really confused can anyone help

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alison34
alison34 Member Posts: 138
edited June 2014 in Stage III Breast Cancer

hi all dont know if i am posting in the right place but you ladies seam to know your stuff

had my results grade 2 couldnt be staged needed to have ct scan that was last thursday

been today and had ct scan and got the results

bones fine

liver fine

kidney fine

all fine except 1 module so small cannot be biopsied as these are so tiny in both lungs

they said they do not know if this is a connected to my breast cancer or diseased it could just be nothing ??????

back in the grey area anyone have anything they can say to me on this

i am 34 with 2 small children and i am now really worried

they are going to monitor these modules but its broken me into pieces

does anyone have any ideas or been in this position before still not been staged

i dont know how i am ever going to sleep tonight

xxxxxxxxxxxxxxxxx

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  • caaclark
    caaclark Member Posts: 936
    edited February 2010

    I have not been in your position but I know someone who has nodules in her lungs. The nodules are NOT cancer but the way they found that out was to watch them.  Since they have not changed they know it is not cancer.

    I wish I could give you a better answer to help you to sleep.  I understand the issues we deal with when we have small children.  When I was diagnosed my daughters were 4, 6 and 8.  That was over 4 years ago-I never thought I would be here but here I am.

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  • diana50
    diana50 Member Posts: 2,134
    edited February 2010

    they found a nodule in my lung during a scan a few years ago. i freaked. but my oncologist explained that since i am a cancer patient...when they read these scans they identify everything they see.  there are lots of people with small nodules in their lungs seen on CT and often time,..they are just B9.  so, what my onc did was have me wait for 6-8 months and scan again...and it wasn't there,,,or hadn't changed..i can't remember. it was a false alarm. they still moniter with blood work and tumor markers..etc.

    i think the hardest part of all of this is trying to not panic...getting used to having to "wait" sometimes for another 6 months...understanding they might find things are B9...and still watching out for relapse. it is a lot to do ****

    if you trust your doc...keep trusing. they do this for a living...all they do is cancer....and they know what they are doing. if you don't have faith inyour onc get another one.

    these are tough issues...scarey...creates anxiety....really tough. but you can do this..

    hang in there

    diana

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  • alison34
    alison34 Member Posts: 138
    edited February 2010

    thankyou caa

    i am really worried its making me feel really sick

    i understand that these have to be watched but i just feel so ill after being told about them and all the consultant said was try not to worry - we will deal with it after my first 3 cycles of chemo they will scan me again and see if there is any change xxxxx

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  • alison34
    alison34 Member Posts: 138
    edited February 2010

    diana

    you are so great with your words

    i have read a few of your posts before and you always make me feel better you are such a fighter

    thankyou by telling me that i really do feel better xxxxx

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  • Bugs
    Bugs Member Posts: 1,719
    edited February 2010

    Alison,

    I have heard of many people having b9 lung nodules.  Most people don't even know they have them.  We get scanned...so they find them.  Big hugs.....and trust your onc. :)

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    Hi Alison, As Carol and Diana said, it is not uncommon for scans to show nodules in the lungs that turn out to be nothing to worry about.  It stinks that it takes so long to get that reassurance.

    Good sleep is important to healing.  If you find you are still having issues sleeping, there are things that the doctors can give you to help with sleep.  Ask for them if they aren't offered.  Xanax works well for me on the occasional nights that I need help and there are other medications that are more appropriate if you need them every night.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    My husband had a bad cough and lung infection. The doc sent him in for scans and there were 2 nodules.  He had my hubby meet with a surgeon for a biopsy.  The surgeon looked at the scan and told us that these were not to worry over. No biopsy needed.  Most likely left over from previous lung infections or his asthma.  They would just be a baseline for any future scans to see if they changed at all.  When I had my scan I also had a nodule that did not worry my onc.  I've heard these nodules show up often on lung scans.  The reports said no evidence of mets seen.  So I don't worry about it too much now.

    image

    Barb

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  • wallan
    wallan Member Posts: 1,275
    edited February 2010

    Hugs to you! I empathise with your terror. I have not been told I have nodules in my lungs, but then again, I have never had my lungs checked.

    Having bc sucks and we all feel very worried and yes downright terrified of tests and weird results.

    When I was finished chemo, it was early Dec. I had blood tests the day of my last chemo. When I got home that night, there was a message on my phone to call the oncologist. It turned out my liver enzymes were significantly elevated and I would have to have a liver ultrasound. I wasn't scheduled for the test under mid January!  My son was 7 years old at the time. It was a very scary, stressed, unsettled Christmas.

    Well, it turned out to be nothing!  But I spent a very stressful time worrying.

    I wish I had magic words to help you, but just remember that you are not alone in this battle, and yes, breast cancer sucks!

    Come here and vent often. We understand, believe me.

    wallan

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  • fightinhrd123
    fightinhrd123 Member Posts: 633
    edited February 2010

    my friend has nodules on her lungs (never had any kind of cancer)  Has had them checked every 6 months and they havent done a thing, very common :)

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  • alison34
    alison34 Member Posts: 138
    edited February 2010

    thankyou for your kind words ladies i am trying very hard to put this at the back of my mind and just concentrate at getting on with the treatment

    they are still only treating me for the bc at this moment in time so that must be a good sign hey?

    you ladies have been on my journey and are very strong and positive and i cannot thank you all enough xxxx

    alison

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  • gogo_xago
    gogo_xago Member Posts: 131
    edited May 2010
    My mon had a chest Xray and the paper says: there is probably a small lung nodule in the right lung and must have another tests. I'm freaking and I can't wait till Monday to call the onc. What is nodule? Is something bad? I will appreciate for any advice.
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  • littletower
    littletower Member Posts: 333
    edited May 2010

    Went through the same thing before starting radiation 6 weeks ago. They did a CT scan and saw two "spots". Completely freaked me out. Turned out they were nothing, just an anomaly shared by many. Try not to worry...(stupid advice, impossible to follow)...thinking of you.

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  • gogo_xago
    gogo_xago Member Posts: 131
    edited May 2010

    I finally called the onc. this evening - can't wait till Monday. He said to check to the previous CT scan (12/2009) had made on chest area, to find out is this "spot" was there.  Thanks God this "spot" is an old thing, it isn't something new. Maybe it is something that my mom had it before diagnosis. Thanks GOD!!!

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