IP6 as a treatment for breast cancer
Comments
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We ordered some capsules that are a mixture of IP6 with minerals and inositol, and also some 400g of powdered IP6 (which is much cheaper per gram). Hopefully it is not hard on Bev's stomach or cause any side effects otherwise.
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Timothy, there are a number of brands some of which contain soy in case this is a concen for you. I take 2 heaping scoops of IP6 & Inositol per day with water which my NatDoc advised me will be ad finitum. I choose the powder to avoid taking more pills and I also take it at least 45 minutes to an hour before or after meals or taking other supplements. I have used it for 7 months with no adverse effects that I know of. Taking the first dose in the morning and allowing the time to pass while prepaing for the day woks well for me then I take the last dose right before bed. No stomach upsets so far.
Adding another supp to the regimen can be trying so I wish you the best.
Here is another link to check out: http://www.ip6gold.com/product_info.html
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This is an anecdote about IP6. Maybe it can give a little encouragement, or maybe you might think I'm just flaky! 6 years ago my dear cat was diagnosed with a cancer called meningioma, a tumor which presses on the brain, for which there is no cure and is apparently considered fatal. He got to the point of having double vision, walking in incessant circles to the left, unable to judge distances and depths, and finally a seizure where the vert stayed all night with him, so close was he to be having to be euthanized. He survived and she treated him appropriately with steroids to control inflammation.
Meanwhile I found a cat health board on the internet, and someone told me they had cured their cat's meningioma using IP6. So I found some for cats, and, lo & behold, my cat did not die of meningioma. My vet was impressed enough to start recommending it to other clients whose pets had meningioma. But I did not follow up on those stories or any success there. My cat did live for another 3 years, no problems with double vision or going round in circles or any more seizures, but finally died of another cancer -lung. I'm sorry to have had to add this ending. I don't know what it says about IP6 and different forms of cancer.
I'd forgotten about IP6, and might consider some now myself, just having stumbled across this discussion after not having looked here for a long time. Best of luck to all those with open minds.
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WOW! Thank you, souad. This is sooooo encouraging!
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This is exciting Souad. Now I'm wondering what vets know as they have the ability to experiment within ethical boundaries where it would be considered unethical for Drs or oncologists to do the same with humans in case we all abandoned their "Standard of Care".
IP6 sounds promising but it's frustrating to see how long it's had minor studies done without anyone doing human research. We CAM experimenters need to find a way to form some sort of Central International Study Group similar to the long term nurses study group where they have the numbers to get meaningful statistical results. Although such data would not initially be sufficient to get a response from orthodox medicine, as trends started to show it would snowball with more people taking the chance of adding foods and supplements to their treatment and therefore bigger CAM statistics to draw from. The people doing the CAM study would be open about the ongoing results and welcome new people to experiment and join in the study, unlike the orthodox view that "no one should try this till there is formal proof". We're talking about food and supplements here, not dangerous drugs. We're talking about people who, once they are past a certain stage can only look forward to worsening pain, disability and death under the current medical treatments. We're talking about children losing parents because a simple cure may be set out in studies done long ago that no one wants to follow up as there's no profit in it or it might hurt someone's ego if it really works. What is there to lose?
I might start a thread in this vein as it's the central problem facing all of us as we try to research and come up against brick walls time after time. This is our lives at stake and it makes me mad that not enough effort is made to follow up promising leads that could save millions of human lives.
It's gone 1am here in Eastern Australia and I've probably lost the plot again due to tiredness. I've been known to get grandiose ideas when I'm this tired.
OK, I'm heading for bed now.
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SheilaEchidna: So you've been known to get grandiose ideas when you are tired? This one is not grandiose: it is a very real, very down-to-earth, very necessary concept. Of course, it will take a lot of brainstorming bringing it to reality. But it needs to be done.
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I just had to comment on this thread. My friend's son (age 39) was dx with lung cancer in October. He had 3 chemo treatments, and not only did the chemo not shrink the tumors, they actually grew larger.He is now scheduled for surgery the middle of February. (The onc recommended surgery first...the surgeon wanted to wait)
Life Extension published an article in the December issue of their magazine titled..."Preventing Surgery-Induced-Cancer Metastasis". Here is the link. I started a thread about this article in December.
http://www.lef.org/magazine/mag2009/dec2009_Preventing-Surgery-Induced-Cancer-Metastasis_01.htm
Also here is a list of all the supplements/pharmaceutical meds that one is to take before surgery and after surgery. IP6 is one that is recommended before surgery.
75Note: these products are to be used for cancer recovery and preparation and not to prevent, cure or treat cancer.
