Starting Chemo Feb 2010?

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  • lbreedl
    lbreedl Member Posts: 59
    edited February 2010

    Just found out one of my friend's mom got the dreaded news. I am so sick of breast cancer! It seems to be epidemic these days. I just want to call her and tell her what to do! That's not my place but I did offer to get her in with my docs and help as much as I can. I just feel so bad for her. I remeber how I felt back then, boy have I come a long way since then. Anyone else remember that? This is a good feeling to know that I have made progress! We all have! Way to go ladies! We are going to kick cancer butt!

    3rd treatment tomorrow :) Bring it on!

  • faithfulc
    faithfulc Member Posts: 284
    edited February 2010

    Dear Feb sisters, sorry I've been out of pocket for a few days.  I've been feeling fine, working full time and all.  Even the Neulasta shot didn't give me much trouble. 

    However, starting from yesterday (day 12 after first treatment and Valentine's Day) I've had a throbbing headache behind my right ear.  Everywhere else is fine but every minute or so it feels like some big blood vessel wants to get out my head for just a split second.  Then everything is perfectly fine again.  It doesn't affect much else and I was able to sleep well last night, but this really feels weird. 

    I've tried to keep up the list at the top and added a few new names to it.  So glad we've come together here to support each other.  Vmarie and rababar, good luck today!!  Also, it sounds like Teel's treatment is postponed (click on her name at the top and see her posting about the episode after steroids).  Teel I hope you feel better soon!

  • suz6
    suz6 Member Posts: 16
    edited February 2010

    Hi ladies. I am new to this thread and have been getting comfort from reading your experiences. I had my first of 4 T/C treatments Friday, Feb. 12. Spent all day yesterday in bed feeling very achy and light headed. Am feeling better today and appreciate all the tips I have read for dealing with the SEs whatever they may be.

  • mofend
    mofend Member Posts: 140
    edited February 2010

    Hey, faithfulc - could that be the neuropathy they talk about?  Hope it goes away soon - otherwise, sounds like you're doing well.  I'm into day five after treatment and just feel a bit buzzy still, but I had a wonderful bathroom experience this morning that made me feel like a new girl!!! Woohoo - thank goodness for Miralax.  I know that next time I will start taking that right before the treatment and continue until normal returns - don't want to spend another hour and a half in the bathroom every treatment!  We're supposed to get more snow - are the kids ever going to go back to school???  I just think this is a continuation of the cruel joke that this has become!  

  • leta17
    leta17 Member Posts: 120
    edited February 2010

    For all those joining and just getting going, I must agree that the fear has been worse than the reality of things, including the hair loss, at least for me. 

    Although, I do still have emotional highs and lows since the chemo started, but mostly because I feel that we should be beyond chemo as a solution to this nasty thing....it just seems so archaic to me...I mean we are talking about ice caps, to save our hair!!!!   I find on my low day, day 4, which was yesterday, questioning the whole idea of chemo....why aren't their more natural solutions, because it (cancer) seems so clearly an environmental issue in our society?  I also ask, who is following all of us, from day one, asking about our histories and documenting our habits, the food we eat, and following each of us through this??  Yes, there are clinical trials, but that is to test the viability and success of drugs, not to try and stop it from even occuring in the first place!  I see how much each tx costs, and think WOW, what a money maker, who would want to stop this!!!  Yes we have health insurance, but really that isn't the point, someone is still paying for this!!

    So yesterday I was sad to be going through this, today I am angry and and wanting a better solution for the future!!  Other than these emotions, I am good enough to have a housefull of children over to play in the snow today!!

    Thank you for the 'soap box'!

  • faithfulc
    faithfulc Member Posts: 284
    edited February 2010

    Leta, I so share your thinking.

    I borrowed a book called "The Hundred-Year Lie" from my local library.  Although the title is a bit provocative, the book tells the story of how our lives have changed during the past century thanks to the rise of three big industries: pharmaceutical, chemical, and processed food.  As the first generation whose lives have been exposed to more artificial chemical products than ever in the human history, we really should be thinking about how to live a more natural life that's meant to be.  The author does say (and I agree) that not everything natural is good for you and not everything artificial/synthetic is bad for you.  But the big question is that we are not as protected as we think we are by the FDAs in our lives.  Think about all the synthetic chemical stuff in our houses, the cumulative effect on us no one really knows about (or if anyone knows, they are not telling).

    Truly, I view this as a big wakeup call for me and I'm really rethinking the life path for myself and my family.  We are what we eat, we are what we drink/wear/do.

