Lumpectomy after-effects

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Kitchenwitch
Kitchenwitch Member Posts: 374

A somewhat alarmist neighbor of mine just told me that you lose a lot of sensation in your breast after a lumpectomy. I'm taking this with a grain of salt, given the source, but I'm concerned that this is a possibility. Do they cut nerve endings? Can anyone give me a good idea of what I might expect after the surgery? TIA.

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  • AuroraL
    AuroraL Member Posts: 33
    edited February 2010

    I had two lumpectomies to get clear margins.  I also did radiation for 6.5 weeks.  My breast is a little sore sometimes, not always.  I did not lose sensation at all.  It actually looks and feels pretty normal.  My last surgery was about a year ago and the scar is fading nicely.  Beware of inappropriate comments--there's a good thread on here that will make you LOL at people's insensitivity.  Everyone's case is different--it will depend on how much they need to take off.  Talk to your surgeon and ask as many questions as you need to.  Good luck.

  • sheila888
    sheila888 Member Posts: 25,634
    edited February 2010

    I also had 2 Lumpectomies to get clear margins and radiation.

    I didn't loose any feelings.

    We all have to deal with sources you mentioned.

    Sheila

  • AlohaGirl
    AlohaGirl Member Posts: 213
    edited February 2010

    I know women who have lost sensation from lumpectomy, but I had no loss of sensation.  If anything, for a while afterwards my nipple was overly sensitive though that seems to have subsided now.  I am 10 months out from surgery and I have occasional twinges of pain but not very often or very bad, my scar is almost invisible (the surgeon cut around the edge of my aereola which makes it less visible) and even though the surgeon removed a good sized piece he moved things around so my breast is the same shape as before (though slightly smaller).  In any event, good luck and let me know if there are any questions I can answer for you.  I am by no means an expert but I certainly am willing to share my personal experience. 

  • Jellydonut
    Jellydonut Member Posts: 1,043
    edited February 2010

    Two lumpectomies here too!!  No loss of sensation! 

    Good luck with your surgery.

    Jelly

  • AlohaGirl
    AlohaGirl Member Posts: 213
    edited February 2010

    Oh, also, I would take your neighbor's words with a grain of salt (as it sounds like you are).  I've had people tell me all kinds of strange and ridiculous things -- like "maybe since you don't have a palpable lump you don't have cancer" or "if you eat two organic apples a day you won't have this happen to you again" or "I have a healthy diet so I don't need to get mammograms" or "my daughter had a bump on her eyelid and when we eliminated dairy from her diet it went away, that might work for you."  I figure as long as people are well meaning I don't get offended, but there were a couple of people I avoided during treatment when I was more thin-skinned because I had a hard time coping with some of the things they would say.

  • JacquiAL
    JacquiAL Member Posts: 54
    edited February 2010

    Hi,

    I had two lumpectomies, the 2nd to take out more lymph nodes and clean up the margins.  I haven't lost any sensation.  With medication, I had very little pain after the surgeries and took less medication than I thought I would have to take. 

    Be sure and ask your surgeon all the questions you have.

     Best wishes for your surgery.

     Jacqui

  • louishenry
    louishenry Member Posts: 417
    edited February 2010

    I had a lumpectomy almost three years ago. My scar is barely visible and no loss of sensation at all.

  • Kitchenwitch
    Kitchenwitch Member Posts: 374
    edited February 2010

    thanks, everyone. It sounded a little alarmist. I know she didn't mean to scare me - just think her info was a little off.

  • pk0199
    pk0199 Member Posts: 586
    edited February 2010

    Well, I guess I am odd man out, I had 2 lumpectomies and I do have  some loss of sensation along the scar area. The only real problem with it is if I get itchy I have to be careful because I can't totally feel the scratching and don't want to cut into my skin. I have asked a couple of rads about it and since I am only 1.5 yrs out, they said sensation could still come back as the nerve endings take a long time to regrow. Is this a real problem for me, not at all, most times I do forget. AlohaGirl, I had the twinges of pain too but those have since gone, that is why I am hopeful the small loss of sensation I do have will come back as well.

  • friscosmom
    friscosmom Member Posts: 146
    edited February 2010

    No loss of sensation here. I do have a tiny bit of numbness near my two incisions (one for the lumpectomy, one for the nodes) and I still have some wierd sensation on the back side of my arm between my shoulder and elbow. I'm only 2 months out from my surgery and those areas have steadily improved over time.

