Nipples--Men and Sex
I had bilateral reconstruction and am debating about having nipples created, 3-D tats, or sticking with silicone nipples that were made from a form of my own nipple prior to surgery. The sillicone look great and stay on great if all I want is the look sometimes...and my dh likes the look--but sex and silicone doesn't cut it.
I'm not wild about another surgery, and would hate to have nipples that I didn't like having gone through so much to have reconstruction...on the other hand, I don't want to stop short of having "icing on the cake" if it would be a good thing. For me the deciding factor is how it might or might not effect my husband's enjoyment--and thereby mine--during sex. I know I won't feel anything, but I would love to hear about your partner's reaction. So please fess up folks--how much difference is it making out there--are they being used like the real thing??? Are you glad--or not so much???
Thanks,
Sara
Comments
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Great questions Sara. Keep me posted on the responses. I've been wondering the same thing. I've had the bilateral recon and am now sitting with TE's or rocks in my chest. My DH says it is a really odd feeling when we hug. I'm very on the fence re nipples. I see advantages both ways and don't have a clue which way I should go.
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I originally had them reconstructed in April '08 and they flattened to almost nothing, which is pretty much what I'd asked for. However, I changed my mind after discussing with my husband and delving deep regarding his true feelings, then decided to have them re-done. I had that surgery this past November, and am very glad I did so. Having palpable nipples makes the breasts feel so genuine to both of us, and even if I cannot feel him touch them, I enjoy it that he is enjoying them. Highly recommended!!!!
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Sara
There is a forum called Moving Beyond Cancer with a topic "I want my mojo back"...you might want to read responses there also...or start your own topic on that forum. This is also a good place since we come here with our nipple recon questions.
I am going to be truly honest with you..... I had my nipples done with grafted areolas in August. Not a simple surgery. 3 hours and additional scaring. I decided to have this done because "I" wanted to look as normal as possible and I also had some excess skin at the top of one of my LD graft scars so I thought kill two birds with one stone....PS had to cut on both sides of my back extending those scars....eeekkkk.... Also my DH did not seem to see the recon boobs as a part of me. I "thought" he would see them differently if I put the "icing on the cake".....was I wrong. I have feeling in the cleavage area, above and below my LD flaps. He knows this and during intimate times he does try but it is only kisses on the upper pole, never near the nipple area. Needless to say I was very disappointed in his lack of enthusiasm over my "new" breast. After I had my meltdown on New Years (that is another story lol) I can see where he is coming from. They are not real, it would be hard for me to treat his penis the same if it were "not real"....
If I could go back to August, I would've had the nipples recon and the areolas tattooed. It would have been an easier surgery and no where near 3 hours.....was not worth having grafted areolas. I had the nipps done because I wanted just a hint of a nipple showing in my clothes. Makes me feel better.
Note: I wear a sexy nighty during intimate times so my DH does not have to look at my scars..and I do have the football shaped LD flaps....I love him that much. I am still disappointed in his lack of interest but I do not let my feelings interfere with our sex life. It is not worth it. I know all men are different. Some men love their new "toys" but my man, "just not into them"....Now I wonder if he would have been more receptive to "all my own tissue" instead of the silicone implants....probably not....
so you may want to have a heart to heart talk with your DH about his feelings before you go through another surgery.....wish I had.....
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My husband is very happy with my reconstructed breast, other than the fact that the nipple is very soft. Looks good, but not much substance. He definitely gravitates to the "natural" breast. I will be having PM on the "natural side," and I intend to have more substantive nipples made on both. He says that the one thing he misses on the reconstructed breast is the feel of the nipple. One of the things that's helping me deal with the thought of going thru this whole recon thing on the other side is that I can have good nipples on BOTH sides. I'll be happier, for myself and for him!
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In the beginning stages of my reconstruction I didn't think I would get nipples. I had so many surgeries and so much recovery that I didn't want to torture myself for such a minor thing.
