SEPTEMBER 2009 RADS

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  • ccbaby
    ccbaby Member Posts: 985
    edited February 2010

    Titan....I'm sorry, but the problem is that I wouldn't be able to afford to take off any more work...I missed 6 weeks in Dec-Jan and will miss another 2 weeks at least in March after my next surgery. I am just now catching up on my bills. Thanks SO much for asking, hopefully next time I can join you girls.  LOL @ your son and the cake!!

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  • Titan
    Titan Member Posts: 2,956
    edited February 2010

    Well..ladies...I'm thinking that maybe I just need to have my hair done where Christy lives!   If she can do Joan Rivers...maybe she can do ours..hope she doesn't charge too much!

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  • MTG
    MTG Member Posts: 646
    edited February 2010

    Ya know, I've been thinking about our get together and our hair styles.  From the photos, I think everyone one has super short hair. Even though I didn't do chemo, I'm worn short hair for years...I just feel sleaker with it. So... maybe we should just tell people that we're hair models !

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  • ccbaby
    ccbaby Member Posts: 985
    edited February 2010

    LOL Titan!!!  I just couldn't get over how easy to please and easy going Joan Rivers was! She was so much different than I expected!

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  • MTG
    MTG Member Posts: 646
    edited February 2010

    Christy - How cool. I just found the photo of you, your co-worker and Joan Rivers. Congrats !

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  • kawee
    kawee Member Posts: 324
    edited February 2010

    Okay, ladies.  I've just been staying in the background reading your posts, waiting to see where you guys decide to go, to see if I can join you, but where did I miss this thing about Joan Rivers and Christy?  WHAT is all that about?  And where is there a picture?  I'm so confused.  (Not unusal at all).

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  • Titan
    Titan Member Posts: 2,956
    edited February 2010

    It was in the National Inquirer..right up there with Tiger Woods and Michael Jackson's ghost!

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  • ccbaby
    ccbaby Member Posts: 985
    edited February 2010

    LOL Titan!!!  I will post the pic here too to make it easier to find, lol

    Joan Rivers, me and Jill" mce_src="

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  • kawee
    kawee Member Posts: 324
    edited February 2010

    Hey, cool, but Christy is cut off.   Did I understand you did her hair or something?  Did she come to Springfield.  I know, I know, my husband says if there's a question to ask, I'll ask it.  He thinks I should have been a lawyer.

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  • ccbaby
    ccbaby Member Posts: 985
    edited February 2010

    You will have to scroll to the right to see all of me...it loads big on this website. Yes, she came to our city for a comedy show. She was very raunchy in her show, but a sweetheart when we did her hair. Very easy to please and easy going and so was her personal assistant. She gave us each a piece of her jewelry and a nice tip!

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  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited February 2010

    Christy - you are beautiful and I love YOUR hair! Thanks so much for sharing this with us.

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  • Titan
    Titan Member Posts: 2,956
    edited February 2010

    I can't scroll to the right..did you post this on facebook?  Whatever..the right side of your head looks totally awesome...you are one beautful lady...Christy..you know that you are the STAR here..not Joan Rivers..

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  • kawee
    kawee Member Posts: 324
    edited February 2010

    I thought I was the only one.  Been trying to figure it out, but I can't scroll over either.  Anyway, we know you're beautiful, we see your other picture.  I just wanted to see your hair up close.  It looks really cute.

    Joan looks really tired.

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  • ccbaby
    ccbaby Member Posts: 985
    edited February 2010

    Thanks girs!! You are too kind!  Titan...It is my profile pic on my Facebook.

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  • MTG
    MTG Member Posts: 646
    edited February 2010

    Thought this Article was interesting: My Left Breast Put Fancy TSA Scanner to the Test,

    http://www.politicsdaily.com/2010/02/06/my-left-breast-put-fancy-tsa-scanner-to-the-test/?icid=main|htmlws-main-w|dl5|link3|http%3A%2F%2Fwww.politicsdaily.com%2F2010%2F02%2F06%2Fmy-left-breast-put-fancy-tsa-scanner-to-the-test%2F

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  • Titan
    Titan Member Posts: 2,956
    edited February 2010

    Hey M...read the article...how very, very amusing!   What freaked me out was the comments..about how the crazy countries are already working on hiding bombs in their boobs..how freaky..those of us that have implants may be placed under alot of scrutiny from now on..I also like the comment on the penile implant...do that many men really do penile implants..how funny..but I guess it is the same as a woman wanting their boobs bigger...oh well..I just want my boobs to be healthy..don't care how big or small they are...maybe men should think the same way..

