Curing Cancer with Diet

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I was diagnosed with Stage II, Grade 3 Breast Cancer with lymph node involvement almost two weeks ago. I started chemo last Friday.  A few days ago, a friend sent me the book "Healing Cancer from Inside Out".  When I started to read it, I had to put it down because the beginning bashes all traditional treatment options - which is exactly the path I am on. 

I am now just starting to read about dietary changes - and I am enthusiastic about making changes to help build my immune system and prevent recurrance.  But I just can't get over how bleak the beginning of the book is regarding my outcome if I choose traditional treatments, even in conjunction with dietary changes. 

I cannot imagine using dietary changes alone - it just seems too scary.  Has anyone else read this book and what are your thoughts?

For example, on page 10, the author claims that the true 5-year survival rate for breast cancer is only 1.4%.  How can he claim this?  I have attempted to find more info online about this book, but I am coming up short.  

I want to add dietary changes as a compliment to my traditional treatment plan, but I am confused after starting this book.

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Comments

  • Leah_S
    Leah_S Member Posts: 8,458
    edited February 2010

    Well, eating properly is helpful, but curing cancer with diet? To me, that's just not realistic.

    As far as the " 5-year survival rate of 1.4%" - nope. Even Stage IV has a 5-year survival rate of 20%, and with new treatments that's rising.

    Since you've already spotted this glaring error just by page 10, it puts the reliability of this book in doubt.

    My advice? Do everything you can to improve your diet. And stick to the treatment regimen you and your onc have started on.

    Best of luck.

    Leah

  • hlth4513
    hlth4513 Member Posts: 267
    edited February 2010

     tilsgirl - I am sorry that you are having to face breast cancer, It totally s***cks - but congrats for finding this forum so soon after your diagnosis. It has been a Godsend for me.

    That was one of the first books suggested to me. There is some valuable nutrition advice, but the author lost credibility with me when he said that vegetarians don't get cancer. That is absurd to make such blanket statements. ( I know that I am not the only vegetarian on this board who got breast cancer).

    There is a lot of evidence that what we eat does matter, regardless of the treatment route chosen. I think a better starting point for reading would be "ANti Cancer - A new way of LIfe", by David Servan-Schreiber.  The author is a cancer survivor who was treated with chemo, but also addressed nutrition, lifestyle and mind-body issues.

    Beth

  • hlth4513
    hlth4513 Member Posts: 267
    edited February 2010

    A second book I would suggest is Beating Cancer with Nutrition - by Patrick Quillin. He was VP of Nutrition at Cancer Treatment Centers for years and has tons of experience in Adjuvant nutrition in treating cancer.

    Beth

  • vivre
    vivre Member Posts: 2,167
    edited February 2010

    tilsgirl, I agree with Beth. Both books she suggested are great. There are a lot more wonderful, helpful books out there. I find reading them is empowering. It makes me feel that I can do something and that I do not have to believe all the negative crap you hear everywhere. There are also quite a few books that I have read that I do not agree with. Do not let one book determine your course, or effect your mindset. Diet does make a difference in recurrance. Just keep reading and you will find more of the answers you are looking for.

    Here are a couple more:

    "your life in your hands" by Jane Plant

    "What your doctor doesn't understand about nutrition" Dr. Ray Strand

    "Iodine, why you need it and why you can't live without it" Dr. David Brownstein

    "What your Doctor may not tell you about breast cancer" Dr. John Lee

    "The Wisdom of Menopause" Dr. Cristaine Northrup

  • EWB
    EWB Member Posts: 2,927
    edited February 2010

    I don't see why it has to be all or none as far as therapies. Certainly all the things we do in order to help support our bodies/minds can only help -- rest, sleep, good food choices, less stress (that we can control), support groups, art therapy, reading, whatever. It helps support our bodies as we go thru treatments, better able to deal w/ side effects and effects of the drugs, surgeries, radiation. You also need to feel comfortable with the tratment and supports you choose...its ok to do a bit of all, even if no one else is...its what is right for YOU!

  • Raili
    Raili Member Posts: 435
    edited February 2010

    Tilsgirl, I'm sorry to hear you were dx'd with breast cancer, but I'm glad you've found us here!