  • leta17
    leta17 Member Posts: 120
    edited February 2010
    I am with you, faithfulc, rethinking a lot of things!!!  Thanks for the book recommendation, I am going to pick that up!
  • suz6
    suz6 Member Posts: 16
    edited February 2010

    Another book is Anti-cancer - a new way of life (new edition) written by a doctor diagnosed with brain cancer. Interesting stuff.

    Having peppermint tea now - can't seem to get over the achy feeling although it is much better. The nurse who called today said the light-headedness and aches usually go away after about 72 hours. Of course, nothing is guaranteed. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    A GREAT book was "Cancer on $5 a Day," by Robert Schimmel. I enjoyed it so much I finished the whole thing in less than 2 days! Great read...

  • Ezscriiibe
    Ezscriiibe Member Posts: 598
    edited February 2010

    So glad that all of you are hanging in there and doing well.

    I'm more in fear/panic over getting the port installed (tomorrow afternoon), than anything else I think.

    I don't know why. But it's really got me unnerved.

    I need to try to relax this week. I am getting my hair cut really short on Weds (Annie Lennox short). Hang in there, ladies! We can do this!

  • writer
    writer Member Posts: 208
    edited February 2010

    Ezscriiibe, good luck with the port, and just remember, in a while you'll barely notice it. I was really uncomfortable in the few days after the surgery, and wish I didn't have to have it, but now I don't feel it at all, and it was quite clear on my first chemo day that I'd never make it the full year without a port. 

    And you might like the haircut. I've gotten surprising raves about mine. So I guess when it comes back (next fall?) I'll shoot for the same look. 

    Thinking about vmarie and rababar-- hopefully you're sleeping well right now.

    I've had a rough go with intestinal issues. They're still here, although I see signs of hope-- I was actually hungry tonight for the first time in a week. Had some chicken soup, and we'll see how it goes. Last night was a big dinner with my extended family, and they were all feasting and I had a small bowl of chicken soup. I did well in the night but had a very unpleasant early morning. Over the morning it morphed into diarrhea, so I'm taking immodium and hydrating and having the occasional banana, piece of dry toast or chicken soup. I'm going to talk to my nurse practitioner tomorrow and hopefully we can figure out how to lick this now, and make sure it's not so bad next time.

    the good news is that I'm losing weight-- but now I don't want to any more! I'm actually exhausted a lot, I think just from lack of calories.

    Anyway, tomorrow is another day, and it's glorious here in SoCal, and I got a spectacularly beautiful weekend at the beach with my family, so life is good.

  • Iamstronger
    Iamstronger Member Posts: 378
    edited February 2010

    HI ladies,

    Had my first round of chemo yesterday.  So far so good.  It was good to just get it over and now I am just on the wait and see what is going to happen.  I have had a bit of a headache since yesterday at about 5:00.  NOthing major, more annoying than anything else.  Have had a little acid indigestion, and mild nausea.  We will see how the rest of the day turns out and then tomorrow. 

    To those of you waiting to start, it is pretty uneventful.  In all actuality, it was relaxing. I have not sat in one place for 6 hours in a LONG time!  I think like some of the others posted, it is just getting over the first one.  I know for me, I HATE the unknown.

    Thanks to all of you for the kind comments. Hope everyone is doing well.

    Verene

  • faithfulc
    faithfulc Member Posts: 284
    edited February 2010

    vmarie, so glad the waiting is now behind you.  Glad to hear it went well for you and I hope you'll feel little SE.  Are you getting the Avastin?

    Ezscriiibe, I hope your port surgery goes well today.  As writer said, I really didn't like the port for the first few days (it was SORE!) but after that things were much easier. 

    Leah58, hope your first chemo goes well for you today.

    I'm happy to report that the headache is now gone.  Don't know where it came from but it didn't last long.

  • mofend
    mofend Member Posts: 140
    edited February 2010

    Funny thing - I didn't have any mouth sores - that is until I thought that since they say you should use a baking soda rinse that I should do that - and I did - and I ended up with a sore on my gum!  So, won't be doing that again.  Still feeling pretty good, otherwise.  Kind of tired but with the kids still out of school (back tomorrow!) I have been able to rest and not do as much running around as usual - thank goodness for neighbors who entertain your children!  I have noticed some strange feelings in my scalp, so I guess that's the beginning of the end of the long blond locks!  I'm just going to buy the clippers tomorrow and then as soon as the first bit comes out - buzz it is!  Not feeling too emotional about it - just figuring that it's one step closer to being done with this adventure.   

