help with vit D levels

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  • rgiuff
    rgiuff Member Posts: 1,094
    edited February 2010

    Elimar, my Onc tested my level last January (2009), which I never knew and it was 28.  When I asked them to test it on a recent visit, they said "Oh, we already did that, it was normal."  After reading on here all about it, and starting supplements of 1000IU a day for a couple of months, I had my level tested by my regular doctor in January and it was up to 36.  My Onc never even discusses it unless I bring it up, and today told me, Oh, we can check it again in the summer when the sun gives you good levels.. 

    So, I feel like my Onc really isn't very on the ball when it comes to this.

    I heard at a recent natural health conference that Vit. D is also taken in at the ER receptors, that it is important for the libido, and that it prevents sexual aging.  Just wondering if anyone else has heard anything similar about it?

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited February 2010

    Rgiuff, Isn't it disheartening that some of us are having to lead our healthcare providers by the hand on Vitamin D testing?  Mine does not seem too interested since it does not come off his 'script pad. 

    Thanks all for the re-test info.  I think I might like to ask for a re-test in another 2-3 months, so I can see the difference the supplents made without having to figure the summer sun into the eauation.

    thenewme, Thank you for providing an answer to my other question (in map form!)  A picture is worth a thousand words.  There does not seem to be any "sunbelt" effect.  Hmmm...

  • ananda8
    ananda8 Member Posts: 2,755
    edited February 2010

     Perhaps I am reading the legend incorrectly but I see a much higher cancer rate in the northern and southern latitudes compared to the area around the equator. 

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited February 2010

    If the sunlight premise were correct, it would look more banded.  The map actually looks as though the nations hit hardest are the industrialized ones.  I'm not discounting Vit. D, I'm interpreting that there is something else going on, as well, that could be an equal or greater factor.

  • thenewme
    thenewme Member Posts: 1,611
    edited February 2010

    Hmmm... I was just looking for more information on this, as I agree with Elimar that it's not as banded as I thought it might be, and I found this article :

    "..Epidemiologist Frank C. Garland, of the Moores Cancer Center at UC San Diego, and his colleagues used data that recently became available from an international database of cancer incidence, called Globocan, developed by the World Health Organization's International Agency for Research on Cancer.

    They plotted countrywide incidence of breast cancer for each country against that country's latitude.

    Controlling for known variables such as meat, vegetable and alcohol intake, cigarette consumption, weight and fertility, they found that breast cancer incidence rose with increasing distance from the equator -- and thus with decreasing exposure to sunlight.

    Incidence rates were about 30 cases per 100,000 at the equator and reached 90 to 100 per 100,000 at latitudes that encompassed New Zealand, Uruguay, France, Iceland and the United States."

    Interesting!  Obviously not a direct or exclusive relationship, but maybe a clue. It's interesting on the map to look at the significant difference between, for example, Norway and Sweden/Finland, which are equidistant from the equator and would seem to have similar statistics but don't. 

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited February 2010

    Hey thenewme, that is interesting.  That is what us Vit. D supplementers were expecting to find, and now some data does bear it out.  Thanks for digging around to find it.  If your earlier map is correct, there are still some other factors at work.  For instance, if it were only the sunlight, mainland China should not be in the lowest group, Russia would be all pink, and so on.

    I'll continue to follow the progress reported on here and add my update when I get it in a few months.  I am being moderate in my supplementing.  I take two 1000 IU chewables of D3 (morning/night) and then get 800 IU more in the two Caltrate + D chewables (400 IU x 2.)   Like I said, I'm at 46 which is low but not super low and I would like to get above 60 at least.

  • ananda8
    ananda8 Member Posts: 2,755
    edited February 2010

    I agree that Vitamin D alone is not the only factor in cancer.  One can live in a sunny climate but as an office worker or mine worker, miss a great deal of vitamin D.  Industrialized nations have poorer air quality and water contamination with heavy metals.  Alcoholism rates would affect cancer rates.  Each of these cultural and environmental agents would have to be separately accounted for.

