Starting Chemo Feb 2010?
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Today was an awesome day. I flew solo for my second treatment. I think my husband was more nervous than I was. My plane I'd delayed for thd bad weather up north...brrr. I met some great people today that ard all going through this mess. It's so cool how we all have this bond, we care about each other even though we're not friends yet or family but it's there that bond. Cancer knows no boundrys. We are all different and yet really thd same.
My whole experience today was almost spa like, except for the IV. I had me time, read a book, got to pig out w/o guilt (the steroids) watched a movie of MY choice, had sweet nurses wrapping me in warm blankets. Do not feel bad at all! Yes! Ok, so there were no massages and facials but it was not unpleasant at all. What a relief that is. So I'm thinking 2 down 32 more to go!
Mo: everything happens for a reason. Friday will be your awsome day!
My plane Is here. -
sgerrity -- welcome to our exclusive club! I too am nervous, anxious, and not looking forward to having a port and starting chemo. Based on what I've read on this thread and the Feb 2010 chemo start thread, I've started a list of what you might want:
- drink lots of water the day or two BEFORE, during and after to help flush out your system
- rinse mouth with salt or baking soda rinse 3-4x a day; also recommended is Biotene toothpaste and mouthwash for dry mouth
- you might want to bring small snacks with you if they allow. Things like crackers, yogurt, light and easy to carry.
- ginger is a natural anti-nausea herb and ginger tea or ginger ale might be nice as well
You ladies that have been through this, anything else?
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Ha ha, lbreedl, I just got off the phone with my sisters and mother and was telling them all that I sort of felt like I was at the spa today!
Back from my first day of TCH+A (Taxotere, Carboplatin, Herceptin and Avastin). I was in a private room (I go to a doc's office near the hospital, only about 6 chemo chairs.) I spent more than 7 hours in the chair, with tons of quick bathroom breaks (yes, I am hydrating like a fiend!). I was nervous for the first, the Taxotere, because that's the one with the most immediate allergic reactions, and they were watching me closely, but I had no problem. No problem with any of them, and I have to say, it was pretty comfy in that big chair with my pillows and blankets. My husband brought me won ton soup for lunch, and I read and listened to music and dozed (got 4 hours sleep last night thanks to the steroids). Since I tolerated them all well, the next chemo day will go faster, hopefully about 5, 5 1/2 hours.
The whole thing was more stressful on my husband than me. He was a wreck-- didn't sleep either last night, and now he's crashed on the sofa.
Went for a short walk with the dog when I got home. Feel pretty good, some stomach weirdness but that started yesterday from the stress... it's normal for me. It's easy to keep up the water because I'm thirsty.
sgerrity, if you want my chemo shopping list, send me a private message and I'll send it to you. I'm kind of a compulsive planner, so got everything I thought I might need in advance, including bandanas, hats and a wig I probably won't wear (insurance paid). Biotene toothpaste and mouthwash, ginger tea, Senokot, Colace, Benefiber, Immodium, medical marijuana... I'm ready for anything. Mostly now I'm loading up on the anti-constipation stuff, because that was a problem after both my lumpectomy and my port surgery, and I'm prone to it, so I have to go very aggressive with it now, because of the steroids and nausea drugs.
Anyway, after all these weeks of fear, it was a piece of cake. We'll see what the week brings. Good luck to all. Mo, bummer about the delay-- I'm sure you just want to get it over with!
Colleen
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Had a rough weekend, but felt good enough today to go to work for a few hours. I'm fortunate to have a very flexible work schedule, and can come and go pretty much as I need throughout this. Boy, did I pay for not hydrating enough. I will certainly remember that one next time around. Had quite a bit of bone pain in my back, muscle soreness, and some weakness. Still nauseous this morning, but nibbled on ginger snaps in a meeting at work this am, and that helped. Not looking forward to doing this again, but keep thinking "one down, three to go." It was a nice day this afternoon, so I was able to get outside with my puppy and sit in the sunshine while she chewed on everything available. Worked another of my dogs, too, briefly. If I can find the strength to do the things I love, even for short periods of time, I know I can get through this. My emotions run the gamut. Primarily worried that my husband will be out of town when I have my next round. Has anyone changed their schedule around?
