way and it doesn't need a particular degree of specialization. Healthy normal cells can get X amount of radiation and either not be bothered or rebuild themselves in Z time but nasty awful cancer cells get X amount of radiation and need Z X 5 time to recover. So the unhealthy cells get repeated exposure to the radiation and don't have time or ability to reinvent themselves and eventually they die off while the healthy cells regroup and go on mostly because there is still some degree of damage for some people.
At least thats how I understand it.
-
My treatment also included Labor Day so I had the 3 day weekend off. I became so sore, especially my nipple, that I refused my 25th treatment. The Rad Onc was not pleased but I had already asked for help and did not get it. I did complete the "boost" but am not so sure I would do that again if faced with that. As time went on during treatment it took longer and longer each weekend to "recover". I guess I was a "bad girl" but I'm entitled at my age(66).
Sue
-
Hi Raili,
I, like others above, had treatment during the holidays so I had a couple weeks of only 4 treatments. I also missed a day due to a fever, but my Onc told me it was important to get three treatments in without a break between them. I was lucky to get sick on a Thursday.:) As for the amount of treatments, the time may be about the same but the size of the area may be different. I know other women that had one or two areas done and were in and out in 15 minutes. I had 5 done and was there 45 minutes every day. I hope you get a chance to talk to your doctor about your questions, and good luck with treatment.
-
I too wanted to miss a day because of a field trip at my son's school. I just rescheduled the time of my treatment. So, I didn't end of missing any time. I have finished 10 out of 33 so far, talk to your doctor, I'm sure you can miss one day.
Good Luck
-
I had a week's vacation scheduled for the middle of rads--scheduled before I was diagnoses. I went on vacation as planned, the rad onc was pissed and let it show, but he couldn't give me a good reason why it would be any kind of problem. If rads really need to be daily, then they wouldn't take weekends and holidays off. Also, radiation therapy hasn't changed in decades, and is no more or less effective now than in the 50s.
-
NativeMainer wrote:
Also, radiation therapy hasn't changed in decades, and is no more or less effective now than in the 50s.
Wow! ..so not true!
In the 50's mastectomy was the only option for most breast cancer patients, radiation was only used for some nodal fields if the cancer had spread, the machines were completely different and less effective, the planning was standard instead of customized, the results were much worse, etc. ....
If anything, the biggest problem with radiation therapy is that it is changing so fast that it is hard to be sure all the doctors are up on the latest techniques.
-
Thanks, everyone... I feel better now!
And NativeMainer, I totally agree with this -
"If rads really need to be daily, then they wouldn't take weekends and holidays off." That's what bugs me. The fact that radiation is Mon through Fri is more for the doctors' convenience than anything else...it's due to the fact that the center is closed on weekend, not anything to do with what our bodies need.
MarieKelly and 3montsmama, your explanations help, too. I remember when I was a young teenager and took an over-the-counter pain reliever for a headache or something, I asked my dad, how does the medicine know that it's my head that hurts and stop the pain just in my head?? He told me, it doesn't. It numbs all the pain receptors in your body, and thus, your headache goes away by default. I remember being mad about that, mad that my whole body was affected when all I had was a headache! My expectations were too high, and decades later, still are. I continue to be frustrated by the "standard of care" that does not/cannot take individual differences into account. This "one size fits all" approach makes me distrustful of the treatments, because there's no way of knowing if I, personally, will really need and/or benefit from the treatments...and yet, I'm going through with the radiation anyway, I guess because I'm not comfortable with taking the risk of NOT doing it, not having a better option right now. I believe that with enough time and information from other sources (e.g. my naturopath/alternative health practictioners), I could devise an effective, individualized treatment plan... but I just worry that I don't have enough time to do that. I was dx'd 4 months ago and have just now completed the surgical phase. Argh...
Thanks for letting me vent.
-
Raili, the rads are not a "one size fits all" treatment. The simulation is to target the area(s) to be radiated. The amount of radiation given is determined by your specific diagnosis. Sure, a lot of that is "standard" but I got more rads since I had Stage II (of III - long story) than a woman who had DCIS.
Ask your rad onc how many Grey (measure of rads) you will be getting and ask for an explanation of why/where etc.