  • KatieMom
    KatieMom Member Posts: 127
    edited February 2010

    I had a lumpectomy and SNB.  The Dr. cut around the areola and down toward my chest, armpit scar from the SNB.  I have more than full feeling :)  It is looking better, the scar I mean.  Lumpectomy was in Dec.  In answer to a question you didn't ask...  hubby doesn't mind the look and it all works just fine.  Yea, I know, you didn't ask :)

    Katie 

  • IronJawedBCAngel
    IronJawedBCAngel Member Posts: 470
    edited February 2010

    In general, it is the mastectomies that result in sensation loss.  I have had a lumpectomy and excisional biopsy and have no loss of sensation.  I did have an extremely over sensitive nipple for several months after the lumpectomy.  You can also have shooting pains in the nipple area which my onc explained is equivalent to the pain experienced by people with amputations.  Nerve endings get severed during the surgery and it causes some pain in the months to follow.  I don't know exactly when my nipple stopped being as sensitive, probably about 6-8 months after treatment.  I just know I had warned my husband to be extremely careful around that breast and one day I realized it was not painful any longer. I have been very fortunate and am very happy with my lumpectomy. 

  • OG56
    OG56 Member Posts: 897
    edited February 2010

    Just want to say that I have had 1 Lumpectomy and 3 excisional biopsys two around the nipple and one on the side. I too had the super sensitive nipple for several months and that went away. Other than two medium size scars my breasts look the same and I have never lost any sensation except the scar itself feels a little numb, but thats with any scar I think.

    Hope all goes well for you.

  • Kitchenwitch
    Kitchenwitch Member Posts: 374
    edited February 2010

    Jenn, thanks for your details! 

    Katiemom, I don't mind answers to questions I didn't ask! I'm not a bit worried about my husband's reactions. He's loving and supportive. (Hey, I gained like 20 pounds and until I lost them he was totally fine about it.) But good to hear about reactions to the scar. 

    OmahaGirl, I'm hoping for something like yours (breasts looking the same.) 

  • ruthbru
    ruthbru Member Posts: 57,235
    edited February 2010
    Also, know that your breast 'settles' in over time and the fat redistributes itself for about a year. So when you come out of surgery, if you go "YIKES!" dont' be too alarmed by how it looks, give it some time. I had a pretty large chunk out and hard ridgey scar, but (3 years out), everything has smoothed and evened out nicely. It is still a little tender, and needs to be 'handled with care Smile). My doctor says the occasional 'zaps' one feels are the nerves growing back, and that takes a long time. Good Luck!
  • ananda8
    ananda8 Member Posts: 2,755
    edited February 2010

    I had a partial mastectomy and eight lymph nodes removed.  I had no loss of sensation in my breast but my under arm area was numb for about 18 months.  It made it tricky to shave.  Wink  I now have some sensation under my arm. 

    The first year or so, you might have sharp pain in your breast at odd times.  I pressed as hard on the area of the shooting pain and it would go away after ten seconds or so.  I am glad my doctor warned me about it or I would have worried that something was wrong.  The shooting pains happened once or twice a day for the first 6-8 months.  After that, no pain.

  • SchoolBoardLady
    SchoolBoardLady Member Posts: 14
    edited February 2010

    From some of the well meaning comments here, I conclude that it all depends where your lumpectomy was on your breast, if you will lose sensation.  Certainly your surgeon knows this since he/she knows EXACTLY where the nerves are vs only lobules, fat etc. In my case, my lesion (I have DHP and LCIS not "cancer") was right behind the nipple and you betcha I lost "good" sensation and now have definite lingering subtle pain, minor but present 80% of the time.  It's a constant reminder that I am "high risk".  Ironically, my surgeon  offered me a bilateral to "eliminate anxiety about developing "cancer".  I thought, yikes, if a lumpectomy biopsy hurts this much afterward, why would I risk a bilateral mastectomy to take care of a problem that I have a 75-80% chance of NEVER getting.  I'm told "massage" will ease the pain-and it usually does... for awhile. From what I've learned in my anatomy and physiology classes as a nursing student (career change at 53), when nerves heal and regenerate, there may be pain as the nerve endings "run into" scar tissue.  That's how massage can help--reroute the regenerating nerve endings.  Anyone out there with better Anatomy and Physiology knowledge than this--please add input.

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited February 2010

    For my lumpectomy, the surgeon went in right next to the nipple--think letter C.  I presume some nerve endings were cut ---can't see how it could be otherwise---but in general no change in sensation.  I can feel a bit of lump which I understand to be fluid.  It has definitely gone down since the procedure and my breast is much less swollen though I am still wearing a sports bra 24-7.  I am not expecting much of a scar and that what there is will just blend in with the edge of the nipple.

  • sweatyspice
    sweatyspice Member Posts: 922
    edited February 2010

    Not so sure the surgeon will be able to accurately predict.  In a breast lift and reduction, they actually move your nipple, and my surgeon couldn't say for sure one way or the other what would happen.  Most patients retain sensation, but it does vary.