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sgerrity - here are links for chemo prep list & tips that were posted awhile back:
http://community.breastcancer.org/forum/69/topic/478386?page=3#idx_61
http://community.breastcancer.org/forum/69/topic/706846?page=2#idx_31
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Hi Cindy,
I have had a couple of better nights sleep. I really think that I got over tired and really wired on waiting for the first Chemo! I am back at work this week. Yesterday was really hard, I was so tired and needed to leave early. Went home and had a "nanna nap" for a couple of hours and then felt heaps better. I am at work again today, feeling a lot better for having a better nights sleep last night. I feel a bit nauseous but nothing worse than when I was pregnant years ago. Hope you get some sleep
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ennaytap44 and sgerrity, glad you found us here. We are all here to help - this is a place to share how you feel, good or bad. Having gone through treatment one, I'm now much more at ease. I have two young children as well and I'm determined to go through this a healthier person. I had no choice when the cancer happened, but I do have a choice deciding my attitude now that I know. Please stay strong, but this is also a place to tell it like it is when we have the deepest worries. We'll listen and we'll try to help.
CAL30, sorry to hear about your friend. Not everyone can deal with cancer with peace and you friend may not be one of them. They could be at a loss as to how to deal with the news. I'd say don't let this bother you. If she's uncomfortable, don't call her. You don't need to spend time and energy worrying about how SHE feels. All that's important is you staying strong and focused for your health. If at some point in the future she decides to help, let her. If not, that's OK, too.
mofend, sorry about your schedule change. Hard to predict the weather. In fact one thing I learned is it's hard to know when the curve balls come, period. I'm hoping your Friday goes well.
Writer/lbreedl, good to hear from you both.
Hugs to all you ladies in our club. We'll always be here for each other.
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Hi all,
I saw the infectious disease specialist yesterday about this horrible staph infection I still have. I am getting better, which is great news. It is just a severe infection and takes a long time to clear (it only took 48 hours to appear, though). She estimates 2 more weeks on IV antibiotics, then moving me to oral. My onc told her my chemo isn't urgent, so thank the powers that be that I don't have to start that while my body is already weakened.
So, I think I'll be a late starter, probably in two weeks. You're so right faithfulc about the curve balls. Who knew that a week before chemo I would end up in the hospital fighting for my life against staph, not cancer?? We've slid down the rabbit hole I guess, and anything can happen.
Good luck on Friday mofend! Putting this stuff off is harder than just doing it in some ways, but I hope you continue to feel calm while waiting.
CAL30 I'm sorry to hear about your friend. I've noticed that since my diagnosis the world, my priorities, everything has seemed a lot clearer. Sparkly clear, as odd as that sounds. I have stopped putting energy into so many things that just seem 'useless' or not in my best interests right now. I hope you put your priorities first too. It hurts when someone is not who you thought they were--I'm sending hope to you that you find someone you didn't think was up to it will step up and be an amazing friend.
Writer, lbreedl and others I'm sure I have forgotten to mention, I'm glad your treatments went well and I hope you continue to feel great...well, good...the new normal? I'm a little dingy today.
Hugs to everyone. This forum is so amazing.
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Hi everyone!
Wow, just realized it's been days since I last posted on here. So sorry. I went for my weekly Herceptin drip today and it was pretty uneventful. I did have a slight metallic taste in my mouth, but no lightheadness, no headache, nothing. It was quick, too!
The weekend was pretty rough - the steroids wore off and it was a weekend of fatigue and no more Senekot (if you get my drift). I tried to get some walking in, but I was just too tired to do much of anything. I'm feeling better today, but the Senekot has to stay far away from me. Imodium is tasting too weird, so I've been trying to get some cheese, rice and all those other things (you usually feed your kids when they're sick) into my system. It seems to be helping. I've just realized today that my body is under attack and the best thing for it is for me to slow down and not run through each day in my frenetic pace. If I've got any strange side effects from the Herceptin, I'll be sure to post. Right now, all the other SEs I had (flushing face, hyperactivity, restless sleep) seem to be gone.
For those of you who've started this week, or will start this week (writer, teel, ennayttap44, roso88, mofend): good luck. Take a deep breath, bring an iPod, book, knitting or anything else that will keep your hands and mind occupied and enjoy the short break in your everyday life. It will be fine, and it will be over soon.