    I'm about 3 months post-dx, and I vividly remember those early days and weeks when everyone was throwing a gazillion resources at me - unsolicited advice, books, articles, phone numbers of survivors, etc.  It can be overwhelming to sort through it all.  I knew NOTHING about cancer and cancer treatments... really, I was so in the dark about it all that I didn't realize chemo = drugs - I thought radiation WAS chemo and that's what made people lose their hair.  Wow, I sure have gotten a crash course in breast cancer over the past 3 months!

     As you've learned, just because something is written in a book does NOT mean it is true!  Beware of ANY book, conventional or alternative, that makes blanket/extreme statements, e.g. saying something is "always" true or "always" false, because life is never that black and white.  I have not read "Healing Cancer from Inside Out," but what you've said about it makes me not trust it.  Cancer is a nasty, tricky, mysterious beast... NO ONE has the definitive answer about what causes breast cancer or what can cure or prevent it.  Example: I am a 31-year-old, super healthy vegetarian with no family history; I never smoke, drink, or do drugs; I have the highest antioxidant level of any of the 200+ people my chiropractor tested with his biophotonic laser scanner; I do yoga, laugh and play, and can do 10 pull-ups, have used only natural bodycare products for yeasr, eat organic... and I have cancer!!!  It can happen to anyone.  I will never know why exactly cancer grew in my body.  Maybe a combination of exposure to environmental toxins (which NONE of us can avoid), along with my high-sugar diet in childhood, along with BPA plastic exposure, and all the soy milk I drank during puberty, and emotional traumas I went through, and vitamin D deficiency, and too many plane trips and a few X-rays??  Maybe, maybe not!

    Bottom line is, I DO NOT trust any book/article/person that claims that breast cancer must be treated with alternative methods only and that all conventional treatment methods are completely ineffective or even harmful.  People who posit that breast cancer must be naturally self-healed also imply (or even state outright) that breast cancer is self-created, which is bull.  None of us asked for cancer.  These "blame the victim" books enrage me.  I do believe that occasionally, there are amazing, miraculous cases of women healing quickly and dramatically with alternative methods only, but I view these as true miracles - as in, rare.  For instance, a friend loaned me a book about a woman who had a stomach tumor the size of a basketball, and shrunk it (and eventually dissolved it completely? I don't remember) through intense visualizations and therapy to heal repressed childhood traumas.  I am glad this woman was able to heal so well and so quickly, but I stopped reading the book halfway through, because the author was saying that ANYONE & EVERYONE can and should replicate what she did and avoid conventional treatments, and I don't believe that her methods can or should be replicated by everyone with cancer.  I think it would be dangerous and foolish, actually.

    I also DO NOT trust any book/article/person that claims conventional treatments are the only way to go and that all alternative/natural healing methods are quackery, ineffective, or harmful.  This view is equally wrong and appalling.  We KNOW that there are many natural healing methods that work, and work well!  Some natural healing methods are great to use simultaneously with conventional treatments, and increase the effectiveness of the conventional treatments and mitigate their side effects; and some natural healing methods work instead of some of the conventional treatments for some people. We all have to find our own balance with it.

    I'm a firm believer in complementary treatment - blending natural and conventional treatments.  To me, this means that diet is VERY important, and I will continue to eat a health-promoting, anticancer diet regardless of which conventional treatments I utilize.  But I would never say that dietary changes alone would be enough, and I DID have my tumor surgically removed, and am about to try radiation.  I second Beth's recommendation of "Anticancer" by Dr. David Servan-Schrieber.

  • apple
    apple Member Posts: 7,799
    edited February 2010

    "I second Beth's recommendation of "Anticancer" by Dr. David Servan-Schrieber."

    me three

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    Me four!  (recommending "Anticancer" by DR. Servan-Schrieber)!