  • Kitchenwitch
    Kitchenwitch Member Posts: 374
    edited February 2010

    Thanks, everybody, as ever, for sharing experiences and knowledge. I'm visiting my plastic surgeon (haha, I'm so vain - I just go to him for the stray mole or benign cyst) on Thursday to talk to him about a possible lift/reduction and maybe making the two sides match, if need be. Lumpectomy is Tuesday. Trying not to think about it for now.

  • kellyrs
    kellyrs Member Posts: 21
    edited February 2010

    Kitchenwitch, this is completely off the subject but I wanted to tell you I PM'd you - only found your message a day or so ago. Kelly xxx

  • mom3band1g
    mom3band1g Member Posts: 817
    edited February 2010

    I had my lumpectomy Feb 10.  My incision was also like a C but some of my aerola (SP?) was also taken.  I had a palpable mass very close to the nipple.  I am only about 2 weeks out but I do have numbness around my incision.  I do also have those 'zap' feelings of what I assume are nerve endings mending.  I am guessing some sensation will return.  It seems it really is different for everyone.  My skin is VERY sensitive right now.....more than right after surgery.  I have been wearing a camisole 24/7 because of it.

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 777
    edited February 2010

    5 days out after lumpectomy here. What do I feel? Itchiness. Lots and lots of itchiness. I have a c-shaped incision mark which is very red, but it's not too close to my nipple. My BC tried to cut closer in, but was unable to, due to the location of my DCIS. So, I will have a scar that is further away from the nipple, closer to my "cleavage"area on the inside of my left breast. I am wearing a bralette with no underwire because the thought of a regular bra gives me the heebie jeebies.

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited February 2010

    Interesting that so many people with lumpectomies are ducking bras.  I've been pretty much living in one of three sports bras since I had my surgeries. The one night I skipped I felt awful the next day.  Today I'm in a more regular bra but its pulled quite tight.

    goes to show how different our bodies react, doesn't it?

  • Kitchenwitch
    Kitchenwitch Member Posts: 374
    edited February 2010
    3monstmama - I was wondering about the bra question. Seems like I'm going to need a sports bra or two for afterwards, yes? I sure needed a bra after my biopsy for a couple of days. 
  • sweatyspice
    sweatyspice Member Posts: 922
    edited February 2010

    I recommend the cheapo sports bras at K mart.  I think they're $7.99, hook and eye in front, cotton/spandex/poly.  Black, grey and/or white.  To size 44.  I wish I'd known about those back at biopsy.  (Ahhh, the good old biopsy days!)

  • Kitchenwitch
    Kitchenwitch Member Posts: 374
    edited February 2010

    Good one, Sweaty. Could have gotten it today... will hit up kmart in a coupla days.

  • IronJawedBCAngel
    IronJawedBCAngel Member Posts: 470
    edited February 2010

    I lived in my sports bra for some time after my treatment ended.  Even after the biopsy, I could tolerate no jiggle at all, and as I am relatively active, I needed something that was super strong.  I bought a Champion front close a few days before my biopsy and wore it a few times to stretch it out enough so that it was easy to close.  The next size up had too much give to it and I had been warned by one of the Komen girls about what to expect after the biopsy. I've had two biopsies since my diagnosis and  I have tried some other brands but none gave me as much support as the Champion bra.  Made the mistake of spending a fair amount on two from a mastecomy supply shop before the Breast Cancer 3 Day, and they don't give me any where near the level of support.  If you are not particularly active, the ones from K-Mart may be fine and if they are inexpensive, the added advantage is that you won't have to worry about ruining them with all the marking during rads.

  • AlohaGirl
    AlohaGirl Member Posts: 213
    edited February 2010

    After my lumpectomy I wore a sports bra all the time for the first couple of weeks (I recommend "Fiona" by Moving Comfort, then "graduated" to sleeping in a lightweight bra from Soma at night (not very supportive for me -- I am somewhere between a D and DD but I needed something at night still, especially because my nipple was very sensitive and my shirt would hurt it without a bra) for a while.  I also used 2 sports bras when I ran for a while after surgery thanks to the advice of some women on another thread here, which was great.  I found when I started running again it was quite painful for a while until I figured that out.  I don't remember exactly when I went back to regular bras but I think I did briefly before I started radiation (then went back to all non-underwires, sports and otherwise until a week or two after that finished). 

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 777
    edited February 2010

    Aloha Girl,

    When did you start running after surgery? My body is aching for exercise, and haven't done a thing since my surgery last Thursday. I am dying here, thinking about a walk today so I can at least feel like I am moving.

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