My PS kinda talked me into it tho. He promised me it would be worth it so I decided to trust him (for the 100th time). He made nipples using skin from my groin. It wasn't a long surgery but it was very uncomfortable.
I have to admit that it was 100% worth it. The girls look incredibly natural almost to the point where you'd never know they weren't real. And I don't feel uncomfortable or self conscience about them when I'm buck naked. I am so happy with them and I would encourage anyone to get them done.
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I had a nipple made a month ago, an easy surgery. Just the nipple, out of scar tissue, the areola will be tattooed. DH and I are happy with it so far. DH still kind of ignores the reconstruction and goes for the natural one, can't blame him. But we are both amazed at the illusion that the new nipple creates. That is sexy. It really does stop being a surgical site and becomes a breast. Go for it.
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I had unilateral with tram and implants, then nipple (so the nipple was my 3rd surgery.) Frankly I thought the "egg" look was fine but DH really want a nipple. Surgery was short, back up and running in a day but, it does take a bit to heal (I had to wear padded gauze for a month to keep the new one perky.) I don't know if I would go through with it again, plus another scar. My PS was reshaping the "girls" to match so just made a cone out of existing skin. Just another opinion.
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With the whirlwind of decisions being made immediately after a cancer dx, I had assumed I'd go the "safest" way possible - no nipple sparing or recon, just tattoes later......until I asked dh his opinion. His view was entirely different - nipples all the way, but only if considered safe. I had a bxDIEP and spoke with PS surgeon about nipple sparing. With all the precautions they take, it made sense to try. Of all the things we're checking now, 2 weeks post-op, dh is possibly the most thrilled as to how good the nipples look. I'm glad for him, I've got to say, since I still don't really care, and there is no sensation. This whole process effects both people, so both people count.
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kcshreve, I've heard that even though you can't feel them, the natural nipples still react to cold, touch, etc. Have you found that to be true? I'm having skin/nip sparing bilat DIEP and I am trying to imagine what to expect.
Thanks.
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Sarabhealed - sorry no answer but I'm facing exactly the same choice now, although getting a silicone one moulded here in Oz requires some research, it is not a standard option. I really appreciate you starting this thread because it really is an important part of the decision I'll be making too.
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MaryDee & Janincanada--I'm glad I'm not alone! Thanks to others who have responded. I'm looking forward to even more input...
Regarding prosthetic nipples--trulife has some that look truly horrible--I saw Reforma at my doctor's office and was impressed--you can order on line. When I explored, I found out that the Radiant Impressions nipple that was molded from my nipple prior to mastectomy for my prosthesis could be made into just a nipple and that is what I'm using...lots of color choices, flat or raised (insurance covered two sets)--that company also might have generic nipples available as well...These are working great for me. It will be a while before I have to decide about this surgery as my breasts need more work and settling in first, so keep the comments coming!
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I ordered my fake silicone stick-on nipples from Amazon.com....you can order them directly from the company at
www.lovefifi.com/p-525-natural-nipples.aspx
They were more realistic looking than any I had seen. They were $25 plus shipping. When I got my recon nipps done I sent my fake ones to another sisters here on this site.
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I am so glad to see this subject. I had exchange and breast reduction a month ago and did not think I would want the nipple. But after sex and other thoughts, I need the whole look. I do not want to go through surgrey again. PS does what she calls a butterfly cut, no grafting. Any one heard of this. i would be interested in some feedback. The reconstruction with the silicone implant went great. Hugs Dianne
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I too originally thought no nipples. Enough surgery. But after some time thinking about it and talking to DH I decided to go for it. DH has started touching the new foobs now. In the beginning he just barely poked them. It was he who said he can't wait for the nipples. I also think this will make my new foobs be more "normal" to me and when I look down I won't see the incision lines but fipples.
My PS does what I think is also the butterfly cut, or the origami cut. He just takes the skin around the incision line and cuts and turns and sutures it. He said no problem but that he has to work around my other biopsy sites.