Someone had asked (CinD??) if my screen name is because I'm a fan of The Who ... yes! Behind the Beatles, The Who have been in my life for 40+ years. I love their music, their lyrics, and their determination. To see them during the SuperBowl was just FUN!
Okay, well I should run now. I'd like to get some stuff done before we start to get our snow here: 10-18"?? Really? Can't wait!
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Home from my first TAC chemo. This infusion was a breeze. From time to time I did have weird sensations but all short lived. I was unable to nap when I was there. I am exausted. The steroids only let me get a couple of hours of sleep last night. I drove myself both ways. Coming home I was not 100%. Since it is progressive, just might have someone drive me toward the end.
There was a massage therapist there. I never knew a shoulder rub could feel that good. I also grabbed 2 more hats for myself to wear.
Pharmacy will deliver something to help me sleep. I have no appetite. Since all this has started, I have lost 6 lbs. I wouldn't mind losing a total of 20, but no more than that.
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Hi - Ennayttap44 - I hope you get some rest. Not sleeping is the pits. Hopefully you can get someone to drive you - if you're in the Philly area, I could help out. Just let me know - make sure you don't lose too much weight - that's not good either. MomWhoFan - don't know which we experience - diarrhea or constipation - on these meds. Which are you dealing with - honestly, I've never had that issue so it's all a little confusing for me. Would you suggest taking anything prior to first treatment? I've always been regular (sorry for the details) so I don't want to mess with it if not needed. Now they've moved my chemo back from Friday to Thursday of this week. Any more changes and I'm going to lose my mind! Had a nice massage today, got my nails done, took a nap and had a great me day. Now, bring on the two feet of snow, make soup and get ready for Thursday - hopefully the snow will be done and I can make it downtown. Mo
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Hi all,
Just checking in quickly. As I said, yesterday was long but easy, and I was amazed how well I slept despite the steroid buzz last night. Not feeling great today, though, and unfortunately I have a big work deadline. It's not too bad, just intestinal stuff and kind of flu-y feeling-- what you'd expect. Can't eat much, which is fine with me. Having to work harder to stay hydrated, because I'm not thirsty like yesterday. Hubby just came by to help carry some heavy books (I'm a publisher) and bring me some ginger tea. Looking forward to some fetal-position time tonight.
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I just found this app for iphone called ichemo diary. Just installed it. Does anybody have it? Like it? Lets you track your treatments and keep record of se etc.
I'm dragging just a bit today but other than that its ok. Trying to figure out the hair deal
I did get a scarf wrap thing in a brown print, its not too bad I guess. The hair deal is ticking me off! That is hard to admit but I guess I really like my long hair. I just have to suck it up and get a wig I guess. My insurane will cover it. None of the options are feeling right to me. Boo Hoo! -
Writer: I was reading about Avastin, looks really good! So glad you are getting it!
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I hope Avastin is good... SEs seem fairly minimal, and I feel like I should help with the study. We'll never really know if it was effective, because unlike with earlier Avastin studies, there's no tumor to watch shrink-- mine was removed, of course. So I'll just be part of a large group being tracked for recurrence rates, and it will be statistical averages, complicated by the fact that I'm also on TCH. But it's all good for moving medicine AWAY from chemo for earlier cancers! And based on how I'm feeling now, I'm all for that!
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Hi all! It's so good to see everyone's progress, and I hope everyone is feeling well tonight. I am very thankful for each of you and really like reading all of your updates. If you have to do something like this, it's nice to do it in such good company!
Today is the 4th day since my treatment, and I've had just a few side effects so far. Yesterday a sore throat appeared, and that was one symptom I was told to call the doctor about. After describing it, he said it sounded like it would be fine, just gargle with some salt water and call if it got worse. Fortunately, after several scoops of medicinal mint chocolate chip ice cream today, the sore throat finally went away.
I awoke again in the middle of the night, but this time had just a touch of nausea. I hadn't tried the Phenergan yet which had been prescribed, but I knew that in addition to taking away any nausea, it would also make me sleep. I took one pill around 5 this morning, and was out -- and I mean out -- practically slept all day! I haven't slept this much since my surgery in the beginning of January. I think I've finally caught up on that lost sleep, and I'm feeling a lot better.