  • Janina95570
    Janina95570 Member Posts: 85
    edited February 2010

    Starting CMF on Monday, Feb. 22.  I will do 6 cycles.  2 weeks on, 2 weeks off.  Days 1-14 take a pill and on days 1 and 8 get the injection...then off for 2 weeks.  6 months. 

    I chose CMF due to less SE and no hair loss (only thinning)...milder on the body.

  • 4Sophia
    4Sophia Member Posts: 23
    edited February 2010

    Hello everyone!

    I just wanted to send good, positive vibes and thoughts today.  I also wanted to give you an update on my status.  I had to reschedule my CT scans, the roads were too bad yesterday.  So, I have to get my "power port" installed on the 18th, followed by CT scans on 20th.  I am somewhat anxious, but know this too will pass. 

  • Iamstronger
    Iamstronger Member Posts: 378
    edited February 2010

    faithfulC and Writer-yes, I am taking the Avastin. 

  • faithfulc
    faithfulc Member Posts: 284
    edited February 2010
    Mofend, I rinse and gargle with salt water every morning and every night.  (I also do Biotene.)  I truly believe this has helped me, especially when my DH had a cold for the past week.  Hope your mouth sore goes away FAST !
  • mebrown
    mebrown Member Posts: 74
    edited February 2010

    Hello. I am new to this site. I have been reading the various discussion boards and wanted to thank everyone for all their encouragement and information. I was dx in December 09, had a bilateral December 31, and started chemo February 9. This has been such a roller coaster ride emotionally. So far I'm doing well on my treatment. I will have TC for 6 rounds. I have been looking for others who have been through this treatment.

    I don't know much about how threads work on here. I have just been clicking subjects that have been on my mind. This site has been a great help. I do want to wish all of you good luck with your treatments and hope you have very few SEs.

  • 4Sophia
    4Sophia Member Posts: 23
    edited February 2010

    Welcome Mebrown!

    I know what you mean about this being an emotional rollercoaster.  I have so many doctors appointments and other responsibilities that it is alot to keep straight.  I am finding however, that I am more resilient that I have ever given myself credit for.  I hope you keep coming back and talking about your experiences.  The sisters in this group are so loving, caring, and strong.  So glad I found them too.

    Take good care :)

  • Leah58
    Leah58 Member Posts: 159
    edited February 2010

    Good evening, I am so glad that my first TC chemo infusion went well today.  I did take a pre infusion Claritin and a Xanax to smooth things over.  No reactions to the Taxotere. Yeah!   The nurse sat with me for 20 minutes to make sure that I didn't have a problem A bit of a headache towards the end of the afternoon but tolerable.  I appeciate all of the ideas and support from everyone on this board.  It has made this journey manageable.   I enjoy reading stories about our new "normal" although we each have our own story.  

    Also, an unexpected perk today!  Since I was there through during the lunch hour I was able to order a great lunch.  I hope that you all have that same opportunity.  It felt good to be looked after.   The nurses were all so kind.

    I keep you all in my prayers.  Take care, BB

  • mofend
    mofend Member Posts: 140
    edited February 2010
    Thanks, Faithfulc - I will try that.   Don't want any more of these popping up.  It's not a huge deal, but I imagine it could be if your mouth was full of them.  What is a DH?  I know what I've heard it for in the past, but I can't imagine that's what you're referring to Wink
  • roso88
    roso88 Member Posts: 31
    edited February 2010

    glad to read that everyone is coping well so far.  welcome new members! 

    i'm done with week 1 on TH.  days 3-4 were the worst.  had mild muscle pain which resulted in some restless leg syndrome that kept me up for a whole night.  was my fault for trying to tough through it without tylenol.  i won't be making that mistake again.  also have a constant runny nose and some mild acne, which is annoying. 

    taste buds don't seem to be the same.  food just doesn't take as good.   you would think this would keep me from eating more but have managed to pack on a few pounds already.  argh.

    i've been trying to hydrate like crazy but getting sick of flat water so i stumbled upon coconut water.  it tastes great, isn't too sugary or sweet and is all natural and chock full of electrolytes & potassium.  my friend also gave me a good tip - put 2 bay leaves in water kettle prior to boiling.  the aroma is great and really enhances that cup of tea!

    have to go in for round 2 at 7am tomorrow.  hope my chemo nurse doesn't mind that i'm not much of a morning person.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    Mofend- DH is dear husband. I had to ask that awhile back too!

