I need some answers to my bone pain

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Sunflower64
Sunflower64 Member Posts: 166

Hi girls,

My bone pain is really bad!!!  I finished chemo October 22nd. What can I take to relieve the pain?  I have been taking Advil but it isn't helping as much.  I am weaning myself off of Cymbalta because I can't take it with Tamoxifen.  Do you think coming off of Cymbalta is causing my increased pain?  Maybe Cymbalta was helping to tolerate the pain. I just don't know what I can take.  I will call my onco tomorrow.

Also lack of estrogen is causing bone pain.  What could I do for that?  I havn't started Tamoxifen yet probably in another month. The pain is so bad I feel like I can't function.

Any info would be helpful,

Thanks,

Diane

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2009

    Diane,  my bone pain has been worse since finishing chemo and rads in Sept and November.  I have to take OC analgesics in the morning, and the evening and I have noticed that it gets much worse when the weather gets real rainy or snowy.  Maybe with the severe weather systems coming thru we are just much more achy in our bones.  I am attributing that to the residual affects of the chemo with my bone pain.

  • Sunflower64
    Sunflower64 Member Posts: 166
    edited December 2009

    shana girl,

    what do you take?  I need some relief.

    diane

  • jancie
    jancie Member Posts: 2,631
    edited December 2009

    Diane - I don't know if you were on Taxol because you didn't mention it.

    I ended up having to get on morphine pills for the pain because I was taking too much Lortab to try to get on top of the pain.  I will say.....it took several months but eventually the pain went away.  For a long time I couldn't even get out of bed because of the pain.

    I am glad that you are going to talk to your oncologist and see what you can get from them to help you out.

  • dlb823
    dlb823 Member Posts: 9,430
    edited December 2009

    Diane ~  I also had horrible bone pain during and for several months after chemo (Taxotere & Cytoxin), and the thing that has made the biggest difference for me is exercise, especially walking.  I walk for an hour or more as many days a week as I can, and it's had a positive affect not only on the bone pain in my legs, but other aspects of both physical and emotional healing, including significantly lower blood pressure and weight loss.

    I don't know about Cymbalta, but if you're already on Tamoxifen, the resulting lack of estrogen may be a contributor to your problem.

    Another thing I've recently tried for my stiff fingers (worse in the a.m.) and a painful elbow is a topical creme with MSM and Glucosamine.  The one I have is by Natrol, but I think there are several with similar ingredients.

    Oh, and back when my leg pain was the absolute worst and kept me from falling asleep and/or awakened me at night, I got some relief by elevating my legs on a pillow. 

    Hope some of these suggestions help.  Hang in there; it does get better over time.   Deanna

  • meb
    meb Member Posts: 28
    edited December 2009

    The Cymbalta definitely helps with the pain. Besides being an anti-depressant, Cymbalta helps with widespread pain and neuropathy. My bone pain got much better after I finished chemo but, I took Taxol. Hope you find some relief.

  • lexislove
    lexislove Member Posts: 2,645
    edited December 2009

    I did AC / Taxol and had horrible bone pain after chemo. I was 30 yrs old but felt 70. It scared me. But the only thing that helped me was to walk. Everyday.Walk.

    Start out slow, 10 or 15 minutes. Then add more time and distance.

  • C130sunshine
    C130sunshine Member Posts: 174
    edited January 2010

    Diane64 - It has been awhile.  How are you doing? 

  • Sunflower64
    Sunflower64 Member Posts: 166
    edited January 2010

    Hi,

    I'm doing ok. Still hurting. Some days are better than others. I am just walking and stretching and that helps. I take Advil everyday. I've decided not to go on Effexor right now. I want to wait to see if I can do this on my own.

    Thanks for asking,

    Diane

  • C130sunshine
    C130sunshine Member Posts: 174
    edited January 2010

    I am glad that you are hanging in there.....One thing I learned is to take one day at a time.

    I walked and used a lot of Ben-gay.....I did not care if I was "stinky". 

    I just went to a Physical Therapist last week.  I am having some pain related to Arimidex that I just started (but nothing like while I was on Chemo).  He gave me a lot of exercises to do, but he also suggested either Yoga or Tai Chi (as long as I go to a certified trainer). 

    Hey, you might even try getting a gentle message...it could not hurt and getting a message always made me feel good.

    Keep smiling and hang in there.....we are here for you.

    kim

  • fionad
    fionad Member Posts: 1
    edited February 2010

    Hi Girls,

    Am in Australia and seeing the Dr tomorrow regarding Tamoxifen.  I hate it!  I have been on it since March, and was taken off it for two months break.  Bone and joint pain has been very difficult and effecting my sanity!!.  I thought you would like to refer to this link below that has some suggestions.  A naturopath described the sanity part well, as the estrogen receptors that are being blocked in the brain are also blocking the seratonin to the brain.  Have been unable to exercise and feel as if I went from 38 in 2008 to aged 98 in 2009!  This is unfortunate as they gave me the fat chemo instead of the skinny chemo!!!

    I trust every day is getting better.

    Fiona

    this is from the website...

    http://www.breastcancer.org/tips/pain/common_prob/bone_joint.jsp Non-metastatic bone pain

    Some people have long-term, persistent discomfort in the long part of the bone, in the muscles surrounding the bone, and in joints. Breast implants also may put pressure on the sensitive surface around the bones of the rib cage.

    Chemotherapy produces pain in hips, legs, and arms. These discomforts happen during the time you're receiving chemotherapy and may worsen with each session. The pain may persist for a long time-months or even a year-after treatment ends. The good news is that, sooner or later, it WILL disappear.

    Such pain is linked to nerves, muscles, joints, and ligaments. It can respond to antiseizure medications and tricyclic antidepressants, as well as NSAIDs (pronounced EN-seds) and opioids.

    Occasionally, the pain may persist. If this happens to you, ask to speak to a pain specialist.

    Tamoxifen treatment may produce arthritis-like aches and stiffness. NSAIDs help with this pain. If you don't get adequate relief, your doctor might prescribe opioids.

    Non-metastatic bone and joint pains also respond to heat, massage, and swimming. Yoga helps stretch and strengthen muscles, which reduces pain in the supporting muscles and soft tissues.

  • ananda8
    ananda8 Member Posts: 2,755
    edited March 2010

    I don't know much about Tamoxifen but Arimidex affects the absorption of Vitamin D.  A recent study of Arimidex users indicated that your Vitamin D levels should be at least 65 ng/ml to stop bone pain.

    Have your vitamin D levels checked and in the mean time start taking 4000 IU of Vitamin D3 a day.  You should notice a reduction in pain within two weeks

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