The doctor told me to take Miralax if things didn't move as quickly as they should on the bathroom front. I waited one day too late and had a lot of uncomfortableness yesterday, but today was fine. I think a full dose might be too much now. I'm thinking of splitting one of the single dose packs into four doses, and taking the smaller dose each day just to keep things going. Sorry for such intimate information, but by now all modesty seems to be gone anyway!
The metallic taste I've had the past couple of days seems to be disappearing. I seem to be gravitating towards ice cream and enjoyed a milkshake today. Also loving the whole grain goldfish, probably for the salt since I had that sore throat. It's strange, because I'm usually a healthy eater loading the plate with beans, fruits and veggies, but now I'm just going with whatever feels right. I'm a big coffee drinker, but haven't wanted it the past couple of days. Tonight I had a big glass of Powerade with the electrolytes, and now I feel so much better, almost normal again.
Except for general tiredness and a light acne-like breakout on my face and neck, that's about it for side effects so far.
Mo, I'm sorry they keep changing your chemo start date. You must feel like a ping pong ball. I hope this next snowstorm doesn't cause any more problems for those of you dealing with it. I'm in Florida, where we've been only dealing with cooler temps and rain. I'm hoping the sun comes out tomorrow so I can get back in the backyard with my dogs. My cocker spaniels have been throwing themselves all over me the past month, as if they know I'm sick and need them more than ever. I call them my secret cancer fighting weapon.
Take care, all.
Cindy
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hi retrievermom and christine66, both of you are back to work. really really tough cookies both of you are!
the postings by all really made me calmer for my coming 1st chemo on next wed, thanks so much, so much!!!!
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CinD:
Where do I get the "medicinal" ice cream?
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Hello All,
I too am starting chemo at the end of the month. I'm stage 1, hormone positive, HER negative, no nodes (because I just had axillary nodes taken and they were thankfully CLEAR). I got my port put in two weeks ago and it went very smoothly, so for those who haven't had it done yet, it really was much less of an issue than the lumpectomy and it barely shows under the skin.
I am doing ACT but still haven't decided on whether to do Taxol for twelve weeks, every week or every two weeks for four treatments. Anyone else trying to decide which to choose? Any words of wisdom?
More than anything, the waiting time until the start is what is getting to me. I'm hoping once I get moving with the chemo, it won't feel so daunting....
Sally
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Welcome, Sally. I just started, with Taxotere (same as Taxol, I believe) in my mix, and my oncologist doesn't really give a choice. They follow the UCLA standard, which is Taxotere and Carboplatin every three weeks for six cycles (sometimes four, but rarely). Herceptin gets added in for us Her2-positive gals. I had been hoping for four cycles, but he felt strongly that six was optimum, and I couldn't argue. In for a penny, in for a pound, I guess.
I've now officially had enough of the steroids. Been up since 3:30 a.m., but took AmyIsStrong's advice and didn't fight it. Have a headache, too, which I'm guessing is steroids. But feeling fine otherwise, better than yesterday.
Colleen
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Write - since I haven't started my chemo yet (tomorrow, if the snow cooperates), I have a question about the steroids. Are they prescribed for the entire treatment or just for the days preceding and the days following? Mo
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mofend: The last time I went through chemo (7 yrs. ago, FEC), I was told to take Senekot-S the day before, day of, and day after chemo. This time around, I didn't take it because my onc wasn't sure if I'd need it and I'm one of those that doesn't take Tylenol unless it's absolutely necessary. I just don't like having drugs in my body. How ironic now to have serious drugs coursing through my veins. I realized the day after the 1st cycle that I did need to take it. I am also "regular" and don't have issues with this, unless I'm away from home. I now carry Senekot-S in my travel kit and take it the day before I travel and alternate days to help things along. You may want to try taking one pill at night with lots of water, if you start to have any problems.
The issue with diarrhea comes from the SE of Taxotere and Carboplatin. My onc warned me that I may have this SE 4-7 days after each cycle. He was right on target. It didn't help that I wasn't careful with my meals and ate some spicy foods. I thought my intestines were going to explode. I'd forgotten to be wary of spicy foods, extreme hot/cold food and beverages.