Janet
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Bumping--
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Sara ~ I just had my nipple (unilateral Diep) done the week before Christmas, and I'm really glad I did it. Like every other step of treatment and reconstruction, something about getting it done just gave me (& my DH) such an emotional lift -- like we're another step closer to being "normal" again. There were weeks when I wasn't sure I would bother having a nipple made, but I'm so glad I did. And it was such an easy procedure -- done in an operating room (@UCLA), but awake (just had a local anesthetic) and chatting with my PS. Absolutely no pain -- went Christmas shopping the same afternoon. Deanna
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Thanks to all for the input...for those who are in the same boat as I am wondering what to do, I read the thread to my husband last night and it was a great discussion starter...he can't get over the cool "sisterhood" thing and we had a laugh over imagining what kind of conversation would (or wouldn't) be generated by a bunch of men...we are both open to hearing more--both pros and cons...
dlb--that's my dh's initials--maybe it's a sign!
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Minnesota, How do you avoid having soft nipples with reconstruction? How can they make them feel more real?
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I had a nipple sparing DIEP, and yes, the nipples do respond to cold and to touch, even though I personally cannot feel any of it. I do have pretty good sensation overall, just not on the nipples. I'm told that may change over time with more feeling returning, although never as much as prior to the surgery. - KC
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Shay, I sent you a response to your PM. My first nipple recon completely flattened out and we tried a few things-- Radiesse, fat grafts underneath---finally I had them re-done in November. With a re-do, there is some scar tissue, so the nipple is made of more than just thin skin. My doctor also made the new nipples hollow and then filled them with fat grafts, to give them more projection and substance. It seems to have worked very well, as it's been 3.5 months and they are exactly what I had hoped they'd be.
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Question - would like opinions regards men and nipples - Is it common for men to not want to touch through the expansion process. My DH has lots of excusses on why he doesn't touch - he tells me that he doesn't want to hurt me - I tell him that I won't let him hurt me and that the PS says that a gentle massage would hurt and that I do that, but it would be different from him - he then says that it is just too weird - I understand that, it's weird for me too. Anyway, it that normal for a DH? We have only been married for 2 years, so I feel like we are still newly-weds. I realize that he has been through so much this past year, watching me and taking care of me during chemo - what can I do to help him?
Suzanne
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Suzanne
Not all men are the same when it comes to reconstruction. I have read post where the women say that their DH loves their new breast. Some men can accept them and some cannot. My DH is one of those that cannot treat them like they are a part of my body. Since I know that he is uncomfortable with them, I wear something when we are intimate. I am trying to put myself in his shoes...I know it is hard for some men....so I am not making a big deal out of it. I had nipples and grafted areolas done trying to make them look as "real" as possible...I did it because I wanted to but also I thought DH would see them differently. No way...he has never said a word about how they look...it would be nice to hear him say that my doctor done a good job. It is not worth getting depressed over...been there done that. We have been married 33 yrs this year and we love each other and that is all that matters....also I am cancer free....
Sorry that you have only been married just 2 years...that has got to be hard on both of you. Maybe he will change when you get the implants. The best thing you can do is not to push him. Dress sexy and see what happens. The best to you...we all go through some tough times
Linda
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Thank you, Linda
Most of the posts I have read, the DH simply love them. I know that sometimes I read things into an area that isn't there - and since I haven't had the exchange yet - things may be OK. Sometimes though, I wonder if I would have proceeded with reconstruction if I knew how his reactions would be - then again, there I go reading into it when we still have a ways to go. Anyway, I just need some patience.
Suzanne
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Suzanne,
I don't have nipples yet but I recently posted the same question on another thread. After listening to other women, some thought, and discussion with DH, I came to the conclusion that men need to get to know them. I think for men there is an emotional trauma, as women we talk about that, as men, I'm not sure they know how to process it. These darn things almost took the most important person in their life away from them, it's a little hard to like em.