    Ok..you guys don't have to respond to this..just need to let it out..but..man I was freaking today..not sure why...physically I feel GREAT...really, no aches or pains, no lumps or bumps that I can feel, no headaches..no nothing..I should be feeling..well...great..but I don't..maybe it is because my 3 month visit to the onc is coming up...I don't really want to go BACK THERE...I really think that the onc will say..see you in 3 months but I'm freaking anyway..is anyone else's next visit to the onc coming up?  Please tell me that you are freaking too....everyone talks about having scans done..that is the last thing I want to have done..here goes denial again...My body tells me that everything is good..but my brain...with that devil..keeps saying..it is coming back..I just hate that.......

    Betsy...where are you?   You are always the anchor here (whether you like it or not)...are you feeling better..I certainly hope so....

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  • echosalvaje
    echosalvaje Member Posts: 191
    edited February 2010

    Oh yeah Titan, I'm seeing my ONC on the 24th for labs and check-up. I truly have a visceral reaction when I pull up into the parking lot at the cancer center. I'm still pissed that he won't let me get my port removed yet. I know it's convenient for the blood draws, but it makes me feel like the treatment didn't work and they're just waiting for me to need chemo again.............

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  • kawee
    kawee Member Posts: 324
    edited February 2010

    I saw mine last Wednesday.  My heart pounded out of my chest and my blood pressure was 180/90.  I can't help it.  I'm scared to death to go there.  Next time (3 months) they're going to do blood work.  He's still talking about Herceptin, won't let it go.  All over the internet they say that with  tumors .5 cm or less the risks outweigh the benefits.  I told him that, but he won't listen.  Even my rad onco told me that.  Anyway, don't want to go there anymore.  What can we do?

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  • MTG
    MTG Member Posts: 646
    edited February 2010

    I saw my BS today; he was the one who found the BC so, for me, is even more important than the onc. Maybe cause it was a blizzard (in fact I would have rescheduled but my brother called me to tell me he was enroute whehter I liked it or not), but I forgot to be concerned. All went smoothly. I see my medonc in 2 weeks.

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  • Titan
    Titan Member Posts: 2,956
    edited February 2010

    Echo.,.I go the 23rd..so we are close...ok..well..we will just freak together for the next 2 weeks..I'll be there for you..know you will be there for me....I just dread going there again..last time they said we are cutting you loose for 3 months..I'm thinking whoopee!..Part of me wants to go..just to hear..see you in 3 months..the other part of me says stay the hell away from there..that is the bad place!  Oh well..how are minds work..I'm having the blood done too..anxious to see what my D level will be..been taking 5000 IU's per day..the onc said 2000 was fine but I didn't listen..oh well!  In Ohio we don't see alot of sun during the winter.

    That sucks they won't take out your port...I think you need that..mentally...can't they just put another on in sometime..if god forbid..you have to have chemo again...I think taking that port out would do you good...mentally....

    Kawee  180 over 90..you were freaking!  I'm going to try to think calm thoughts before I go but I'm sure my BP will be over the top too....did you guys take your DH's along...I don't think I will make him go with me but I don't know..I just may...last time I saw the BS I didn't take him and the BS said..hey you must be feeling pretty good..you don't have your guard dog with you!

    I really like my onc..I'm wondering if he will recognize me with my new hair and new weight!   He is always so calm and speaks so calm while I'm freaking out about things in his office.

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  • BetsyBuzz
    BetsyBuzz Member Posts: 592
    edited February 2010

    Hi all.. Christy love your hair and pic with Joan.

    I caught a nasty cold last week and have been trying to take care of myself. Not pushing on any front. I am feeling better tonight.

    I have my follow up appointment on the 25th (very close to my cancerversary date)...and yes Titan, I am worried about it. But maybe not for the reasons you are worried about. I'm mostly worried about having lab work done, the last time they blew my vein. My arm throbbed and looked disgusting for a week. Plus it hurt like hell. Mary, sometimes I really wish my port was still in... but I can completely understand why you want it out.

    Also my breast still swells daily, so depending on the day, it may be extremely tender and I don't want the doctor to touch me. So that is also making me very nervous about my upcoming appointment. The BS knew not to touch me when I visited her. Thankfully, the redness has gone away. Question: do you all still see the lines from rads? Mine are still very clear, even the boost area. I was just wondering if that is normal at this stage?

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  • BetsyBuzz
    BetsyBuzz Member Posts: 592
    edited February 2010

    Titan - good question about bringing my dh. I'm on the fence, although I'm leaning towards it because of my complications. I figure it's always good to have too sets of ears when talking to the doctor.