  • dlb823
    dlb823 Member Posts: 9,430
    edited February 2010

    tilsgirl ~ As you will soon realize, a large percentage of us on BCO and particularly here in the Alternatives section have always been very proactive about our diet, supplements, exercise, natural cleaning products -- the whole nine yards.  And we still developed bc.  What I quickly realized when I was diagnosed and started comparing the alternative treatment recommendations to conventional ones is that, sadly, most alternative "experts" know surprisingly little about breast cancer, especially its very individual aspects -- ductal, lobular, ER, PR, Her2, Ki67 factor, node involvement, pre/post menopause.  For the most part, they seem to believel that strengthening our immune systems is the key -- not only for bc, but for all types of cancers.  And the more I talked to some of those people, the more I realized how little they really understood bc, compared to the doctors on my medical team @ UCLA who are on the forefront of researching bc on the cellular level.  It sounds to me like the book you're reading (with which I'm not familiar) falls into that same, overly simplistic thinking -- with some obviously twisted math thrown in.  From what you've told us, I wouldn't put much stock in it.  The other books that have been recommended to you here are by esteemed integrative experts, and by far the best out there for understanding the role of diet & nutrition in preventing and fighting cancer.  Also, not sure if it was mentioned above, but be careful about the publication date on anything you're reading, whether alternative or conventional.  Medical research (including alternative and integrative) is rapidly evolving, and anything more than 2 or 3 years old may be outdated or superceded with newer information. 

    Good luck with your chemo!    Deanna 

  • Springtime
    Springtime Member Posts: 5,355
    edited February 2010

    Me FIVE. -- This is the book that got me started: "I second Beth's recommendation of "Anticancer" by Dr. David Servan-Schrieber."

    I also like "Life Over Cancer" - Block. Integrative Oncology.

    Also, exercising 30 minutes a day, 6 days a week, has been shown to reduce BC recurrence by 50% (In the Servan-Schrieber book).

    I did the medical route, and now am doing the Diet, Exercise, Supplement, Serenity route as well, I see an Osteopath to help. I take Iodine, Vit D, Super Curumin, DIM, and a ton of other supplements and antioxidants as my Osteopath recommends.

    As my friend Deanna said above, Good luck with Chemo!!! 

  • tilsgirl
    tilsgirl Member Posts: 18
    edited February 2010

    Thanks so much for all of your replies.  My doctor also recommended the "Anti-Cancer" book, which I ordered last week, so it should arrive soon and I will read it as well as some of your other suggestions - thanks! 

    I agree with all of your responses and it feels good to know that others feel the same way.  I am all for making any kind of improvements in my life, so I will try to take the positive I can find in each book/advice/etc and decide what suits me.  I do think I will make some dietary changes, as I figure it certainly can't hurt and is something I've wanted to do for awhile now.  But I certainly would never turn away from the traditional treatments.  Although, I have to admit, the book was incredibly believable.  It has just raised a lot of questions in my mind that I'm not entirely sure how to reconcile.

    Cancer really is a b**ch. I am 32.  I would have told you last month that I am incredibly healthy person.  I have 3 young kids who need their mommy.  I will do ANYTHING I need to do to beat this, as I'm sure we all would.   

  • thenewme
    thenewme Member Posts: 1,611
    edited February 2010

    Tilsgirl,

    Sorry you're here, but there is some really great advice on this thread!  The book you're reading is soooo far off the mark with its survival rate - just take a look around this BCO forum and you'll see TONS of people more than 5 years out from chemo.  It's great that you're questioning things - there's lots of misinformation out there.  Always try to look at both sides of the issue; play devil's advocate and then weigh the pros and cons and make your decisions.  

    How are you holding up with chemo?  Hang in there!  A lot of people find it helpful to join one of the starting-chemo-in-february type threads to share experiences.  Best of luck!

  • tilsgirl
    tilsgirl Member Posts: 18
    edited February 2010
    Thanks so much - I will definitely look into the Feb Chemo board.  My first treatment went really well.  My side effects were very minimal.  I finished reading the first book and am now starting on the "Anti-Cancer" book.  I may not agree with everything I read, but I think gaining information is really empowering me to feel that I am in control!  And I appreciate being able to discuss these things here . . .
  • somanywomen
    somanywomen Member Posts: 872
    edited February 2010

    Since being dx last Sept, I have accumulated many bc books including Anti-Cancer, and take out of them what makes sense for me.. I have lost 10 lbs, lowered cholesterol by 32pts and brought up Vit D from 28 to 45....so diet changes do work...And that is something that we can easily control and does give a sense of empowerment...You are definately on the right track!!!..Wishing you the best!!!

  • Springtime
    Springtime Member Posts: 5,355
    edited February 2010

    Totally agree.

    During chemo, I had a cancer nurse tell me, "it doesn't matter what you eat" during chemo. They just didn't want me to loose too much weight. I think this is ABSURD.  DO NOT BELIEVE IT!! 

    OF COURSE IT MATTERS WHAT YOU EAT!