    Tomorrow I get my first Herceptin, then Thursday, I get my chemo drugs (TC). Also, I found out today from my onc that after chemo and my recons surgery, I get to do 6 weeks of rads in my armpit AND what is left of my right breast (which was removed, so I'm amazed they want to singe it!). 

    You wear your own clothes during the infusions, right? No hospital gown or anything like that, right?

  • writer
    writer Member Posts: 208
    edited February 2010

    DH is short for Dear Husband. Took me a long time to figure that out. I was seeing it on another forum for kids/parents looking for colleges, and constant references to DS or DD (Dear Son, Dear Daughter). Not sure the genesis of this curious mixing of Victorian sensibility with modern technology, but there it is.

    Mofend, that's pretty funny (although not for you) about being punished by doing the right thing! We have SO MANY things to take and do and remember, and they're not always going to work. In my case, I've been better about brushing and flossing than usual, and am rinsing with Biotene two or three times a day, and so far so good. I have a constant metallic feeling, almost like my mouth had been burned by hot soup, but it's mild and really doesn't bother me. Taste buds aren't what they were, but they're better than in week 1. And no sores.

    FYI, if anyone else gets hit with the intestinal stuff like I did-- I talked to my nurse practitioner today, and she said I should keep taking the Benefiber the whole way. I was taking it at first but quit once the diarrhea started, because with diarrhea you don't want any fiber. She said the nutritionist says this stuff is not like normal fiber supplements-- it helps whether you're constipated or have diarrhea. So I'm back on it now. And I'm going to meet with this nutritionist before round 2 to develop a plan for how I can get through it better. If I learn any good tips I'll pass them along.

    My appetite returned today (day 9)-- not only was I hungry, I was starving. Now I'm waiting anxiously for our chicken and potatoes for dinner. I may pay the price later tonight, but I was so happy to have no pain all day, and to be hungry and eat something good! 20 minutes of misery twice a day is nothing like the 24/7 issues I was having. So that's a relief. And I'm going to buy a new pair of jeans this weekend to pay myself back for the rotten week-- my pants are all hanging on me now.

    Welcome to the newcomers-- I'm sorry to see our ranks swelling, but you've come to the right place.

  • writer
    writer Member Posts: 208
    edited February 2010

    Beth, yes, you wear your own clothes. If you have a port, like I do, you should wear a loose, button-up shirt, so you can undo a button and they can access it without you having to undress. Dress for comfort!

  • writer
    writer Member Posts: 208
    edited February 2010

    And what's up with the runny nose? I thought that happened later, when we lose our nose hairs. I have a constant drip. Is this something we'll have all the way through chemo?

  • Ezscriiibe
    Ezscriiibe Member Posts: 598
    edited February 2010

    These posts are going a long way to keeping me sane!

    The port placement went well, and I'm glad that's over. I told the nurse today that I was dreading it with a passion I haven't had since I was dreading my labor pains with my daughter! LOL.

    Then I told her that I'm also dreading the chemo, but that "dread" has to be put on hold until the port placement is over.

    Only one dread at a time! Smile

    I was very surprised to find out that the port is a permanent installation. They gave me some material that I'm supposed to keep on me, like a plastic card with the Serial Number, and something that I'm supposed to wear on my wrist. They said with the port, any time I ever need a CAT scan, they can use the port instead of going for the veins. . . .I was floored!

    They DID say that many times after chemo people opt to have them removed, but that many peopel also just go ahead and keep them in!

    On another note, no one has said anything to me about Claritin yet. Did you all just take it on your own? What is it supposed to do? Should I take benadryl? 

  • Grazie47
    Grazie47 Member Posts: 94
    edited February 2010

    Welcome to all our new sisters.

    EzscriiibeMy Onc never told me about claritan, I read it here on the threads.  Before my consult with my oncologist I wrote down all my questions including a list of over the counter drugs that I wanted to take if necessary and she was OK with claritan so I went ahead and took it the morning before I got the Neulasta shot.

    So glad I have a port, it was so easy for the nurse to set up the infusion, while I was there a man who didn't have a port had so much trouble, they restarted his IV at least five times at the end of the day he scheduled a port.

    I have to get MUGA scans and they can use the port for the isotopes.  Now I hardly know its there.

    Writer - I also have the running nose, guess we already lost the nose hairs.   Stocked up on lots of tissues.

    beth3172- you are getting your Herceptin separate from the TC?   I get all three together.

  • Grazie47
    Grazie47 Member Posts: 94
    edited February 2010
    lbreedl  have you been using the cold caps? 

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