Hope the snow piling up in PA isn't too bad. Good luck tomorrow! We've got a few inches here, with (hopefully) many more to come.
writer: Glad to hear all is going as expected. CinD: I echo Magister's question ... where can I purchase the "medicinal" ice cream? Funny, but I still have the metallic taste in my mouth. I guess it could be from yesterday's Herceptin. I didn't ask about the taste. My mouth definitely feels weird, though. It's like I ate something that was too hot, and now the skin at the roof of my mouth is "rough". I've been alternating between the Biotene toothpaste and regular toothpaste. Maybe I should stick with the Biotene?
Welcome, Sally. With the choice between Taxotere and Taxol, my onc said the Taxol was easier to tolerate than the Taxotere, but wanted me to try the Taxotere first. He feels you should try and aim with both guns blazing to get maximum "bang for the buck." Not his words, but definitely his intent. You're right, once you start, it's one week closer to the end of your treatment. The waiting is the hardest part!
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Mofend, tell your doctors to make up their mind because I've been trying to update your start date here at the top of the forum on a DAILY basis (at least that seems to be how frequent it is). LOL. Jokes aside, I hope tomorrow (Thursday) is the day for you and everything goes smoothly. Get the waiting out of the way and get things started.
roso88, good luck today!
I'm going in for a check up this afternoon since it's been a week. I'll post once I get back from the doctor's.
Hugs to all !!
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Hi Mo,
The standard here appears to be oral steroids taken at home the day before chemo and the day after. On the day of they put some in the morning Benadryl drip, and I took an oral dose that night. Last night was my last dose, so I'm done with it. I'm sure that's why I was up from 3-5:30 a.m., and possibly why I've had a headache that Advil/Tylenol won't address since then. Although that's probably from one of the other big drugs. Did they prescribe steroids for you for your day before?
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I am starting tomorrow, 2/11, for my third time going thru chemo, my second Stage IV status. I was free of the cancer since 2003, but found another lump in my neck and PET scan showed spread to the celiac nodes in my abdomen---a strange place for breast cancer. I had a port placed about a month ago. Did not qualify for clinical trials, so going with Carbo & this time with Gabopentin instead of Taxol. Be glad to have a soulmate to converse and commisurate with.
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You might try going to a local class of "Look good, Feel better", where they not only show makeup and skin care, but they will show you scarf wraps that look great and are not hard to learn. I had trouble with the wig getting my head too warm, so could not use it. You can also try for a free wig from your local American Cancer Society thrift store, where they have donations from past cancer patients and you could try one for free, then get a better one if you like. Just some options from one who's been there! Good luck!
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Some beautiful scraves for special occassions or working out or just hanging out can be found at:
they are a little pricier but you don't have to fuss with them, just pop them on and away you go!
pegeyore - Sorry to hear that your cancer has returned. You will get through this! There may be no relation here to the cancer, but do you have celiacs disease, or were you ever tested for it?
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Hi - it's still snowing here! I'm freaking out because they've closed the major highways into the city and I'm just hoping they get them cleared before I have to leave in the moring for my 12:30 appointment. Keeping my fingers crossed. Writer - thanks for the info on the steroids. They had told me to start them the day before, so I took them this morning and another dose before bed. Right now I feel kind of wired from them. Probably won't be a good night's sleep. I should be a real gem in the car tomorrow on the way into town! I'm sure my husband will be glad when this is all over - just like me. Faithfulc - I'm really hoping that tomorrow is the day and I really appreciate you keeping it updated. I just can't help but laugh at the irony of this - I feel like I must have tortured cats in a former life or something in order to have all this happening - especially the record setting snows. By the way, I love cats - I have two and they're the best for quiet downtime
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Mo,
I sure hope you can get to chemo tomorrow. Me being on indefinite hold is so difficult--in fact I'm starting to think I won't even go through with it. Waiting is awful. Maybe a bobsled? Just get there and kick some butt!
I have another 10-14 days on IV antibiotics. Maybe I'll get lucky and this resistant staph infection will feel worse than chemo! I have been feverish, fatigued, terrible diarrhea, veins blown out, central line in, and my first stretch marks on the breast where the infection happened. (It blew up to 3x its normal size).
pegeyore, I'm so sorry your cancer has returned. This is an amazing group of women and I hope they/I can be of some help, just as I have been helped.
hugs to all.
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