    Tils, I am sorry you are facing this at such a young age and with little ones. Cancer SUX!!! Fight like friggin' maniacs!!! Exercise, Diet, Serenity practices. These are no brainers! And there is no down-side! No toxic effects!  

  • althea
    althea Member Posts: 1,595
    edited February 2010

    tilsgirl, that 1.4% sounds so off the mark.  I wonder if it's referring to something other than 5 year survival rates.  I haven't read that book so can't comment further, but what's important right now is to read things that are uplifting.  My sister in law gave me Northrup's book on women's health, which is an 800 page book.  She also gave me Dr Love's breast book.  Love's is supposed to be the 'bible', but dang some of the passages will scare you half to death.  Northrup is very upbeat, a great writer, and I read her cover to cover. 

    I second the recommendation for Ray Strand's nutrition book.  I typed out some notes in a thread here after reading that one if you want to peek.  I remember having 'antioxidants' in the title of the thread.  

    I also recommend anything written by Kris Carr.  She has two books and an excellent blog.  She has a stage iv inoperable cancer in her liver and she's an absolute picture of health years after her dx.  It so totally matters what you eat.  

  • chris14
    chris14 Member Posts: 9
    edited February 2010

    I believe that the author of your book must be a moron...cancer cannot be cured with diet alone. I am a firm believer in adding alternative therapies to conventional treatments, yet anyone who suggests diet change alone as a cure for invasive cancer has no medical knowledge whatsoever. I'm sorry for your diagnosis...the last thing we all need is to read things that make us feel bad about treatment choices we have made.

    I'm a big fan of eating a healthy diet, acupuncture, and exercise, but I'm sure I would not survive this ordeal without the help of conventional medicine (plus chocolate and wine)...you've got to have fun living!!

    Best of luck in your treatments...do not get discouraged!

  • jerseyjean
    jerseyjean Member Posts: 3
    edited March 2010

    i had lumpectomy jan 10, and am in radiation now, no chemo. onc gave me script for aromocin, i dont like side effects.  i was stage 1, no nodes, hr+ and my oncotype test score 3,  i am thinking about skipping the aromocin, since i have low rate of cancer coming back.  i am 66. any thoughts on this, has anyone else been in this position....thanks jean

  • Luna5
    Luna5 Member Posts: 738
    edited March 2010

    jerseyjean...I researched for months and months until my brain hurt...so I read the Twilight series to give my brain a break:)  Then I researched more and more.  Everyone should.  I still double check things all the time and research some more.  I chose not to take any drugs but have changed everything I possibly can.  I'm not perfect everyday, but I know that if my body can re learn how to defend itself and cause appropriate apoptosis in morphed cells as it should, then cancer will have a tougher time if it tries again.  Some things like flax seed are sworn to by some and cautioned against by others.  So, on many things if the jury is still out, I don't choose them.  That doesn't mean that if cancer comes back I won't check myself into some Budwig institute and go whole hog.  I am happy with the choices I have made. It is the best I can do.  Unfortunately, I learned early that I cannot trust the oncologist that I won't be seeing again with my life.  I wish I had one I could trust with my life.  Mine fought me on getting the OncotypeDX test and the CYP2D6 test so we are clearly not on the same page and my trust cannot be put there.  Also, most oncos would have recommended an AI for someone as post meno as I am.  Mine said I should take Tamox because the OncotypeDx test assumes Tamox even though the Genomic Health people told me that my % recurrence rate would probably be better with an AI but the test was developed based on Tamox.  Once again my onco is not up to date. When I have time, I will try to find an onco that I believe is current and not just giving one size fits all recommendations  as mine stated "to make sure not to be sued in a few years for not recommending something'!!??:(    The most important thing is to be sure you are comfortable with what you choose and why.  It is not an exact science.  There are no guarantees any more than someone can guarantee that you won't get in a car wreck tomorrow.  You just do the best you can and move on.  Best of luck.  This is hard.

  • TNgolfer
    TNgolfer Member Posts: 253
    edited March 2010

    Luna5,

    I am new to this thread.  As you can see from my sig line, diag with ILC in November; 1 lumpectomy (dirty margins); 2nd lumpectomy (still dirty margins) w/ AND showing 0 of 4 nodes clear; opted for Bilat Mx; requested Oncotype Dx and it came back 19; but I have opted for no chemo (19 was just over the line).  Meeting with the oncologist tomorrow to discuss Arimidex. 

