Port Pain and Taxol Q's....

Everyone reacts diff to Taxol. Are you saying you had no appetite? Girl-you have been through a trying 3 days that could be doing it!!!

I have had 2 infusions of taxol and well nothing. You should have an easy ride of it at this point.

Don't forget to request Zometa.

Yeah, I had weird pains, muscle twitches around my port for a few weeks afterward, too.  I'd call the surgeon's office if you are worried.  I had the RNs at my chemo check mine out closely the first month or so, just to ease my mind.

The only SE's I've had so far from Taxol are some tingling toes/fingers and pain in my joints/bones - nothing major though.  Did your onc give you the list of SE's to call about?  You can look at chemocare.com for a list of common SEs and when they warrant a call to the onc, too.

Hi Billynda,

I've had my port in for over 2 months now and it still feels weird at times.  I've had 4 rounds of A/C and my skin has dried a lot which I think is pulling on the port a bit.  The 3 prongs also look like 3 pimples that need to be popped---yuck.  Glad it's not summer

Can't help you on the Taxol, yet.  I am supposed to start Monday for 4 rounds of that if a) we don't get snowed in (in MD---predicting 12-24 inches tomorrow) and b) my mouth sores (SE from the A/C clear up.

We should keep tabs on how we are doing since we are starting about the same time!  You can PM me anytime if you'd like.  Are you doing the dose dense like me or the weekly protocol?

 Take care,

Sharon

My port caused me pain for a couple weeks felt like I was being stabbed every time I moved my arm.

I did 12 weeks of weekly Taxol and had issues with diarrhea for thew first couple of days after treatment. It did get worse and by about week 6 and found it didn't stop after a couple of days and I was having issues overnight as well. My Onc gave me some tablets which slowed things down and made the last few weeks bearable, overall I found Taxol OK, much easier than AC.

LL

My port was put in during surgery, but I would felt twinges for months afterwards - then I realized one day I had forgotten it was in.  

As for Taxol and appetite. The day of my Taxol infusion - I would have not appetite starting as soon as the infusion started.  I wasn't nauseated, sick or even queasy, just wasn't hungry.  Although my taste buds were altered from the time I started AC through the end of Taxol - the two days following my Taxol infusion everything tasted much worse than the normal weird taste bud thing.  Bathroom thing.......... I did go to the restroom a lot, but I also drank a lot of water and they gave me Saline drips during the infusion too.