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  • ccbaby
    ccbaby Member Posts: 985
    edited February 2010

    Since I am still on Herceptin, I have seen the onc every 3 weeks since my mastectomy last year. I only have ONE more Herceptin left, YAY!! I had a mammo last week on my healthy breast and it showed no areas of concern. I also have an appt with the BS, A CT scan, echo and MUGA scan coming up. Then, my second stage for reconstruction surgery.  I haven't yet had the chance to stop and worry or think about my next visit to a doctor for something....I can't wait for the day to come where I will actually have a 3 month time period in between. But I can see why it is a nervous time when a doc appt comes up.

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  • kawee
    kawee Member Posts: 324
    edited February 2010

    My radiated breast is still sore as hell.  The rad onco, bs and onco ALL check my breasts.  I complained about it, and the onco said, "you might as well get used to it.  For the first year, we're gonna have our hands all over you."  I know I'm blessed to be able to get such good care, but good grief. 

     Anyone else besides me and Betsy still really sore and tender to the touch?

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  • echosalvaje
    echosalvaje Member Posts: 191
    edited February 2010

    Betsy, I still see the radiated area. They used a big rectangular bolus that went from my sternum to the axilla and that made the skin there burn off in a bubbly mess. I think it will be scarred really dark forever. The area that wasn't under the bolus ( the area up towards my collarbone ) never changed color. Oddly, last week when we were in Mexico, that part on my neck tanned in the shape of the radiated area. It was the first time since they did simulations that I could see that mapped out section. It's pretty weird.........

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  • peg119
    peg119 Member Posts: 281
    edited February 2010

    Kawee - my radiated breast only hurts once in awhile.  All the sudden I will get a pain in the nipple area.  I am unsure if it is from the two lumpectomies in that area or the radiation boost which were done right there.  Thankfully it doesn't happen often.  I have enough other aches and pains from taking T

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  • Titan
    Titan Member Posts: 2,956
    edited February 2010

    My DH only hears what he wants to..not sure about yours...

    Anyway, my radiated breast looks fine...maybe I have a stinging pain there once in a great while...what are you talking about when you say "lines"?...I guess I'm confused. 

    Peg..oh yes...the aches and pains from Taxol...aren't they lovely?  I don't understand how I can walk 2 miles and feel great than when I get home it hurts to get out of the car?  Weird stuff...or if I sit too long....I guess I just have to keep moving.

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  • BetsyBuzz
    BetsyBuzz Member Posts: 592
    edited February 2010

    Titan & Echo - I have a red/tan line across my chest where they focused the rads. Plus, sometimes I see the boost area delineated. In November, about a month after rads it started going away and l almost couldn't tell I had rads but then when the infection started the entire rads area turned bright red and was extremely painful. Everything swelled up like I had just finished rads. I have really improved on swelling and redness this past week. But the lines are still there and I was just curious...they are sort of look like tan lines and don't seem to be going away. I just wondered if this was normal?

    Peg - I get those occasional deep bone aches from T too. Mostly in my left wrist. It was sort of crazy, my left side was definitely hit harder on taxol than my right. Strange huh?

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  • Titan
    Titan Member Posts: 2,956
    edited February 2010

    Betsy..I'm whispering here...can you hear me?  No one has said that they have a tan line across their chest...I'm thinking that this is another SE to add to the BetsyB's book...no one has lines like you do....seriously..I'm not making fun...but man..you seem to have stuff that no one else does...I'm so happy that your swelling and redness has improved...Ok..now I'm not whispering...

    So..anyway...I'm still freaking about the onc visit..you all have helped but still freaking...I just want to hear...see you in 3 months...!   The thing is..physically I feel GREAT...no lines (sorry Betsy)..nothiing at all..then a mammogram in May...when will I freak about that?  Hopefully not too soon...sometimes I wonder if I should have just had them cut off...and been done with it..does anyone feel that way?  My SIL had hers cut off off..so..no more mammograms...but then on the other hand..what do you check?  Even with a masectomy there is still breast tissue..oh well..cancer sucks...

    Love you Betsy..just messing with you.....if you are going to be my roomie wherever we decide to go I had better be nice..just remember I like to party..at least until maybe 9:30 pm...if we go to LV though I may last longer because of the oxygen they pump into the casinos to keep us awake.

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  • ccbaby
    ccbaby Member Posts: 985
    edited February 2010

    Betsy...you are not alone...I still have a very noticeable tan line across the top of my chest that goes around my backside and under my breast. It is one big square of burnt, leathery looking skin. Except for my breast where they replaced my skin there with the skin from my hip for my flap surgery.  And the center of my chest where they radiated my inner mammary nodes is still red. I can't wear lower cut tops because of the redness. I use silvadene on it everyday. You guys would probably freak if you saw a pic of my chest and breast. It is not a pretty site. I'm hoping it looks better once summer gets here, so I can wear a bathing suit!

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