    In the mean time, I am taking 4000-4800 IU of D3 per day.Wink

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited February 2010

    Regarding fewer incidences of BC in equatorial countries -- I've read that those with darker skin (more melanin) do not absorb Vitamin D from sunlight as well as those with pale skin tones.  I'm not sure where Asian skin tones fit into the picture, however.

    I think we also have to consider economic, education and screening availability factors....... to name just 3!

  • Estepp
    Estepp Member Posts: 6,416
    edited February 2010

    Hey girls... my Bone Density did come back great! I also am in Menopause...( CHEMOPAUSE). My D levels will take longer.. I hope to hear soon.. OH how I hope the 5000IU daliy helped... I would be happy to see 50.....

    I will let you know.

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited February 2010

    It's difficult to draw conclusions from a map due to people originating from different climates with more or less melatonin in their skin so they absorb more or less less vitamin D. Areas with high rates of immigration such as The UK, America and Australia have dark skinned people living in cooler areas so they don't get enough D and light skinned people living in hotter climates so they get too much, so it all gets very dificult to assess.

    Then there's the problem of poorer countries not diagnosing cancer or not recording the correct cause of death due to a lack of doctors or facilities, and richer countries diagnosing early stages that would escape notice in poorer countries.  Let's hope some good studies are trying to make sense of all this.

    Edited to say, oops, I failed to notice page 13 before typing this which is a repeat of what others have said above.

  • thenewme
    thenewme Member Posts: 1,611
    edited February 2010

    LOL, the thing about skin color always makes me chuckle. I'm so fair skinned I'm practically fluorescent, so I should have vitamin D running out of my pores, LOL!  I guess I never have been one to follow the textbook case rules!

  • Mantra
    Mantra Member Posts: 968
    edited February 2010

    I went out today and bought 1000 IU of vitamin D3. Until I can get a chance to see my doctor, I'm only going to take one a day as recommended on the bottle. So the total I'm taking daily (including my multivitamins and calcium) is 2200 per day. I'm also spending a lot of time outdoors in the sunny (but not so hot!!) Florida . . . hoping that everything combined will increase my levels.

    Nan Thanks for converting and clearing up the Canadian/US testing differences. I've never been tested for vitamin D levels until a couple of months ago when I asked to be tested after reading about D on this website. Now I wonder if my vitamin D level has always been on the low side.

    Just curious - I know the weekly calcium pills I am taking, takes calcium from the blood into the bones. Do you think this affects our vitamin D levels?

  • makingway
    makingway Member Posts: 799
    edited February 2010

    Here is the info you all need concerning vitamin D3. To increase by a factor of 10 you need 1000 i.u. per day. If your blood serum level shows 26 ng/ml of Vitamin D3 and you want to increase it to 36 ng/ml you would take 1000 i.u./day. The norm was considered to be in the range 30-40 ng/ml. The study says the norm should be between 40-60 ng/ml. Recent research shows for cancer patients it should be higher. I think it was between 80-100 ng/ml

    Vitamin D Prevents Cancer: Is It True?

    http://www.youtube.com/watch?v=TQ-qekFoi-o 

  • Mantra
    Mantra Member Posts: 968
    edited February 2010

    Makingway - When you are saying that I need 1000 IU per day to increase 10, am I to assume that this is in addition to the D I taking prior to my being tested? So if I was already taking 1200 IU and my test results were 44, that means by taking this additional 1000 IU D3 pill, in theory it should move me up to 54? Is that correct? Does anyone know if sunshine can be calculated this way as well i.e. for every hour exposed to the sun = x amount of D?

    Edited to add - thanks so much for the youtube link. Really explains a lot and definitely worth watching.  

  • juli0212
    juli0212 Member Posts: 1,415
    edited February 2010

    I know that I was vitamin d deficient, but no clue how LONG I was deficient before my cancer diagnosis.  I also had hyper-para-thyroidism, which drained calcium from my bones into my blood.  Had tumor removed in 2002 and a parathyroid gland.  Have no idea if vitamin D levels were checked then.  I stay on 1000ius of D3 Vitamin D supplements daily now, and have not been deficient.  OH, and I also worked NIGHTS for 8 years...yes, that may play a part in the deficiency.  I think it DOES play a HUGE part in cancer, so I think everyone should take the supplements and get tested, but not go overboard in taking the D3.  Just my .02   :)

    ~juli

  • Makratz
    Makratz Member Posts: 12,678
    edited February 2010

    I just got my 2nd test results back.

