Between mx and prosthesis, what did you do?
I had a unilateral mx on Feb. 4. Of course, I am nowhere near healed yet and have a ways to go. (I had previous radiation and that will probably make me heal a little slower than normal.) I know that you have to wait until you are healed to get fitted for a prosthesis. What do you do in the meantime?
As soon as the last drain came out this week, I wanted to be able to wear a bra. My remaining breast is large and is so much more comfortable with a bra on. I thought maybe I could take the "puffy" from the surgical camisole and put it in the other bra cup. It did not match the shape of my existing breast at all. It is so obvious when I put on a shirt that it does not match at all. I am really concerned about what I am going to wear when the weather gets warm soon. Right now a big sweatshirt can at least kind of hide the fact that I am so uneven.
What did the rest of you do before you were able to get a prosthesis? I can't just stay home and hide for the next month or two until my incision is totally healed. Right now, this is causing me a lot of grief. Every day for the past couple of days when I get dressed and attempt to make it appear even the slightest bit even, I get so frustrated and cry. Part of this is probably just the normal post-mx emotional stuff, but I really need some help in figuring out how to get through the next few weeks. (My dog ear that I have dubbed my "scrotum" is another whole issue. UGH!)
If you have any words of wisdom for how to handle this in between mx and prosthesis time, I would really appreciate it! Thanks in advance for any replies.
Comments
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Hi Faith --
I also had a single mastectomy after irradiation -- i didn't go for a prosthesis until 5 weeks after the mx, because i wanted to be sure i was healed. I was really worried about LE because i'd had truncal swelling after rads, and had been doing compression bras until 1 month before the mx. I certainly didn't want to mess up my lymph function. On the other hand, i'm 34D, and very uncomfortable without a bra. And i went back to teaching my classes (of 250 and 25 students) after 3 weeks.
Well -- i wore the puffy from the camisole in a very soft mastectomy bra, but i went out and bought loose, woven button blouses (ordinarily i wear knit tops that fit reasonably snugly... nothing extreme, i'm > 60, but but nothing i could wear a puffy under). The puffy actually rode inches higher than my 34D breast - in a no-underwire leisure bra, the real one was half way to my navel! But you know - no one noticed. I suppose i was lucky it was getting colder -- i'm in IL. but unless you live south, you should be able to get the prosthesis before really hot weather sets in?
And with the prosthesis, i can wear *all* of my knit tops (at my age, i wasn't showing cleavage anyway), and i look absolutey normal and balanced.
It's a bad time, between mx and prosthesis - but it isn't forever. And unless you are still quite young - it's amazing how unobservant most people are!
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I am a bilat so I didn't have to match an existing breast. I was a DDD so that did create a problem as I didn't want to be flat in public. I tried the puffy's in a loose fitting bra but that was not very good. I found a bra from Jodee called Permaform that had forms built in. I wore this bra in public until I could handle silicone forms on my chest. I didn't like the Permaform as a permanent solution as I wanted more weight which I was use to and the Permaform tended to ride up as I didn't have a breast to keep it down.
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I am a D cup with unilateral mastectomy. I tried various combos of things pre-prothesis. The only thing that was acceptable was a sports type bra (I found a front closing one at Walmart for $10 for two) and the puffy thing. It smushed everything down and kept the puffy in place. All other bras meant that my puffy was migrating all over my chest all day.
It was a very frustrating, but temporary period.
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Faith, I had a single mastectomy 9 yrs ago. I'm also large, almost a D cup, I use crutches to walk, due to a disability, so I wear a bra pretty much all the time. After my drains came out, it was more a matter of holding my remaining breast so that it wouldn't pull at my incision, and wouldn't bounce around too much without its sister by its side while I crutched along. I sewed a pocket into a sports bra and experimented with socks and stockings until I found the right combination to more or less match my remaining breast. It rode up on me a fiar amount, but I mostly wore sweatshirts and baggy flannels until I got my silicone prosthesis.
Having said all that, I think you are correct in what you call "the normal post-mx emotional stuff." Having a breast removed isn't like biting off a hangnail. It's a really hard adjustment. Getting dressed or undressed can't help but bring up extreme emotion. I cried in the shower on and off for almost 6 months. Of course you want to look good, but no matter what you wear, there's no getting around the fact that it losing a breast is a real bummer, and only time will heal,
Love, Amy
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I went in right away (as soon as my drains were out) for a prosthesis because I was having to work and didn't want to look funny. So, within a few weeks, I was in a foam prosthesis (nearly me triangle) in a luisa sports bra. The bra is slightly too big so it didn't rub.