    I (like I'm sure many others) do not like the SE's associated with this drug.  I plan on discussing some alternatives with him.  I have always considered myself more of a naturalist than a radical.  I, too, have researched to the point of blurry vision and a fried brain. 

    I took the aggressive route with the surgery.  My BC is early-stage and I am of the mind set that right now the cancer is gone.  If the adjuvant therapy is to fight the possibility of recurrence, I am not convinced that I need to be as aggressive.  My oncologist seems like a pretty reasonable person as well as up-to-date; we'll see tomorrow.  At our first meeting he used "adjuvant online" which is a computerized tool that measures your recurrence rates based on your age, tumor size, etc.  It originally came back with a 34% chance of recurrence (in 10 years)  if I just opted to end treatment with the surgery only; if we added 5 years of Arimidex, the recurrence rate dropped to 18%, and with 4 rounds of CT, the rate would drop to 13%.  I couldn't justify the risks of chemo for a 5% additional decrease in recurrence rate (according to some computer)!

    I feel confident in my decision for no chemo based on the Oncotype score of 19 (which equates to an average of 12% (if treated with 5 years of tamoxifen).  Because I am post-menopausal, the onc recommended Arimidex.

    I also don't like the way they portray the odds!  Do they have to say a 12% risk of recurrence?  Why can't they say an 88% chance it won't recur???  Would that be too positive of an approach.  We could use a little more of the glass being half-full!

    I am 62 years old, very active and want to maintain a quality of life.  I made it through the Mx (and an emergency surgery the next day to remove a 200cc hematoma).  Took iron for 4 weeks to combat the anemia caused by the blood loss and 2 back-to-back surgeries.  Am dealing with the Tissue Expanders and the discomfort they cause.   Only took pain meds in the hospital; take 800mg Ibuprofen only after a fill.  I am handling this all pretty well.  Want to get my life back.

    Am going to go out and get a couple of the recommended books above.

    Any thoughts on the Arimidex?  I am looking at some recent articles on natural aromatase inhibitors (quercetin, apigenin, naringenin, reservatrol, and oleuropein).

    What do you think the Onc will say about this?

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 1,220
    edited March 2010

    I'm late to the thread but you've gotten great input from everyone. Although I am a BIG believer in diet as a way to help your body recover from and prevent cancer, I would never ever claim that diet ALONE can cure cancer (and I would question the integrity of anyone who did claim that). You've got to take a whole-body approach and that's where Anti-cancer really shines.

    TNgolfer, I don't know much about Arimidex but hopefully you'll find out everything you know from others here! (Have you tried searching the archives yet? There is a gold mine of old threads with great info!)

  • kcshreve
    kcshreve Member Posts: 1,148
    edited March 2010

    I'm sure many of you have read Knockout, Suzanne Somer's interviews with alternative docs.  Any input?

  • somanywomen
    somanywomen Member Posts: 872
    edited March 2010

    The anti-cancer diet change has been great!!...My cholesterol dropped from "232" total for Aug 2009 to "200" total Feb 2010.....My vit d levels went from "28" In Aug 2009 to... Feb 2010 level is Yippee "45"......Have lost 10lbs..

    David Servin-Schreiber's book "Anti-Cancer" A New Way of Life, was one of the first books that I bought when I first was diagnosed, and "Foods to Fight Cancer" by Beliveau and Gingras.....explains the anti-cancer foods (mostly veges and some fruits) work against cancer...like there is a chapter on green tea and another chapter on tumeric shows that curcumin/tumeric alone is absorbed by the body 1000 times more when you add piperine/pepper to it!!!..and to get even a more profound effect against cancer to add green tea (EGCG) to this combination, therefore now when I add tumeric with pepper to one of my foods everyday, I take a green tea supplement....Don't just skip to these chapters, please read all the short very imformative chapters leading up why it will all make sense to change our bad American eating habits...There are no recipes in this book so we will have to share the combinations that work....