    Last Nov I tested at 20 for vit D.

    Today I tested at 37.  I took D2 50,000 IU's once a week for 8 weeks and also 3000 IU's of D3 daily. 

    While I'm glad my level went up, I still want it to be higher.  Not sure if the D2 did anything or not.  I will stick with the D3 and up that level a bit until I get tested again.

    Let me know how you all did.

    Linda

  • Mantra
    Mantra Member Posts: 968
    edited February 2010

    Makraz - Good job!! From what I've read, D2 doesn't do a lot so the improvement is likely from the D3. The most interesting stat that I found was that just by being outside for 15 minute a day between 11 AM - 1PM (on a sunny day in the summer) with 40% of your body exposed, should provide enough vitamin D on its own. I also found the stat interesting that says our body expels 5000 IU of vitamin D each day.

    I just started taking D3 supplements yesterday so I'm going to ask to have another test done in three months.

  • makingway
    makingway Member Posts: 799
    edited February 2010
    Mantra- yep, you calculated that right. I don't know how to measure sunshine LOL but I've got to tell ya, I live 5 minutes from the beach and use to spend at least 3 days a week there walking around in my bikini, so, I got a lot of sun. I usually went after 2:00 pm though and I used sunscreen. I don't know if that contributed to my getting cancer or not. Might have been that along with some other factors I suspect-too much beer consumption (I never use to drink much beer, but I did the 2 years prior to diagnosis). I read hops are phytoestrogens. I also took the 'morning after pill' once, possibly twice. That's a big dose of hormones my body wasn't use to. I took Paxil for 5 years. We don't know the effects all these prescription drugs have on our bodies. Another thing I suspect contributed to my getting cancer was a major depression I suffered with when everything that could go wrong in my life did. Work, love, family, finances all went in the crapper. I was abnormally depressed. I now believe part of this depression was because my hormone levels were out of whack.
  • Estepp
    Estepp Member Posts: 6,416
    edited February 2010

    Ladies... after about three months of 5000IU of D3... I am up  points.. my D level is at 40. I know this is still low in our cancer world... so I will continue the 5000IU daily until March when I am retested again. My Onco and PCP will not give me the 50,000 since I am in the " norm".. which WE know I am not.

     I am happy that I went up 4 points in three months... at least the 5000 is working some

  • Estepp
    Estepp Member Posts: 6,416
    edited February 2010

    Question:

    Can tanning beds raise our D Levels like the sun? I do have people tan in my Salon for 3 minutes daily ( not tanning at all..) for serotonin levels and skin issues. If D levels can come up with UVA/UVB tanning rays.. I will tan those 3 minutes a day.

    Just something I was wondering as my two  friends.. who tan daily... D Levels are 70 and 85. ANd they just take a muti vit that has 400iu D3.

  • Mantra
    Mantra Member Posts: 968
    edited February 2010

    I did read that using a tanning bed will increase your D level. However, I don't recall if it mentioned how long you need to tan for. I used to tan before heading south for the winter in order to avoid getting a sunburn. This year I only tanned once and I think it was not a great idea given I have a tissue expander. It felt weird for several days afterwards and I decided not to go back.

  • bluewillow
    bluewillow Member Posts: 779
    edited November 2013


    Hi everyone,


    Here's my 2 cents worth:


    My doctor told me that tanning beds do not provide the Vitamin D we need safely. It has to do with the difference in the UVB and UVA rays. Here is one link below that explains it:


    http://www.womenshealthnetwork.com/nutrition/vitamind.aspx


    Ironically, until my breast cancer dx, I have always been a sun and tanning bed worshipper, thinking the world would end if I didn't have a nice tan! Years ago, I used tanning beds almost every day before the regulations limiting exposure times, and stayed as long as 30 minutes a day. I was brown as a gingerbread cookie, but I only hope and pray that I did not set myself up for all this breast cancer stuff. I try not to put the blame on tanning beds, but now I'm scared to death of them and would not dare get in one because I just don't feel they are safe, but that is just my own opinion!