Begin taking the following supplements at least 5 days prior to surgery:
- Glutamine: 3000 mg per day away from food
- IP6 (inositol hexaphosphate): 1-3 grams per day
- AHCC (active hexose correlated compound): 3000 mg per day
- Lactoferrin: 300-900 mg per day
- PSK (protein bound polysaccharide K (Coriolus): 3000 mg per day
- Cimetidine: 800 mg before bedtime
- Modified Citrus Pectin: 14-30 grams per day away from food
- Soy isoflavones (genistein): 100-200 mg per day with food
- Silibinin (component of milk thistle): 500-600 mg per day
- Chrysin: 1000 mg per day
- Green Tea: 650-1000 mg of EGCG per day
- Curcumin: BCM-95® extract: 400 mg per day with food OR 2500 mg per day of a regular curcumin supplement
Please Note: Different curcumin formulations will differ in their absorption and bioavailability. These differences in absorption can affect the suggested doses. For example, one type of curcumin - called BCM-95 - has studies documenting that 400 mg of BCM-95 curcumin compound can provide curcumin blood levels equal to ingesting 2,500-2,800 mg of regular curcumin supplements.
- Resveratrol: 25mg before surgery; increase to 100-250mg 2 weeks after surgery
- Quercetin: 500-1000 mg per day
Avoid the following supplements for 2 weeks prior to surgery and begin taking 2 weeks after surgery:
- Garlic: 1200-2400 mg per day with food
- Fish oil: 4000 mg per day with food
- Vitamin E: 400-800iu per day with food
- Feverfew: 250 mg per day
Prescription Drugs:
Pharmaceuticals prescribed prior to surgery depend on the status of the individual cancer patient. Patients with low white blood count are typically treated with granulocyte colony-stimulating growth (GCF) factors such as Neupogen® (300-480 micrograms per day) or Neulasta® (6 mg) which lasts 3 weeks. Other pharmaceutical compounds which have shown benefits for cancer patients undergoing surgery are interferon alpha and Interleukin 2.
- Neupogen®: 300-480 micrograms per day OR Neulasta®: 6 mg, which lasts 3 weeks
- Interferon alpha: 0.5 to 3 million IU
- Interleukin 2: 1 to 6 million
I want everyone to read this article, and if the surgeons look at you like you have 3 heads when you mention all that is recommended, then give them a copy of this article, and tell them that their peers are the ones recommending these procedures.
I re-read the article for my friend just today, and sent her an email with everything that her son should be doing now, so when I saw this thread about IP6, it rang a bell!!
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The Life Extension article is very interesting. I wonder what this means for lumpectomy vs mastectomy????? I wonder if the surgical proximity to the tumor makes a difference.
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I started this thread because the mother of a dear friend of mine had breast cancer and a double masectomy. I hesitate to post this (my last post) but a few days after the operation, she came down with an infection and for some reason oxygen was shut off to her bowels and her kidneys shut down. She had a five hour emergency operation where 1/3 of her bowels were removed and seemed to be doing ok for a couple of days, but she developed internal bleeding and her blood pressure dropped. A couple of days ago the family had her disconnected from the ventilator and she is with god now. I thought this was routine surgery! Anyway, I have no interest in breast cancer therapies anymore. Thanks for all the good information, however. Wish we could have put it to use.
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Zara, I'm so sorry to hear that outcome. That is unimaginable.
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Zara79-
What an absolutely heartbreaking scenario. I'm so sorry for you and your friend's family.
Beth
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I am so sorry to hear of this horrible surgical complication. What a terrible, terrible disaster. Unfortunately, I know of two other recent examples of kidney failure and near death long term convalescenses following simple surgeries. If their bowels had been affected, they both would have probably not been able to make it back either.
I am so, so sorry for your friend and her family.
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I am so sorry to hear of the complications and loss of your dear friend. Unfortunately, any surgery can result in complications and/or death. My husband had an appendectomy that resulted in a similar situation,however after 45 days in the hospital he did recover.
When we are under anesthesia, basically all the systems are "shut down" and most usually they do start back up again.
I am so sorry that you feel overwhelmed at this time, but certainly can understand. Perhaps it will be a temporary trial that you will recover from and feel encouraged to continue living your life to it's fullest potential. A dear friend of mine reminded me that none of us are guaranteed anything more than this moment of this day! I am grateful for every moment of my life and every thing I experience as well as every person I encounter.
My prayers are with you. May you find some peace in your heart and mind.
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Bump for Tonya (nine_rugrats). For more clinical information on IP6, remember to read: http://carcin.oxfordjournals.org/cgi/content/full/carcin;25/11/2115 and http://her2support.org/vbulletin/showthread.php?p=229181
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thanks chillipadi. I started taking it friday. The lady who owns the health food store i (used to) work at told me when her husband had colon cancer she put him on it. He was full of cancer then after chemo was cancer free...but it didnt start working til she added the ip6, even the onc pulled her aside to see what he was taking. Then a few months after that he stopped taking it and within a month the cancer came back, then he died...she said he just gave up. She also put him on pawpaw. She said its for after chemo, cause u cant take it while on chemo. She said she knows had he not stop taking everything he would of survived.
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Any info on this being ok for ER+ breast cancer.
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