    If you want a book that has the best simple recipes and so much information about how to cook foods and keep thier nutrients in them....Then the best book ever is....."The World's Healthiest Foods" Essential Guide for the healthiest way of eating, by George Mateljan...What is great about this book is that you can review it on line for free, even has recipes and other info about cooking, like what pans to use, what oils are best, you name it and it is free on line at whfoods.org....I was using the website so much for all it's valuable info that I finally ordered the book, on his website it is about $40..on Amazon it was $27. with free shipping....got it yesterday and absolutely love it...about 800 pages of healthy info and simple recipes using the worlds 100 healthiest foods....

  • hlth4513
    hlth4513 Member Posts: 267
    edited March 2010

    kcshreve-

    I LOVED Knockout by S.SOmers and loved the format of interviewing the doctors. There are threads on that book on this forum that became very "heated".

    TnGolfer and jerseyjean-

    I am 57 and I had a MX and - I made the decision not to do Arimidex and my Oncotype was 25. I was so shocked that my Oncotype came in that high as I was Stage One, Node negative. My onc did not suggest chemo, but wanted me on ARimidex . It was an absolutely agonizing decision, but I knew it was not the right thing for me.

    I made the decision to focus on identifying the underlying factors that contributed to why I got BC and aggressively addressing those issues, along with using natural SERMs and natural aromotase inhibitors.(BTW -  ANother natural aromatase inhibitor is melatonin.)

    Not taking the ARimidex or Tamox for me has been very empowering. It does take a lot of vigilance and money to go the alternative route.

    Keep doing your research and find a treatment decision that resonates with you and that you can OWN. No matter what you decide, there are women you have made decisions on both sides of the issue. The great part of this forum is that everyone is supported, regardless of your personal treatment protocol.

    Good Luck!

    Beth

  • baywatcher
    baywatcher Member Posts: 532
    edited March 2010

    I believe that you can halt (not cure) cancer with diet. I read the book "The China Study" and am following the diet described in the book. It is not too far off from "Anti-Cancer". If I had of known of the diet before my surgeries, I dare say that I would have gone the diet route and skipped the surgery.

    I just took "knockout" back to the library. I liked a lot of the book but then there was a quote from someone that had metastatic DCIS and I have never heard of metastatic DCIS so some crediability was lost there. And when Suzanne talks about full body cancer, I have never heard it refered to that way so it makes me wonder. But I am not a believer in conventional therapy either. Chemo and radiation just don't make sense to me.

    Bottom line is that a good healthy diet can't hurt and can only help.

  • Luna5
    Luna5 Member Posts: 738
    edited March 2010

    TNgolfer & JerseyJean...I agree with hlth4513 that you should continue researching and make the decision you are comfortable with and can be happy with.  I have not had any second thoughts about my decisions.  Most oncologists will recommend Tamox or an AI.  Some don't really mind if you don't take them because they did their job in recommending them.  Some will tell you you will die without them.  Maybe they really believe that. On the Johns Hopkins Ask an Expert site, I was told by Lillie that my agressive surgery most likely "cured" my cancer given my stats.  BUT, an e-mail from one of their oncologists did say that Johns Hopkins would recommend that I go on an AI (not Tamox as my onco recommended) as it could give added benefit.  So, that is why I say the normal protocol is for an onco to recommend Tamox for pre meno and an AI for post menopausal women.  I just didn't like some of the things I learned about long term effects of these drugs and I don't do well on drugs...always get the "rare" side effects.  So, my "gut" told me not to take them...but if you look at the Oncotype Thread it appears that most people do take Tamox or an AI.

    As hllth4513 also pointed out...melatonin is an aromatase inhibitor.  I have worked up to 3 3mg timed release at 9 pm and take 3 5mg and 5 1 mg sublingual at bedtime.  Most people only take 3 to 5 mg total but I was waking up at least every hour for 6 or 7 years.  I have been been increasing my dosage and using an eye mask and ear plugs and have just had my second 7 hour sleep in all these years. Once I learned that melatonin is also an aromatase inhibitor..it just made me feel more comfortable taking it for sleep. 

    OTHER AROMATASE INHIBITORS...I also researched Quercetin and based on what I think I know...I use Quercetin with Bromelain...mine does not have this but my research says "Make sure your brand carries Qu995 trademark on label" "Straight quercetin carries Qu995"...I have not yet gone on a search to find this...so if you find one that meets this criteria please let me know.   Supposedly the BEST natural aromatase inhibitor is Chrysin.  I am taking Jarrow 500 mg....this is like Curcumin in that it works best with piperine or pepper but remember not to take more than 10 to 15 mg of piperine per day.  I assume pepper does not have a limit.  Don't know if oil is also needed with the pepper like with Curcumin.

