Anyone In Phoenix, AZ Area?

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  • KinAZ
    KinAZ Member Posts: 180
    edited August 2009

    Hi Robin....there was some talk about meeting for coffee or maybe lunch...im sure elizabeth will be sending out an email soon....recon is going slooowww,  but by choice....still dropping some pounds before the big diep....looking at the first of the year....how are you?

    hope to see you soon, hugs, karen

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  • firstmate
    firstmate Member Posts: 410
    edited August 2009

    Karen- I am doing well.  Just trying to decide when to start the next step in this lengthy process.  Hope to see you all soon.

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  • jbau
    jbau Member Posts: 54
    edited February 2010

    I just found this thread and thought I'd jump in and see if anybody has any suggestions for me. I'm moving to Phoenix from GA in a few months and will need to find an oncologist and gynecologist and am looking for suggestions from you girls. One of the big anxieties about moving for me is finding a doctor. Anyone go to Mayo, or are there other good alternatives? I'm 3 years out, on tamoxifen. I'm also wondering how to deal with the heat as I suffer through hot flashes in my 50 degree bedroom and think of summers in the desert. I know, its a dry heat, but still! Thanks for any help you have. I'm also trying to decide on an area to live. Work will be in Scottsdale.

    Jennifer 

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  • firstmate
    firstmate Member Posts: 410
    edited February 2010

    Jennifer - Glad to hear that you will be moving to Phoenix.  We have a Phoenix based support group that we would love you to join.  I will make sure the group leader contacts you.  At least three of the gals in the Phoenix support group have had reconstruction surgery at Mayo.  I will also have them give you the names of their oncologists.  I was fortunate, and did not have node involvement, so do not have an oncologist. 

    Phoenix covers a large area and there are many nice areas to live.  It just depends on what is important to your life style.  I live very close to Scottsdale, so I will gladly connect up with you when you move.  And don't worry about the heat. Everyone has airconditioning and it is not hard to deal with.   Robin

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  • jbau
    jbau Member Posts: 54
    edited February 2010

    Thanks, Robin. I'll look forward to meeting you and hearing from more folks,

    Jennifer 

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  • swiftbird
    swiftbird Member Posts: 177
    edited February 2010

    Hi Everyone,

     New to the thread, unfortunately, and yet nice to know there's others closeby... just getting ready to start down this long hard road. Still waiting to get back some final info on HER2 and BRAC, but without going into too much detail yet, have a fairly atypical BC (yay I'm so special!) and atypical presentation.  

    Going on chemo first - taxol, carboplatin and maybe herceptin (yet to be determined) - then will re evaluate surgical options later.  I'm at the Mayo ~ I did first round of consults outside of the Mayo, which was extra scary because they didn't quite know what to do with me, although they tried to mask it well, they gave me grim and sketchy information because they hadn't ever dealt with it --  but as soon as I got to the Mayo, they have been all over it.  It was like night and day.  PET and other tests came back clear this week *whew*  

    Jennifer: my onc at Mayo is Dr Northfeld. He's great. 

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  • ebann
    ebann Member Posts: 3,026
    edited February 2010

    Hi Jennifer (swiftbird)

    We are a group that likes to get togethe once a month and just have fun. We do a variety of things. Last time we went painting pottery at As You Wish. In March we are going to just meet and go to lunch. Would love to have you join us. Was side of town do you live in? The group sizes vary. We have had 3 all together and the most we have had is 8. Which Mayo Clinic do you go to. I go to the one in Phx on the 101 off 56th St. I live about 20 min from the hospital and speciality building. Love it there. They treat you very well. Their hospital care is amazing. I see Dr. Casey he is my plastic surgeon. There are two other ladies that go there as well. If you are interesting in joining just pm me and I will send you some information. Wish you best. A journey like this needs support and friends. We are here for you.

    Blessings and Hugs, Elizabeth

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  • swastew
    swastew Member Posts: 123
    edited February 2010

    JBAU -

    I sent you a PM in regards to Dr. Referals - good luck - and welcome to Arizona!!

    LouAnn

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  • flyingdutchess
    flyingdutchess Member Posts: 142
    edited May 2010

    I live in Sun City West and would love to meet all of you.  Please put me on your list.

     Kat or Kathryn if you prefer

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  • ebann
    ebann Member Posts: 3,026
    edited May 2010

    Hi Kat,

    Welcome to our group. We do one thing a month together. We are a group that just loves to have fun and enjoy each others company. Got your PM as well. Planning an get together in June. Would be great to meet you. Many of the women live in Chandler/Gilbert area. So I usually go to that side of town. So we can car pool if you would like.

    Elizabeth

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  • flyingdutchess
    flyingdutchess Member Posts: 142
    edited May 2010

    Great only bad time in June is 5th thru 7th when we'll be out of state for our son's engagement party.

    Kat

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  • ebann
    ebann Member Posts: 3,026
    edited May 2010

    Well congradulation on your son's engagement. It will not be then. More like the end of June.