    But, being the hypocrite I am, I did bask in the sun at the beach and at the lake last summer, got a nice tan, and enjoyed every minute of it. It just made me feel so much better, so I'm wondering if that good feeling was from my Vit D level being up (was almost 48), and why I feel rotten now at only 21 ???


    Everyone take care, be well, and stay warm!


    Edited by Mods to update link

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited February 2010

    I have been taking 5000 D3 daily since my chemo began. The result from the D test taken 3 weeks after end of chemo came back 66!



  • ICanDoThis
    ICanDoThis Member Posts: 1,473
    edited February 2010

    Bluewillow - my endocrinologist told me the opposite! She recommended going to a tanning salon. When we went to Hawaii, my D levels spiked from their average mid-20s to the high 40s in just one week.I live in Michigan, which is the third-greyest state (after Washington and Oregon - gotta love all that water), and everybody here has some level of D deficiency, seems like, so my levels were back down again in a month, but I really did feel better for a while there.

    So I stopped at the tanning salon by the house, and they said that they have a lot of doctor referrals. The way the owner explained it, they have three types of Bulb Setups - Phases I through III, and they vary in the amount of UVA/UVB they supply. They recommended that I go for Phase I - which is highes in UVA, but doesn't give you as much of a tan.  I see my endocrinologist in June; I'm really curious to see what the effect is going to be.

  • bluewillow
    bluewillow Member Posts: 779
    edited February 2010

    Hi Sue,

    I'm hoping your endo is the correct one here!  Smile  Did your doctor or the tanning salon staff tell you how long you should stay? 

    I'm curious to know what others have heard from their doctors.  The link I included is from a website that has lots of seemingly good women's health info, but they also want to sell something, so there may be better sources for info out there.  I'm really glad Estepp posted this question.

    I still plan to "lay out" some this summer, just because it makes me feel better and doesn't freak me out quite like the beds do... We have had an unusually high amount of snow and cloudy weather here in western NC, so I am curious also to see if my levels go up in the summer.

    Sue, keep us posted on how your levels are after the salon!

  • Mantra
    Mantra Member Posts: 968
    edited February 2010

    I was reading about vitamin D on the Health Canada gov't website and found it interesting that they are recommending the following: 

    How Much is Too Much?

    The Tolerable Upper Intake Level for anyone over one year of age is 2000 IU per day from all sources, including milk and supplements. Because of the potential adverse effects associated with taking too much vitamin D, it is recommended that this level not be exceeded.
    http://www.hc-sc.gc.ca/fn-an/nutrition/vitamin/vita-d-eng.php

  • Nan56143
    Nan56143 Member Posts: 349
    edited February 2010

    Dear Mantra,

    I think the article you provided is outdated already. Here is a link from The Life Extension foundation and based on their research, they are telling people to take 5000-8000 IU's daily.

     http://www.lef.org/magazine/mag2010/jan2010_Startling-Findings-About-Vitamin-D-Levels-in-Life-Extension-Members_01.htm

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited February 2010

    Dear Mantra, I agree with Nan...I read that even 50,000 per day of D3 is non toxic.

  • Estepp
    Estepp Member Posts: 6,416
    edited February 2010

    My ocno asked me this way..." are you "one of those" who sun screen.?... I said yes... after about 15 minutes... he then told me to get at least 30 minutes in the sun.. BEFORE I slop on the 50 proof....lol

    But I forgot to ask if tanning beds had the same benefits...

    I have doctors letter given to me ... for the OK for kids and others to tan at my salon... for the better of the patient.

    I look forward too others knowledge on this..

    LJ.

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited February 2010

    If 5000 D3 daily only raised your level by a handful of points, I'd suggest bumping the D3 - take 7000 or 8000 a day - rather than get D2. The value of D2 in boosting the overall level is suspect.



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