    Resveratrol....I was taking that and had searched and found a brand I liked...Have quit for now because I was getting conflicting research on whether or not it would "grow" cancer if you have already had cancer but that it would keep you from getting cancer if you have never had it.  So, have not researched this since last fall so can't speak to it in an up to date way.  Will get back on that research soon.

    All this research is like getting another masters degree.  It is so time consuming which is why most docs don't do it and why we help each other here by posting about what we learn.  Often, we have conflicting info...but at least when we hear both sides here, it helps us re-research when necessary.  I definitely want to know whenever someone finds info which may negate something I think I should be doing.

    You guys are the best!  Keep that info coming!

  • hlth4513
    hlth4513 Member Posts: 267
    edited March 2010

    Luna5-

    I was taking the Jarrow Chrysin briefly but was told my my pharmacist that you need to take at least 3000mg of the oral form for it to make a difference.That was a lot of pills and it made it cost-prohibitive I thought compared to other natural aromatase inhibitors.  It makes sense that Biopeperine would help with absorption . 

    I can't handle more than 15-18 mg of the melatonin without having wierd dreams.

     I had investigated using the chyrsin cream, but have held off pending results of my latest Estrogen Profile Urine test. My doc thinks my current protocol will be enough without it - but will have to see. 

    Thanks for the info on Quercitin - I do take Quercitin/Bromelain. I will have to check mine.

    Beth

  • somanywomen
    somanywomen Member Posts: 872
    edited March 2010

    Someone started a post about the no-so-good news of grapefruit's estrogen effect on women with bc ....This was very suprising to me so I did a little research and found this and wanted to give you all a heads-up, since it seems that most of the time it is with our research (not our doctors) that we find these things out!!

    "If you have estrogen receptor positive breast cancer, the last thing you’d want to take would be estrogen, and the last thing you’d want would be to take anything that increased the amount of estrogen in your body. With that in mind, and knowing that grapefruit increases the amount of estrogen in the body, it is probably wise for you not to consume grapefruit. According to Michael Thun, M.D., American Cancer Society (ACS) Vice President of Epidemiology and Surveillance Research, “women who have had estrogen receptor-positive breast cancer or are concerned for other reasons could consider substituting other fruit until this issue is clarified.”

    That being said, I will cut way down on my grapefruit juice comsumption, but will still have a glass now and then.......

  • TNgolfer
    TNgolfer Member Posts: 253
    edited March 2010

    Well ladies I met with the oncologist and we had a great discussion.  We finalized the fact that I will not be taking chemo (this was my first visit with him since getting the Oncotype results of 19).  He agreed with the "no chemo" decision.  Actually told me that based on the Oncotype his former prediction that chemo would decrease the risk of recurrence by 5% should now be lowered to between 1 and 2%.  Again, he didn't make the decision.  He can't.  But he actually wrote down that 1-2% number on the Adjuvant Online sheet he had previously given me.  We then discussed Arimidex at great length.  He was very patient.  He agreed there are side effects.  He added that not all women experience all the side effects and some are much more manageable than others.  He ordered a bone density test to get a baseline and blood work to get a baseline for cholesterol and triglycerides.  He wrote the script and I have agreed that I will try the Arimidex.  I also discussed natural AI's with him.  Showed him one of the articles that I had.  He said that supplements can be a little confusing as he wouldn't even know what quantities to recommend, but he certainly encouraged me to be sure to add the foods that contain aromatase inhibiting flavonoids (apples (with skin), cabbage, onions, garlic, celery, parsley, artichokes, basil, chamomile, all citrus (EXCEPT GRAPEFRUIT), olive oil and red grapes (especially the skin of the red grape).  He added that he doesn't have any issues with melatonin and it should help with sleep. 

    I will continue to do research, get some of the recommended books from the library and I will give Arimidex a try!  I appreciate all the responses and like life, I know that we always hear the negative comments a lot louder than the positive.  Thanks to all.

    Marianne

  • hlth4513
    hlth4513 Member Posts: 267
    edited March 2010

    Marianne-

    Congratulations on making your treatment decision. Good Luck to you! Hopefully we will see you frequently on the alternative forum!

    Beth

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