Beyond that, we want to have the old sex life back, I'm sure it'll come but I'm impatient. There have been many times that I end up in tears after sex because he didn't touch them enough or I thought he touched them only because I wanted him to, not because he wanted to, so I decided to re-introduce "the boobs". After sex, I asked him to touch them, massage them, tickle them because I wanted to reintroduce touch and sensation. I explained that it feels different when he touches because when I touch, my brain is processing what my fingers feel and therefore over compensates for what my breasts do not feel. If he touches, my brain has only the breast sensation to process. While he's touching I tell him how it feels to me and he tells me how it feels to him. (We are not this kind of couple typically!) but somehow treating it in a non sexual way has helped both of us get to know the new me which is slowly leading to more interest in the foobs.
Prior to BC, my DH wasn't as interested in my boobs as I thought he should be and I thought it was because I had "mom boobs", after a long conversation, I've discovered that he's not a boob guy. He likes em, of course, and he's much happier that I have them than if I didn't and he likes the squishiness after exchange a million times more than with TEs but they are not a major key to his sexual happiness. I was under the misconception that boobs were an obsession for all men, when in fact, it's more my obsession than his. Saying it now, I think "duh", but it was a huge revelation for me!
In the end, like so many, he will not be terribly into them until they have nipples. It's funny all my life I thought BIG boobs were important, now after all this expansion I learn that it's really all about the nipple, at least for my DH.
Sort of a rambling, round about answer but these are my thoughts.
Julie
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Julie, well, I really appreciated your 'rambling' thoughts! You expressed yourself beautifully and your second paragraph could have been my own thoughts and experience. The 3rd one is where we differ since my husband is a boob man. Since my implant breasts were smaller and my diep breasts are smaller than what I was, I really hope that when I do get nips, it will be all about the nipple. He actually did figure out in the past year that it was the nipple that he really missed. I plan to ask for substantial nipples that are always 'on' I want to see and feel them. I figure I can wear a thicker bra anytime I want to hide them.
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Julie & Bayyy - thank you so much for your thoughts!
My DH, like Julie's, has never been a boob man - I know that, I've known it all along. He used to tell me that they were nice to have, but not necessary to be a certain size - size didn't matter. He told me the other day (on the phone) that he is ready to start massaging them for me, however he hasn't touched them yet. I haven't said anything to him about it because he had told me previously that he would do it at his own time and it would be quicker if I didn't push him. So I wait.
When he actually gets to the point when he can touch, I will try what Julie stated in her second paragraph. More than anything, I don't want to push him away.
And yeah, I would love to have the old sex life back - just need to pray for more patience, along with everything else.
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I had my nipples done. I did not have the grafting but the butterfly. I wasn't real happy with my nipples because they are always "on". I liked being able to go braless and I can't do that now. I even have to wear a bra with at least a little padding or they will show through.
That being said, my husband is very happy with the reconstruction and the nipples. Of course, he would still prefer the originals even though they weren't as perky, but he is happy with the reconstruction and does pay attention to the nipples. It was worth it even if it was just for his enjoyment.
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I was originally going to have a diep without nipples in Stage 1. Then, I just assumed that I'd just have nipples tattooed on later. Nipples were not a big deal to me, and we'd not discussed it as a couple. It's funny how each one in a couple can have such very different perspectives. When the doctor suggested nipple sparing in Stage 1, I was kind of shocked and had to think about it overnight since I'd truly never considered it. That's when I found out that it was a big deal to my husband. I knew he was a breast guy, but for some reason it wasn't clicking to me about the nipples being so key. Live and learn.
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I guess I haven't proceded with nipples because "even if for his enjoyment" it makes me sick to think that someone would get pleasure from something that I can't even feel and carries with it immense emotional pain and loss. To me that is just twisted. Sorry ladies. that is just where I am at. Guess that is why I am grateful I still have one healthy breast. He can have as much enjoyment from that one as he wants but the other one is covered 24/7...no trespassing.
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By the way, TimTam (member) has a double password protected web site you can go to and see reconstruction of all kinds including nipples posted by the members from bc dot org. It is very helpful. Send her a message to her to gain access.
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