Before the drains were out, I wore a camisole with a poofy in the pocket. I bought a camisole that had pouches for the drains.
Just as an aside, I got tired of the uni-boob sensation pretty quickly (AND was terrified of going through this again) so I had the other side removed after chemo. So, now I'm boobless. I'm still contimplating recon but other than when I'm naked, I don't think about it.
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From one "Faith" to another.......
I just wanted you to know that I'm sending you encouragement for the adjustment period.
xx00xx00xx00xx
Strength and courage.
Strength and courage.
Strength and courage.
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When I had my first mastectomy, I was left with one very large breast on the left side. I bought bath puffs and kept putting them in my bra until the size was the same. Because the puffs had no weight, I would put in the first puff and then put several D cell batteries (the "D" size seemed appropriate to use) in for weight and then add the other puffs.
I washed the puffs in the washing machine (compete cycle with fabric softener) to make them less scratchy before using them.
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When I had my first mastectomy I immediately went to the mastectomy store in the hospital and got myself fitted. They matched me beautifully. After I had my second mastectomy (prophylactic) I went to the local store here where they specialize in mastectomy products and got two soft prostheses that matched. I also got my mastectomy bras there. If the hospital where I had my original mastectomy did not have a mastectomy store, I could have gone to the local store and they would have fitted me with a soft prosthetic that matched my good breast. So I guess I am suggesting you might do the same thing, find a store that specializes in mastectomy products and have them fit you with a softie.
Good luck!
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Kind of a funny story...I went back to teaching pre school 3 weeks after my mast. I got some very bad advice and made a small nylon sack out of birdseed. OUCH. I obviously should have used something more durable...those little seeds poked me all day, plus with the kids hugging me, it flatted out anyway..I just layered clothing from then on until I was fitted. Sooo much better. ;-)
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Pretty strange, a little embarassing to tell, but I'm discovering in this BC journey, you just "gotta do what you gotta do." Maybe it will help someone else who has the same problem I had. So, here goes.
I found something to use --- sounds kind of weird, but I couldn't find anything else. I have a couple of mousepad things --- not really a mouse pad, but kind of just a thing like a beanbag that you rest your wrist on when using a mouse. Since they are basically just like beanbags, you can "squish" them into any shape you want. So, I decided to try it. Wasn't big enough, so I "borrowed" my son's also. Two of them worked pretty well and then I took the "puffy" that came with my surgical camisole and took most of the stuffing out of it and used it behind the beanbag things so there would be something soft against my skin. (I am still healing from my uni-mx 4 weeks ago.) The beanbag thingies also provide a little weight which just the "puffy" by itself did not.
While I was out yesterday, I stopped at Staples to buy a wrist-rest mouse pad thingy to replace the one I took off my son's desk. I don't think I'm gonna tell him where his is!!
This certainly won't be a permanent solution but will hopefully work until I am healed enough to get fitted for a prosthesis. (Still plan to do DIEP someday, but since I had IBC, my doctors want me to wait awhile.)
Thanks to all for your replies.
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I tried weighing my foobie down with many items. Do you know where the best resource for info on homemade foobs I found??
Crossdressing message boards. I found a great thread where they discussed how they made homemade foobs and the "jigglibility" of each item. They did mention bird seed but specified the little seeds, no sunflower seeds!
I was about to resort to the suggestion of water balloon/silicone caulk idea if the prothesis store didn't get me in.
Like I said, it was an uncomfortable, but temporary period.
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Hi Faith. I was big gal too but I didn't know about the 'no prosthesis' waiting period! Don't know how I missed that one. Anyway, I was going back to work too so I bought a proper foam one. When I was trying them on I wore my normal bra..I just took the underwire out of the mx side. (I never bought a 'special' bra or bothered with pockets). I tried it in the shop with a smooth t-shirt on and just kept upping the size until it looked pretty normal. Funnily enough by the time I had totally healed and I went in for a silicon one, the swelling had gone right down and the foam one was too small. Sigh..it's a business, isn't it..especially with such big boobs. Anyway, I ended up having a prophy and a rebuild and now I'll never own another bra. Kind of worth it for all the taunts I used to get as a young woman with bigguns! Prayers for you, for courage. xx
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