    Elizabeth

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  • jenn1975
    jenn1975 Member Posts: 103
    edited June 2010

    I am new to this thread. Please let me know when and where, i would love to get together

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  • suemed8749
    suemed8749 Member Posts: 1,151
    edited June 2010

    Hi Jenn and all others new to this thread. Our next get-together is going to be towards the end of June - I'll make sure our "fearless leader" Elizabeth gets all of the information to you. We're going for tea - sounds like fun.

    Welcome! Sue

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2010

    suemed8749- Hi!  My name is Kate and I'm also new to this thread.  I live in Mesa and would love to hear about some local get-togethers.  I'm having my exchange surgery June 29th so I probably can't make this month's but please keep me in mind for the next one.  Thanks so much!

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  • suemed8749
    suemed8749 Member Posts: 1,151
    edited June 2010

    Good luck on your exchange surgery, Kate. Hope it goes well. Who's your PS?

    Sue

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  • bambers88
    bambers88 Member Posts: 35
    edited June 2010

    How did I miss this thread for so long? If there is room for one more, I might be able to tag along. Tempe here..

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2010

    Thanks Sue!  I've actually been going down to Tucson for all of my surgeries.  I wanted to have a nipple-saving MX and couldn't find an experienced surgeon here in the valley.  I ended up going to the Cancer Center down there and my BS was Dr. Michelle Ley.  She was wonderful!  She is the one who referred me to my PS, Dr. Cheri Ong who I also really like.   They had done their residency together and had partnered up for these kinds of MX's before.  They made a great team and the procedure was very successful.  I will just be so glad to be done!

    Hope to meet you all sometime in the future! :) 

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  • firstmate
    firstmate Member Posts: 410
    edited June 2010

    Welcome to all the new members.  We are very glad to have you as part of our group ... but sorry for the reason.  I am looking forward to seeing you at at one of the monthly get-togethers.  (PS -- I am the one on the right - the other two are my daughters!)

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  • ebann
    ebann Member Posts: 3,026
    edited June 2010

    Hi there newcomers. Welcome to our thread. We look forward to meeting you, We do our best to get together and do something fun once a month, This June we are going to Gooseberries Tea Room www,gooseberriestearoom.com on June 19th at 1pm. We are doing Full Tea the cost is $25. I am making reservations this Saturday. If you would like to join us please let me know by 3:00pm, That is when I will be making the call. So far our head count is 5. The more the merrier, I will PM you and send you all a form with some information about yourselves, We are here to support you, Hope you can make it.

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  • flyingdutchess
    flyingdutchess Member Posts: 142
    edited June 2010

    Thanks Elizabeth (Ebann) for all the organizing you are doing.  I cant wait to meet everyone in person.

     Kat

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2010

    firstmate and ebann- Thanks for the welcome.  I am so disappointed that I am going to be out of town for this month's get-together!  I would really like to meet everyone and I love tea!   (Brew a big pot every morning!)  My husband is taking me away for me 50th (gasp!) birthday!  Our first get away since the big C.

    Hope you all have a great time.  I look forward to meeting you all sometime soon!

    Kate 

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  • ebann
    ebann Member Posts: 3,026
    edited June 2010

    Kat looking forward to meeting you as well. It is going to be a great time. The ladies are wonderful.

    Kate I think that is great that you are going away with your hubby, I know it felt good getting away with mine. Congrats on the Anniversary. What a special time. I hope you have a blessed time away. Tea is so wonderful, I am a big tea person, I love tea parties. You may get a chance to go sometime. We may do it again,  Anything is possible with us ladies.

    Elizabeth 

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  • suemed8749
    suemed8749 Member Posts: 1,151
    edited June 2010

    Thanks for posting the info for the newcomers, Elizabeth. I was going to email you and tell you about the interest on this thread.

    I'm looking forward to meeting you, Kat. And Kate - have a wonderful getaway! A few days before my exchange surgery, my husband surprised me with a short trip to Sedona, and it was wonderful.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2010

    suemed8749- I love Sedona!  It is my "happy place".  That is where my husband and I were married!  

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  • ebann
    ebann Member Posts: 3,026
    edited June 2010

    Kate33 Sedona is a beautiful place. My husband and I considered getting married there. We are starting to see and enjoy other parts of AZ now...mostly up north.

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  • flyingdutchess
    flyingdutchess Member Posts: 142
    edited June 2010

    Can we use a credit card or do we need to have cash ?  I didn't know if it will be on one bill or we can have separate ones.  Thanks for taking care of reservations and ordering the gluten free for me.  I am so excited that I can join you.  See you One PM on the 19th.

    Kat

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  • ebann
    ebann Member Posts: 3,026
    edited June 2010

    Kat we can use a credit card or cash. We are going to get separate checks. I did order gluten free for you. Looking forward to meeting you. Take care

    Blessings

    Elizabeth

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  • aimee4
    aimee4 Member Posts: 9
    edited June 2010

    Hello - I would like to join this group, but am unable to attend the meeting on the 19th. Any ideas on when the next meeting will be?

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  • ebann
    ebann Member Posts: 3,026
    edited June 2010

    Hi aimee4. Welcome to our group. We would love to have you. The next get together would probably be July 24th. Not sure what we are doing yet. Probably something simple. Like meeting for ice cream or just a nice lunch somewhere. I hope you are able to make it. It will be nice to meet you.

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