Zometa declined by regence - anyone appeal this?

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Anonymous
Anonymous Member Posts: 1,376
edited June 2014 in Stage I Breast Cancer

hi all - so Regence declined my oncologists preauthorization of zometa.  My onc. plans on giving me zometa twice a year.  I am (was?) stage 1, however as most of you know the recent studies show that zometa really reduces recurrences.

I am planning on appealing this but am curious if anyone has already done an appeal - and what that outcome was.

Also, how much is the infusion if I decide to pay for it out of pocket?

 thanks in advance

Comments

  • kimt
    kimt Member Posts: 40
    edited February 2010

    I'm very interested in this question too - I am considering adding this but my doc said they haven't found any insurance company that will pay for ometa for reducing chance of recurrence, except in one case where the patient already had osteopenia.  We did a bone density to see if they can justify it to insurance based on my bone scan.  if not,t hey think they can get them to cover fosomax or one of those, based on the fact that I had my ovaries out.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    kimt - I spoke with my onc. nurse today as my onc. appt is next Weds. which was to include the zometa infusion.  My Onc. has already sent in an appeal which included recent studies that obviously show the effectiveness.  They sent the appeal in late January and have not heard anything yet.  My bone density test is also on Wednesday - so same as you - I could be approved for osteopenia - although that infusion is just once a year.   I will let you know what happens when I get the appeal back.

    I am hoping I can have zometa in May.  My nurse quoted my $3,000 out of pocket.

  • helenkilber
    helenkilber Member Posts: 18
    edited February 2010

    I can check with my onc if he has had success in getting Regence to pay.  I'm in Oregon and Regence is here.  Where are you?  Let me know if you want me to check with him. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    Helen - I am in the Seattle area, formerly from Portland!  I would appreciate if you could ask your oncologist if they have had Zometa denied by Regence for stage 1, appealed and the outcome.

    Thanks!

  • nlortiz
    nlortiz Member Posts: 31
    edited February 2010
    hI,  i just had my expanders out Friday mooring and had silicone implants, put in. They are Alergan #20, smooth.  I havent seen anyof them, so don't know what's up. Took the rap off y am and put or sports bra for 1 or 2 weeks.  I also have drains in.  Im' sorry I've gottten off track here.  I am on a sutd y for Zomena, it will last abojut 2/12 years.  I had it once a month for six month, them once every three months.I have osterosis, (spelling), and they're trying to see if zomada will help that, but mainly they have supposedlyproven that it really helps breast cancer form entering the bones.  (dont know why this dumb computer went to bold, hope it doesn't bother you) They were hell the first 2 treatments, tho.  Surgery was a piece of cake.  Anyway, If you do get it, it's great  Ask about the study for it. Don't let them tell you there isn't one, cause I'm proof there is. Ims sorru this probable wont make any sence to you, I feel like I am a cloud somewhere and just need to get back to bed.  It is 4:45am, i just got up and couldn't sleep.  Bye  Norma
  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    Norma - thanks - I did look at the current clinical studies and it shows that they are closed - so no longer taking new patients.  I see my onc. on Weds. and will see what she says about that trial.

    I am happy that your exchange surgery went well!  

  • helenkilber
    helenkilber Member Posts: 18
    edited April 2010

    aprilgirl1,

    sorry to take so very long to get back to you.  i went into a yucky period with my chemo and just climbed back out of the hole.  i hope you have already been successful with your zometa appeal.  anyway, my onc was reluctant to share which insurance companies have approved it in oregon.  i think they just get all hung up on privacy even though this obviously isn't a personal privacy issue.  anyway, my $0.02 is that you should just tell regence that you know that regence oregon has approved zometa for use in a patient who does not have metastatic disease.  tell them you can't share the name for privacy reasons but they should check their records for patients treated at OHSU.  it's a gamble but maybe worth a try.  and of course you can tell them that ODS has approved it for multiple patients including me.  good luck! 

  • momto2angels
    momto2angels Member Posts: 289
    edited April 2010

    I was stage 3 and on the other side of chemo when I asked my oncologist for it.  She said the reports said it was to be given "during" active treatments but that it couldn't "hurt" to give it afterward.  I have Regence and didn't have a problem.  BUT.. maybe it was because I was at a different stage.

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