Leah
-
Raili, the rads are not a "one size fits all" treatment. The simulation is to target the area(s) to be radiated. The amount of radiation given is determined by your specific diagnosis. Sure, a lot of that is "standard" but I got more rads since I had Stage II (of III - long story) than a woman who had DCIS.
Ask your rad onc how many Grey (measure of rads) you will be getting and ask for an explanation of why/where etc.
Leah
-
Don't know why it posted twice.
Leah
-
Leah S is correct , and you'll want the weekends off. My rad onc developed with the staff an individualized plan based on where the tumor was, my breast size and the dose was different. the number of treatments may be "standard of care" but the plans are different. who has her arms above your head, who lays on your back, or stomach, etc.
for me I had 23 full breast treatments and 7 boosts to the tumor area with the maxi um dosage available for all 30 treatments. Due to holidays I was treated on the weekends and at the end the boost area was treated, that area was defined by the tumor markers left in my breast during surgery). I asked for and got New Years Eve off .
-
In my case, my skin was breaking down from radiation faster than it was healing and the radiation oncologist gave me a week off. This part has flexibility, so you're fine
-
I missed a day because the treatment centre had a holiday. No one mentioned that it would matter or not by missing a day. Also, I had 15 radiation treatments and 5 boosters. When I asked how come I am not having more, the reply was: because you have little boobs! I am not sure that is right as a friend of mine has tiny ones and she had more rads.
-
Because my center was closed for Thanksgiving and the day after, I went 4 days without zapping. Frankly I wanted to get it over with so that I could be free to leave town for an extended time so going every day wasn't an issue.
-
Raili & MarieKelly, You both had "great" post! I could not of said it better if I tried. I so agree with what both of you said. Right on point! I am currently doing radiation on my femur...not breast...but since rads is so important I find it interesting that since no one works weekends...they say we don't get rads to give the body and skin a break. Couldn't be that it's just as simple as ppl don't work weekends. I've been having some problems since I started radiation and right in the middle of it my Rads onc said I could just take the day off and at the end we could give me a boost or double dose to make up for the missed one. (Makes no sense to me you can just miss days since this is so important.) I told her no thank you...I don't want to be double dosed to make up for a missed day.
I am a firm believer that one size does not fit all...it's time they changed this way of thinking. I asked how they come up to 10 days for my femur. It is all about the "standard of care" as MarieKelly said. I just asked my rads onc yesterday how they decided on how many days each person gets? And she pretty much echo'd what Marie said: >>>>treatment is prescribed according to what's been determined to be most beneficial for a large group of people<<<<<. So I said we know that the 10 days is enough in the case of my femur? She said she hoped so but of course there is never any guarantees. (Which I know this but it sure is frustrating to have to go thur all this cancer trt and not know who it will benefit from it and who won't.)
But that fear comes into play as someone here already mentioned. I worry that if I don't do that 10 days as scheduled...if my cancer returns in that area I will feel its because I didn't complete the full course of rads. When it comes to our cancer fear plays a big part in having trt. We are all so different..so I wish they would get away from one size fits all. But that is too time consuming it seems. (Venting a bit.)
Chelee
-
Thanks, Chelee... great vent. It IS so frustrating, isn't it!!
I'm a week and a half into rads now, and find myself tempted to skip all the time...because like you said, if daily rads is SO IMPORTANT, why allow us weekends off? Really, what would be the difference between a Wednesday or a Saturday? My very first rads day, I broke a tooth 20 mins before the appointment, and was still crying when I arrived, because my dentist is 4 hours away from home and I knew I'd have to miss a day of rads for it and was freaking out because I didn't think I "could" miss a day. But the techs were like, "Oh, it's okay, we know things come up like this, it's okay to miss a day to go to your dentist, really!!" Um, okay. That's kind, but also worrisome. It just makes me confused. Rads is so important that we all MUST go EVERY day for 5-7 weeks... but if we need to skip a day here or there, it's okay? Well, which is it?? What would happen if I skipped EVERY Thursday, for example, or decided to end rads a week early? I get the sense that no one really knows, or there's no way to really tell how much radiation an individual needs, in comparison to the "standard of care." Maybe I'm being over-radiated, or under-radiated...who knows.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team